Just thought I'ld share how it went flying and traveling with my almost 4 year old with CF and husband and son and what worked for us.
First off, we packed light, my husband and i shared a suitcase and my daughter and son shared one(both of which we checked) also checked a carseat for my daughter. We took my daughter's VEST as a carryon, they had to x-ray it in security. the VEST fit in the overhead on the bigger airplane but we had to switch flights and took a very small plane as well, we put the VEST under the seat as a carry-on on the smaller plane. I carried on my daughter's compressor, which also got x-rayed at security. The liquid medication, like nebulized albuterol, pulmicort, zantac, anti's I packed in one bag, which all had to be looked at by security to make sure they were meds.(didn't take long) Also, all medications need to be in original bottle with the prescription/name of person on it. I had another carryon bag of just meds that were pills. The pulmozyme we put on an ice-pack, the kind that CF Services pharmacy uses to ship them to you and put it in an insulated lunchbox(this worked very well to keep it cool). I was allowed to bring on my Purell hand sanitizer but it had to be in a 3 oz bottle in a clear ziploc bag. You are only allowed to bring in drinks that you buy at a shop in the airport past the security gate.
We did do one VEST treatment and neb treatment at the airport, at at empty gate area, just plugged right in and noone seemed to care.
I had my daughter's doc write a letter about her CF and all the stuff we had to carry but noone wanted to see it, but I'm glad I had it for just in case.
I brought some disposable nebs to use if I didn't have a place to wash and sterilize them. The hotel we stayed at had a kitchen in it so once we were there I boiled the nebs like I usually do at home.
Anyhow, The kids had a great time, we went to Disney world, and a few differnet parks there including Animal Kingdom.
Traveling was not as hard as I thought it would be, though my husband carried the VEST and I can imagine it gets very heavy.
I'ld be happy to post more tips if anyone has questions because it all turned out fun and ok and we not only survived but had a good time!
First off, we packed light, my husband and i shared a suitcase and my daughter and son shared one(both of which we checked) also checked a carseat for my daughter. We took my daughter's VEST as a carryon, they had to x-ray it in security. the VEST fit in the overhead on the bigger airplane but we had to switch flights and took a very small plane as well, we put the VEST under the seat as a carry-on on the smaller plane. I carried on my daughter's compressor, which also got x-rayed at security. The liquid medication, like nebulized albuterol, pulmicort, zantac, anti's I packed in one bag, which all had to be looked at by security to make sure they were meds.(didn't take long) Also, all medications need to be in original bottle with the prescription/name of person on it. I had another carryon bag of just meds that were pills. The pulmozyme we put on an ice-pack, the kind that CF Services pharmacy uses to ship them to you and put it in an insulated lunchbox(this worked very well to keep it cool). I was allowed to bring on my Purell hand sanitizer but it had to be in a 3 oz bottle in a clear ziploc bag. You are only allowed to bring in drinks that you buy at a shop in the airport past the security gate.
We did do one VEST treatment and neb treatment at the airport, at at empty gate area, just plugged right in and noone seemed to care.
I had my daughter's doc write a letter about her CF and all the stuff we had to carry but noone wanted to see it, but I'm glad I had it for just in case.
I brought some disposable nebs to use if I didn't have a place to wash and sterilize them. The hotel we stayed at had a kitchen in it so once we were there I boiled the nebs like I usually do at home.
Anyhow, The kids had a great time, we went to Disney world, and a few differnet parks there including Animal Kingdom.
Traveling was not as hard as I thought it would be, though my husband carried the VEST and I can imagine it gets very heavy.
I'ld be happy to post more tips if anyone has questions because it all turned out fun and ok and we not only survived but had a good time!