What are the chances?

JazzysMom · Jun 27, 2009

First off...

Here is your HUG~

I am big on hugs so there are always some to share!

Secondly once to get to an accredited CF Center. You will need to speak with the Social Worker. Explain to them your issues & they should guide you as to what is available specifically in your area as well as from the CF Community in general.

It definitely sounds like your little one has classic symptoms of CF. Just take one day at a time & if need be one minute at a time for right now.

We are here to listen & answer ?? during the whole process!

JazzysMom · Jun 27, 2009

First off...

Here is your HUG~

I am big on hugs so there are always some to share!

Secondly once to get to an accredited CF Center. You will need to speak with the Social Worker. Explain to them your issues & they should guide you as to what is available specifically in your area as well as from the CF Community in general.

It definitely sounds like your little one has classic symptoms of CF. Just take one day at a time & if need be one minute at a time for right now.

We are here to listen & answer ?? during the whole process!

JazzysMom · Jun 27, 2009

First off...

Here is your HUG~

I am big on hugs so there are always some to share!

Secondly once to get to an accredited CF Center. You will need to speak with the Social Worker. Explain to them your issues & they should guide you as to what is available specifically in your area as well as from the CF Community in general.

It definitely sounds like your little one has classic symptoms of CF. Just take one day at a time & if need be one minute at a time for right now.

We are here to listen & answer ?? during the whole process!

JazzysMom · Jun 27, 2009

First off...

Here is your HUG~

I am big on hugs so there are always some to share!

Secondly once to get to an accredited CF Center. You will need to speak with the Social Worker. Explain to them your issues & they should guide you as to what is available specifically in your area as well as from the CF Community in general.

It definitely sounds like your little one has classic symptoms of CF. Just take one day at a time & if need be one minute at a time for right now.

We are here to listen & answer ?? during the whole process!

JazzysMom · Jun 27, 2009

First off...
 
 Here is your HUG~
 
 I am big on hugs so there are always some to share!
 
 Secondly once to get to an accredited CF Center. You will need to speak with the Social Worker. Explain to them your issues & they should guide you as to what is available specifically in your area as well as from the CF Community in general.
 
 It definitely sounds like your little one has classic symptoms of CF. Just take one day at a time & if need be one minute at a time for right now.
 
 We are here to listen & answer ?? during the whole process!

ctalbott0609 · Jun 29, 2009

Hi everyone! Thank you all so much for all the hugs and support! I'm so blessed to have found this website, and you ladies.

It seems like it's just been one bump after another these last nine months. The first month of the pregnancy, we thought we were having a miscarriage, the night before our wedding, and I was rushed to the ER. Two months later, I was diagnosed with Bilateral Artery Notching. It's a new complication that researchers discovered, that prevents your pelvic arterys from dilating, and getting blood to the placenta, and then to the baby. We had weekly Dr's appts, Ultrasounds, NST's, and visits with a Specialist. We weren't expected to carry her past 30 weeks. We carried her full term though, and she came out absolutely perfect. It is a true miracle of God that my gorgeous little girl is here today.

I have such strong faith, but it's so hard to keep my strength when it's been one thing after another with my family, over the last year.

I find that the worst times come in the morning, when I'm first waking up, and getting Paige up to feed her. It all seems like such a nightmare, until I here her wheez, or my memory reminds me that it's not. I find myself balling, and dripping tears all over her blankets. How do I deal with this?

I'd also like to know if my daughter is in any pain? I can't imagine what she's going through. And, What questions should I be asking the Dr. Wednesday if we find out that she DOES have CF? I already have a ton, but I want to make sure I don't over look anything.

We also live in Jasper Co. which is in the South East Corner of Missouri. So KC is a little over 2 hours away for us.

Well, I have to go. Paige needs a diaper, and some hugs. Thanks so much everyone!

ctalbott0609 · Jun 29, 2009

Hi everyone! Thank you all so much for all the hugs and support! I'm so blessed to have found this website, and you ladies.

It seems like it's just been one bump after another these last nine months. The first month of the pregnancy, we thought we were having a miscarriage, the night before our wedding, and I was rushed to the ER. Two months later, I was diagnosed with Bilateral Artery Notching. It's a new complication that researchers discovered, that prevents your pelvic arterys from dilating, and getting blood to the placenta, and then to the baby. We had weekly Dr's appts, Ultrasounds, NST's, and visits with a Specialist. We weren't expected to carry her past 30 weeks. We carried her full term though, and she came out absolutely perfect. It is a true miracle of God that my gorgeous little girl is here today.

I have such strong faith, but it's so hard to keep my strength when it's been one thing after another with my family, over the last year.

I find that the worst times come in the morning, when I'm first waking up, and getting Paige up to feed her. It all seems like such a nightmare, until I here her wheez, or my memory reminds me that it's not. I find myself balling, and dripping tears all over her blankets. How do I deal with this?

I'd also like to know if my daughter is in any pain? I can't imagine what she's going through. And, What questions should I be asking the Dr. Wednesday if we find out that she DOES have CF? I already have a ton, but I want to make sure I don't over look anything.

We also live in Jasper Co. which is in the South East Corner of Missouri. So KC is a little over 2 hours away for us.

Well, I have to go. Paige needs a diaper, and some hugs. Thanks so much everyone!

ctalbott0609 · Jun 29, 2009

Hi everyone! Thank you all so much for all the hugs and support! I'm so blessed to have found this website, and you ladies.

It seems like it's just been one bump after another these last nine months. The first month of the pregnancy, we thought we were having a miscarriage, the night before our wedding, and I was rushed to the ER. Two months later, I was diagnosed with Bilateral Artery Notching. It's a new complication that researchers discovered, that prevents your pelvic arterys from dilating, and getting blood to the placenta, and then to the baby. We had weekly Dr's appts, Ultrasounds, NST's, and visits with a Specialist. We weren't expected to carry her past 30 weeks. We carried her full term though, and she came out absolutely perfect. It is a true miracle of God that my gorgeous little girl is here today.

I have such strong faith, but it's so hard to keep my strength when it's been one thing after another with my family, over the last year.

I find that the worst times come in the morning, when I'm first waking up, and getting Paige up to feed her. It all seems like such a nightmare, until I here her wheez, or my memory reminds me that it's not. I find myself balling, and dripping tears all over her blankets. How do I deal with this?

I'd also like to know if my daughter is in any pain? I can't imagine what she's going through. And, What questions should I be asking the Dr. Wednesday if we find out that she DOES have CF? I already have a ton, but I want to make sure I don't over look anything.

We also live in Jasper Co. which is in the South East Corner of Missouri. So KC is a little over 2 hours away for us.

Well, I have to go. Paige needs a diaper, and some hugs. Thanks so much everyone!

ctalbott0609 · Jun 29, 2009

Hi everyone! Thank you all so much for all the hugs and support! I'm so blessed to have found this website, and you ladies.

It seems like it's just been one bump after another these last nine months. The first month of the pregnancy, we thought we were having a miscarriage, the night before our wedding, and I was rushed to the ER. Two months later, I was diagnosed with Bilateral Artery Notching. It's a new complication that researchers discovered, that prevents your pelvic arterys from dilating, and getting blood to the placenta, and then to the baby. We had weekly Dr's appts, Ultrasounds, NST's, and visits with a Specialist. We weren't expected to carry her past 30 weeks. We carried her full term though, and she came out absolutely perfect. It is a true miracle of God that my gorgeous little girl is here today.

I have such strong faith, but it's so hard to keep my strength when it's been one thing after another with my family, over the last year.

I find that the worst times come in the morning, when I'm first waking up, and getting Paige up to feed her. It all seems like such a nightmare, until I here her wheez, or my memory reminds me that it's not. I find myself balling, and dripping tears all over her blankets. How do I deal with this?

I'd also like to know if my daughter is in any pain? I can't imagine what she's going through. And, What questions should I be asking the Dr. Wednesday if we find out that she DOES have CF? I already have a ton, but I want to make sure I don't over look anything.

We also live in Jasper Co. which is in the South East Corner of Missouri. So KC is a little over 2 hours away for us.

Well, I have to go. Paige needs a diaper, and some hugs. Thanks so much everyone!

ctalbott0609 · Jun 29, 2009

Hi everyone! Thank you all so much for all the hugs and support! I'm so blessed to have found this website, and you ladies.
 
 It seems like it's just been one bump after another these last nine months. The first month of the pregnancy, we thought we were having a miscarriage, the night before our wedding, and I was rushed to the ER. Two months later, I was diagnosed with Bilateral Artery Notching. It's a new complication that researchers discovered, that prevents your pelvic arterys from dilating, and getting blood to the placenta, and then to the baby. We had weekly Dr's appts, Ultrasounds, NST's, and visits with a Specialist. We weren't expected to carry her past 30 weeks. We carried her full term though, and she came out absolutely perfect. It is a true miracle of God that my gorgeous little girl is here today.
 
 I have such strong faith, but it's so hard to keep my strength when it's been one thing after another with my family, over the last year.
 
 I find that the worst times come in the morning, when I'm first waking up, and getting Paige up to feed her. It all seems like such a nightmare, until I here her wheez, or my memory reminds me that it's not. I find myself balling, and dripping tears all over her blankets. How do I deal with this?
 
 I'd also like to know if my daughter is in any pain? I can't imagine what she's going through. And, What questions should I be asking the Dr. Wednesday if we find out that she DOES have CF? I already have a ton, but I want to make sure I don't over look anything.
 
 We also live in Jasper Co. which is in the South East Corner of Missouri. So KC is a little over 2 hours away for us.
 
 Well, I have to go. Paige needs a diaper, and some hugs. Thanks so much everyone!

jendonl · Jun 29, 2009

First of all, congratulations on your new baby. I don't think you need to worry about Paige being in very much pain or suffering. My 5 yr old DD with CF is like any other normal child. The worse she has is occasional belly ache from excess gas from not properly digesting her food.

Just one thing to think about, our dd was allergic to milk and soy and that caused the same kind of symptoms you're describing - runny poops with weight loss and constant hunger. Our dd lost 1/2 pound the first three weeks of her life instead of gaining 1/2 pound as she was supposed to. We cut out milk and soy (from my diet as I was breast feeding) and that really helped with the poops and the hunger. Our dd's poop did not seem oily (even though we didn't know at the time that she did have CF) but it may be something to think about.

I'm really sorry you are going through so much. It's so difficult to have this hanging over you when you should just be enjoying your new baby. I hope everything goes well at your appointment Wednesday.

jendonl · Jun 29, 2009

First of all, congratulations on your new baby. I don't think you need to worry about Paige being in very much pain or suffering. My 5 yr old DD with CF is like any other normal child. The worse she has is occasional belly ache from excess gas from not properly digesting her food.

Just one thing to think about, our dd was allergic to milk and soy and that caused the same kind of symptoms you're describing - runny poops with weight loss and constant hunger. Our dd lost 1/2 pound the first three weeks of her life instead of gaining 1/2 pound as she was supposed to. We cut out milk and soy (from my diet as I was breast feeding) and that really helped with the poops and the hunger. Our dd's poop did not seem oily (even though we didn't know at the time that she did have CF) but it may be something to think about.

I'm really sorry you are going through so much. It's so difficult to have this hanging over you when you should just be enjoying your new baby. I hope everything goes well at your appointment Wednesday.

jendonl · Jun 29, 2009

First of all, congratulations on your new baby. I don't think you need to worry about Paige being in very much pain or suffering. My 5 yr old DD with CF is like any other normal child. The worse she has is occasional belly ache from excess gas from not properly digesting her food.

Just one thing to think about, our dd was allergic to milk and soy and that caused the same kind of symptoms you're describing - runny poops with weight loss and constant hunger. Our dd lost 1/2 pound the first three weeks of her life instead of gaining 1/2 pound as she was supposed to. We cut out milk and soy (from my diet as I was breast feeding) and that really helped with the poops and the hunger. Our dd's poop did not seem oily (even though we didn't know at the time that she did have CF) but it may be something to think about.

I'm really sorry you are going through so much. It's so difficult to have this hanging over you when you should just be enjoying your new baby. I hope everything goes well at your appointment Wednesday.

jendonl · Jun 29, 2009

First of all, congratulations on your new baby. I don't think you need to worry about Paige being in very much pain or suffering. My 5 yr old DD with CF is like any other normal child. The worse she has is occasional belly ache from excess gas from not properly digesting her food.

Just one thing to think about, our dd was allergic to milk and soy and that caused the same kind of symptoms you're describing - runny poops with weight loss and constant hunger. Our dd lost 1/2 pound the first three weeks of her life instead of gaining 1/2 pound as she was supposed to. We cut out milk and soy (from my diet as I was breast feeding) and that really helped with the poops and the hunger. Our dd's poop did not seem oily (even though we didn't know at the time that she did have CF) but it may be something to think about.

I'm really sorry you are going through so much. It's so difficult to have this hanging over you when you should just be enjoying your new baby. I hope everything goes well at your appointment Wednesday.

jendonl · Jun 29, 2009

First of all, congratulations on your new baby. I don't think you need to worry about Paige being in very much pain or suffering. My 5 yr old DD with CF is like any other normal child. The worse she has is occasional belly ache from excess gas from not properly digesting her food.
 
 Just one thing to think about, our dd was allergic to milk and soy and that caused the same kind of symptoms you're describing - runny poops with weight loss and constant hunger. Our dd lost 1/2 pound the first three weeks of her life instead of gaining 1/2 pound as she was supposed to. We cut out milk and soy (from my diet as I was breast feeding) and that really helped with the poops and the hunger. Our dd's poop did not seem oily (even though we didn't know at the time that she did have CF) but it may be something to think about.
 
 I'm really sorry you are going through so much. It's so difficult to have this hanging over you when you should just be enjoying your new baby. I hope everything goes well at your appointment Wednesday.

JORDYSMOM · Jun 29, 2009

Page is just beautiful! I'm glad you found this site. It's been a life saver for me. By the way, Mel(JazzysMom) gives the best hugs. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm sorry you are going through all of this. I know it's scary and confusing. Take everything one step at a time. There will be so many things to learn, but you will get there. Always take a notebook to your doc appts, and write things down so you can go over it later.

Keep us posted on you and your baby girl.

Stacey

JORDYSMOM · Jun 29, 2009

Page is just beautiful! I'm glad you found this site. It's been a life saver for me. By the way, Mel(JazzysMom) gives the best hugs. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm sorry you are going through all of this. I know it's scary and confusing. Take everything one step at a time. There will be so many things to learn, but you will get there. Always take a notebook to your doc appts, and write things down so you can go over it later.

Keep us posted on you and your baby girl.

Stacey

JORDYSMOM · Jun 29, 2009

Page is just beautiful! I'm glad you found this site. It's been a life saver for me. By the way, Mel(JazzysMom) gives the best hugs. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm sorry you are going through all of this. I know it's scary and confusing. Take everything one step at a time. There will be so many things to learn, but you will get there. Always take a notebook to your doc appts, and write things down so you can go over it later.

Keep us posted on you and your baby girl.

Stacey

JORDYSMOM · Jun 29, 2009

Page is just beautiful! I'm glad you found this site. It's been a life saver for me. By the way, Mel(JazzysMom) gives the best hugs. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm sorry you are going through all of this. I know it's scary and confusing. Take everything one step at a time. There will be so many things to learn, but you will get there. Always take a notebook to your doc appts, and write things down so you can go over it later.

Keep us posted on you and your baby girl.

Stacey

JORDYSMOM · Jun 29, 2009

Page is just beautiful! I'm glad you found this site. It's been a life saver for me. By the way, Mel(JazzysMom) gives the best hugs. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
 I'm sorry you are going through all of this. I know it's scary and confusing. Take everything one step at a time. There will be so many things to learn, but you will get there. Always take a notebook to your doc appts, and write things down so you can go over it later.
 
 Keep us posted on you and your baby girl.
 
 Stacey

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