You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
WHAT DID YOU DO
- Thread starter Seana30
- Start date
Scarlett81
New member
Yeah Seana,
No one meant to take your thread! I guess next time everyone should start a new thread to continue this! <img src="i/expressions/face-icon-small-smile.gif" border="0">
jfarel-As I said i my post, I was just voicing my thoughts and said "maybe I'm wrong"-I was just making a guess. So since you mention you are very compliant-I have no idea why you would have such a huge drop. Not exercising enough is one thing, but stopping exercise shouldn't give you such a huge pft drop as that. In that case, since you've followed up with all your visits and appointments and treatments-sigh-I have to say I personally would seriously question why your doctor hasn't iv'd you, or done something to determine what is going on. You are headed down a dangerous path as you know and I hate to see you get worse and worse, when you can still reclaim you health-its not too late.
I only post more on this b/c it seemed like you were genuinely asking for opinions. But only you can decide what is best for you. But since you asked-yes, your doc's actions do not seem wise or ethical. Your doc may be the nicest person in the world, but he doesn't seem like the best doctor in the world. I would sit down with him, go over my past records and have a FIRM discussion as to why you have lost so much of your valuable lung function and why he's done nothing to get it back up. If you aren't satisfied with the answer, quit and move on to another doc or clinic. In the end-you do what you want. Wish you the best.
No one meant to take your thread! I guess next time everyone should start a new thread to continue this! <img src="i/expressions/face-icon-small-smile.gif" border="0">
jfarel-As I said i my post, I was just voicing my thoughts and said "maybe I'm wrong"-I was just making a guess. So since you mention you are very compliant-I have no idea why you would have such a huge drop. Not exercising enough is one thing, but stopping exercise shouldn't give you such a huge pft drop as that. In that case, since you've followed up with all your visits and appointments and treatments-sigh-I have to say I personally would seriously question why your doctor hasn't iv'd you, or done something to determine what is going on. You are headed down a dangerous path as you know and I hate to see you get worse and worse, when you can still reclaim you health-its not too late.
I only post more on this b/c it seemed like you were genuinely asking for opinions. But only you can decide what is best for you. But since you asked-yes, your doc's actions do not seem wise or ethical. Your doc may be the nicest person in the world, but he doesn't seem like the best doctor in the world. I would sit down with him, go over my past records and have a FIRM discussion as to why you have lost so much of your valuable lung function and why he's done nothing to get it back up. If you aren't satisfied with the answer, quit and move on to another doc or clinic. In the end-you do what you want. Wish you the best.
Scarlett81
New member
Yeah Seana,
No one meant to take your thread! I guess next time everyone should start a new thread to continue this! <img src="i/expressions/face-icon-small-smile.gif" border="0">
jfarel-As I said i my post, I was just voicing my thoughts and said "maybe I'm wrong"-I was just making a guess. So since you mention you are very compliant-I have no idea why you would have such a huge drop. Not exercising enough is one thing, but stopping exercise shouldn't give you such a huge pft drop as that. In that case, since you've followed up with all your visits and appointments and treatments-sigh-I have to say I personally would seriously question why your doctor hasn't iv'd you, or done something to determine what is going on. You are headed down a dangerous path as you know and I hate to see you get worse and worse, when you can still reclaim you health-its not too late.
I only post more on this b/c it seemed like you were genuinely asking for opinions. But only you can decide what is best for you. But since you asked-yes, your doc's actions do not seem wise or ethical. Your doc may be the nicest person in the world, but he doesn't seem like the best doctor in the world. I would sit down with him, go over my past records and have a FIRM discussion as to why you have lost so much of your valuable lung function and why he's done nothing to get it back up. If you aren't satisfied with the answer, quit and move on to another doc or clinic. In the end-you do what you want. Wish you the best.
No one meant to take your thread! I guess next time everyone should start a new thread to continue this! <img src="i/expressions/face-icon-small-smile.gif" border="0">
jfarel-As I said i my post, I was just voicing my thoughts and said "maybe I'm wrong"-I was just making a guess. So since you mention you are very compliant-I have no idea why you would have such a huge drop. Not exercising enough is one thing, but stopping exercise shouldn't give you such a huge pft drop as that. In that case, since you've followed up with all your visits and appointments and treatments-sigh-I have to say I personally would seriously question why your doctor hasn't iv'd you, or done something to determine what is going on. You are headed down a dangerous path as you know and I hate to see you get worse and worse, when you can still reclaim you health-its not too late.
I only post more on this b/c it seemed like you were genuinely asking for opinions. But only you can decide what is best for you. But since you asked-yes, your doc's actions do not seem wise or ethical. Your doc may be the nicest person in the world, but he doesn't seem like the best doctor in the world. I would sit down with him, go over my past records and have a FIRM discussion as to why you have lost so much of your valuable lung function and why he's done nothing to get it back up. If you aren't satisfied with the answer, quit and move on to another doc or clinic. In the end-you do what you want. Wish you the best.
Scarlett81
New member
Yeah Seana,
No one meant to take your thread! I guess next time everyone should start a new thread to continue this! <img src="i/expressions/face-icon-small-smile.gif" border="0">
jfarel-As I said i my post, I was just voicing my thoughts and said "maybe I'm wrong"-I was just making a guess. So since you mention you are very compliant-I have no idea why you would have such a huge drop. Not exercising enough is one thing, but stopping exercise shouldn't give you such a huge pft drop as that. In that case, since you've followed up with all your visits and appointments and treatments-sigh-I have to say I personally would seriously question why your doctor hasn't iv'd you, or done something to determine what is going on. You are headed down a dangerous path as you know and I hate to see you get worse and worse, when you can still reclaim you health-its not too late.
I only post more on this b/c it seemed like you were genuinely asking for opinions. But only you can decide what is best for you. But since you asked-yes, your doc's actions do not seem wise or ethical. Your doc may be the nicest person in the world, but he doesn't seem like the best doctor in the world. I would sit down with him, go over my past records and have a FIRM discussion as to why you have lost so much of your valuable lung function and why he's done nothing to get it back up. If you aren't satisfied with the answer, quit and move on to another doc or clinic. In the end-you do what you want. Wish you the best.
No one meant to take your thread! I guess next time everyone should start a new thread to continue this! <img src="i/expressions/face-icon-small-smile.gif" border="0">
jfarel-As I said i my post, I was just voicing my thoughts and said "maybe I'm wrong"-I was just making a guess. So since you mention you are very compliant-I have no idea why you would have such a huge drop. Not exercising enough is one thing, but stopping exercise shouldn't give you such a huge pft drop as that. In that case, since you've followed up with all your visits and appointments and treatments-sigh-I have to say I personally would seriously question why your doctor hasn't iv'd you, or done something to determine what is going on. You are headed down a dangerous path as you know and I hate to see you get worse and worse, when you can still reclaim you health-its not too late.
I only post more on this b/c it seemed like you were genuinely asking for opinions. But only you can decide what is best for you. But since you asked-yes, your doc's actions do not seem wise or ethical. Your doc may be the nicest person in the world, but he doesn't seem like the best doctor in the world. I would sit down with him, go over my past records and have a FIRM discussion as to why you have lost so much of your valuable lung function and why he's done nothing to get it back up. If you aren't satisfied with the answer, quit and move on to another doc or clinic. In the end-you do what you want. Wish you the best.
Seana-
I didn't take my enzymes at school either when I went to high school. I didn't want to feel different. My mom would threaten me and I just didn't listen. The two things she did do is this. First, she mentioned that eventually my stomach would bloat and it would stay like that and I would look fat. At high school age looking fat is really, really bad and I didn't want that to happen. So then I knew that I needed to take them but still didn't want to. So we made a deal. I would just have pretzels and an orange at lunch (didn't have to take medicine for that) and then have a big lunch when I got home and take my medicine then. It worked for me.
Jfarel- At first I wanted you to post your doctor but then I read what Lindsey said and now I agree with her. I used to post who my doctor was because I didn't like him but now I think that he is fine and it is me who I don't like. I got down to 30% in college suddenly and he told me to go on IVs and I refused. So it was my fault. They can't make me go on them. Dumb move by me.
If I thought that my doc read the boards I would feel horrible. I also didn't exercise in college and my health got very bad but like you, I just didn't educate myself and kind of didn't pay attention to the drop. There is only so much a doctor could do. I assured my doc that I felt fine, even if my numbers were dropping and always made up an excuse why they would drop. So I would double think posting the name of the doc if you do like him.
I didn't take my enzymes at school either when I went to high school. I didn't want to feel different. My mom would threaten me and I just didn't listen. The two things she did do is this. First, she mentioned that eventually my stomach would bloat and it would stay like that and I would look fat. At high school age looking fat is really, really bad and I didn't want that to happen. So then I knew that I needed to take them but still didn't want to. So we made a deal. I would just have pretzels and an orange at lunch (didn't have to take medicine for that) and then have a big lunch when I got home and take my medicine then. It worked for me.
Jfarel- At first I wanted you to post your doctor but then I read what Lindsey said and now I agree with her. I used to post who my doctor was because I didn't like him but now I think that he is fine and it is me who I don't like. I got down to 30% in college suddenly and he told me to go on IVs and I refused. So it was my fault. They can't make me go on them. Dumb move by me.
If I thought that my doc read the boards I would feel horrible. I also didn't exercise in college and my health got very bad but like you, I just didn't educate myself and kind of didn't pay attention to the drop. There is only so much a doctor could do. I assured my doc that I felt fine, even if my numbers were dropping and always made up an excuse why they would drop. So I would double think posting the name of the doc if you do like him.
Seana-
I didn't take my enzymes at school either when I went to high school. I didn't want to feel different. My mom would threaten me and I just didn't listen. The two things she did do is this. First, she mentioned that eventually my stomach would bloat and it would stay like that and I would look fat. At high school age looking fat is really, really bad and I didn't want that to happen. So then I knew that I needed to take them but still didn't want to. So we made a deal. I would just have pretzels and an orange at lunch (didn't have to take medicine for that) and then have a big lunch when I got home and take my medicine then. It worked for me.
Jfarel- At first I wanted you to post your doctor but then I read what Lindsey said and now I agree with her. I used to post who my doctor was because I didn't like him but now I think that he is fine and it is me who I don't like. I got down to 30% in college suddenly and he told me to go on IVs and I refused. So it was my fault. They can't make me go on them. Dumb move by me.
If I thought that my doc read the boards I would feel horrible. I also didn't exercise in college and my health got very bad but like you, I just didn't educate myself and kind of didn't pay attention to the drop. There is only so much a doctor could do. I assured my doc that I felt fine, even if my numbers were dropping and always made up an excuse why they would drop. So I would double think posting the name of the doc if you do like him.
I didn't take my enzymes at school either when I went to high school. I didn't want to feel different. My mom would threaten me and I just didn't listen. The two things she did do is this. First, she mentioned that eventually my stomach would bloat and it would stay like that and I would look fat. At high school age looking fat is really, really bad and I didn't want that to happen. So then I knew that I needed to take them but still didn't want to. So we made a deal. I would just have pretzels and an orange at lunch (didn't have to take medicine for that) and then have a big lunch when I got home and take my medicine then. It worked for me.
Jfarel- At first I wanted you to post your doctor but then I read what Lindsey said and now I agree with her. I used to post who my doctor was because I didn't like him but now I think that he is fine and it is me who I don't like. I got down to 30% in college suddenly and he told me to go on IVs and I refused. So it was my fault. They can't make me go on them. Dumb move by me.
If I thought that my doc read the boards I would feel horrible. I also didn't exercise in college and my health got very bad but like you, I just didn't educate myself and kind of didn't pay attention to the drop. There is only so much a doctor could do. I assured my doc that I felt fine, even if my numbers were dropping and always made up an excuse why they would drop. So I would double think posting the name of the doc if you do like him.
Seana-
I didn't take my enzymes at school either when I went to high school. I didn't want to feel different. My mom would threaten me and I just didn't listen. The two things she did do is this. First, she mentioned that eventually my stomach would bloat and it would stay like that and I would look fat. At high school age looking fat is really, really bad and I didn't want that to happen. So then I knew that I needed to take them but still didn't want to. So we made a deal. I would just have pretzels and an orange at lunch (didn't have to take medicine for that) and then have a big lunch when I got home and take my medicine then. It worked for me.
Jfarel- At first I wanted you to post your doctor but then I read what Lindsey said and now I agree with her. I used to post who my doctor was because I didn't like him but now I think that he is fine and it is me who I don't like. I got down to 30% in college suddenly and he told me to go on IVs and I refused. So it was my fault. They can't make me go on them. Dumb move by me.
If I thought that my doc read the boards I would feel horrible. I also didn't exercise in college and my health got very bad but like you, I just didn't educate myself and kind of didn't pay attention to the drop. There is only so much a doctor could do. I assured my doc that I felt fine, even if my numbers were dropping and always made up an excuse why they would drop. So I would double think posting the name of the doc if you do like him.
I didn't take my enzymes at school either when I went to high school. I didn't want to feel different. My mom would threaten me and I just didn't listen. The two things she did do is this. First, she mentioned that eventually my stomach would bloat and it would stay like that and I would look fat. At high school age looking fat is really, really bad and I didn't want that to happen. So then I knew that I needed to take them but still didn't want to. So we made a deal. I would just have pretzels and an orange at lunch (didn't have to take medicine for that) and then have a big lunch when I got home and take my medicine then. It worked for me.
Jfarel- At first I wanted you to post your doctor but then I read what Lindsey said and now I agree with her. I used to post who my doctor was because I didn't like him but now I think that he is fine and it is me who I don't like. I got down to 30% in college suddenly and he told me to go on IVs and I refused. So it was my fault. They can't make me go on them. Dumb move by me.
If I thought that my doc read the boards I would feel horrible. I also didn't exercise in college and my health got very bad but like you, I just didn't educate myself and kind of didn't pay attention to the drop. There is only so much a doctor could do. I assured my doc that I felt fine, even if my numbers were dropping and always made up an excuse why they would drop. So I would double think posting the name of the doc if you do like him.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>
So it was my fault. They can't make me go on them. Dumb move by me.
</end quote></div>
Can't you see that you're talking about something totaly different? Jfarel was compliant. You weren't.
Your drop in PFT's was your own fault. Jfarel's isn't - according to him he was compliant.
If there is a doc out there who isn't treating CF patients correctly, you have a moral obligation to let other CFers know about.
Whether you're going to hurt someone's feelings.
Whether you're going to make someone mad.
Whether it's going to make you feel uncomfortable.
Doing the right thing isn't always easy.
<b>You me to tell me that you're more concerned with a doc getting mad at you who cheated you out of years of your life than helping other CF patients make sure they don't go through what you did? </b>
You're better than that.
So it was my fault. They can't make me go on them. Dumb move by me.
</end quote></div>
Can't you see that you're talking about something totaly different? Jfarel was compliant. You weren't.
Your drop in PFT's was your own fault. Jfarel's isn't - according to him he was compliant.
If there is a doc out there who isn't treating CF patients correctly, you have a moral obligation to let other CFers know about.
Whether you're going to hurt someone's feelings.
Whether you're going to make someone mad.
Whether it's going to make you feel uncomfortable.
Doing the right thing isn't always easy.
<b>You me to tell me that you're more concerned with a doc getting mad at you who cheated you out of years of your life than helping other CF patients make sure they don't go through what you did? </b>
You're better than that.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>
So it was my fault. They can't make me go on them. Dumb move by me.
</end quote></div>
Can't you see that you're talking about something totaly different? Jfarel was compliant. You weren't.
Your drop in PFT's was your own fault. Jfarel's isn't - according to him he was compliant.
If there is a doc out there who isn't treating CF patients correctly, you have a moral obligation to let other CFers know about.
Whether you're going to hurt someone's feelings.
Whether you're going to make someone mad.
Whether it's going to make you feel uncomfortable.
Doing the right thing isn't always easy.
<b>You me to tell me that you're more concerned with a doc getting mad at you who cheated you out of years of your life than helping other CF patients make sure they don't go through what you did? </b>
You're better than that.
So it was my fault. They can't make me go on them. Dumb move by me.
</end quote></div>
Can't you see that you're talking about something totaly different? Jfarel was compliant. You weren't.
Your drop in PFT's was your own fault. Jfarel's isn't - according to him he was compliant.
If there is a doc out there who isn't treating CF patients correctly, you have a moral obligation to let other CFers know about.
Whether you're going to hurt someone's feelings.
Whether you're going to make someone mad.
Whether it's going to make you feel uncomfortable.
Doing the right thing isn't always easy.
<b>You me to tell me that you're more concerned with a doc getting mad at you who cheated you out of years of your life than helping other CF patients make sure they don't go through what you did? </b>
You're better than that.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>
So it was my fault. They can't make me go on them. Dumb move by me.
</end quote></div>
Can't you see that you're talking about something totaly different? Jfarel was compliant. You weren't.
Your drop in PFT's was your own fault. Jfarel's isn't - according to him he was compliant.
If there is a doc out there who isn't treating CF patients correctly, you have a moral obligation to let other CFers know about.
Whether you're going to hurt someone's feelings.
Whether you're going to make someone mad.
Whether it's going to make you feel uncomfortable.
Doing the right thing isn't always easy.
<b>You me to tell me that you're more concerned with a doc getting mad at you who cheated you out of years of your life than helping other CF patients make sure they don't go through what you did? </b>
You're better than that.
So it was my fault. They can't make me go on them. Dumb move by me.
</end quote></div>
Can't you see that you're talking about something totaly different? Jfarel was compliant. You weren't.
Your drop in PFT's was your own fault. Jfarel's isn't - according to him he was compliant.
If there is a doc out there who isn't treating CF patients correctly, you have a moral obligation to let other CFers know about.
Whether you're going to hurt someone's feelings.
Whether you're going to make someone mad.
Whether it's going to make you feel uncomfortable.
Doing the right thing isn't always easy.
<b>You me to tell me that you're more concerned with a doc getting mad at you who cheated you out of years of your life than helping other CF patients make sure they don't go through what you did? </b>
You're better than that.
falloutboygurl16
New member
thats exactly how i used to be. i always told my mom i didnt want her to tell me to take my medicine that i felt like i was being babied. but really i didnt take it. i knew it wasnt a good thing but i didnt like to take it and feel different from other people. i know now that if i dont take it it gets me sick but did i know that then or did i even care much then? not really. being a teenager is difficult especially when your around courney's age thats when i didnt take my medicine or anythingg. but eventually i got sick and learned that if i took this medicine i felt sooo much better. i also was diagnosed with CFRD around that time as well so imagine trying to fit in with people and me being diabetic not being able to eat so much sugar when i was with my friends. i felt pretty different but i just learned that really i can be the same i just needed to cover up with insulin and stuff to be able to eat what everyone else ate and i just drank diet soda and juice. having cf and being a teenager is difficult but being a teenager anyways is hard so i see why she is acting like this just as i did. im sure she will get over it soon. but you should hassle her about it becausee if you dont she will get sick or you could not hassle her about it and let her get sick to show her what happens but that honestly wouldnt be the best thing but that is what my parents did but not purposely. now that im almost 18 i know that it is important to take my medicine and stuff to stay healthy because it helps me lead a pretty much normal life except for the excessive amount of medication i take. but im pretty much like all of my friends just do more to maintain an average life but its worth it. im happy for who i am and its difficult and sometimes i admit i do slack on my meds but i know when its gone far enough. the doctor just told my parents about 3 months ago that they needed to stop heckling me about my medication so i know have to do it on my own because im almost an adult so i need to learn these things. aand its working im becoming a bit more independent and its good because i have to go to college soon so i need to be independent. its just a matter of time before courtney realizes stuff im sure she will come around soon. :]
falloutboygurl16
New member
thats exactly how i used to be. i always told my mom i didnt want her to tell me to take my medicine that i felt like i was being babied. but really i didnt take it. i knew it wasnt a good thing but i didnt like to take it and feel different from other people. i know now that if i dont take it it gets me sick but did i know that then or did i even care much then? not really. being a teenager is difficult especially when your around courney's age thats when i didnt take my medicine or anythingg. but eventually i got sick and learned that if i took this medicine i felt sooo much better. i also was diagnosed with CFRD around that time as well so imagine trying to fit in with people and me being diabetic not being able to eat so much sugar when i was with my friends. i felt pretty different but i just learned that really i can be the same i just needed to cover up with insulin and stuff to be able to eat what everyone else ate and i just drank diet soda and juice. having cf and being a teenager is difficult but being a teenager anyways is hard so i see why she is acting like this just as i did. im sure she will get over it soon. but you should hassle her about it becausee if you dont she will get sick or you could not hassle her about it and let her get sick to show her what happens but that honestly wouldnt be the best thing but that is what my parents did but not purposely. now that im almost 18 i know that it is important to take my medicine and stuff to stay healthy because it helps me lead a pretty much normal life except for the excessive amount of medication i take. but im pretty much like all of my friends just do more to maintain an average life but its worth it. im happy for who i am and its difficult and sometimes i admit i do slack on my meds but i know when its gone far enough. the doctor just told my parents about 3 months ago that they needed to stop heckling me about my medication so i know have to do it on my own because im almost an adult so i need to learn these things. aand its working im becoming a bit more independent and its good because i have to go to college soon so i need to be independent. its just a matter of time before courtney realizes stuff im sure she will come around soon. :]
falloutboygurl16
New member
thats exactly how i used to be. i always told my mom i didnt want her to tell me to take my medicine that i felt like i was being babied. but really i didnt take it. i knew it wasnt a good thing but i didnt like to take it and feel different from other people. i know now that if i dont take it it gets me sick but did i know that then or did i even care much then? not really. being a teenager is difficult especially when your around courney's age thats when i didnt take my medicine or anythingg. but eventually i got sick and learned that if i took this medicine i felt sooo much better. i also was diagnosed with CFRD around that time as well so imagine trying to fit in with people and me being diabetic not being able to eat so much sugar when i was with my friends. i felt pretty different but i just learned that really i can be the same i just needed to cover up with insulin and stuff to be able to eat what everyone else ate and i just drank diet soda and juice. having cf and being a teenager is difficult but being a teenager anyways is hard so i see why she is acting like this just as i did. im sure she will get over it soon. but you should hassle her about it becausee if you dont she will get sick or you could not hassle her about it and let her get sick to show her what happens but that honestly wouldnt be the best thing but that is what my parents did but not purposely. now that im almost 18 i know that it is important to take my medicine and stuff to stay healthy because it helps me lead a pretty much normal life except for the excessive amount of medication i take. but im pretty much like all of my friends just do more to maintain an average life but its worth it. im happy for who i am and its difficult and sometimes i admit i do slack on my meds but i know when its gone far enough. the doctor just told my parents about 3 months ago that they needed to stop heckling me about my medication so i know have to do it on my own because im almost an adult so i need to learn these things. aand its working im becoming a bit more independent and its good because i have to go to college soon so i need to be independent. its just a matter of time before courtney realizes stuff im sure she will come around soon. :]
2
2perfectboys
Guest
Jfarel- u say when u left childrens your PFTs were 75-100, that's a big gap. But say if they were 75 and in college, they went down to 60, I could see that happening as u stopped all forms of exercise, now, what is it, 6 years later, I could see a drop to 30s even with compliance, CF is progressive and even with treatment, this could still happen. But my question is, over they years, did u always get cultures every 3 months, and if so what did they show. How many times was it suggested u do IVs? I don't necessarily think u need to name your doc either, really does not show anything, and I think there are probably a few more docs out there u 5 years ago were not being agreesive as they are today. The real lesson here is we must be personally accontable and question, push , and get second opinions because of the seriousness of CF.
2
2perfectboys
Guest
Jfarel- u say when u left childrens your PFTs were 75-100, that's a big gap. But say if they were 75 and in college, they went down to 60, I could see that happening as u stopped all forms of exercise, now, what is it, 6 years later, I could see a drop to 30s even with compliance, CF is progressive and even with treatment, this could still happen. But my question is, over they years, did u always get cultures every 3 months, and if so what did they show. How many times was it suggested u do IVs? I don't necessarily think u need to name your doc either, really does not show anything, and I think there are probably a few more docs out there u 5 years ago were not being agreesive as they are today. The real lesson here is we must be personally accontable and question, push , and get second opinions because of the seriousness of CF.
2
2perfectboys
Guest
Jfarel- u say when u left childrens your PFTs were 75-100, that's a big gap. But say if they were 75 and in college, they went down to 60, I could see that happening as u stopped all forms of exercise, now, what is it, 6 years later, I could see a drop to 30s even with compliance, CF is progressive and even with treatment, this could still happen. But my question is, over they years, did u always get cultures every 3 months, and if so what did they show. How many times was it suggested u do IVs? I don't necessarily think u need to name your doc either, really does not show anything, and I think there are probably a few more docs out there u 5 years ago were not being agreesive as they are today. The real lesson here is we must be personally accontable and question, push , and get second opinions because of the seriousness of CF.