two things

[lightNlife]

I alternate between TOBI and Tazicef, one month at a time. I've been on TOBI for years, and with the exception of this last year, I think I've been able to maintain a pretty good level of lung health. I used to do Tobramycin as part of a tune-up back in the day before the inhaled TOBI was available. I think since I've been able to show such great response to the IV form, the inhaled for is effective for me as well.

I've recently had to weigh the pros and cons of TOBI and decide whether I should continue with it. I have considerable hearing loss in my left ear from it. However, I'm willing to sacrifice hearing in exchange for decent lung function. That's what's worked for me. I'm looking forward to getting my eFlow tomorrow (that is, if it didn't get held up because of the fires)

Relating to others with CF...

Well, the biggest one for me is that I don't relate well to those who go the pregnancy route. I don't begrudge them their decision, I just can't see it from the same angle. But as we say about my extended family who doesn't always understand us or our decisions "You don't have to agree with it or even like it, but you do have to be supportive about it."

I relate best to those who share my faith, because that's quite a powerful common bond. I know sometimes that can make others feel a bit alienated, but truly, that's not my intent. I operate from a worldview that's centered on hope, and a belief that I am loved by a creator God. I'm not embarrassed about that or ashamed of it. I only wish more people could have that peace that I do, because it really helps get me through the rough patches with CF.

One of the things I've learned from this site that there are untold numbers of ways that people manage CF. There are people I've learned about on this site that I pity, and there are others who make me feel hopeful that I too can have an excellent quality of life. Some days I get depressed by what's going on in some people's lives, and other days I'm celebrating wildly with those who experience a personal victory. This site is an interesting pocket of the world, and one that I'm privileged to have stumbled into.

 

[lightNlife]

I alternate between TOBI and Tazicef, one month at a time. I've been on TOBI for years, and with the exception of this last year, I think I've been able to maintain a pretty good level of lung health. I used to do Tobramycin as part of a tune-up back in the day before the inhaled TOBI was available. I think since I've been able to show such great response to the IV form, the inhaled for is effective for me as well.

I've recently had to weigh the pros and cons of TOBI and decide whether I should continue with it. I have considerable hearing loss in my left ear from it. However, I'm willing to sacrifice hearing in exchange for decent lung function. That's what's worked for me. I'm looking forward to getting my eFlow tomorrow (that is, if it didn't get held up because of the fires)

Relating to others with CF...

Well, the biggest one for me is that I don't relate well to those who go the pregnancy route. I don't begrudge them their decision, I just can't see it from the same angle. But as we say about my extended family who doesn't always understand us or our decisions "You don't have to agree with it or even like it, but you do have to be supportive about it."

I relate best to those who share my faith, because that's quite a powerful common bond. I know sometimes that can make others feel a bit alienated, but truly, that's not my intent. I operate from a worldview that's centered on hope, and a belief that I am loved by a creator God. I'm not embarrassed about that or ashamed of it. I only wish more people could have that peace that I do, because it really helps get me through the rough patches with CF.

One of the things I've learned from this site that there are untold numbers of ways that people manage CF. There are people I've learned about on this site that I pity, and there are others who make me feel hopeful that I too can have an excellent quality of life. Some days I get depressed by what's going on in some people's lives, and other days I'm celebrating wildly with those who experience a personal victory. This site is an interesting pocket of the world, and one that I'm privileged to have stumbled into.

 

[lightNlife]

I alternate between TOBI and Tazicef, one month at a time. I've been on TOBI for years, and with the exception of this last year, I think I've been able to maintain a pretty good level of lung health. I used to do Tobramycin as part of a tune-up back in the day before the inhaled TOBI was available. I think since I've been able to show such great response to the IV form, the inhaled for is effective for me as well.

I've recently had to weigh the pros and cons of TOBI and decide whether I should continue with it. I have considerable hearing loss in my left ear from it. However, I'm willing to sacrifice hearing in exchange for decent lung function. That's what's worked for me. I'm looking forward to getting my eFlow tomorrow (that is, if it didn't get held up because of the fires)

Relating to others with CF...

Well, the biggest one for me is that I don't relate well to those who go the pregnancy route. I don't begrudge them their decision, I just can't see it from the same angle. But as we say about my extended family who doesn't always understand us or our decisions "You don't have to agree with it or even like it, but you do have to be supportive about it."

I relate best to those who share my faith, because that's quite a powerful common bond. I know sometimes that can make others feel a bit alienated, but truly, that's not my intent. I operate from a worldview that's centered on hope, and a belief that I am loved by a creator God. I'm not embarrassed about that or ashamed of it. I only wish more people could have that peace that I do, because it really helps get me through the rough patches with CF.

One of the things I've learned from this site that there are untold numbers of ways that people manage CF. There are people I've learned about on this site that I pity, and there are others who make me feel hopeful that I too can have an excellent quality of life. Some days I get depressed by what's going on in some people's lives, and other days I'm celebrating wildly with those who experience a personal victory. This site is an interesting pocket of the world, and one that I'm privileged to have stumbled into.

 

[lightNlife]

I alternate between TOBI and Tazicef, one month at a time. I've been on TOBI for years, and with the exception of this last year, I think I've been able to maintain a pretty good level of lung health. I used to do Tobramycin as part of a tune-up back in the day before the inhaled TOBI was available. I think since I've been able to show such great response to the IV form, the inhaled for is effective for me as well.

I've recently had to weigh the pros and cons of TOBI and decide whether I should continue with it. I have considerable hearing loss in my left ear from it. However, I'm willing to sacrifice hearing in exchange for decent lung function. That's what's worked for me. I'm looking forward to getting my eFlow tomorrow (that is, if it didn't get held up because of the fires)

Relating to others with CF...

Well, the biggest one for me is that I don't relate well to those who go the pregnancy route. I don't begrudge them their decision, I just can't see it from the same angle. But as we say about my extended family who doesn't always understand us or our decisions "You don't have to agree with it or even like it, but you do have to be supportive about it."

I relate best to those who share my faith, because that's quite a powerful common bond. I know sometimes that can make others feel a bit alienated, but truly, that's not my intent. I operate from a worldview that's centered on hope, and a belief that I am loved by a creator God. I'm not embarrassed about that or ashamed of it. I only wish more people could have that peace that I do, because it really helps get me through the rough patches with CF.

One of the things I've learned from this site that there are untold numbers of ways that people manage CF. There are people I've learned about on this site that I pity, and there are others who make me feel hopeful that I too can have an excellent quality of life. Some days I get depressed by what's going on in some people's lives, and other days I'm celebrating wildly with those who experience a personal victory. This site is an interesting pocket of the world, and one that I'm privileged to have stumbled into.

 

[lightNlife]

I alternate between TOBI and Tazicef, one month at a time. I've been on TOBI for years, and with the exception of this last year, I think I've been able to maintain a pretty good level of lung health. I used to do Tobramycin as part of a tune-up back in the day before the inhaled TOBI was available. I think since I've been able to show such great response to the IV form, the inhaled for is effective for me as well.

I've recently had to weigh the pros and cons of TOBI and decide whether I should continue with it. I have considerable hearing loss in my left ear from it. However, I'm willing to sacrifice hearing in exchange for decent lung function. That's what's worked for me. I'm looking forward to getting my eFlow tomorrow (that is, if it didn't get held up because of the fires)

Relating to others with CF...

Well, the biggest one for me is that I don't relate well to those who go the pregnancy route. I don't begrudge them their decision, I just can't see it from the same angle. But as we say about my extended family who doesn't always understand us or our decisions "You don't have to agree with it or even like it, but you do have to be supportive about it."

I relate best to those who share my faith, because that's quite a powerful common bond. I know sometimes that can make others feel a bit alienated, but truly, that's not my intent. I operate from a worldview that's centered on hope, and a belief that I am loved by a creator God. I'm not embarrassed about that or ashamed of it. I only wish more people could have that peace that I do, because it really helps get me through the rough patches with CF.

One of the things I've learned from this site that there are untold numbers of ways that people manage CF. There are people I've learned about on this site that I pity, and there are others who make me feel hopeful that I too can have an excellent quality of life. Some days I get depressed by what's going on in some people's lives, and other days I'm celebrating wildly with those who experience a personal victory. This site is an interesting pocket of the world, and one that I'm privileged to have stumbled into.

 

[Imogene]

"a pocket of life we're all priviledged to have stumbled into..."
that's perfectly stated for me!

Love, Jeanne

 

[Imogene]

"a pocket of life we're all priviledged to have stumbled into..."
that's perfectly stated for me!

Love, Jeanne

 

[Imogene]

"a pocket of life we're all priviledged to have stumbled into..."
that's perfectly stated for me!

Love, Jeanne

 

[Imogene]

"a pocket of life we're all priviledged to have stumbled into..."
that's perfectly stated for me!

Love, Jeanne

 

[Imogene]

"a pocket of life we're all priviledged to have stumbled into..."
that's perfectly stated for me!

Love, Jeanne

 

[mamerth]

I tried Tobi-- didn't like the stuff.

I relate to the issue of telling others about my CF and the distracting cough. I am starting to relate to the diabetes thing (I am borderline diabetic).

I cannot relate to the tons of meds and pills. I only take meds for active infections and such. Most of my "pills" are vitamins. I also cannot relate to the struggle with weight gain... I could stand to loose a few pounds (about 5 lbs) but I am not in any hurry since is not significant(I might need them later if I get sick again <img src="i/expressions/face-icon-small-smile.gif" border="0">. I used to struggle with weight something horrible but started maintain my weight after my pregnancy.

 

[mamerth]

I tried Tobi-- didn't like the stuff.

I relate to the issue of telling others about my CF and the distracting cough. I am starting to relate to the diabetes thing (I am borderline diabetic).

I cannot relate to the tons of meds and pills. I only take meds for active infections and such. Most of my "pills" are vitamins. I also cannot relate to the struggle with weight gain... I could stand to loose a few pounds (about 5 lbs) but I am not in any hurry since is not significant(I might need them later if I get sick again <img src="i/expressions/face-icon-small-smile.gif" border="0">. I used to struggle with weight something horrible but started maintain my weight after my pregnancy.

 

[mamerth]

I tried Tobi-- didn't like the stuff.

I relate to the issue of telling others about my CF and the distracting cough. I am starting to relate to the diabetes thing (I am borderline diabetic).

I cannot relate to the tons of meds and pills. I only take meds for active infections and such. Most of my "pills" are vitamins. I also cannot relate to the struggle with weight gain... I could stand to loose a few pounds (about 5 lbs) but I am not in any hurry since is not significant(I might need them later if I get sick again <img src="i/expressions/face-icon-small-smile.gif" border="0">. I used to struggle with weight something horrible but started maintain my weight after my pregnancy.

 

[mamerth]

I tried Tobi-- didn't like the stuff.

I relate to the issue of telling others about my CF and the distracting cough. I am starting to relate to the diabetes thing (I am borderline diabetic).

I cannot relate to the tons of meds and pills. I only take meds for active infections and such. Most of my "pills" are vitamins. I also cannot relate to the struggle with weight gain... I could stand to loose a few pounds (about 5 lbs) but I am not in any hurry since is not significant(I might need them later if I get sick again <img src="i/expressions/face-icon-small-smile.gif" border="0">. I used to struggle with weight something horrible but started maintain my weight after my pregnancy.

 

[mamerth]

I tried Tobi-- didn't like the stuff.

I relate to the issue of telling others about my CF and the distracting cough. I am starting to relate to the diabetes thing (I am borderline diabetic).

I cannot relate to the tons of meds and pills. I only take meds for active infections and such. Most of my "pills" are vitamins. I also cannot relate to the struggle with weight gain... I could stand to loose a few pounds (about 5 lbs) but I am not in any hurry since is not significant(I might need them later if I get sick again <img src="i/expressions/face-icon-small-smile.gif" border="0">. I used to struggle with weight something horrible but started maintain my weight after my pregnancy.

 

[65rosessamurai]

I cannot relate to those using tobi, or going in the hospital for maintenance, but as of three months ago, I can relate to the nebbing thing and hymoptsis...also I can relate with digestion issues, which was the first thing because I mainly had digestion issues to begin with...

OOPS! Forgot to add...there are other meds out there that I'm unfamiliar with, so I can't relate much to that...except the NAC! (Get the NAC! **couldn't resist**)

But, I also cannot relate to weight gaining, since I'm one who can gain it easier than loosing it, but seem to be able to maintain a "nominal" weight for myself...that's it, I think...

 

[65rosessamurai]

I cannot relate to those using tobi, or going in the hospital for maintenance, but as of three months ago, I can relate to the nebbing thing and hymoptsis...also I can relate with digestion issues, which was the first thing because I mainly had digestion issues to begin with...

OOPS! Forgot to add...there are other meds out there that I'm unfamiliar with, so I can't relate much to that...except the NAC! (Get the NAC! **couldn't resist**)

But, I also cannot relate to weight gaining, since I'm one who can gain it easier than loosing it, but seem to be able to maintain a "nominal" weight for myself...that's it, I think...

 

[65rosessamurai]

I cannot relate to those using tobi, or going in the hospital for maintenance, but as of three months ago, I can relate to the nebbing thing and hymoptsis...also I can relate with digestion issues, which was the first thing because I mainly had digestion issues to begin with...

OOPS! Forgot to add...there are other meds out there that I'm unfamiliar with, so I can't relate much to that...except the NAC! (Get the NAC! **couldn't resist**)

But, I also cannot relate to weight gaining, since I'm one who can gain it easier than loosing it, but seem to be able to maintain a "nominal" weight for myself...that's it, I think...

 

[65rosessamurai]

I cannot relate to those using tobi, or going in the hospital for maintenance, but as of three months ago, I can relate to the nebbing thing and hymoptsis...also I can relate with digestion issues, which was the first thing because I mainly had digestion issues to begin with...

OOPS! Forgot to add...there are other meds out there that I'm unfamiliar with, so I can't relate much to that...except the NAC! (Get the NAC! **couldn't resist**)

But, I also cannot relate to weight gaining, since I'm one who can gain it easier than loosing it, but seem to be able to maintain a "nominal" weight for myself...that's it, I think...

 

[65rosessamurai]

I cannot relate to those using tobi, or going in the hospital for maintenance, but as of three months ago, I can relate to the nebbing thing and hymoptsis...also I can relate with digestion issues, which was the first thing because I mainly had digestion issues to begin with...

OOPS! Forgot to add...there are other meds out there that I'm unfamiliar with, so I can't relate much to that...except the NAC! (Get the NAC! **couldn't resist**)

But, I also cannot relate to weight gaining, since I'm one who can gain it easier than loosing it, but seem to be able to maintain a "nominal" weight for myself...that's it, I think...