J
jessykt
Guest
About a week and a half ago, I started getting really sharp chest pain up high, in front, on both left and right sides. I also started having tingles throughout my entire right arm-no numbness, just tingles. Now my arm and area where my port used to be (right side) is very achy.
I called my nurse Friday and everything that we can come up with can be discounted somehow. I may have to go to clinic on Wednesday if it doesn't feel better, but I'm wondering if anyone may have any idea on this.
It isn't unusual for me to have chest pain, but it's usually down low and very quick (a couple of seconds). This current pain is sharp for several seconds and time between pain stabs is not long. The soreness is almost constant. The arm tingles have happend a few times and lasted several hours to all day.
I have had blood clots in the arms, but only when I have a picc in. We don't think it can be a collapse because it's pretty symmetrical and I am not short of breath. We don't think it's the Kalydeco because no one else has reported these symptoms. I coughed pretty hard for about 2 days when I started Kalydeco and we thought perhaps I've irritated the tissues, but the time between the coughing and now has been about 5 or 6 weeks. I'm not producing anything, or else I would think maybe I've got some stuff that's stuck, and I've been doing hypersaline and my vest. When the pain is very sharp, I hit on myself thinking maybe it's trapped air (which usually works when it's down low), but that's not solving the problem.
Anyway, that was a very long-winded explaination of what's going on to ask you all if you've dealt with something similar.
Thanks! Jessy
I called my nurse Friday and everything that we can come up with can be discounted somehow. I may have to go to clinic on Wednesday if it doesn't feel better, but I'm wondering if anyone may have any idea on this.
It isn't unusual for me to have chest pain, but it's usually down low and very quick (a couple of seconds). This current pain is sharp for several seconds and time between pain stabs is not long. The soreness is almost constant. The arm tingles have happend a few times and lasted several hours to all day.
I have had blood clots in the arms, but only when I have a picc in. We don't think it can be a collapse because it's pretty symmetrical and I am not short of breath. We don't think it's the Kalydeco because no one else has reported these symptoms. I coughed pretty hard for about 2 days when I started Kalydeco and we thought perhaps I've irritated the tissues, but the time between the coughing and now has been about 5 or 6 weeks. I'm not producing anything, or else I would think maybe I've got some stuff that's stuck, and I've been doing hypersaline and my vest. When the pain is very sharp, I hit on myself thinking maybe it's trapped air (which usually works when it's down low), but that's not solving the problem.
Anyway, that was a very long-winded explaination of what's going on to ask you all if you've dealt with something similar.
Thanks! Jessy