Tough Question

EB24

New member
I was recently asked if I could choose to live again with CF or without, what would I do. I honestly would live again with CF, instead of without. I think I would be worse of spiritually, and I believe I would miss out on some of life's lessons. I think CF has had a profound affect on the person I am. I am proud to be me. I would definately do some things differently, but I would do it with CF.

How about you?
 

anonymous

New member
I have seen this question before and it makes no sense to me why someone would want to live again with CF.

If you had the chance to live again wouldn't you want to do it without CF, considering there are probably many things that some people wanted to do but couldn't because of CF. For example, sports some people with CF never got to play a certain sport that they wanted to try because their lungs just wouldn't let them do physical activities (e.g. hockey).

Wouldn't you want the chance to do things you were not able to do before?

I was lucky, I was not diagnosed until I was 22. I played hockey until I was 18, but now CF keeps me off the ice because my lungs can't handle that type of activity. I tried to jog last summer for a bout 2 months and it wasn't pretty.

If there is life after death, I hope I can breathe normally in that life.


Dave 30w/cf
 

Emily65Roses

New member
I'd want to be born again with CF, for two major reasons.
1. I believe that the tiniest thing can make a huge difference. And going back and being born without CF is a BIG thing. It would change a lot of my life. Maybe my parents would've moved to a different town, or maybe one day (while in this life with CF, I was at clinic), I'd meet someone that would keep me from finding who I'm really supposed to be with, etc. If I was born without CF, would I still end up with Mike? Probably not, based solely on the fact that being born healthy would change a LOT of my life. And who am I to go back and change all that? Basically that whole "a butterfly flaps its wings in China and it causes a hurricane halfway around the world." The smallest thing can change a lot, so I'm certainly not going to change such a big thing.
2. CF made me who I am. I'd be much different if I was born healthy. I wouldn't be as understanding or compassionate or ready to stand up for myself and those I love and things I believe in. I wouldn't enjoy things as much as I do now. I still hold to that I get a huge kick out of something as simple and walking in the snow. If I was healthy, I wouldn't know enough to enjoy stuff like that.
A candle that burns twice as fast burns twice as bright.
 

anonymous

New member
I'd come back again with CF.
It helps make me the awesome person that I am.<img src="i/expressions/heart.gif" border="0">
 

anonymous

New member
<img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/nebulizer.gif" border="0"><img src="i/expressions/oxygen.gif" border="0"><img src="i/expressions/puppy_eyes.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/gas.gif" border="0"><img src="i/expressions/angel_ani.gif" border="0"><img src="i/expressions/angel.gif" border="0">

Sorry, I was just taking time to look at the graphics.
I am dork.
 

Mockingbird

New member
I'd be keeping the CF as well. =-)

Someone once asked me; what do i think I would do if I woke up tomorow and my CF was gone. I said, "I'd probably get really fat because I'm used to eating so much." They weren't very happy with that answer, but it was the only one they got. I mean, how am I supposed to know what life without CF is like? Would I want to try it? Mmmm, nah. To tell the truth, I'm pretty damn happy with what I have as it is. I don't think I would change anything at all. Isn't that the way life should be lived? I think so, anyway.
 
L

luke

Guest
I would come back healthy, no CF and a life expectancy of 80 years.
 

anonymous

New member
I would choose not to have CF too. Then there's not this thing hanging over my head, this feeling that I'm living on borrowed time.
True, I would not be the person I am now, but I would hope that with the foundation my parents set for me that I would do OK.
 

JazzysMom

New member
I have thought about this topic quite often over the years & believe it or not its a tough decision for me. Since I dont know any other way of life it would seem odd almost wrong. I believe a lot of who/what/how I am is from CF, but not all. I come from very strong/stubborn parents & believe that would still be a part of me, but CF has definetely given me a different outlook on things that I dont think I would have without it. Would I like to be able to breath normal so I can play soccer with my daughter like she deserves--Yes, but at the same time maybe our "special" times together would be jeopardized. How do you truly answer that ???
 

anonymous

New member
I believe CF does not make anybody who they are. If you are a good and honest person, you would be a good and honest even if you didn't have CF.

CF did not make me into the person I am today, It's just an illness that I have to deal with.

When I made my comments I was mainly referring to the unlucky people who have a severe case of this illness. The people who spend there entire life going in and out of the hospital and might not live long enough to graduate from high school or get their drivers license. If there is reincarnation, I hope those people get a second without CF.

Dave 30 w/cf
 

Emily65Roses

New member
Maybe CF didn't make you the person you are today. And I'm sure I wouldn't have been a TOTALLY different person. But I know for a fact CF had a lot to do with the way I am now.
 

WinAce

New member
I honestly can't believe this is a serious question.

Perhaps we need to rephrase it, a bit, to make it more obviously ludicrous. I don't think the question is <i>"Would you take your old, comfortably familiar life with CF, or a new, hypothetical one which you don't know anything about?"</i> Rather, the question should be <i>"If you were given a chance to lead a <b>new life altogether</b>, and knew nothing else about what would happen, would you pick CF or no-CF?"</i> There can only be one answer to that, unless you're a masochist, or your idea of CF is taking a digestive enzyme with meals until 30, at which point your FEV score declines to a "horrible" 75%.

<blockquote>Quote
<hr> <i>Originally posted by me in another thread</i>

It's very hard to consider counterfactuals (situations that didn't happen) when we're emotionally invested in what did happen. But, I believe, if we try to divorce our reasoning from our emotion, it can be done, and can lead to some startling conclusions.

If you have CF, it's true that, had you never existed, all the joy and good times you experienced would not have happened. But what other good things would have happened? Would you be a different person, without CF, who would shine as much in the world? Would your hypothetical, alternate-universe self be as happy as you are (or more so, without needing to consider IVs, potential early deaths and the like)?

If the Ice Age hadn't made our world largely uninhabitable... if the Aztecs hadn't been slaughtered by the Spanish... if the medieval Plague epidemics hadn't killed millions... All events without which, most likely, none of us would be here today. (They affected so much of history that, per Chaos Theory, every single person alive today wouldn't exist, in lieu of another person who was born under vastly different circumstances.) But before the crop of people alive today was born, did those events deserve to happen more--with the subsequent people they helped create--than the Warming Periods, invasion fleet-wrecking storms, and other diseases that would have given rise to an altogether different world?

I find it hard to contemplate not having Jessica... but, imagine I was born without this illness. Would we find different "soul mates"? Get jobs and work on our careers, perhaps helping those with some horrible illness by developing a new drug, or creating a much-needed charitable organization? Run into each other anyway, fall in love and be considering our first house right now, instead of wondering how to pay the same amount of money for a transplant?

I would not give her up, even if it meant I could never face the ravages of CF again. But, the rational part of me simply MUST acknowledge that this is the "me" of this timeline, universe--call it what you will--who'd make that decision. Until our romance blossomed, it was only a hypothetical, like trillions of other potential romances that will never see the light of day for the most pithy reasons (a cold that kept someone in bed, instead of bumping into a potential mate; a sliding door that prevented a young woman from breaking up with her philandering boyfriend, and meeting the true love of her life...). <hr></blockquote>

The "me" of another universe, who never experienced CF (and, say, encountered me in the hospital) would have every reason to be horrified and consider me nuts. I wouldn't, on the other hand, have any grounds to consider <i>him</i> irrational.
 

JazzysMom

New member
Obviously, to me, now that its presented in this manner that I would choose the latter. As you put it, just like I dont know any different now, I wouldnt know any different then. However; if we are taling about having CF & then finding a cure I stand my ground. There is a huge difference when you never know something.
 

Allie

New member
If I had the option to choose for Ry, I'd give him a life without CF, even if it meant I never got to meet up with him and have the life I did. OR if I had the option to take it instead of him, I would do that.
 
I agree with Emily, Although I know I wouldn't be a completely different person. CF has helped to mold me into who I am and I am very proud of that person. On the second hand I also agree with Winace in that why ask questions in which there can truly never be an answer or a result in this case. I am very grateful for the life that I have and the life that I lead and I hope to live life with no regrets. To live it to its fullest and to enjoy each and every moment that I can.

Emilee
 

anonymous

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>WinAce</b></i><br>I honestly can't believe this is a serious question.

There can only be one answer to that, unless you're a masochist, or your idea of CF is taking a digestive enzyme with meals until 30, at which point your FEV score declines to a "horrible" 75%.
<hr></blockquote>

I agree, there is only one answer. What WinAce said above is just about my "idea" of CF, and I'd still prefer life without it if I had a choice. No matter the severity - as "lucky" as I may be, I am still afflicted by and affected by this disease. Given the choice, no matter how it has shaped who I am, and I truly believe that it has, I'd take life without it.

wanderlost 28 w/CF
 

EB24

New member
Well WinAce is it a serious question. My CF is in end stage, my FEV are less than 25% and I need a double Lung and liver and I have B Cepacia. I <b>would</b> pick CF again. I wasn't a lucky person( if there is such thing as a lucky person with CF) but I also didn't have it horrible the whole time.
This isn't a flame toward you Win, but I think you are the type person that would find something to complain about and not be happy, no matter what. JMO.
 

anonymous

New member
Looks like we are pretty much split on this question. I have to say that if I had a "fantacy" choice, Id like to be wealthy and healthy, hehe. But maybe it goes back to this fpr some of us; do you believe in coincidense, luck and random chance? Or maybe you believe things happen for a reason? So for me I think I have CF for many reasons. By me having CF, I underatand people when they say they are struggling with an illness, I can empathize with others and no one can tell me "you dont understand" because we do understand, if I hadnt had CF I would have made different choices, and they probably would have been worse choices. Maybe I would have grew up to be just like my parents (which I am thankful did not happen) Then I would abuse drugs and alcohol and be dead or maybe in jail. I could go on and on, but I know you dont want to hear all of it. The fact is we are who we are. Some people are diabetic, some have cancer, heart problems, aids, down syndrome, or any one of hundreds of different conditions. Some people live in Africa or Russia or Ethiopia. Some people are abused sexually or physically, or even verbally. Some are shot in gangs robberies, etc. You see for me, I know if it hadnt been CF, more than likely it would have been something. And that something could be a lot worse than CF. People who were born perfectly healthy commit suicide everyday. What their excuse? We can sit on this website and wish we didnt have CF, or we can get out there and encourage these kids who have it and let them know that we care about them and we know how they feel. I hope that this does not offend anyone. I do my share of complaining and groaning about CF. If I had it to do again, I would change alot of things and choices I have made, but I think I might be safe keeping the CF. Maybe I would try to have parents who didnt smoke : ) Anyway have a good night.
 
Top