went into emergency room last night

missT

Member
thanks all, I had an XRay at the ER. It came back with lung damge...the usual. It was not a collapsed lung. I had a collapsed lung on the right side two years ago so I remember the pain. I did not want a CT because I have them too often and I am afraid of all the radiation my body is taking in. I have been in contact with my CF center and I am going to see them tues. My SAts were 98.
 
E

edan

Guest
I don't have any advice, but wanted you to know I am thinking of you. I hope you get the answers you need soon.

Edan
 
E

edan

Guest
I don't have any advice, but wanted you to know I am thinking of you. I hope you get the answers you need soon.

Edan
 
E

edan

Guest
I don't have any advice, but wanted you to know I am thinking of you. I hope you get the answers you need soon.
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<br />Edan
 

Havoc

New member
The ED would have done a CXR, if not that's a serious oversight on their part. BTW, Miss T, A chest xray will give you about 0.1 mSv of radiation, while a chest CT is about 1.5 mSv. So, there really isn't a huge increase, especially when you consider the possible benefits of a higher resolution scan.
Being educated about your disease is extremely important. Especially with ED docs, they see so much, they can't possibly know every detail about every disease. Same goes for a family doc who isn't a CF specialist.  It's your job to give them good information and even suggest things. Most docs are very willing to listen, as the patient is your best source of information (most of the time).
 
ETA:  Pulse oximetry is probably the worst diagnostic tool we have.
 

Havoc

New member
The ED would have done a CXR, if not that's a serious oversight on their part. BTW, Miss T, A chest xray will give you about 0.1 mSv of radiation, while a chest CT is about 1.5 mSv. So, there really isn't a huge increase, especially when you consider the possible benefits of a higher resolution scan.
Being educated about your disease is extremely important. Especially with ED docs, they see so much, they can't possibly know every detail about every disease. Same goes for a family doc who isn't a CF specialist. It's your job to give them good information and even suggest things. Most docs are very willing to listen, as the patient is your best source of information (most of the time).

ETA: Pulse oximetry is probably the worst diagnostic tool we have.
 

Havoc

New member
<p>The ED would have done a CXR, if not that's a serious oversight on their part. <br /> <br />BTW, Miss T, A chest xray will give you about 0.1 mSv of radiation, while a chest CT is about 1.5 mSv. So, there really isn't a huge increase, especially when you consider the possible benefits of a higher resolution scan.
<p>Being educated about your disease is extremely important. Especially with ED docs, they see so much, they can't possibly know every detail about every disease. Same goes for a family doc who isn't a CF specialist. It's your job to give them good information and even suggest things. Most docs are very willing to listen, as the patient is your best source of information (most of the time).
<p>
<p>ETA: Pulse oximetry is probably the worst diagnostic tool we have.
 

julie

New member
Sounds like you need to have an echocardiogram done. Increased pressure on your heart can have drastic, devistating long term effects on your lungs, which is NOT something a CFer needs to add to their basket of "medical issues". I'd call your CF clinic ASAP and get in, request an echo to measure the pressure in your heart
 

julie

New member
Sounds like you need to have an echocardiogram done. Increased pressure on your heart can have drastic, devistating long term effects on your lungs, which is NOT something a CFer needs to add to their basket of "medical issues". I'd call your CF clinic ASAP and get in, request an echo to measure the pressure in your heart
 

julie

New member
Sounds like you need to have an echocardiogram done. Increased pressure on your heart can have drastic, devistating long term effects on your lungs, which is NOT something a CFer needs to add to their basket of "medical issues". I'd call your CF clinic ASAP and get in, request an echo to measure the pressure in your heart
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JennifersHope

New member
Uggg, I hate when that happens. The standard practice in an ER is if the chest/heart stuff comes back negative to give an antacid of some type. Sometimes people have silent heart burn and don't know it.

None of us know since each one of us is different, for me, when I get stabbing pains in my chest, it is usually related to heart burn that does not feel like heart burn but rather a heart attack and when I have pains in my lung it is always in my right lower, a known area of trouble for me.

I think the best thing to do, like others said is follow up with your doctors who know you so well. I hope you feel better
 

JennifersHope

New member
Uggg, I hate when that happens. The standard practice in an ER is if the chest/heart stuff comes back negative to give an antacid of some type. Sometimes people have silent heart burn and don't know it.

None of us know since each one of us is different, for me, when I get stabbing pains in my chest, it is usually related to heart burn that does not feel like heart burn but rather a heart attack and when I have pains in my lung it is always in my right lower, a known area of trouble for me.

I think the best thing to do, like others said is follow up with your doctors who know you so well. I hope you feel better
 

JennifersHope

New member
Uggg, I hate when that happens. The standard practice in an ER is if the chest/heart stuff comes back negative to give an antacid of some type. Sometimes people have silent heart burn and don't know it.
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<br />None of us know since each one of us is different, for me, when I get stabbing pains in my chest, it is usually related to heart burn that does not feel like heart burn but rather a heart attack and when I have pains in my lung it is always in my right lower, a known area of trouble for me.
<br />
<br />I think the best thing to do, like others said is follow up with your doctors who know you so well. I hope you feel better
 

Havoc

New member
An echo is only going to show a valve prolapse. If that were the case she would have ascites, pedal edema or pulmonary edema (which would have shown on the CXR).

I'm not sure what is meant by silent heart burn.
 

Havoc

New member
An echo is only going to show a valve prolapse. If that were the case she would have ascites, pedal edema or pulmonary edema (which would have shown on the CXR).

I'm not sure what is meant by silent heart burn.
 

Havoc

New member
An echo is only going to show a valve prolapse. If that were the case she would have ascites, pedal edema or pulmonary edema (which would have shown on the CXR).
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<br />I'm not sure what is meant by silent heart burn.
 

JennifersHope

New member
Silent heart burn means you are still refluxing but don't feel it.. It happens sometimes.
Anyway the purpose of an echo also is it will  show the EF which is the ejection fraction of how much blood is being pumpe out by the heart and it can show if the heart is enlarged..
 
The best test to show pressures in the pulmonary artery are right heart caths where they actually go in there and measure the pressure.  When I worked in the Cath lab we would do these often. A CFer certainly could get PH (pulmonary hypertenstion, but usually it does not come on all of a sudden and it isn't described as stabbing pains, 
Could it be pluersy? Is the area where it hurts an area that is a normal area for you to hurt? Once I had a mucus plug it hurt so blasted bad I couldn't stand it, I was able to get it loose by CPT and that helped I don't know, to me, it sounds like some kind of thing directly related to the lung, as opposed to the heart, because you can have chest pain with pulmonary hypertension, like you said Jonathon you normally have edema and shortness of breath, Who knows, the body is a tricky little bugger and that is why it is best to go with your doctors who know you best... Either way, I hope you feel better.
 

JennifersHope

New member
Silent heart burn means you are still refluxing but don't feel it.. It happens sometimes.
Anyway the purpose of an echo also is it will show the EF which is the ejection fraction of how much blood is being pumpe out by the heart and it can show if the heart is enlarged..

The best test to show pressures in the pulmonary artery are right heart caths where they actually go in there and measure the pressure. When I worked in the Cath lab we would do these often. A CFer certainly could get PH (pulmonary hypertenstion, but usually it does not come on all of a sudden and it isn't described as stabbing pains,
Could it be pluersy? Is the area where it hurts an area that is a normal area for you to hurt? Once I had a mucus plug it hurt so blasted bad I couldn't stand it, I was able to get it loose by CPT and that helped I don't know, to me, it sounds like some kind of thing directly related to the lung, as opposed to the heart, because you can have chest pain with pulmonary hypertension, like you said Jonathon you normally have edema and shortness of breath, Who knows, the body is a tricky little bugger and that is why it is best to go with your doctors who know you best... Either way, I hope you feel better.
 

JennifersHope

New member
<p>Silent heart burn means you are still refluxing but don't feel it.. It happens sometimes.
<p>Anyway the purpose of an echo also is it will show the EF which is the ejection fraction of how much blood is being pumpe out by the heart and it can show if the heart is enlarged..
<p>
<p>The best test to show pressures in the pulmonary artery are right heart caths where they actually go in there and measure the pressure. When I worked in the Cath lab we would do these often. A CFer certainly could get PH (pulmonary hypertenstion, but usually it does not come on all of a sudden and it isn't described as stabbing pains,
<p>Could it be pluersy? Is the area where it hurts an area that is a normal area for you to hurt? Once I had a mucus plug it hurt so blasted bad I couldn't stand it, I was able to get it loose by CPT and that helped<br /> <br />I don't know, to me, it sounds like some kind of thing directly related to the lung, as opposed to the heart, because you can have chest pain with pulmonary hypertension, like you said Jonathon you normally have edema and shortness of breath, Who knows, the body is a tricky little bugger and that is why it is best to go with your doctors who know you best...<br /> <br />Either way, I hope you feel better.
 

julie

New member
An Echo is also going to show pressure in the Heart, which can be tied DIRECTLY to poor pulmonary function. If the heart pressure is elevated, they will treat that, which can then in turn treat the pulmonary function (although the PF in this case is mostly going to be tied to the CF issues, but with "issues" lilke this, I would highly recommend you ask for an echo).
 
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