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transplants not sure if i wanna go for it
- Thread starter Yuri007
- Start date
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>findingher</b></i>
Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote></div>
yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote></div>
yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>findingher</b></i>
Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote></div>
yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote></div>
yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>findingher</b></i>
Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote></div>
yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote></div>
yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>findingher</b></i>
Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote>
yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote>
yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>findingher</b></i>
<br />
<br />Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
<br />
<br />
<br />
<br />As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote>
<br />
<br />yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
<br />
<br />
<br />
<br />Just to wonder, if you were curious about it, why couldn't you just ask your doctors? Even if it's just out of curiosity, I'd ask "Hey, Dr So & So, why haven't you ever asked me if I want a transplant?"
<br />
<br />
<br />
<br />As far as I know, past drinking and drug use, don't affect your listing unless you're currently doing the same bad behavior. If you were addicted, then they see how long you've been sober or drug free. I've heard stories about transplant patients that were former addicts, or even screwed up their transplant by doing drugs, and got ANOTHER. If you decide you want a transplant, then be proactive.</end quote>
<br />
<br />yeah i hear stuff like that too. man i wish it wasnt so much pain and stress ;( ill sleep on it for little i still got time i think, who knowes what god got in store for me .. thanks
<br />
<br />
coltsfan715
New member
I will admit I have not read all of the posts so I do not know what others have already said.
I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
I say if you are interested ASK - then if they say no ask WHY.
If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
Love Linds
I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
I say if you are interested ASK - then if they say no ask WHY.
If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
Love Linds
coltsfan715
New member
I will admit I have not read all of the posts so I do not know what others have already said.
I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
I say if you are interested ASK - then if they say no ask WHY.
If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
Love Linds
I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
I say if you are interested ASK - then if they say no ask WHY.
If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
Love Linds
coltsfan715
New member
I will admit I have not read all of the posts so I do not know what others have already said.
I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
I say if you are interested ASK - then if they say no ask WHY.
If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
Love Linds
I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
I say if you are interested ASK - then if they say no ask WHY.
If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
Love Linds
coltsfan715
New member
I will admit I have not read all of the posts so I do not know what others have already said.
I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
I say if you are interested ASK - then if they say no ask WHY.
If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
Love Linds
I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
I say if you are interested ASK - then if they say no ask WHY.
If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
Love Linds
coltsfan715
New member
I will admit I have not read all of the posts so I do not know what others have already said.
<br />
<br />I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
<br />
<br />I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
<br />
<br />I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
<br />
<br />I say if you are interested ASK - then if they say no ask WHY.
<br />
<br />If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
<br />
<br />Love Linds
<br />
<br />I do want to say this though. I was never asked about whether or not I wanted to pursue transplant. It was never brought up to me. I asked about it and actually had doctors tell me I didn't need to pursue because I was years from needing it - my FEV1 was around 30% at that time. I looked into it further and wanted to at the very least get some info and be referred to a center and let the TRANSPLANT docs decide if I was ready or not.
<br />
<br />I went to several docs and asked them to refer me several said no. I then asked if there was something about me that made me "non transplantable" some said nothing, others stammered. I did not and do not smoke, rarely if ever drank, and never did anything "questionable" and still they gave me the run around about it.
<br />
<br />I think alot of it boils down to preference. Some docs do not believe in transplant so much and therefore don't bring it up. Some docs look at it as if the patient is interested they will ask. Some will bring it up but just from what I have seen and heard that is pretty rare - that the doc initiates it.
<br />
<br />I say if you are interested ASK - then if they say no ask WHY.
<br />
<br />If it is something that you are at least interested in then pursue it for yourself do not let them unintentioanlly take away what could be a great opportunity for you. If you are not pursuing it because YOU don't want to have a transplant is one thing but to not pursue it because no one has brought it up to you is different. Put it on the table and let them know you are interested - they may never know otherwise.
<br />
<br />Love Linds
Transplantmommy
New member
I guess that I should mention that my CF doctor <b>did</b> bring it up to me. I was in the hospital in isolation (because the docs in the ER thought that I had TB...which I didn't) and when my CF doctor came there to see me he threw a fit because they should have known that there are some signs of CF that look like TB (I guess) and he was pissed!!! He came into my room to talk to me and told me that he had looked at my x-rays, CT scans, and the cultures that they took and said that things were not looking good for my lungs or my liver. It was that day that he told me that I had holes, mold, and staff in my lungs and that the Cirrhosis in my liver wasn't looking much better. My lung function was around 40% at that time. I asked him what there was to do about it and he told me transplants. I was scared at first but knew what I had to do so I agreed. I had only been married for a little over 2 years and didn't want it to end that quickly. Eight months later (after the evaluations had already started) I found out that I was 9 weeks pregnant and had to fight even harder now because I was keeping the baby and wanted to be here for him.
I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.
I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.
Transplantmommy
New member
I guess that I should mention that my CF doctor <b>did</b> bring it up to me. I was in the hospital in isolation (because the docs in the ER thought that I had TB...which I didn't) and when my CF doctor came there to see me he threw a fit because they should have known that there are some signs of CF that look like TB (I guess) and he was pissed!!! He came into my room to talk to me and told me that he had looked at my x-rays, CT scans, and the cultures that they took and said that things were not looking good for my lungs or my liver. It was that day that he told me that I had holes, mold, and staff in my lungs and that the Cirrhosis in my liver wasn't looking much better. My lung function was around 40% at that time. I asked him what there was to do about it and he told me transplants. I was scared at first but knew what I had to do so I agreed. I had only been married for a little over 2 years and didn't want it to end that quickly. Eight months later (after the evaluations had already started) I found out that I was 9 weeks pregnant and had to fight even harder now because I was keeping the baby and wanted to be here for him.
I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.
I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.
Transplantmommy
New member
I guess that I should mention that my CF doctor <b>did</b> bring it up to me. I was in the hospital in isolation (because the docs in the ER thought that I had TB...which I didn't) and when my CF doctor came there to see me he threw a fit because they should have known that there are some signs of CF that look like TB (I guess) and he was pissed!!! He came into my room to talk to me and told me that he had looked at my x-rays, CT scans, and the cultures that they took and said that things were not looking good for my lungs or my liver. It was that day that he told me that I had holes, mold, and staff in my lungs and that the Cirrhosis in my liver wasn't looking much better. My lung function was around 40% at that time. I asked him what there was to do about it and he told me transplants. I was scared at first but knew what I had to do so I agreed. I had only been married for a little over 2 years and didn't want it to end that quickly. Eight months later (after the evaluations had already started) I found out that I was 9 weeks pregnant and had to fight even harder now because I was keeping the baby and wanted to be here for him.
I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.
I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.
Transplantmommy
New member
I guess that I should mention that my CF doctor <b>did</b> bring it up to me. I was in the hospital in isolation (because the docs in the ER thought that I had TB...which I didn't) and when my CF doctor came there to see me he threw a fit because they should have known that there are some signs of CF that look like TB (I guess) and he was pissed!!! He came into my room to talk to me and told me that he had looked at my x-rays, CT scans, and the cultures that they took and said that things were not looking good for my lungs or my liver. It was that day that he told me that I had holes, mold, and staff in my lungs and that the Cirrhosis in my liver wasn't looking much better. My lung function was around 40% at that time. I asked him what there was to do about it and he told me transplants. I was scared at first but knew what I had to do so I agreed. I had only been married for a little over 2 years and didn't want it to end that quickly. Eight months later (after the evaluations had already started) I found out that I was 9 weeks pregnant and had to fight even harder now because I was keeping the baby and wanted to be here for him.
I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.
I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.
Transplantmommy
New member
I guess that I should mention that my CF doctor <b>did</b> bring it up to me. I was in the hospital in isolation (because the docs in the ER thought that I had TB...which I didn't) and when my CF doctor came there to see me he threw a fit because they should have known that there are some signs of CF that look like TB (I guess) and he was pissed!!! He came into my room to talk to me and told me that he had looked at my x-rays, CT scans, and the cultures that they took and said that things were not looking good for my lungs or my liver. It was that day that he told me that I had holes, mold, and staff in my lungs and that the Cirrhosis in my liver wasn't looking much better. My lung function was around 40% at that time. I asked him what there was to do about it and he told me transplants. I was scared at first but knew what I had to do so I agreed. I had only been married for a little over 2 years and didn't want it to end that quickly. Eight months later (after the evaluations had already started) I found out that I was 9 weeks pregnant and had to fight even harder now because I was keeping the baby and wanted to be here for him.
<br />
<br />I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
<br />
<br />PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.
<br />
<br />I got the transplants 1 year and 3 weeks (to the day) after Brady was born and it was the best decision that I ever made!!
<br />
<br />PS-I was unaware that most doctors do not bring transplant up to the patients and that the patients had to ask about it. That seems kind of ridiculous.