Toddler and g-tube

[Olymama]

We've reached the point where unless something short of a miracle happens and my son gains adequate weight in the next month he will be getting a g-tube. My son is 2 1/2, whose been pretty healthy and active. He's plateaued on weight gain and currently has been low energy and appetite-very frustrating.

I was hoping to get feed back from others whose little ones have gone through this and what your experience is/was like. I'm of coarse very anxious, a little scared and sad. But I can see that this may be necessary, trying to think of the positive side.

 

[Olymama]

We've reached the point where unless something short of a miracle happens and my son gains adequate weight in the next month he will be getting a g-tube. My son is 2 1/2, whose been pretty healthy and active. He's plateaued on weight gain and currently has been low energy and appetite-very frustrating.

I was hoping to get feed back from others whose little ones have gone through this and what your experience is/was like. I'm of coarse very anxious, a little scared and sad. But I can see that this may be necessary, trying to think of the positive side.

 

[Olymama]

We've reached the point where unless something short of a miracle happens and my son gains adequate weight in the next month he will be getting a g-tube. My son is 2 1/2, whose been pretty healthy and active. He's plateaued on weight gain and currently has been low energy and appetite-very frustrating.

I was hoping to get feed back from others whose little ones have gone through this and what your experience is/was like. I'm of coarse very anxious, a little scared and sad. But I can see that this may be necessary, trying to think of the positive side.

 

[Olymama]

We've reached the point where unless something short of a miracle happens and my son gains adequate weight in the next month he will be getting a g-tube. My son is 2 1/2, whose been pretty healthy and active. He's plateaued on weight gain and currently has been low energy and appetite-very frustrating.

I was hoping to get feed back from others whose little ones have gone through this and what your experience is/was like. I'm of coarse very anxious, a little scared and sad. But I can see that this may be necessary, trying to think of the positive side.

 

[Olymama]

We've reached the point where unless something short of a miracle happens and my son gains adequate weight in the next month he will be getting a g-tube. My son is 2 1/2, whose been pretty healthy and active. He's plateaued on weight gain and currently has been low energy and appetite-very frustrating.
<br />
<br />I was hoping to get feed back from others whose little ones have gone through this and what your experience is/was like. I'm of coarse very anxious, a little scared and sad. But I can see that this may be necessary, trying to think of the positive side.

 

[sdelorenzo]

You won't regret it! My daughter got hers when she turned 5. She went from -5% bmi to
greater than 50%. She is often 70-80% bmi. Just an enormous blessing to see her so healthy with fat on her bones. We hardly ever think about her g-tube. She is on swim team, etc.
It never seems to get in the way of anything. We only spend about a minute or two setting it up at night. The stress alone of trying to get enough food down without it doesn't compare to any inconvenience the g-tube might have. We now don't worry if she only eats a small amount at meals. Her weight is good, so that stress is gone.
Sharon, mom of Sophia, 8 and Jack 6, both with cf, Grant, 7 months no cf

 

[sdelorenzo]

You won't regret it! My daughter got hers when she turned 5. She went from -5% bmi to
greater than 50%. She is often 70-80% bmi. Just an enormous blessing to see her so healthy with fat on her bones. We hardly ever think about her g-tube. She is on swim team, etc.
It never seems to get in the way of anything. We only spend about a minute or two setting it up at night. The stress alone of trying to get enough food down without it doesn't compare to any inconvenience the g-tube might have. We now don't worry if she only eats a small amount at meals. Her weight is good, so that stress is gone.
Sharon, mom of Sophia, 8 and Jack 6, both with cf, Grant, 7 months no cf

 

[sdelorenzo]

You won't regret it! My daughter got hers when she turned 5. She went from -5% bmi to
greater than 50%. She is often 70-80% bmi. Just an enormous blessing to see her so healthy with fat on her bones. We hardly ever think about her g-tube. She is on swim team, etc.
It never seems to get in the way of anything. We only spend about a minute or two setting it up at night. The stress alone of trying to get enough food down without it doesn't compare to any inconvenience the g-tube might have. We now don't worry if she only eats a small amount at meals. Her weight is good, so that stress is gone.
Sharon, mom of Sophia, 8 and Jack 6, both with cf, Grant, 7 months no cf

 

[sdelorenzo]

You won't regret it! My daughter got hers when she turned 5. She went from -5% bmi to
greater than 50%. She is often 70-80% bmi. Just an enormous blessing to see her so healthy with fat on her bones. We hardly ever think about her g-tube. She is on swim team, etc.
It never seems to get in the way of anything. We only spend about a minute or two setting it up at night. The stress alone of trying to get enough food down without it doesn't compare to any inconvenience the g-tube might have. We now don't worry if she only eats a small amount at meals. Her weight is good, so that stress is gone.
Sharon, mom of Sophia, 8 and Jack 6, both with cf, Grant, 7 months no cf

 

[sdelorenzo]

You won't regret it! My daughter got hers when she turned 5. She went from -5% bmi to
<br />greater than 50%. She is often 70-80% bmi. Just an enormous blessing to see her so healthy with fat on her bones. We hardly ever think about her g-tube. She is on swim team, etc.
<br />It never seems to get in the way of anything. We only spend about a minute or two setting it up at night. The stress alone of trying to get enough food down without it doesn't compare to any inconvenience the g-tube might have. We now don't worry if she only eats a small amount at meals. Her weight is good, so that stress is gone.
<br />Sharon, mom of Sophia, 8 and Jack 6, both with cf, Grant, 7 months no cf

 

[izemmom]

Hello!

There are lots of threads out there on this topic. A search will get you some good, and varied opinions, and I hope that you get lots of responses, here, too.

Emily was about 18 months when she got her tube. It was the most heartbreaking decision I had ever had to make...up to that point. I have never regretted it!

Emily's weight gain has not been as spectacular as some kids' after getting the tube, but she does not flucuate when she is sick like she used to. We have not had to stress about meals, which is good, when you're stressing about everything else!

I was worried to death about how it would impact her activity level and what she could be involved in. It hasn't changed one single thing in that area.

I was worried that she would pull it out or it would fall out or that it would be hard to deal with. It isn't. She's never pulled it out (although I did once, accidently) and it's never fallen out, even on playgounds, waterslides, climbing walls, etc.

I was worried that she would grow up to be embarrassed by it. She's almost 4 now, and doesn't bat an eye when people talk about it (which seldom happens, anyway). In fact, her daycare teachers think she's a riot because when a kid does ask about it Emily says in a loud whisper "That's my tube. Don't touch it, it's very very dangerous!" That's my girl!

I still worry about the scar she will have when it's removed, but if I know her, it won't phase her, either.

Emily's overall health has been so much better WITH the tube. I wonder now, why I was so dead set against it.

You will get other opinions, and that's good. Just know that there is good to come of it, and accept that it's a VERY hard decision to make.

Good luck to you, and good health to your son!

 

[izemmom]

Hello!

There are lots of threads out there on this topic. A search will get you some good, and varied opinions, and I hope that you get lots of responses, here, too.

Emily was about 18 months when she got her tube. It was the most heartbreaking decision I had ever had to make...up to that point. I have never regretted it!

Emily's weight gain has not been as spectacular as some kids' after getting the tube, but she does not flucuate when she is sick like she used to. We have not had to stress about meals, which is good, when you're stressing about everything else!

I was worried to death about how it would impact her activity level and what she could be involved in. It hasn't changed one single thing in that area.

I was worried that she would pull it out or it would fall out or that it would be hard to deal with. It isn't. She's never pulled it out (although I did once, accidently) and it's never fallen out, even on playgounds, waterslides, climbing walls, etc.

I was worried that she would grow up to be embarrassed by it. She's almost 4 now, and doesn't bat an eye when people talk about it (which seldom happens, anyway). In fact, her daycare teachers think she's a riot because when a kid does ask about it Emily says in a loud whisper "That's my tube. Don't touch it, it's very very dangerous!" That's my girl!

I still worry about the scar she will have when it's removed, but if I know her, it won't phase her, either.

Emily's overall health has been so much better WITH the tube. I wonder now, why I was so dead set against it.

You will get other opinions, and that's good. Just know that there is good to come of it, and accept that it's a VERY hard decision to make.

Good luck to you, and good health to your son!

 

[izemmom]

Hello!

There are lots of threads out there on this topic. A search will get you some good, and varied opinions, and I hope that you get lots of responses, here, too.

Emily was about 18 months when she got her tube. It was the most heartbreaking decision I had ever had to make...up to that point. I have never regretted it!

Emily's weight gain has not been as spectacular as some kids' after getting the tube, but she does not flucuate when she is sick like she used to. We have not had to stress about meals, which is good, when you're stressing about everything else!

I was worried to death about how it would impact her activity level and what she could be involved in. It hasn't changed one single thing in that area.

I was worried that she would pull it out or it would fall out or that it would be hard to deal with. It isn't. She's never pulled it out (although I did once, accidently) and it's never fallen out, even on playgounds, waterslides, climbing walls, etc.

I was worried that she would grow up to be embarrassed by it. She's almost 4 now, and doesn't bat an eye when people talk about it (which seldom happens, anyway). In fact, her daycare teachers think she's a riot because when a kid does ask about it Emily says in a loud whisper "That's my tube. Don't touch it, it's very very dangerous!" That's my girl!

I still worry about the scar she will have when it's removed, but if I know her, it won't phase her, either.

Emily's overall health has been so much better WITH the tube. I wonder now, why I was so dead set against it.

You will get other opinions, and that's good. Just know that there is good to come of it, and accept that it's a VERY hard decision to make.

Good luck to you, and good health to your son!

 

[izemmom]

Hello!

There are lots of threads out there on this topic. A search will get you some good, and varied opinions, and I hope that you get lots of responses, here, too.

Emily was about 18 months when she got her tube. It was the most heartbreaking decision I had ever had to make...up to that point. I have never regretted it!

Emily's weight gain has not been as spectacular as some kids' after getting the tube, but she does not flucuate when she is sick like she used to. We have not had to stress about meals, which is good, when you're stressing about everything else!

I was worried to death about how it would impact her activity level and what she could be involved in. It hasn't changed one single thing in that area.

I was worried that she would pull it out or it would fall out or that it would be hard to deal with. It isn't. She's never pulled it out (although I did once, accidently) and it's never fallen out, even on playgounds, waterslides, climbing walls, etc.

I was worried that she would grow up to be embarrassed by it. She's almost 4 now, and doesn't bat an eye when people talk about it (which seldom happens, anyway). In fact, her daycare teachers think she's a riot because when a kid does ask about it Emily says in a loud whisper "That's my tube. Don't touch it, it's very very dangerous!" That's my girl!

I still worry about the scar she will have when it's removed, but if I know her, it won't phase her, either.

Emily's overall health has been so much better WITH the tube. I wonder now, why I was so dead set against it.

You will get other opinions, and that's good. Just know that there is good to come of it, and accept that it's a VERY hard decision to make.

Good luck to you, and good health to your son!

 

[izemmom]

Hello!
<br />
<br />There are lots of threads out there on this topic. A search will get you some good, and varied opinions, and I hope that you get lots of responses, here, too.
<br />
<br />Emily was about 18 months when she got her tube. It was the most heartbreaking decision I had ever had to make...up to that point. I have never regretted it!
<br />
<br />Emily's weight gain has not been as spectacular as some kids' after getting the tube, but she does not flucuate when she is sick like she used to. We have not had to stress about meals, which is good, when you're stressing about everything else!
<br />
<br />I was worried to death about how it would impact her activity level and what she could be involved in. It hasn't changed one single thing in that area.
<br />
<br />I was worried that she would pull it out or it would fall out or that it would be hard to deal with. It isn't. She's never pulled it out (although I did once, accidently) and it's never fallen out, even on playgounds, waterslides, climbing walls, etc.
<br />
<br />I was worried that she would grow up to be embarrassed by it. She's almost 4 now, and doesn't bat an eye when people talk about it (which seldom happens, anyway). In fact, her daycare teachers think she's a riot because when a kid does ask about it Emily says in a loud whisper "That's my tube. Don't touch it, it's very very dangerous!" That's my girl!
<br />
<br />I still worry about the scar she will have when it's removed, but if I know her, it won't phase her, either.
<br />
<br />Emily's overall health has been so much better WITH the tube. I wonder now, why I was so dead set against it.
<br />
<br />You will get other opinions, and that's good. Just know that there is good to come of it, and accept that it's a VERY hard decision to make.
<br />
<br />Good luck to you, and good health to your son!

 

[mbrandazzo]

Hi!
My 19 month old son just got his tube about two months ago...

When his team told us they felt it was time for a tube, we felt like you - completely sad, anxious, and like we had failed somehow. I remember crying the whole way home from clinic...

Now we ARE SO HAPPY WE MADE THE DECISION TO GO THROUGH WITH IT! After the whole procedure of getting the tube was over, and we knew Logan was okay, there was a great sense of relief. No longer did we have to worry about how much he was eating, or if he was gaining enough weight. And, like sdelerenzo said above, the inconvenience of the tube is nothing compared to the benefits it has had. In two months Logan gained about two pounds! He has gone from the 7th%tile to the 30th%tile in a short time! He also seems to be eating more since he got the tube, I think he feels better, therefore he is hungrier. It is hard when they are toddlers when they can't tell you ow they are feeling. He looks fuller and healthier to us which is great to see...

I wish you a lot of luck and hugs in making your decision, I know it is very tough. My prayers are with you and your child no matter what you decide. Take care!

 

[mbrandazzo]

Hi!
My 19 month old son just got his tube about two months ago...

When his team told us they felt it was time for a tube, we felt like you - completely sad, anxious, and like we had failed somehow. I remember crying the whole way home from clinic...

Now we ARE SO HAPPY WE MADE THE DECISION TO GO THROUGH WITH IT! After the whole procedure of getting the tube was over, and we knew Logan was okay, there was a great sense of relief. No longer did we have to worry about how much he was eating, or if he was gaining enough weight. And, like sdelerenzo said above, the inconvenience of the tube is nothing compared to the benefits it has had. In two months Logan gained about two pounds! He has gone from the 7th%tile to the 30th%tile in a short time! He also seems to be eating more since he got the tube, I think he feels better, therefore he is hungrier. It is hard when they are toddlers when they can't tell you ow they are feeling. He looks fuller and healthier to us which is great to see...

I wish you a lot of luck and hugs in making your decision, I know it is very tough. My prayers are with you and your child no matter what you decide. Take care!

 

[mbrandazzo]

Hi!
My 19 month old son just got his tube about two months ago...

When his team told us they felt it was time for a tube, we felt like you - completely sad, anxious, and like we had failed somehow. I remember crying the whole way home from clinic...

Now we ARE SO HAPPY WE MADE THE DECISION TO GO THROUGH WITH IT! After the whole procedure of getting the tube was over, and we knew Logan was okay, there was a great sense of relief. No longer did we have to worry about how much he was eating, or if he was gaining enough weight. And, like sdelerenzo said above, the inconvenience of the tube is nothing compared to the benefits it has had. In two months Logan gained about two pounds! He has gone from the 7th%tile to the 30th%tile in a short time! He also seems to be eating more since he got the tube, I think he feels better, therefore he is hungrier. It is hard when they are toddlers when they can't tell you ow they are feeling. He looks fuller and healthier to us which is great to see...

I wish you a lot of luck and hugs in making your decision, I know it is very tough. My prayers are with you and your child no matter what you decide. Take care!

 

[mbrandazzo]

Hi!
My 19 month old son just got his tube about two months ago...

When his team told us they felt it was time for a tube, we felt like you - completely sad, anxious, and like we had failed somehow. I remember crying the whole way home from clinic...

Now we ARE SO HAPPY WE MADE THE DECISION TO GO THROUGH WITH IT! After the whole procedure of getting the tube was over, and we knew Logan was okay, there was a great sense of relief. No longer did we have to worry about how much he was eating, or if he was gaining enough weight. And, like sdelerenzo said above, the inconvenience of the tube is nothing compared to the benefits it has had. In two months Logan gained about two pounds! He has gone from the 7th%tile to the 30th%tile in a short time! He also seems to be eating more since he got the tube, I think he feels better, therefore he is hungrier. It is hard when they are toddlers when they can't tell you ow they are feeling. He looks fuller and healthier to us which is great to see...

I wish you a lot of luck and hugs in making your decision, I know it is very tough. My prayers are with you and your child no matter what you decide. Take care!

 

[mbrandazzo]

Hi!
<br />My 19 month old son just got his tube about two months ago...
<br />
<br />When his team told us they felt it was time for a tube, we felt like you - completely sad, anxious, and like we had failed somehow. I remember crying the whole way home from clinic...
<br />
<br />Now we ARE SO HAPPY WE MADE THE DECISION TO GO THROUGH WITH IT! After the whole procedure of getting the tube was over, and we knew Logan was okay, there was a great sense of relief. No longer did we have to worry about how much he was eating, or if he was gaining enough weight. And, like sdelerenzo said above, the inconvenience of the tube is nothing compared to the benefits it has had. In two months Logan gained about two pounds! He has gone from the 7th%tile to the 30th%tile in a short time! He also seems to be eating more since he got the tube, I think he feels better, therefore he is hungrier. It is hard when they are toddlers when they can't tell you ow they are feeling. He looks fuller and healthier to us which is great to see...
<br />
<br />I wish you a lot of luck and hugs in making your decision, I know it is very tough. My prayers are with you and your child no matter what you decide. Take care!