Warning: Very graphic!!

[ccflewallen]

It does not matter who said this or when it was said, I just want to get my point across about unnecessary negative comments. Here is just one example of what a young teen or new CF mother might be subjected to if they linger on here. And there is no warning that it will be here either other than this being called an "Adult" forum, which means nothing. If anything, it attracts teen and new cf mothers. Well, here it is. If you are a teen or mother, you have been forewarned, this is a very graphic comment!.....


So far, I've managed to avoid a lot of the things I've seen happen to friends. Debilitating things. Scary things that make Night of the Living Dead and Alien look like a Barney song. Drowning (literally) in your own blood, having constant agonizing pain so bad you couldn't move, being unable to eat on your own. Having your breathing literally corked by infected phlegm, and developing such a degree of osteoporosis that chest PT or the Vest shatters ribs. Before slowly and agonizingly attaching you to a ventilator and killing you while family and friends watch.

Well, I am truely sorry and that will be the last I say about the matter.

 

[IG]

Why post this?
Honestly if a person comes here, they come here seeking the truth.
And they get it.
No matter how graphic, disgusting, horrid, sad, debilitating it might be. How they react to it is up to them.
If you have a problem with that I suggest you don't frequent these boards anymore.
Or stick to the off topic area, where I'm sure things stay sunny all the time.

 

[Emily65Roses]

Yeah we like real life here. So until life stops being "graphic, disgusting, horrid, sad, debilitating" like Candice said... the boards will be the same way. Not even all the time. But we don't sugarcoat the truth here. Most of us appreciate the truth. I know I do.

 

[AimeeSue82]

I've read quite a few of the threads you've posted on and I just have a question for you. It's obvious that you're completely disgusted by this forum because you constatly bring up all the "negative comments" that get posted here. If you feel that way, why do you keep coming back?!

I have yet to see you offer any real advice to anyone's posts...other than not respecting WinAce's beliefs and telling him to find God. Most of your posts just turn into fights among people who generally are here to help each other and get a long pretty well. Please do us all a favor and either start helping when you can or stop posting. Thanks!

-Aimee/22

And by the way, there are a lot of negative things to say about CF, please forgive us for not all being little rays of sunshine.

 

[Allie]

You're most likely lucky enough that you haven't experienced any of the horrible and negative things that you don't like reading about. But, unfortunately, it happens, no matter how hard you'd like to avoid it, and no matter what you have going for you in life. Cf is random and hard to deal with that way. Some people do fine for a long time, some don't make it to their Mid-30's. That's reality of it.

But this is clearly labeled as a forum for adults, and adults have VERY different concerns than a teenager or even the mom of a child with CF would. I could see how those two groups would want to avoid the horrible truth, but that's why they have their own boards.

You don't have to go away, but try to understand the different concerns of someone doing more poorly than yourself, or wanting to come to grips with the truth.

 

[NoDayButToday]

Here are some thoughts coming from a teenager (16 years old) with CF:

Considering that teenagers ARE dying of CF, despite the 'average' life expectancy being 32, and all of the treatments they do diligently, I think it is a bit unfair to act as if all CF teens are unable to handle the truths of CF. There are CF teenagers who are living these 'unnecessary negative comments' that aren't exactly comments, but facts. You are a very fortunate person in that your CF has treated you in such a way that you find these tales of the end stages of CF so horrifying. However, the way you are treating them, as if they are disgusting, vile, graphic and overall revolting to you, is an insult to CFers who are more ill than you and are fighting those battles right now.

Also, please don't underestimate the maturity of teenagers, particularly CF teens.

 

[Lilith]

Alright, this is pissing me off now...

ccflewallen, I can appreciate the fact that you don't want to be around negativity. If so, don't come to this forum. To that end, you would have to stop watching the news or paying attention to anything around you. Why post this thread?! You've already posted a similar one, why continue to rant on this!? And I agree with Coll, teenagers can handle a lot more than you obviously think. Are you simply trying to start a war here, or what? It's rather annoying. Not everything is peaches and cream, and if you can't accept that this disease IS mean and nasty (and that's putting it lightly), than please respect those of us that look ARE searching for information on dealing with these aspects, because there are some of us that don't have a choice as you obviously think you do. As Aimee stated, if you are going to continue to come to this forum, help out once in a while instead of focusing on the bad.

P.S. Telling WinAce that finding God will make him better ISN'T an example of helpfulness.

 

[julie]

Good lord, I don't believe I have ever said this to anyone on this forum, but GO AWAY AND GO AWAY NOW. If you have nothing constructive to say-and clearly by your posts, you don't, then don't bother wasting all of our time. What the hell is wrong with you anyways.

You just keep digging your hole deeper and deeper. I just can't wait till you experience what you call GRAPHIC in your post, then lets hear you come back here and tell us how actually it isn't so graphic, but rather a part of life (sometimes) with CF.

You think you'd learn the first time you screwed up on this forum, I mean, really... we've all been there and said something in the heat of the moment. But when you perpetuate your initial mistake and continue to make yourself look like a moron who has no sense of manners or cares for anyone but themselves, there is no forgiveness.

Oh, and tell your friend who came on the board to tell us what a good person you are, that they ARE NOT WELCOME HERE FOR THAT PURPOSE. This forum isn't about "bring your buddies on to back you up when about 25 people tell you that what you posted was rude/wrong/incorrect/inappropriate/irrelevant" This isn't a popularity contest website so QUIT TRYING TO TURN IT INTO ONE!!!!!!!!!!!!!!!

 

[EB24]

And please don't speak for people who believe in God. Your useless statment to Allan gives all of the non bible thumper people a bad rap. (or is it wrap?)

 

[ccflewallen]

I look forward to seeing what Julie and Lilith have to say, theire just little spitfires. Thats a good thing. Know one runs over or takes advantage of you two, i bet. Good job. If I could randomly bring 100 people to my house and let them read what you all have to say about the issues I talk about, you can bet they would either say, "man, thats is really a bad diesease", and start feeling sorry for me for haveing CF, or they would think that SOME of you really need to focus on something besides how bad your life is.

I have never been so attacked for giving my opinion on an issue as I do here. And I am always like this. I always talk about how I wish people would havce a positive outlook on life, and how if they did, they would be less stressed out and worry less, and their quality of life would improve. And no one ever gets mad, until I came here that is. It bothers me to hear that people refuse to consider their attitude toward CF can affect how your health is. If you have any condition whether it be cancer, CF, or whatever, the worse you make it out to be, the worse it may be. Of course there exceptions, but there is certainly a link between a positive attitude and good health.

I know I can be overbearing and often do not drop an issue I feel strongly about, but I am having a difficult time understanding why some of you just refuse to ttry to think about what I am saying. I want the best for everyone. I know CF is not peaches and cream, I do have CF by the way. I have had friends die with CF, no one cared whether I had Cf or not growing up. I breathed cigarette smoke for the first 17 years of my life because my family refused to stop or go outside. That alone could make my health take a dramatic turn for the worse at any time, because Im sure my lungs are pretty scarred from that alone even if I didnt have CF. I used to fall down in front of everybody because my vitamins were so low that I would just collapse or my eyes would start flipping like a messed up TV screen. I have coughed up enough blood to be hospitalized three years in a row. If it happens again I get to take a helicopter ride to Vanderbilt Medical Center in Nashville. No those arent serious to most of you, but I read enough to know about the rest.

If I took the things some of you say to seriously, I would probably just give up tomorrow and throw in the towel cause I am going to die anyway. But fortunately, I will not do that. Attack my views if you wish. Another thing its funny how some of you try to tell other adults what to do on here when you do not agree with them. Thats kind of silly.

God is very real in my life. I know I have messed up on this forum and some of you could care less whether God exists or not, because if he did, why would He give you this terrible disease. But you see, I am just a person like you all. God is much more than that. He is all knowing, all powerful, all Loving, full of grace and forgiveness. He is nothing like me, I will guarantee that lol, maybe that will encourage some of you LOL. Good luck everyone

ccflewallen

 

[Emily65Roses]

Okay, everyone... (I can't help myself anymore... teehee). We have *magical* advice now. Everyone smile and laugh all day and never face reality, even when it's smacking you in the face... and you will stay healthy. Allan, perhaps you should just start smiling more and you won't need the transplant anymore.

 

[ccflewallen]

Emily, minus the sarcasm, you are on the right track. Smiling doesnt make everything better, but it helps. Good job!

ccflewallen

 

[Allie]

And then we'll all hop on our flying unicorns and go to the mall for delicious fat free brownies!

*I couldn't stop myself* lol.

 

[Lilith]

Perhaps, ccflewallen, YOU have a hard time understanding the difference between offering an opinion and trying to shove it down someone's throat. I find it funny that you say:

"...some of you try to tell other adults what to do on here when you do not agree with them. Thats kind of silly."

I agree. It IS silly. So why the hell haven't you stopped doing it?

Another thing:

"If I took the things some of you say to seriously, I would probably just give up tomorrow and throw in the towel cause I am going to die anyway."

I take it you don't take CF seriously, then. I pity you. And if reading what's posted on here makes you feel as if you would give up and "throw in the towel", then I have no shame in thinking myself a stronger person than you. If reading the truths of some people's lives is too much for you to handle, for your own sanity I hope you never have to go through the torments of CF or any other disease...or death in general. Because death, no matter how it comes, isn't pretty.

Btw, just to throw in on the comment you gave to WinAce, my grandmother (w/out CF) was deathly ill for about 3 months before she passed away. AND she was a Christian. She didn't magically recover because she believed in God, so that statement in and of itself was moronic. EB24 was right when he said that your comments give Christians a bad name. Take it how you will, but people as overzealous as you are the very reason why I don't devot myself to any kind of religion. And I doubt the true teachings of Jesus say that those who believe in him will be magically cured of every ailment in the mortal realm.

 

[ccflewallen]

This is how politicians get so out of whack. The media scrambles up what they say and just says whatever they wanted them to say.

"Magical Healing?" Where in the world did you read that?

Am I "telling" people what to do?

Did I say God "would" heal someone?

I am one person, and you all are many. How much more can I "shove" as you say down your throat than all of you have been mine. And I am not getting near as offended.

 

[Emily65Roses]

I'm not offended. I'm amused. I am literally laughing out loud, snorting at my computer at this stuff. My boyfriend just looked at me like "what the hell is so funny?" Course I guess you can feel good about that, Chris, because then at least I'm being positive.
HAH

 

[Allie]

At this point, it been reduced to absurdity so much that it's like a 1950's horror film, unintentionally hilarious. Emily, when I read your post about magical thinking, I laughed so hard soda shot out my nose. (TMI) I haven't laughed that hard in a long while. <img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[Emily65Roses]

LOL I swear Mike is going to think I'm snorting crack over here. I keep laughing so damn loud. Ahahahahaaa!!! I'm so glad you laughed too... though soda up your nose is painful!!! <img src="i/expressions/face-icon-small-shocked.gif" border="0">
*SNORT*

 

[Lilith]

LOL! I agree, Emily, I'm not offended by you at all Chris. I'm making a point, and I find you quite entertaining. Yes, you are telling people what they should do. You're TELLING people not to be negative or have any feelings of depression because, according to you in your Rainbow Happy Land, CF isn't that bad.

Yeah, ookayy...

For the Magical Healing, read what you wrote to WinAce and then ask me that again.

Again, you said God would heal him. Again, read your own posts.

 

[ccflewallen]

Nope, i didnt find it. I said "could". That I am "telling" you to be positive is how you feel. Stop putting words into my mouth.

ccflewallen

if you could quote where i said such things i will recant my comments