wanderlost
New member
1) re: TOBI
Is TOBi purely maintnance or does it have a cumulative effect? Meaning, will I notice more improvement the longer I do it? I ask because I am now on my 2nd cycle and I feel like crap: more congested than ever, wheezy. I have found using my albuterol before and after a treatment helps, but this kinda sucks: so am I just breaking up a bunch of PA areas and it's going to get better? or am I just reacting badly to it? er whut?
2) I was just curious: what can you and can't you relate to about Cf with others? Such as, I can't relate to people who have trouble maintainging weight, need feeding tubes, etc. as I have never had that, BUt I totally relate to the issues about telling whether or not you have CF and coughing issues because those are really big in my life - so I was just curious as to what others took from this site and what they leave behind.
Is TOBi purely maintnance or does it have a cumulative effect? Meaning, will I notice more improvement the longer I do it? I ask because I am now on my 2nd cycle and I feel like crap: more congested than ever, wheezy. I have found using my albuterol before and after a treatment helps, but this kinda sucks: so am I just breaking up a bunch of PA areas and it's going to get better? or am I just reacting badly to it? er whut?
2) I was just curious: what can you and can't you relate to about Cf with others? Such as, I can't relate to people who have trouble maintainging weight, need feeding tubes, etc. as I have never had that, BUt I totally relate to the issues about telling whether or not you have CF and coughing issues because those are really big in my life - so I was just curious as to what others took from this site and what they leave behind.