TOBI...

A

Aspiemom

Guest
I always have the same problem, so I'd like to hear a solution, too! More than actually losing my voice I mind the exhaustion I feel during that time. I think it is because I have to strain so much to be heard since you can hardly even hear a whisper. It just wears me out!

I heard an estimate at Johns Hopkins, it's either 2% or 7% of us have this side effect.<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
A

Aspiemom

Guest
I always have the same problem, so I'd like to hear a solution, too! More than actually losing my voice I mind the exhaustion I feel during that time. I think it is because I have to strain so much to be heard since you can hardly even hear a whisper. It just wears me out!

I heard an estimate at Johns Hopkins, it's either 2% or 7% of us have this side effect.<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
A

Aspiemom

Guest
I always have the same problem, so I'd like to hear a solution, too! More than actually losing my voice I mind the exhaustion I feel during that time. I think it is because I have to strain so much to be heard since you can hardly even hear a whisper. It just wears me out!

I heard an estimate at Johns Hopkins, it's either 2% or 7% of us have this side effect.<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
A

Aspiemom

Guest
I always have the same problem, so I'd like to hear a solution, too! More than actually losing my voice I mind the exhaustion I feel during that time. I think it is because I have to strain so much to be heard since you can hardly even hear a whisper. It just wears me out!

I heard an estimate at Johns Hopkins, it's either 2% or 7% of us have this side effect.<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
A

Aspiemom

Guest
I always have the same problem, so I'd like to hear a solution, too! More than actually losing my voice I mind the exhaustion I feel during that time. I think it is because I have to strain so much to be heard since you can hardly even hear a whisper. It just wears me out!

I heard an estimate at Johns Hopkins, it's either 2% or 7% of us have this side effect.<img src="i/expressions/face-icon-small-frown.gif" border="0">
 
A

alegris

Guest
I always lose my voice too!! I often get a sore throat as well. A little trick I do during treatments - put your tongue on the roof of your mouth when inhaling (so the vapour is hitting the back of your tongue when you breathe in instead of the back of your throat). I find this helps the most. I usually still sound hoarse throughout the month, but at least I don't have complete voice loss! At first, it's really hard to do because your tongue tends to cramp up, but I've gotten used to it. And I'm sure drinking plenty of liquids to keep the throat hydrated helps too. The joys of CF!

Adrienne - 25/f/CF
 
A

alegris

Guest
I always lose my voice too!! I often get a sore throat as well. A little trick I do during treatments - put your tongue on the roof of your mouth when inhaling (so the vapour is hitting the back of your tongue when you breathe in instead of the back of your throat). I find this helps the most. I usually still sound hoarse throughout the month, but at least I don't have complete voice loss! At first, it's really hard to do because your tongue tends to cramp up, but I've gotten used to it. And I'm sure drinking plenty of liquids to keep the throat hydrated helps too. The joys of CF!

Adrienne - 25/f/CF
 
A

alegris

Guest
I always lose my voice too!! I often get a sore throat as well. A little trick I do during treatments - put your tongue on the roof of your mouth when inhaling (so the vapour is hitting the back of your tongue when you breathe in instead of the back of your throat). I find this helps the most. I usually still sound hoarse throughout the month, but at least I don't have complete voice loss! At first, it's really hard to do because your tongue tends to cramp up, but I've gotten used to it. And I'm sure drinking plenty of liquids to keep the throat hydrated helps too. The joys of CF!

Adrienne - 25/f/CF
 
A

alegris

Guest
I always lose my voice too!! I often get a sore throat as well. A little trick I do during treatments - put your tongue on the roof of your mouth when inhaling (so the vapour is hitting the back of your tongue when you breathe in instead of the back of your throat). I find this helps the most. I usually still sound hoarse throughout the month, but at least I don't have complete voice loss! At first, it's really hard to do because your tongue tends to cramp up, but I've gotten used to it. And I'm sure drinking plenty of liquids to keep the throat hydrated helps too. The joys of CF!

Adrienne - 25/f/CF
 
A

alegris

Guest
I always lose my voice too!! I often get a sore throat as well. A little trick I do during treatments - put your tongue on the roof of your mouth when inhaling (so the vapour is hitting the back of your tongue when you breathe in instead of the back of your throat). I find this helps the most. I usually still sound hoarse throughout the month, but at least I don't have complete voice loss! At first, it's really hard to do because your tongue tends to cramp up, but I've gotten used to it. And I'm sure drinking plenty of liquids to keep the throat hydrated helps too. The joys of CF!

Adrienne - 25/f/CF
 
A

Aspiemom

Guest
Do you rinse your mouth immediately after the Tobi treatment?
 
A

Aspiemom

Guest
Do you rinse your mouth immediately after the Tobi treatment?
 
A

Aspiemom

Guest
Do you rinse your mouth immediately after the Tobi treatment?
 
A

Aspiemom

Guest
Do you rinse your mouth immediately after the Tobi treatment?
 
A

Aspiemom

Guest
Do you rinse your mouth immediately after the Tobi treatment?
 
J

Jem

New member
I have only been doing Tobi (yes Tobi not tobramycin) every other month for the last 6 months on the eflow. I have not had any problems with losing my voice. Because it is the eflow less medicine is required...maybe that makes a difference.
 
J

Jem

New member
I have only been doing Tobi (yes Tobi not tobramycin) every other month for the last 6 months on the eflow. I have not had any problems with losing my voice. Because it is the eflow less medicine is required...maybe that makes a difference.
 
J

Jem

New member
I have only been doing Tobi (yes Tobi not tobramycin) every other month for the last 6 months on the eflow. I have not had any problems with losing my voice. Because it is the eflow less medicine is required...maybe that makes a difference.
 
J

Jem

New member
I have only been doing Tobi (yes Tobi not tobramycin) every other month for the last 6 months on the eflow. I have not had any problems with losing my voice. Because it is the eflow less medicine is required...maybe that makes a difference.
 
J

Jem

New member
I have only been doing Tobi (yes Tobi not tobramycin) every other month for the last 6 months on the eflow. I have not had any problems with losing my voice. Because it is the eflow less medicine is required...maybe that makes a difference.
 
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