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update on Marie, our Swedishstar
- Thread starter Marjolein
- Start date
I just woke up from a very uneasy night. Marie was to have a bronc yesterdaymorning. I texted her a few hours later to ask her how it went but she didn't reply. So i waited till early evening and sent another one, after all you can be sleepy from the aneastetic. Didn't hear anything again and i was worried... I had this uneasy feeling the whole day, where my heart felt like it was racing of something and i had an empty feeling. And then knowing that Marie sends me a text really every day..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
I just woke up from a very uneasy night. Marie was to have a bronc yesterdaymorning. I texted her a few hours later to ask her how it went but she didn't reply. So i waited till early evening and sent another one, after all you can be sleepy from the aneastetic. Didn't hear anything again and i was worried... I had this uneasy feeling the whole day, where my heart felt like it was racing of something and i had an empty feeling. And then knowing that Marie sends me a text really every day..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
I just woke up from a very uneasy night. Marie was to have a bronc yesterdaymorning. I texted her a few hours later to ask her how it went but she didn't reply. So i waited till early evening and sent another one, after all you can be sleepy from the aneastetic. Didn't hear anything again and i was worried... I had this uneasy feeling the whole day, where my heart felt like it was racing of something and i had an empty feeling. And then knowing that Marie sends me a text really every day..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
I just woke up from a very uneasy night. Marie was to have a bronc yesterdaymorning. I texted her a few hours later to ask her how it went but she didn't reply. So i waited till early evening and sent another one, after all you can be sleepy from the aneastetic. Didn't hear anything again and i was worried... I had this uneasy feeling the whole day, where my heart felt like it was racing of something and i had an empty feeling. And then knowing that Marie sends me a text really every day..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
I just woke up from a very uneasy night. Marie was to have a bronc yesterdaymorning. I texted her a few hours later to ask her how it went but she didn't reply. So i waited till early evening and sent another one, after all you can be sleepy from the aneastetic. Didn't hear anything again and i was worried... I had this uneasy feeling the whole day, where my heart felt like it was racing of something and i had an empty feeling. And then knowing that Marie sends me a text really every day..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
So i decided to sent a text to someone from her family. Her dad texted me back later in the evening, around 10.30 i think..
Marie is very sick. She is in intensive care...
He said she still has problems with infection in her eye.
But now there is one other major problem, a fungus on one of her heart valves...
So it can't open and close properly...
The problems wil be addressed with medicine and as soon as she is stable with some surgical operation...
6 months ago she was whealed into icu just before her tx and exactly 6 months later she is back there again...
How can this happen??? Why does this have to happen to her, such a sweet sweet girl. Always thinking of others.
I had tears going down my face for a long time till they stopped like i didn't have anymore, but i just felt sick and scared, think i felt to sleep like that. Only to wake up a lot.
I just got a text this morning when i woke up from her father again telling me that Marie had had a stable night and that he was going to see her now. He will keep me updated
I asked him if i would post this all online, that i had been updating all her friends over the world the past weeks, as we all know Marie needs all the thoughts and prayers she can have, but i understand when the family didn't want that. He said ofcourse i could.
So this is what happened to past hours.. Why i didn't hear anything from her... I soooo wish i could have gone to see her 4 weeks ago! But my stupid back spoiled that for us.
I'm supposed to be going somewhere end of august, early september now... I really really hope i can
And she was online for a bit thursday evening and my internet shut down and wouldn't work again so i we couldn't talk... Only for 2 minutes before it shut down. I can't believe that that had to happen, i was so angry then, it really felt like i needed to talk to her and now i heard she was taken to icu...
You know what. Marie had a fungus in her lungs, that happens more, and she had nebs for that. She told me a few times she was a bit scared about it, that it wasn't gone yet.. And she was scared that it had gotten in the wound with her transplant and would infect her chest cavity...
How well this girl knows her own body...
Sorry i am rambling a bit i think... My thoughts are all over the place..
kayleesgrandma
New member
I am so sorry this is happening! How scared you must be for her. Please let her family know we are all praying for her to pull through this ordeal--one more hill to climb. Seems more like a mountain right now...Our prayers are flying upwards for her...<img src="i/expressions/face-icon-small-sad.gif" border="0">
kayleesgrandma
New member
I am so sorry this is happening! How scared you must be for her. Please let her family know we are all praying for her to pull through this ordeal--one more hill to climb. Seems more like a mountain right now...Our prayers are flying upwards for her...<img src="i/expressions/face-icon-small-sad.gif" border="0">
kayleesgrandma
New member
I am so sorry this is happening! How scared you must be for her. Please let her family know we are all praying for her to pull through this ordeal--one more hill to climb. Seems more like a mountain right now...Our prayers are flying upwards for her...<img src="i/expressions/face-icon-small-sad.gif" border="0">
kayleesgrandma
New member
I am so sorry this is happening! How scared you must be for her. Please let her family know we are all praying for her to pull through this ordeal--one more hill to climb. Seems more like a mountain right now...Our prayers are flying upwards for her...<img src="i/expressions/face-icon-small-sad.gif" border="0">
kayleesgrandma
New member
I am so sorry this is happening! How scared you must be for her. Please let her family know we are all praying for her to pull through this ordeal--one more hill to climb. Seems more like a mountain right now...Our prayers are flying upwards for her...<img src="i/expressions/face-icon-small-sad.gif" border="0">
Hi !
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.
Hi !
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.
Hi !
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.
Hi !
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.
Hi !
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.
I was chocked by the news about Marie ! She mailed med now and then and now I haven´t heard anything for a while. I was reading the messages about her and I feel vera bad for her. Why does it always have to more than one problem for the most of us Cf:ers ? <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think of Marie and hope everything turns out well for her.
/cf72 from Sweden too.