From the moment I knew I had CF I knew I had something "wrong" with me. I hated it! I shut everyone out growing up and when I met new friends I did everything I could to hide it. Nowadays, I can tell everyone I have CF and I don't give a damn what they will say to me. I feel over the years I have been able to learn from it and grow and hopefully throw in some education to others out there. So how do I keep fighting the fight??? I get up everyday, I stay positive, I take my meds, I eat good foods, workout and run everyday. I don't need any negative crap in my life, so friends or strangers whom I encounter and they don't bring any positive into my life, I forget about them. I try to educate myself as much as I can. Last October I coughed up over two pints of blood. I've never been in the ER, been on an ambulance, never had a blood transfusion, never been in the ICU or even had to be flown by emergency helicoptors till then. I was scared to death! I thought I was dying and so did the doctors. Seeing my family and my husband (then my boyfriend) so scared for me and breaking down on me, I knew I did not want to stop fighting at 25 years old. It hurt so bad, I literally was in so much physical pain after having an embolization. I was in the hospital for over a month and then again just a week later. I thought it wasn't going to stop. I got so short of breath just walking a few steps. I get scared everyday, but I don't want that to control me. I want children of my own and I want to give that to my husband. I want to know I am in my top shape if God does have kids in our plan. I don't want to leave my husband a widow at 30 years old. I will continue to fight cause honestly this site keeps me wanting to fight and not ever give up. My husband is the greatest gift I have ever received. He keeps me going and our future is all I can see ahead of me. When I'm running and I'm so freaking tired, I have my mp3 player on and I just think of my future and what I want in it. I don't stop till I've done my full workout. That's what keeps me fighting every single moment. I want the world to know what it's like to have this disease and not to ever compare us to another. CF is different in every person. In July I went to my Dr. and after my PFT's staying around the same as well as my weight, I was getting pissed at myself. What made me even more frustrated was that my Dr. seemed to be okay with my results. It made me feel like he was comfortable thinking that maybe this was my "norm" now. So since then, I've gained 12 lbs and I've been consistantly working out and running. From getting short of breath just taking a few steps to doing cardio for 30 minutes straight, I think is dang good. I want to shock the hell out of them at the clinic in October. I'm not going to let this disease take control of me. I have CF, but CF definately does NOT have me....I have my life to live! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Sorry I rambled on and on....Hugs to all!
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
What Does Fighting CF Mean To You?
- Thread starter CowTown
- Start date
From the moment I knew I had CF I knew I had something "wrong" with me. I hated it! I shut everyone out growing up and when I met new friends I did everything I could to hide it. Nowadays, I can tell everyone I have CF and I don't give a damn what they will say to me. I feel over the years I have been able to learn from it and grow and hopefully throw in some education to others out there. So how do I keep fighting the fight??? I get up everyday, I stay positive, I take my meds, I eat good foods, workout and run everyday. I don't need any negative crap in my life, so friends or strangers whom I encounter and they don't bring any positive into my life, I forget about them. I try to educate myself as much as I can. Last October I coughed up over two pints of blood. I've never been in the ER, been on an ambulance, never had a blood transfusion, never been in the ICU or even had to be flown by emergency helicoptors till then. I was scared to death! I thought I was dying and so did the doctors. Seeing my family and my husband (then my boyfriend) so scared for me and breaking down on me, I knew I did not want to stop fighting at 25 years old. It hurt so bad, I literally was in so much physical pain after having an embolization. I was in the hospital for over a month and then again just a week later. I thought it wasn't going to stop. I got so short of breath just walking a few steps. I get scared everyday, but I don't want that to control me. I want children of my own and I want to give that to my husband. I want to know I am in my top shape if God does have kids in our plan. I don't want to leave my husband a widow at 30 years old. I will continue to fight cause honestly this site keeps me wanting to fight and not ever give up. My husband is the greatest gift I have ever received. He keeps me going and our future is all I can see ahead of me. When I'm running and I'm so freaking tired, I have my mp3 player on and I just think of my future and what I want in it. I don't stop till I've done my full workout. That's what keeps me fighting every single moment. I want the world to know what it's like to have this disease and not to ever compare us to another. CF is different in every person. In July I went to my Dr. and after my PFT's staying around the same as well as my weight, I was getting pissed at myself. What made me even more frustrated was that my Dr. seemed to be okay with my results. It made me feel like he was comfortable thinking that maybe this was my "norm" now. So since then, I've gained 12 lbs and I've been consistantly working out and running. From getting short of breath just taking a few steps to doing cardio for 30 minutes straight, I think is dang good. I want to shock the hell out of them at the clinic in October. I'm not going to let this disease take control of me. I have CF, but CF definately does NOT have me....I have my life to live! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Sorry I rambled on and on....Hugs to all!
From the moment I knew I had CF I knew I had something "wrong" with me. I hated it! I shut everyone out growing up and when I met new friends I did everything I could to hide it. Nowadays, I can tell everyone I have CF and I don't give a damn what they will say to me. I feel over the years I have been able to learn from it and grow and hopefully throw in some education to others out there. So how do I keep fighting the fight??? I get up everyday, I stay positive, I take my meds, I eat good foods, workout and run everyday. I don't need any negative crap in my life, so friends or strangers whom I encounter and they don't bring any positive into my life, I forget about them. I try to educate myself as much as I can. Last October I coughed up over two pints of blood. I've never been in the ER, been on an ambulance, never had a blood transfusion, never been in the ICU or even had to be flown by emergency helicoptors till then. I was scared to death! I thought I was dying and so did the doctors. Seeing my family and my husband (then my boyfriend) so scared for me and breaking down on me, I knew I did not want to stop fighting at 25 years old. It hurt so bad, I literally was in so much physical pain after having an embolization. I was in the hospital for over a month and then again just a week later. I thought it wasn't going to stop. I got so short of breath just walking a few steps. I get scared everyday, but I don't want that to control me. I want children of my own and I want to give that to my husband. I want to know I am in my top shape if God does have kids in our plan. I don't want to leave my husband a widow at 30 years old. I will continue to fight cause honestly this site keeps me wanting to fight and not ever give up. My husband is the greatest gift I have ever received. He keeps me going and our future is all I can see ahead of me. When I'm running and I'm so freaking tired, I have my mp3 player on and I just think of my future and what I want in it. I don't stop till I've done my full workout. That's what keeps me fighting every single moment. I want the world to know what it's like to have this disease and not to ever compare us to another. CF is different in every person. In July I went to my Dr. and after my PFT's staying around the same as well as my weight, I was getting pissed at myself. What made me even more frustrated was that my Dr. seemed to be okay with my results. It made me feel like he was comfortable thinking that maybe this was my "norm" now. So since then, I've gained 12 lbs and I've been consistantly working out and running. From getting short of breath just taking a few steps to doing cardio for 30 minutes straight, I think is dang good. I want to shock the hell out of them at the clinic in October. I'm not going to let this disease take control of me. I have CF, but CF definately does NOT have me....I have my life to live! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Sorry I rambled on and on....Hugs to all!
From the moment I knew I had CF I knew I had something "wrong" with me. I hated it! I shut everyone out growing up and when I met new friends I did everything I could to hide it. Nowadays, I can tell everyone I have CF and I don't give a damn what they will say to me. I feel over the years I have been able to learn from it and grow and hopefully throw in some education to others out there. So how do I keep fighting the fight??? I get up everyday, I stay positive, I take my meds, I eat good foods, workout and run everyday. I don't need any negative crap in my life, so friends or strangers whom I encounter and they don't bring any positive into my life, I forget about them. I try to educate myself as much as I can. Last October I coughed up over two pints of blood. I've never been in the ER, been on an ambulance, never had a blood transfusion, never been in the ICU or even had to be flown by emergency helicoptors till then. I was scared to death! I thought I was dying and so did the doctors. Seeing my family and my husband (then my boyfriend) so scared for me and breaking down on me, I knew I did not want to stop fighting at 25 years old. It hurt so bad, I literally was in so much physical pain after having an embolization. I was in the hospital for over a month and then again just a week later. I thought it wasn't going to stop. I got so short of breath just walking a few steps. I get scared everyday, but I don't want that to control me. I want children of my own and I want to give that to my husband. I want to know I am in my top shape if God does have kids in our plan. I don't want to leave my husband a widow at 30 years old. I will continue to fight cause honestly this site keeps me wanting to fight and not ever give up. My husband is the greatest gift I have ever received. He keeps me going and our future is all I can see ahead of me. When I'm running and I'm so freaking tired, I have my mp3 player on and I just think of my future and what I want in it. I don't stop till I've done my full workout. That's what keeps me fighting every single moment. I want the world to know what it's like to have this disease and not to ever compare us to another. CF is different in every person. In July I went to my Dr. and after my PFT's staying around the same as well as my weight, I was getting pissed at myself. What made me even more frustrated was that my Dr. seemed to be okay with my results. It made me feel like he was comfortable thinking that maybe this was my "norm" now. So since then, I've gained 12 lbs and I've been consistantly working out and running. From getting short of breath just taking a few steps to doing cardio for 30 minutes straight, I think is dang good. I want to shock the hell out of them at the clinic in October. I'm not going to let this disease take control of me. I have CF, but CF definately does NOT have me....I have my life to live! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Sorry I rambled on and on....Hugs to all!
From the moment I knew I had CF I knew I had something "wrong" with me. I hated it! I shut everyone out growing up and when I met new friends I did everything I could to hide it. Nowadays, I can tell everyone I have CF and I don't give a damn what they will say to me. I feel over the years I have been able to learn from it and grow and hopefully throw in some education to others out there. So how do I keep fighting the fight??? I get up everyday, I stay positive, I take my meds, I eat good foods, workout and run everyday. I don't need any negative crap in my life, so friends or strangers whom I encounter and they don't bring any positive into my life, I forget about them. I try to educate myself as much as I can. Last October I coughed up over two pints of blood. I've never been in the ER, been on an ambulance, never had a blood transfusion, never been in the ICU or even had to be flown by emergency helicoptors till then. I was scared to death! I thought I was dying and so did the doctors. Seeing my family and my husband (then my boyfriend) so scared for me and breaking down on me, I knew I did not want to stop fighting at 25 years old. It hurt so bad, I literally was in so much physical pain after having an embolization. I was in the hospital for over a month and then again just a week later. I thought it wasn't going to stop. I got so short of breath just walking a few steps. I get scared everyday, but I don't want that to control me. I want children of my own and I want to give that to my husband. I want to know I am in my top shape if God does have kids in our plan. I don't want to leave my husband a widow at 30 years old. I will continue to fight cause honestly this site keeps me wanting to fight and not ever give up. My husband is the greatest gift I have ever received. He keeps me going and our future is all I can see ahead of me. When I'm running and I'm so freaking tired, I have my mp3 player on and I just think of my future and what I want in it. I don't stop till I've done my full workout. That's what keeps me fighting every single moment. I want the world to know what it's like to have this disease and not to ever compare us to another. CF is different in every person. In July I went to my Dr. and after my PFT's staying around the same as well as my weight, I was getting pissed at myself. What made me even more frustrated was that my Dr. seemed to be okay with my results. It made me feel like he was comfortable thinking that maybe this was my "norm" now. So since then, I've gained 12 lbs and I've been consistantly working out and running. From getting short of breath just taking a few steps to doing cardio for 30 minutes straight, I think is dang good. I want to shock the hell out of them at the clinic in October. I'm not going to let this disease take control of me. I have CF, but CF definately does NOT have me....I have my life to live! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Sorry I rambled on and on....Hugs to all!
6
65rosessamurai
Guest
I actually thought that "Fighting CF" had to do with the various fundraisers for the money needed for research funding and the likes. To which, it would be to "Fight for a Cure", or even in some cases was to fight for the research needed for better ways to preserve the life of those with CF (until they found a cure).
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
6
65rosessamurai
Guest
I actually thought that "Fighting CF" had to do with the various fundraisers for the money needed for research funding and the likes. To which, it would be to "Fight for a Cure", or even in some cases was to fight for the research needed for better ways to preserve the life of those with CF (until they found a cure).
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
6
65rosessamurai
Guest
I actually thought that "Fighting CF" had to do with the various fundraisers for the money needed for research funding and the likes. To which, it would be to "Fight for a Cure", or even in some cases was to fight for the research needed for better ways to preserve the life of those with CF (until they found a cure).
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
6
65rosessamurai
Guest
I actually thought that "Fighting CF" had to do with the various fundraisers for the money needed for research funding and the likes. To which, it would be to "Fight for a Cure", or even in some cases was to fight for the research needed for better ways to preserve the life of those with CF (until they found a cure).
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
6
65rosessamurai
Guest
I actually thought that "Fighting CF" had to do with the various fundraisers for the money needed for research funding and the likes. To which, it would be to "Fight for a Cure", or even in some cases was to fight for the research needed for better ways to preserve the life of those with CF (until they found a cure).
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
Like everyone else said, CF to me personally was just a way of life, sometimes a struggle, sometimes not so much.
trying to live a normal life as best as i can and dont let cf affect me personally as it has in the past.At times i was drained from all the treatments that had to be done
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2
trying to live a normal life as best as i can and dont let cf affect me personally as it has in the past.At times i was drained from all the treatments that had to be done
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2
trying to live a normal life as best as i can and dont let cf affect me personally as it has in the past.At times i was drained from all the treatments that had to be done
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2
trying to live a normal life as best as i can and dont let cf affect me personally as it has in the past.At times i was drained from all the treatments that had to be done
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2
trying to live a normal life as best as i can and dont let cf affect me personally as it has in the past.At times i was drained from all the treatments that had to be done
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2
living with this disease is hard ,but a normal life is also important to have as well i now try to balance the 2