To thouse who didnt used to do treatments, but do them now

Diane

New member
After responding to Sonia's thread about doing treatments on time , i started to wonder if anyone else who didnt do treatments in their earlier years , and then started to............ find they HAVE to do them now whereas they didnt before. I never did any type of treatments for my lungs till i got to be in my 30's. I started using Pulmozyme regularly and i felt great . Then after my embolizations 4 years ago, i decided to try using the vest on a regular basis since my pft's had dropped, and i wanted to see if that would help. In the past i never had a problem bringing stuff up all on my own. Once i tried the vest i noticed i coughed a bit less, but didnt notice a difference in the amount of what i brought up. I decided to keep using the vest since i liked the feeling of not having to cough so much. Well, its been 4 years now and i find i not only want to keep using the vest, but i <b>HAVE</b> to keep using it. On the days i dont use it, i feel like crap in my lungs. It's like my lungs have come to depend on the vest like a drug addiction and now they cant seem to do anything on their own. I liked it better when i chose to do the vest but now it seems like its one of those deals, once you try it, you HAVE to keep doing it or pay the consequences. Anyone else have this same experience?
 

Diane

New member
After responding to Sonia's thread about doing treatments on time , i started to wonder if anyone else who didnt do treatments in their earlier years , and then started to............ find they HAVE to do them now whereas they didnt before. I never did any type of treatments for my lungs till i got to be in my 30's. I started using Pulmozyme regularly and i felt great . Then after my embolizations 4 years ago, i decided to try using the vest on a regular basis since my pft's had dropped, and i wanted to see if that would help. In the past i never had a problem bringing stuff up all on my own. Once i tried the vest i noticed i coughed a bit less, but didnt notice a difference in the amount of what i brought up. I decided to keep using the vest since i liked the feeling of not having to cough so much. Well, its been 4 years now and i find i not only want to keep using the vest, but i <b>HAVE</b> to keep using it. On the days i dont use it, i feel like crap in my lungs. It's like my lungs have come to depend on the vest like a drug addiction and now they cant seem to do anything on their own. I liked it better when i chose to do the vest but now it seems like its one of those deals, once you try it, you HAVE to keep doing it or pay the consequences. Anyone else have this same experience?
 

Diane

New member
After responding to Sonia's thread about doing treatments on time , i started to wonder if anyone else who didnt do treatments in their earlier years , and then started to............ find they HAVE to do them now whereas they didnt before. I never did any type of treatments for my lungs till i got to be in my 30's. I started using Pulmozyme regularly and i felt great . Then after my embolizations 4 years ago, i decided to try using the vest on a regular basis since my pft's had dropped, and i wanted to see if that would help. In the past i never had a problem bringing stuff up all on my own. Once i tried the vest i noticed i coughed a bit less, but didnt notice a difference in the amount of what i brought up. I decided to keep using the vest since i liked the feeling of not having to cough so much. Well, its been 4 years now and i find i not only want to keep using the vest, but i <b>HAVE</b> to keep using it. On the days i dont use it, i feel like crap in my lungs. It's like my lungs have come to depend on the vest like a drug addiction and now they cant seem to do anything on their own. I liked it better when i chose to do the vest but now it seems like its one of those deals, once you try it, you HAVE to keep doing it or pay the consequences. Anyone else have this same experience?
 

Chaggie

New member
I just started using pilmozyme full time as well, along with albuterol. I'm not sure if I am getting anything out of it but I deffinately feel the albuterol. I also started the vest and I do get more junk up, but again don't notice a difference in breathing or feel worse on days I don't do it. Although I have started taking NAC and since starting it I do notice a big difference in my sputum, less gunky and thinner, and alot easier to cough stuff up.
 

Chaggie

New member
I just started using pilmozyme full time as well, along with albuterol. I'm not sure if I am getting anything out of it but I deffinately feel the albuterol. I also started the vest and I do get more junk up, but again don't notice a difference in breathing or feel worse on days I don't do it. Although I have started taking NAC and since starting it I do notice a big difference in my sputum, less gunky and thinner, and alot easier to cough stuff up.
 

Chaggie

New member
I just started using pilmozyme full time as well, along with albuterol. I'm not sure if I am getting anything out of it but I deffinately feel the albuterol. I also started the vest and I do get more junk up, but again don't notice a difference in breathing or feel worse on days I don't do it. Although I have started taking NAC and since starting it I do notice a big difference in my sputum, less gunky and thinner, and alot easier to cough stuff up.
 

LisaV

New member
I doubt that it is like an addiction. I'm sorry to say it but I think what you are noticing is the progression of your lung disease. Thankfully, tho, even as things progress the vest and CPT will loosen up mucus that you just can't get with a cough at this point.
 

LisaV

New member
I doubt that it is like an addiction. I'm sorry to say it but I think what you are noticing is the progression of your lung disease. Thankfully, tho, even as things progress the vest and CPT will loosen up mucus that you just can't get with a cough at this point.
 

LisaV

New member
I doubt that it is like an addiction. I'm sorry to say it but I think what you are noticing is the progression of your lung disease. Thankfully, tho, even as things progress the vest and CPT will loosen up mucus that you just can't get with a cough at this point.
 

thelizardqueen

New member
I rarely if ever did treatments up until my late teens. After I hit about 21, I started having to take inhalers and nebs on a regular basis. I would always feel good, and the odd time I missed a treatment, I still felt fine. Now a days, since about last January, I find I have to do treatments on time on a regular basis, or I feel it within a couple of hours.
 

thelizardqueen

New member
I rarely if ever did treatments up until my late teens. After I hit about 21, I started having to take inhalers and nebs on a regular basis. I would always feel good, and the odd time I missed a treatment, I still felt fine. Now a days, since about last January, I find I have to do treatments on time on a regular basis, or I feel it within a couple of hours.
 

thelizardqueen

New member
I rarely if ever did treatments up until my late teens. After I hit about 21, I started having to take inhalers and nebs on a regular basis. I would always feel good, and the odd time I missed a treatment, I still felt fine. Now a days, since about last January, I find I have to do treatments on time on a regular basis, or I feel it within a couple of hours.
 

sarabeth87

New member
When I was younger I usually missed just about all of my treatments during our summer vacation from school, which was about 2 1/2 months. I would probably take 10 or 11 the whole time and I didn't really feel any different. Then about a year ago I started taking my treatments right, so now I can miss them one time and I feel really crappy and congested.
 

sarabeth87

New member
When I was younger I usually missed just about all of my treatments during our summer vacation from school, which was about 2 1/2 months. I would probably take 10 or 11 the whole time and I didn't really feel any different. Then about a year ago I started taking my treatments right, so now I can miss them one time and I feel really crappy and congested.
 

sarabeth87

New member
When I was younger I usually missed just about all of my treatments during our summer vacation from school, which was about 2 1/2 months. I would probably take 10 or 11 the whole time and I didn't really feel any different. Then about a year ago I started taking my treatments right, so now I can miss them one time and I feel really crappy and congested.
 

Scarlett81

New member
I used to miss alot of treatments as a teen. Then after I got married, my life kinda 'flashed before my eyes', childhood abuse and stuff, and I got deeply depressed. I didn't do regular treatments for 2 years probably.
Getting over the depression and just wanting to have a normal life motivated me to start taking care of myself. I didn't have a low pft scare or anything like that. Just a scare that my life was going nowhere and I'd never be able to do things if I didn't fight.
 

Scarlett81

New member
I used to miss alot of treatments as a teen. Then after I got married, my life kinda 'flashed before my eyes', childhood abuse and stuff, and I got deeply depressed. I didn't do regular treatments for 2 years probably.
Getting over the depression and just wanting to have a normal life motivated me to start taking care of myself. I didn't have a low pft scare or anything like that. Just a scare that my life was going nowhere and I'd never be able to do things if I didn't fight.
 

Scarlett81

New member
I used to miss alot of treatments as a teen. Then after I got married, my life kinda 'flashed before my eyes', childhood abuse and stuff, and I got deeply depressed. I didn't do regular treatments for 2 years probably.
Getting over the depression and just wanting to have a normal life motivated me to start taking care of myself. I didn't have a low pft scare or anything like that. Just a scare that my life was going nowhere and I'd never be able to do things if I didn't fight.
 

Landy

New member
I didn't start to do nebulized treatments until my late 20's and I can only seem to tolerate Xopenex & Pulmicort. Yes, I can tell if I've skipped one of my treatments, especially if it's real humid out or something. This summer when it was 100+ out with high humidity I had to throw in an extra Xopenex treatment every day just to open things up.
 

Landy

New member
I didn't start to do nebulized treatments until my late 20's and I can only seem to tolerate Xopenex & Pulmicort. Yes, I can tell if I've skipped one of my treatments, especially if it's real humid out or something. This summer when it was 100+ out with high humidity I had to throw in an extra Xopenex treatment every day just to open things up.
 
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