Toddler and g-tube

fourkidsmom · Sep 16, 2009

Best thing we ever did for our son was get the feeding tube. He is overall better health wise and has gained weight. It is a good thing. We wish we would of done it sooner. He has had it for 2 1/2 years and it really isn't that big of a deal to have.

Good luck

fourkidsmom · Sep 16, 2009

Best thing we ever did for our son was get the feeding tube. He is overall better health wise and has gained weight. It is a good thing. We wish we would of done it sooner. He has had it for 2 1/2 years and it really isn't that big of a deal to have.

Good luck

fourkidsmom · Sep 16, 2009

Best thing we ever did for our son was get the feeding tube. He is overall better health wise and has gained weight. It is a good thing. We wish we would of done it sooner. He has had it for 2 1/2 years and it really isn't that big of a deal to have.

Good luck

fourkidsmom · Sep 16, 2009

Best thing we ever did for our son was get the feeding tube. He is overall better health wise and has gained weight. It is a good thing. We wish we would of done it sooner. He has had it for 2 1/2 years and it really isn't that big of a deal to have.

Good luck

fourkidsmom · Sep 16, 2009

Best thing we ever did for our son was get the feeding tube. He is overall better health wise and has gained weight. It is a good thing. We wish we would of done it sooner. He has had it for 2 1/2 years and it really isn't that big of a deal to have.
 
 Good luck

babyluke · Sep 16, 2009

Our son got his g tube when he was 8 months old and he is now a little over two. As every one else has already said, it was the best decision. Luke is now on the growth curve, at the 50 percentile for his BMI, he has chubby little legs and a fat little face and I love it!!!!
Just some things I remember that may be helpful--the surgery was not bad, Luke did not seem to be in a lot of pain, we were out of the hospital within a couple of days I think.
He will probably have a long tube at first and then after 6-8 weeks will get a mickey. The long tube is a little bit more noticeable under clothes and seems a bit scarier I think, but once they get the mickey, it is a breeze to take care of. When Luke still had his long tube they have us this stretchy bandage stuff that we could roll his tube up and put that over it and it kept it close to his body and kept him from messing with it.
The mickey is easy to replace if you need to. We clean around Luke's with a little bit of Maylox or Mylanta on a q-tip. Because it is an opening to their stomach, sometimes the gastric acids can irritate the skin a little and we found this really helps keep Luke's looking good.
There will be two "ports" on the y connector tube, tape the one you are not using shut and tape the spot where the connector goes into the other tube (this will make more sense when you see it). We were waken a couple of times in the night to the smell of sour milk because either the port had come open or the connectors had gotten separated. Nothing dangerous, but such a pain to deal with that mess! Now we tape it every night. We use medical/first aid tape and it does the trick.
Those are about the only "hard" things we had to learn abut using his pump. It really is not a big deal at all. We have taken his pump on vacation without any problem, too. Luke even knows what it is and will tell his brothers--"that my pump, no touch it, it for my night night."
Hope that helps. Feel free to PM with any questions if you want.

babyluke · Sep 16, 2009

Our son got his g tube when he was 8 months old and he is now a little over two. As every one else has already said, it was the best decision. Luke is now on the growth curve, at the 50 percentile for his BMI, he has chubby little legs and a fat little face and I love it!!!!
Just some things I remember that may be helpful--the surgery was not bad, Luke did not seem to be in a lot of pain, we were out of the hospital within a couple of days I think.
He will probably have a long tube at first and then after 6-8 weeks will get a mickey. The long tube is a little bit more noticeable under clothes and seems a bit scarier I think, but once they get the mickey, it is a breeze to take care of. When Luke still had his long tube they have us this stretchy bandage stuff that we could roll his tube up and put that over it and it kept it close to his body and kept him from messing with it.
The mickey is easy to replace if you need to. We clean around Luke's with a little bit of Maylox or Mylanta on a q-tip. Because it is an opening to their stomach, sometimes the gastric acids can irritate the skin a little and we found this really helps keep Luke's looking good.
There will be two "ports" on the y connector tube, tape the one you are not using shut and tape the spot where the connector goes into the other tube (this will make more sense when you see it). We were waken a couple of times in the night to the smell of sour milk because either the port had come open or the connectors had gotten separated. Nothing dangerous, but such a pain to deal with that mess! Now we tape it every night. We use medical/first aid tape and it does the trick.
Those are about the only "hard" things we had to learn abut using his pump. It really is not a big deal at all. We have taken his pump on vacation without any problem, too. Luke even knows what it is and will tell his brothers--"that my pump, no touch it, it for my night night."
Hope that helps. Feel free to PM with any questions if you want.

babyluke · Sep 16, 2009

Our son got his g tube when he was 8 months old and he is now a little over two. As every one else has already said, it was the best decision. Luke is now on the growth curve, at the 50 percentile for his BMI, he has chubby little legs and a fat little face and I love it!!!!
Just some things I remember that may be helpful--the surgery was not bad, Luke did not seem to be in a lot of pain, we were out of the hospital within a couple of days I think.
He will probably have a long tube at first and then after 6-8 weeks will get a mickey. The long tube is a little bit more noticeable under clothes and seems a bit scarier I think, but once they get the mickey, it is a breeze to take care of. When Luke still had his long tube they have us this stretchy bandage stuff that we could roll his tube up and put that over it and it kept it close to his body and kept him from messing with it.
The mickey is easy to replace if you need to. We clean around Luke's with a little bit of Maylox or Mylanta on a q-tip. Because it is an opening to their stomach, sometimes the gastric acids can irritate the skin a little and we found this really helps keep Luke's looking good.
There will be two "ports" on the y connector tube, tape the one you are not using shut and tape the spot where the connector goes into the other tube (this will make more sense when you see it). We were waken a couple of times in the night to the smell of sour milk because either the port had come open or the connectors had gotten separated. Nothing dangerous, but such a pain to deal with that mess! Now we tape it every night. We use medical/first aid tape and it does the trick.
Those are about the only "hard" things we had to learn abut using his pump. It really is not a big deal at all. We have taken his pump on vacation without any problem, too. Luke even knows what it is and will tell his brothers--"that my pump, no touch it, it for my night night."
Hope that helps. Feel free to PM with any questions if you want.

babyluke · Sep 16, 2009

Our son got his g tube when he was 8 months old and he is now a little over two. As every one else has already said, it was the best decision. Luke is now on the growth curve, at the 50 percentile for his BMI, he has chubby little legs and a fat little face and I love it!!!!
Just some things I remember that may be helpful--the surgery was not bad, Luke did not seem to be in a lot of pain, we were out of the hospital within a couple of days I think.
He will probably have a long tube at first and then after 6-8 weeks will get a mickey. The long tube is a little bit more noticeable under clothes and seems a bit scarier I think, but once they get the mickey, it is a breeze to take care of. When Luke still had his long tube they have us this stretchy bandage stuff that we could roll his tube up and put that over it and it kept it close to his body and kept him from messing with it.
The mickey is easy to replace if you need to. We clean around Luke's with a little bit of Maylox or Mylanta on a q-tip. Because it is an opening to their stomach, sometimes the gastric acids can irritate the skin a little and we found this really helps keep Luke's looking good.
There will be two "ports" on the y connector tube, tape the one you are not using shut and tape the spot where the connector goes into the other tube (this will make more sense when you see it). We were waken a couple of times in the night to the smell of sour milk because either the port had come open or the connectors had gotten separated. Nothing dangerous, but such a pain to deal with that mess! Now we tape it every night. We use medical/first aid tape and it does the trick.
Those are about the only "hard" things we had to learn abut using his pump. It really is not a big deal at all. We have taken his pump on vacation without any problem, too. Luke even knows what it is and will tell his brothers--"that my pump, no touch it, it for my night night."
Hope that helps. Feel free to PM with any questions if you want.

babyluke · Sep 16, 2009

Our son got his g tube when he was 8 months old and he is now a little over two. As every one else has already said, it was the best decision. Luke is now on the growth curve, at the 50 percentile for his BMI, he has chubby little legs and a fat little face and I love it!!!!
 Just some things I remember that may be helpful--the surgery was not bad, Luke did not seem to be in a lot of pain, we were out of the hospital within a couple of days I think.
 He will probably have a long tube at first and then after 6-8 weeks will get a mickey. The long tube is a little bit more noticeable under clothes and seems a bit scarier I think, but once they get the mickey, it is a breeze to take care of. When Luke still had his long tube they have us this stretchy bandage stuff that we could roll his tube up and put that over it and it kept it close to his body and kept him from messing with it.
 The mickey is easy to replace if you need to. We clean around Luke's with a little bit of Maylox or Mylanta on a q-tip. Because it is an opening to their stomach, sometimes the gastric acids can irritate the skin a little and we found this really helps keep Luke's looking good.
 There will be two "ports" on the y connector tube, tape the one you are not using shut and tape the spot where the connector goes into the other tube (this will make more sense when you see it). We were waken a couple of times in the night to the smell of sour milk because either the port had come open or the connectors had gotten separated. Nothing dangerous, but such a pain to deal with that mess! Now we tape it every night. We use medical/first aid tape and it does the trick.
 Those are about the only "hard" things we had to learn abut using his pump. It really is not a big deal at all. We have taken his pump on vacation without any problem, too. Luke even knows what it is and will tell his brothers--"that my pump, no touch it, it for my night night."
 Hope that helps. Feel free to PM with any questions if you want.

izemmom · Sep 16, 2009

Just wanted to add to Angela's comment...you can get the tubes with a single port, too, so you don't have tape. I visited the web site of the company who makes them to get the item numbers (or whatever it's called) so I could order the right thing from our Home Medical company. It IS a real PAIN to deal with the mess, and we taped too, for a long time. The single port just makes it that much easier.

One added benefit of the tube...we put all of Em's oral meds through it. No more spitting it out, and, again, life just got that much easier!

izemmom · Sep 16, 2009

Just wanted to add to Angela's comment...you can get the tubes with a single port, too, so you don't have tape. I visited the web site of the company who makes them to get the item numbers (or whatever it's called) so I could order the right thing from our Home Medical company. It IS a real PAIN to deal with the mess, and we taped too, for a long time. The single port just makes it that much easier.

One added benefit of the tube...we put all of Em's oral meds through it. No more spitting it out, and, again, life just got that much easier!

izemmom · Sep 16, 2009

Just wanted to add to Angela's comment...you can get the tubes with a single port, too, so you don't have tape. I visited the web site of the company who makes them to get the item numbers (or whatever it's called) so I could order the right thing from our Home Medical company. It IS a real PAIN to deal with the mess, and we taped too, for a long time. The single port just makes it that much easier.

One added benefit of the tube...we put all of Em's oral meds through it. No more spitting it out, and, again, life just got that much easier!

izemmom · Sep 16, 2009

Just wanted to add to Angela's comment...you can get the tubes with a single port, too, so you don't have tape. I visited the web site of the company who makes them to get the item numbers (or whatever it's called) so I could order the right thing from our Home Medical company. It IS a real PAIN to deal with the mess, and we taped too, for a long time. The single port just makes it that much easier.

One added benefit of the tube...we put all of Em's oral meds through it. No more spitting it out, and, again, life just got that much easier!

izemmom · Sep 16, 2009

Just wanted to add to Angela's comment...you can get the tubes with a single port, too, so you don't have tape. I visited the web site of the company who makes them to get the item numbers (or whatever it's called) so I could order the right thing from our Home Medical company. It IS a real PAIN to deal with the mess, and we taped too, for a long time. The single port just makes it that much easier.
 
 One added benefit of the tube...we put all of Em's oral meds through it. No more spitting it out, and, again, life just got that much easier!

Olymama · Sep 17, 2009

Everyone,

Thank you so much for your replies. That is what I am needing. And thank you Angela and Tami for more detailed explanations of what to expect. We have our G tube class on Tuesday. River's never been in the hospital (except when he was born). That may be the hardest part.

I also been reading the other threads that started the day I posted that deal with this and that has been helpful too.

We're any of you breastfeeding during the g-tube placement? how did that go? (I may start another thread, depending on responses) We also co-sleep, he spends part of the night in his toddler bed next to our bed usually but not the whole night.

Olymama · Sep 17, 2009

Everyone,

Thank you so much for your replies. That is what I am needing. And thank you Angela and Tami for more detailed explanations of what to expect. We have our G tube class on Tuesday. River's never been in the hospital (except when he was born). That may be the hardest part.

I also been reading the other threads that started the day I posted that deal with this and that has been helpful too.

We're any of you breastfeeding during the g-tube placement? how did that go? (I may start another thread, depending on responses) We also co-sleep, he spends part of the night in his toddler bed next to our bed usually but not the whole night.

Olymama · Sep 17, 2009

Everyone,

Thank you so much for your replies. That is what I am needing. And thank you Angela and Tami for more detailed explanations of what to expect. We have our G tube class on Tuesday. River's never been in the hospital (except when he was born). That may be the hardest part.

I also been reading the other threads that started the day I posted that deal with this and that has been helpful too.

We're any of you breastfeeding during the g-tube placement? how did that go? (I may start another thread, depending on responses) We also co-sleep, he spends part of the night in his toddler bed next to our bed usually but not the whole night.

Olymama · Sep 17, 2009

Everyone,

Thank you so much for your replies. That is what I am needing. And thank you Angela and Tami for more detailed explanations of what to expect. We have our G tube class on Tuesday. River's never been in the hospital (except when he was born). That may be the hardest part.

I also been reading the other threads that started the day I posted that deal with this and that has been helpful too.

We're any of you breastfeeding during the g-tube placement? how did that go? (I may start another thread, depending on responses) We also co-sleep, he spends part of the night in his toddler bed next to our bed usually but not the whole night.

Olymama · Sep 17, 2009

Everyone,
 
 Thank you so much for your replies. That is what I am needing. And thank you Angela and Tami for more detailed explanations of what to expect. We have our G tube class on Tuesday. River's never been in the hospital (except when he was born). That may be the hardest part.
 
 I also been reading the other threads that started the day I posted that deal with this and that has been helpful too.
 
 We're any of you breastfeeding during the g-tube placement? how did that go? (I may start another thread, depending on responses) We also co-sleep, he spends part of the night in his toddler bed next to our bed usually but not the whole night.

Toddler and g-tube

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