Hello, I sit reading your post its like you are talking about my life. I have twin boys with CF and what a road we have been on with the food and calorie issues. Our boys are tweleve and they only weight around 62 pounds. We have been through the stimulants which did make them so sleepy. We have done Growth Hormone shots with no luck and we have had a g-tube which was a total nightmare. I know some CF Families have had the tubes and loved them but our experience with the gastro doctor was something I will never get over. They no longer have the tubes which by the way only added about two pounds after we fed them case after case of formula. We are still in the same boat. They are still no bigger. They went to middle school this year and they look like third graders compared. I am at my wits end on what to do next. We try to make all their food with extra calories (which it seems has only affected my husband and I) causing us to have to diet. They are picky on top of things. Does anyone out there have any suggestions? Any help would be greatly appreciated.
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weight gain issues
- Thread starter Nicole
- Start date
Hello, I sit reading your post its like you are talking about my life. I have twin boys with CF and what a road we have been on with the food and calorie issues. Our boys are tweleve and they only weight around 62 pounds. We have been through the stimulants which did make them so sleepy. We have done Growth Hormone shots with no luck and we have had a g-tube which was a total nightmare. I know some CF Families have had the tubes and loved them but our experience with the gastro doctor was something I will never get over. They no longer have the tubes which by the way only added about two pounds after we fed them case after case of formula. We are still in the same boat. They are still no bigger. They went to middle school this year and they look like third graders compared. I am at my wits end on what to do next. We try to make all their food with extra calories (which it seems has only affected my husband and I) causing us to have to diet. They are picky on top of things. Does anyone out there have any suggestions? Any help would be greatly appreciated.
Hello, I sit reading your post its like you are talking about my life. I have twin boys with CF and what a road we have been on with the food and calorie issues. Our boys are tweleve and they only weight around 62 pounds. We have been through the stimulants which did make them so sleepy. We have done Growth Hormone shots with no luck and we have had a g-tube which was a total nightmare. I know some CF Families have had the tubes and loved them but our experience with the gastro doctor was something I will never get over. They no longer have the tubes which by the way only added about two pounds after we fed them case after case of formula. We are still in the same boat. They are still no bigger. They went to middle school this year and they look like third graders compared. I am at my wits end on what to do next. We try to make all their food with extra calories (which it seems has only affected my husband and I) causing us to have to diet. They are picky on top of things. Does anyone out there have any suggestions? Any help would be greatly appreciated.
Hello, I sit reading your post its like you are talking about my life. I have twin boys with CF and what a road we have been on with the food and calorie issues. Our boys are tweleve and they only weight around 62 pounds. We have been through the stimulants which did make them so sleepy. We have done Growth Hormone shots with no luck and we have had a g-tube which was a total nightmare. I know some CF Families have had the tubes and loved them but our experience with the gastro doctor was something I will never get over. They no longer have the tubes which by the way only added about two pounds after we fed them case after case of formula. We are still in the same boat. They are still no bigger. They went to middle school this year and they look like third graders compared. I am at my wits end on what to do next. We try to make all their food with extra calories (which it seems has only affected my husband and I) causing us to have to diet. They are picky on top of things. Does anyone out there have any suggestions? Any help would be greatly appreciated.
Hello, I sit reading your post its like you are talking about my life. I have twin boys with CF and what a road we have been on with the food and calorie issues. Our boys are tweleve and they only weight around 62 pounds. We have been through the stimulants which did make them so sleepy. We have done Growth Hormone shots with no luck and we have had a g-tube which was a total nightmare. I know some CF Families have had the tubes and loved them but our experience with the gastro doctor was something I will never get over. They no longer have the tubes which by the way only added about two pounds after we fed them case after case of formula. We are still in the same boat. They are still no bigger. They went to middle school this year and they look like third graders compared. I am at my wits end on what to do next. We try to make all their food with extra calories (which it seems has only affected my husband and I) causing us to have to diet. They are picky on top of things. Does anyone out there have any suggestions? Any help would be greatly appreciated.
My daughter is turning 9 and is barely 48" tall... I'd be thrilled to see her at 52lbs! <img src="i/expressions/face-icon-small-shocked.gif" border="0"> Your son is at a GREAT size for his age. Focusing on good attitudes about eating, offering a healthy variety of food and taking off the pressure is the best thing you can be doing right now, I think.
Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
My daughter is turning 9 and is barely 48" tall... I'd be thrilled to see her at 52lbs! <img src="i/expressions/face-icon-small-shocked.gif" border="0"> Your son is at a GREAT size for his age. Focusing on good attitudes about eating, offering a healthy variety of food and taking off the pressure is the best thing you can be doing right now, I think.
Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
My daughter is turning 9 and is barely 48" tall... I'd be thrilled to see her at 52lbs! <img src="i/expressions/face-icon-small-shocked.gif" border="0"> Your son is at a GREAT size for his age. Focusing on good attitudes about eating, offering a healthy variety of food and taking off the pressure is the best thing you can be doing right now, I think.
Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
My daughter is turning 9 and is barely 48" tall... I'd be thrilled to see her at 52lbs! <img src="i/expressions/face-icon-small-shocked.gif" border="0"> Your son is at a GREAT size for his age. Focusing on good attitudes about eating, offering a healthy variety of food and taking off the pressure is the best thing you can be doing right now, I think.
Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
My daughter is turning 9 and is barely 48" tall... I'd be thrilled to see her at 52lbs! <img src="i/expressions/face-icon-small-shocked.gif" border="0"> Your son is at a GREAT size for his age. Focusing on good attitudes about eating, offering a healthy variety of food and taking off the pressure is the best thing you can be doing right now, I think.
<br />
<br />Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
<br />
<br />I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
<br />
<br />3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
<br />
<br />Emily was on Periactin a while back (the appetite stimulant many kids here try and probably the one your son's dr was referring to) and it was extremely sedating for her, even at low doses.
<br />
<br />I would talk to them again about the size of your other kids and your dh (have they met the rest of your family?) when it comes to the fact that your son's 'genetic potential' is NOT, in all likelihood, to remain in the upper percentiles as he gets older no matter HOW MUCH he eats.
<br />
<br />3coolsons~ I am so sorry you have been through so much with your boys. It sounds like on top of a very difficult situation with your boys, they had a less than ideal doctor in the mix as well. Have you sought a second (or third?) opinion for them for GI? Have other GI issues been ruled out as contributing to their growth failure (i.e. celiac disease or food allergies or another GI problem contributing to the malabsorption? When they weren't gaining weight with overnight feedings, was either the formula used or the enzymes changed to try and figure out why?) I hope you can figure something out before too much more time passes...
I am going through the same thing right now. My daughter (2 y/o)was at 75th precentile, which is up from the 25th at birth. for a reaaly long time I had to resort to all kinds of tactics to get her to eat a reasonable amount wihtout forcing her. Then I backed off and it felt really great, no stress at mealtimes.
And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
I am going through the same thing right now. My daughter (2 y/o)was at 75th precentile, which is up from the 25th at birth. for a reaaly long time I had to resort to all kinds of tactics to get her to eat a reasonable amount wihtout forcing her. Then I backed off and it felt really great, no stress at mealtimes.
And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
I am going through the same thing right now. My daughter (2 y/o)was at 75th precentile, which is up from the 25th at birth. for a reaaly long time I had to resort to all kinds of tactics to get her to eat a reasonable amount wihtout forcing her. Then I backed off and it felt really great, no stress at mealtimes.
And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
I am going through the same thing right now. My daughter (2 y/o)was at 75th precentile, which is up from the 25th at birth. for a reaaly long time I had to resort to all kinds of tactics to get her to eat a reasonable amount wihtout forcing her. Then I backed off and it felt really great, no stress at mealtimes.
And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
I am going through the same thing right now. My daughter (2 y/o)was at 75th precentile, which is up from the 25th at birth. for a reaaly long time I had to resort to all kinds of tactics to get her to eat a reasonable amount wihtout forcing her. Then I backed off and it felt really great, no stress at mealtimes.
<br />
<br />And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
<br />
<br />I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
<br />
<br />
<br />And then yesterday we weighed her at the ped's office and she lost 300 grams (a little less then a pound). She is still good weight for her height, but it is such a downer to see the weight actually go down.
<br />
<br />I have no advice to give since I am not sure what I will do myself but just know that by no means you are alone.
<br />
I wouldn't stress at all! It is never worth the stress! Your son seems to be doing great if you ask me. I would not be worried a bit.
My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.
My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.
I wouldn't stress at all! It is never worth the stress! Your son seems to be doing great if you ask me. I would not be worried a bit.
My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.
My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.
I wouldn't stress at all! It is never worth the stress! Your son seems to be doing great if you ask me. I would not be worried a bit.
My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.
My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.
I wouldn't stress at all! It is never worth the stress! Your son seems to be doing great if you ask me. I would not be worried a bit.
My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.
My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.
I wouldn't stress at all! It is never worth the stress! Your son seems to be doing great if you ask me. I would not be worried a bit.
<br />
<br />My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
<br />
<br />I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.
<br />
<br />My daughter 5 years old only weighs 34 pounds. I know...girls a dif than boys, but that is a huge difference. She is 45th% right now.
<br />
<br />I would give him time and not expect him to gain every time. I think at this age, weight gain does not happen as quickly as when a baby/toddler. You are FAR from a g-tube. AND don't bother him to eat more if he has already eaten...it will only discourage him. You have to let kids eat how much THEY want. Have you tried nutritional drinks? You could always try Boost Kid Essentials or Pediasure. My daughter is on Boost. It has many cals in it and could go right along with meals, like milk.