Tough Question

anonymous

New member
I think you should write a book win ace. Maybe if you didnt have CF, you wouldnt be as good of a writer. Why, you are considering "what if everything was perfect, and I didnt have CF" Well, let me tell you, you can wish right on, but it wouldnt be as wonderful as you might think. You wouldnt find the perfect soul mate, never have to worry about yur health, help find a cure for a disease, and help children who have a disease.

I am glad you have found love for someone (Jessica). I hope you are not as negative about CF towards her as you are on here.

This is a good question EB24, thanks for asking. I understand that we need to vent every now and then about the struggles we go through, but the overwhelming negativity on this portion of the website alone is enough to make someone depressed if you arent already.
 

anonymous

New member
JazzysMom, why would someone giving an opinion start a war. Nothing said in that post takes a claim of being factual or true. A question was asked, and anonymous answered. Just because someone doesnt like what someone has to say, that should not constitute a war of sorts. We can simply disagree with one another and move on. But thanks for the warning, i will be ready for whatever.
 

Lilith

New member
Well...I go half way on this. I would have CF again, I think, but I would not have it as severely as I do now. I'd like to be one of those people with a mild case that get to be in their thirties or forties w/out a transplant. I'd like to have CF just to keep the knowledge that I do now, but still be able to work (I worked for a total of 2 weeks at Taco Bell and quit because I was going to be hospitalized if I kept pushing myself). I'd like to be able to get married without having to worry about what Medicaid would say, or be able to wake up in the morning and not cough my brains out, which in turn leads to a massive headache. A mild case would be nice because I would still understand the effects and the consequenses and still have a better appreciation for life, but now my doc tells me I should start considering signing up for a lung tx (which, quite frankly, scares the s*it out of me). Thought I wouldn't have to deal with that for a while, but...I guess I'm not that lucky. It would be nice to have my cake and eat it too, I suppose. So, if that qualifies as an answer, there it is.
 

anonymous

New member
I can't quite honestly reply to this question until my survey of the experience is either nearing it's conclusion or over. I too can at least say CF has beneficially inpacted my character, though, I suppose it could be said I had my character before, and possibly the same character without CF, just not tested as much or in the same ways. I do hate CF though, and also, I would hope I wouldn't be the same fool that chose to have CF, and choose the same to repeat this expereince again. At best, I'd like to think I learned all I can from this experience, and have evolved such that having the same expereince would be useless.

Grendel
33 m
w/CF
 

JazzysMom

New member
I wish I knew why someone giving an opinion would start a war. I dont know WHY, I just know it HAS. There are some topics that are hot & some posters that arent willing to see outside their view even for a second. I just wasnt sure if the anonymous poster knew how the words in their post could easily start a flareup. I personally dont have a problem, but I hate to see people get scared away because of an attack on their opinion so I try to give warning. Nothing ill felt was meant by my warning~
 

WinAce

New member
<blockquote>Quote<br><hr><i>Originally posted by EB24</i>
I think you are the type person that would find something to complain about and not be happy, no matter what.<hr></blockquote>

That's what facts were invented for; to dispell misconceptions like yours, adapted after a cursory skim of anothers' words.

<blockquote>Quote<br><hr><i>Originally posted by Anonymous #1</i>
But maybe it goes back to this fpr some of us; do you believe in coincidense, luck and random chance? Or maybe you believe things happen for a reason? <hr></blockquote>

What role do you suppose chance and "reason" play, here? There are healthy people who never abuse drugs, or are healthy AND wealthy, and CF'ers who are poor, suicidal and were sexually abused, to boot. You would have noticed, if you actually read my post, that I mentioned one little fact that tends to be ignored:

<i>It's not a choice between CF, and everything else. It's a choice between CF <b>and</b>/or everything else.</i>

<blockquote>Quote<br><hr><i>Originally posted by Anonymous #2</i>
I think you should write a book win ace. Maybe if you didnt have CF, you wouldnt be as good of a writer. Why, you are considering "what if everything was perfect, and I didnt have CF" Well, let me tell you, you can wish right on, but it wouldnt be as wonderful as you might think. You wouldnt find the perfect soul mate, never have to worry about yur health, help find a cure for a disease, and help children who have a disease. <hr></blockquote>

Nice to meet you, Professor Farnsworth. I had no idea your "peer into alternate realities" device actually worked! <img src="i/expressions/face-icon-small-happy.gif" border="0">

<blockquote>Quote<br><hr><i>Originally posted by Lilith</i>
I would have CF again, I think, but I would not have it as severely as I do now. I'd like to be one of those people with a mild case that get to be in their thirties or forties w/out a transplant.<hr></blockquote>

It would still need to have some pretty clear, well-documented advantages it gave you in other areas to be justified, though. Being too sick to work at 30 might not suck as much as dropping out of school after almost dying, but it's still something that ideally, no one would go through.

<blockquote>Quote<br><hr><i>Originally posted by Grendel</i>
I can't quite honestly reply to this question until my survey of the experience is either nearing it's conclusion or over.<hr></blockquote>

Very keen answer. Until I did some thinking about counterfactuals, that was my take on the issue, too. Just like with a book, only time may tell whether, on balance, it would be a life worth re-living.

I conclude differently because, with very few exceptions (none that I can think of as more likely to occur with CF than without), there's nothing that can outweigh the negative effect it'll have on your life.
 

anonymous

New member
Hi i'm 29 with cf and asked that question i have to say i would have to live with it, after all what you don't have you don't miss i can never imagine life without cf, all the people i have met doctors and nurses and have become friends with. I have learnt lots of lessons too and i belive having cf can make you a stronger more determined person.
I keep quite well with my cf so am lucky, and can lead the life i want for now, but had things been different or were to change it would make you ask yourself that question.
 

EB24

New member
WinAce I have been praying for you. I know you don't believe in that but I do and I hope it helps. I haven't prayed for you to get better, because that would be ignorant on my part, but I have prayed that your pain will go away. How that will happen isn't up to me, but I hope it is soon.
 

ClashPunk82

New member
It is a tough question. If I had a choice I would choose having CF again. I don't know any different and it's a part of me. But I would like a less severe case and live until I'm 80 <img src="i/expressions/face-icon-small-smile.gif" border="0"> But then again I would like to see what it would be like to be normal and not have to think about anything that goes along with CF. I think I would have it again but if I could have a week or so of being normal that would be great! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

WinAce

New member
Might help you think you're making a difference, EB24; I personally doubt it, and your prayer, to be honest, sounds creepy. I have specific ideas of how I'd like my "pain to go away," none of which involve death, which you're alluding to.
 

EB24

New member
Didn't mean it to sound that way, and yes it gives me comfort to pray for others. Actually I have been praying that you get a transplant and your pain goes away that route.
 

supermanfan

New member
I think having CF also matures someone, and allows them to appreciate the simple things in life that many people don't even think of. I am happy to have been born with CF compared to some other diseases out there.
 

JennifersHope

New member
Wish we had a choice, but we don't but just to play along.. WIthout a question of a doubt I would NOT have CF...No thank you, I don't really care what kind of a person it may or may not have made me.. Being that I didn't know I had it my whole life, it didn't really make or mold me into anything different than what I already was.

The events in my life that are non CF related are the things that made me who I am.. The non CF hardships molded me, and well I guess I wouldn't trade those things, though most of time I wish I could, so I guess if CF was the reason I was compassionate or had a relationship with GOd or something then I wouldn't trade them but being that it isn't .. I would like to return the CF if I could. Anyone know where they do returns on it????
<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
Me 2 - not because I am really ill or anything but have a major fear of dying young!<img src="i/expressions/face-icon-small-sad.gif" border="0">
 

anonymous

New member
If I had a choice I would want my 2 children to not have it! If someone were to have to have it I would wish it were me. It is hard to watch your kids miss out in many ways to a diagnosis and to have to go thru so much crap everyday just to fill good. It sucks!!!
 
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