Toddler and g-tube

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izemmom

New member
Wow! You get to go to a g-tube class? I'm jealous. We were handed a big, overwhelming binder. A class would have eased a lot of my fears - I just learn better like that. Hmm. I might have to push our CF and GI docs to consider this!!!


We were not breastfeeding at the time, but, I would think one thing that you will encounter is a decreased appetite during normal feeding times, since so many calories are being obtained from the feedings. You will probably have to play with timing of feedings. This is a good question for your team.

As far as co-sleeping, if you are doing overnight feedings, just be prepared to learn to sleep through the sound that the pump makes. Ours isn't loud, it's just a mechanical whiiirrrrr that happens about once a minute or so. Takes some getting used to.

I'm glad you are finding the replies and other threads helpful! In a year or two YOU"LL be the one offering the advice!
 
I

izemmom

New member
Wow! You get to go to a g-tube class? I'm jealous. We were handed a big, overwhelming binder. A class would have eased a lot of my fears - I just learn better like that. Hmm. I might have to push our CF and GI docs to consider this!!!


We were not breastfeeding at the time, but, I would think one thing that you will encounter is a decreased appetite during normal feeding times, since so many calories are being obtained from the feedings. You will probably have to play with timing of feedings. This is a good question for your team.

As far as co-sleeping, if you are doing overnight feedings, just be prepared to learn to sleep through the sound that the pump makes. Ours isn't loud, it's just a mechanical whiiirrrrr that happens about once a minute or so. Takes some getting used to.

I'm glad you are finding the replies and other threads helpful! In a year or two YOU"LL be the one offering the advice!
 
I

izemmom

New member
Wow! You get to go to a g-tube class? I'm jealous. We were handed a big, overwhelming binder. A class would have eased a lot of my fears - I just learn better like that. Hmm. I might have to push our CF and GI docs to consider this!!!


We were not breastfeeding at the time, but, I would think one thing that you will encounter is a decreased appetite during normal feeding times, since so many calories are being obtained from the feedings. You will probably have to play with timing of feedings. This is a good question for your team.

As far as co-sleeping, if you are doing overnight feedings, just be prepared to learn to sleep through the sound that the pump makes. Ours isn't loud, it's just a mechanical whiiirrrrr that happens about once a minute or so. Takes some getting used to.

I'm glad you are finding the replies and other threads helpful! In a year or two YOU"LL be the one offering the advice!
 
I

izemmom

New member
Wow! You get to go to a g-tube class? I'm jealous. We were handed a big, overwhelming binder. A class would have eased a lot of my fears - I just learn better like that. Hmm. I might have to push our CF and GI docs to consider this!!!


We were not breastfeeding at the time, but, I would think one thing that you will encounter is a decreased appetite during normal feeding times, since so many calories are being obtained from the feedings. You will probably have to play with timing of feedings. This is a good question for your team.

As far as co-sleeping, if you are doing overnight feedings, just be prepared to learn to sleep through the sound that the pump makes. Ours isn't loud, it's just a mechanical whiiirrrrr that happens about once a minute or so. Takes some getting used to.

I'm glad you are finding the replies and other threads helpful! In a year or two YOU"LL be the one offering the advice!
 
I

izemmom

New member
Wow! You get to go to a g-tube class? I'm jealous. We were handed a big, overwhelming binder. A class would have eased a lot of my fears - I just learn better like that. Hmm. I might have to push our CF and GI docs to consider this!!!
<br />
<br />
<br />We were not breastfeeding at the time, but, I would think one thing that you will encounter is a decreased appetite during normal feeding times, since so many calories are being obtained from the feedings. You will probably have to play with timing of feedings. This is a good question for your team.
<br />
<br />As far as co-sleeping, if you are doing overnight feedings, just be prepared to learn to sleep through the sound that the pump makes. Ours isn't loud, it's just a mechanical whiiirrrrr that happens about once a minute or so. Takes some getting used to.
<br />
<br />I'm glad you are finding the replies and other threads helpful! In a year or two YOU"LL be the one offering the advice!
 
B

babyluke

New member
I had stopped nursing Luke just prior to his diagnosis because one of the idiot doctors told me that the reason Luke was not gaining weight was because my milk was no good. I had a HUGE stock pile of milk in the freezer by that point and we did end up using it for his night time feeds (mixed with high calorie formula). I would not see any reason why you could not keep nursing--we kept bottle feeding Luke through out the day. As Tami said, you will probably notice a decrease in his appetite--but I would pump and talk to your team about using a combination of breast milk and formula (depending on how many calories they want him to have)in his bag for the night time feeds.
The only thing about co sleeping may be getting tangled in the tubing. If you can find bigger sleepers that snap all the way down to their feet, those can be really good. Then you just bring the end out of the last snap and it keeps them from getting so tangled up. Luke was still in a crib in our room when he first got his tube and I can still remember that whiirrr sound!!! But I think I slept better having him near because at first I was so paranoid that something would happen with the tube in the night and I would not know it.
This forum was our g-tube class!!! The hospital sent out a home health nurse our first night home and my husband had to end up taking the manual from her and then showed her what to do!And I cannot believe that for almost two years I have not known there are single port connectors--I will be on the phone to our DME supplier today.
 
B

babyluke

New member
I had stopped nursing Luke just prior to his diagnosis because one of the idiot doctors told me that the reason Luke was not gaining weight was because my milk was no good. I had a HUGE stock pile of milk in the freezer by that point and we did end up using it for his night time feeds (mixed with high calorie formula). I would not see any reason why you could not keep nursing--we kept bottle feeding Luke through out the day. As Tami said, you will probably notice a decrease in his appetite--but I would pump and talk to your team about using a combination of breast milk and formula (depending on how many calories they want him to have)in his bag for the night time feeds.
The only thing about co sleeping may be getting tangled in the tubing. If you can find bigger sleepers that snap all the way down to their feet, those can be really good. Then you just bring the end out of the last snap and it keeps them from getting so tangled up. Luke was still in a crib in our room when he first got his tube and I can still remember that whiirrr sound!!! But I think I slept better having him near because at first I was so paranoid that something would happen with the tube in the night and I would not know it.
This forum was our g-tube class!!! The hospital sent out a home health nurse our first night home and my husband had to end up taking the manual from her and then showed her what to do!And I cannot believe that for almost two years I have not known there are single port connectors--I will be on the phone to our DME supplier today.
 
B

babyluke

New member
I had stopped nursing Luke just prior to his diagnosis because one of the idiot doctors told me that the reason Luke was not gaining weight was because my milk was no good. I had a HUGE stock pile of milk in the freezer by that point and we did end up using it for his night time feeds (mixed with high calorie formula). I would not see any reason why you could not keep nursing--we kept bottle feeding Luke through out the day. As Tami said, you will probably notice a decrease in his appetite--but I would pump and talk to your team about using a combination of breast milk and formula (depending on how many calories they want him to have)in his bag for the night time feeds.
The only thing about co sleeping may be getting tangled in the tubing. If you can find bigger sleepers that snap all the way down to their feet, those can be really good. Then you just bring the end out of the last snap and it keeps them from getting so tangled up. Luke was still in a crib in our room when he first got his tube and I can still remember that whiirrr sound!!! But I think I slept better having him near because at first I was so paranoid that something would happen with the tube in the night and I would not know it.
This forum was our g-tube class!!! The hospital sent out a home health nurse our first night home and my husband had to end up taking the manual from her and then showed her what to do!And I cannot believe that for almost two years I have not known there are single port connectors--I will be on the phone to our DME supplier today.
 
B

babyluke

New member
I had stopped nursing Luke just prior to his diagnosis because one of the idiot doctors told me that the reason Luke was not gaining weight was because my milk was no good. I had a HUGE stock pile of milk in the freezer by that point and we did end up using it for his night time feeds (mixed with high calorie formula). I would not see any reason why you could not keep nursing--we kept bottle feeding Luke through out the day. As Tami said, you will probably notice a decrease in his appetite--but I would pump and talk to your team about using a combination of breast milk and formula (depending on how many calories they want him to have)in his bag for the night time feeds.
The only thing about co sleeping may be getting tangled in the tubing. If you can find bigger sleepers that snap all the way down to their feet, those can be really good. Then you just bring the end out of the last snap and it keeps them from getting so tangled up. Luke was still in a crib in our room when he first got his tube and I can still remember that whiirrr sound!!! But I think I slept better having him near because at first I was so paranoid that something would happen with the tube in the night and I would not know it.
This forum was our g-tube class!!! The hospital sent out a home health nurse our first night home and my husband had to end up taking the manual from her and then showed her what to do!And I cannot believe that for almost two years I have not known there are single port connectors--I will be on the phone to our DME supplier today.
 
B

babyluke

New member
I had stopped nursing Luke just prior to his diagnosis because one of the idiot doctors told me that the reason Luke was not gaining weight was because my milk was no good. I had a HUGE stock pile of milk in the freezer by that point and we did end up using it for his night time feeds (mixed with high calorie formula). I would not see any reason why you could not keep nursing--we kept bottle feeding Luke through out the day. As Tami said, you will probably notice a decrease in his appetite--but I would pump and talk to your team about using a combination of breast milk and formula (depending on how many calories they want him to have)in his bag for the night time feeds.
<br />The only thing about co sleeping may be getting tangled in the tubing. If you can find bigger sleepers that snap all the way down to their feet, those can be really good. Then you just bring the end out of the last snap and it keeps them from getting so tangled up. Luke was still in a crib in our room when he first got his tube and I can still remember that whiirrr sound!!! But I think I slept better having him near because at first I was so paranoid that something would happen with the tube in the night and I would not know it.
<br />This forum was our g-tube class!!! The hospital sent out a home health nurse our first night home and my husband had to end up taking the manual from her and then showed her what to do!And I cannot believe that for almost two years I have not known there are single port connectors--I will be on the phone to our DME supplier today.
 
O

Olymama

Guest
Tami, I'm glad to be able to go to a class, a big binder would be overwhelming. We use a hepa filter at night which makes a white noise it might help with the whirrrrr of the feeding apparatus. Thanks again.

Angela, At our last appt. his doctor saw me nursing him and had the dietitian come back and say that my nursing him may be interfering with him getting more calories. I hardly think so. I was actually the one to suggest nursing River that time because all morning he refused food and I thought he should at least get some calories. This is probably the first illness he had where he wasn't wanting to nurse all the time. I think I average about 4 nursings in a 24 hr period, when we get up, before nap, bedtime and a night nursing. Also, sometimes when I been gone for awhile. There's been so many times I was thankful that I was still nursing River when he was ill.
 
O

Olymama

Guest
Tami, I'm glad to be able to go to a class, a big binder would be overwhelming. We use a hepa filter at night which makes a white noise it might help with the whirrrrr of the feeding apparatus. Thanks again.

Angela, At our last appt. his doctor saw me nursing him and had the dietitian come back and say that my nursing him may be interfering with him getting more calories. I hardly think so. I was actually the one to suggest nursing River that time because all morning he refused food and I thought he should at least get some calories. This is probably the first illness he had where he wasn't wanting to nurse all the time. I think I average about 4 nursings in a 24 hr period, when we get up, before nap, bedtime and a night nursing. Also, sometimes when I been gone for awhile. There's been so many times I was thankful that I was still nursing River when he was ill.
 
O

Olymama

Guest
Tami, I'm glad to be able to go to a class, a big binder would be overwhelming. We use a hepa filter at night which makes a white noise it might help with the whirrrrr of the feeding apparatus. Thanks again.

Angela, At our last appt. his doctor saw me nursing him and had the dietitian come back and say that my nursing him may be interfering with him getting more calories. I hardly think so. I was actually the one to suggest nursing River that time because all morning he refused food and I thought he should at least get some calories. This is probably the first illness he had where he wasn't wanting to nurse all the time. I think I average about 4 nursings in a 24 hr period, when we get up, before nap, bedtime and a night nursing. Also, sometimes when I been gone for awhile. There's been so many times I was thankful that I was still nursing River when he was ill.
 
O

Olymama

Guest
Tami, I'm glad to be able to go to a class, a big binder would be overwhelming. We use a hepa filter at night which makes a white noise it might help with the whirrrrr of the feeding apparatus. Thanks again.

Angela, At our last appt. his doctor saw me nursing him and had the dietitian come back and say that my nursing him may be interfering with him getting more calories. I hardly think so. I was actually the one to suggest nursing River that time because all morning he refused food and I thought he should at least get some calories. This is probably the first illness he had where he wasn't wanting to nurse all the time. I think I average about 4 nursings in a 24 hr period, when we get up, before nap, bedtime and a night nursing. Also, sometimes when I been gone for awhile. There's been so many times I was thankful that I was still nursing River when he was ill.
 
O

Olymama

Guest
Tami, I'm glad to be able to go to a class, a big binder would be overwhelming. We use a hepa filter at night which makes a white noise it might help with the whirrrrr of the feeding apparatus. Thanks again.
<br />
<br />Angela, At our last appt. his doctor saw me nursing him and had the dietitian come back and say that my nursing him may be interfering with him getting more calories. I hardly think so. I was actually the one to suggest nursing River that time because all morning he refused food and I thought he should at least get some calories. This is probably the first illness he had where he wasn't wanting to nurse all the time. I think I average about 4 nursings in a 24 hr period, when we get up, before nap, bedtime and a night nursing. Also, sometimes when I been gone for awhile. There's been so many times I was thankful that I was still nursing River when he was ill.
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