What Does Fighting CF Mean To You?

[scanboyd]

Being compliant as one can be, including all the neb. and vest treatments as well as a good exercise program. One must be on a good diet for CF as well. I have never! looked at what I don't have, because it could always be worse. Keep on keeping on. We have to play the hand that your are dealt. Everyone is dying one day at a time, not just people with CF.

Ken

 

[scanboyd]

Being compliant as one can be, including all the neb. and vest treatments as well as a good exercise program. One must be on a good diet for CF as well. I have never! looked at what I don't have, because it could always be worse. Keep on keeping on. We have to play the hand that your are dealt. Everyone is dying one day at a time, not just people with CF.

Ken

 

[scanboyd]

Being compliant as one can be, including all the neb. and vest treatments as well as a good exercise program. One must be on a good diet for CF as well. I have never! looked at what I don't have, because it could always be worse. Keep on keeping on. We have to play the hand that your are dealt. Everyone is dying one day at a time, not just people with CF.

Ken

 

[scanboyd]

Being compliant as one can be, including all the neb. and vest treatments as well as a good exercise program. One must be on a good diet for CF as well. I have never! looked at what I don't have, because it could always be worse. Keep on keeping on. We have to play the hand that your are dealt. Everyone is dying one day at a time, not just people with CF.

Ken

 

[scanboyd]

Being compliant as one can be, including all the neb. and vest treatments as well as a good exercise program. One must be on a good diet for CF as well. I have never! looked at what I don't have, because it could always be worse. Keep on keeping on. We have to play the hand that your are dealt. Everyone is dying one day at a time, not just people with CF.

Ken

 

[Emily65Roses]

Sorry this just came to me at random and I had to share...

<b>Just keep swimming! Just keep swimming! Just keep swimming swimming swimming.</b>

Ahaha.

 

[Emily65Roses]

Sorry this just came to me at random and I had to share...

<b>Just keep swimming! Just keep swimming! Just keep swimming swimming swimming.</b>

Ahaha.

 

[Emily65Roses]

Sorry this just came to me at random and I had to share...

<b>Just keep swimming! Just keep swimming! Just keep swimming swimming swimming.</b>

Ahaha.

 

[Emily65Roses]

Sorry this just came to me at random and I had to share...

<b>Just keep swimming! Just keep swimming! Just keep swimming swimming swimming.</b>

Ahaha.

 

[Emily65Roses]

Sorry this just came to me at random and I had to share...

<b>Just keep swimming! Just keep swimming! Just keep swimming swimming swimming.</b>

Ahaha.

 

[cdale613]

Fighting CF means maximizing my potential in all areas of my life, inspite of/ despite having CF.

It means ignoring and redefining the preconceived notions other people might have about what a person with CF is supposed to be able to accomplish physically, academically, professionally, and personally.

It means begruding ever percentage point of lung function, and working HARD to minimize loss, and if at all possible, regain ground.

I fight CF. Everyday. Its not an acceptance of, or a living with. Its a battle. CF wants to take everything I love and hold dear from me. Its personal. Every round of hypertonic saline, TOBI and pulmozyme, every position of chest pt, every course of IVs. That's the way I want it. Every bike ride I take, every workout, every race I finish are little victories in that fight, and motivate me to hit CF again when I get home. Watching my lung function improve or stay high are big victories, but are often spaced out too far apart to keep me going day to day... the exercise keeps me more focused.

I have no illusions about staving CF off forever, but I do have some degree of hope in the research progress being made. When that answer to cf is found, I plan on being left standing with as much lung function as I possibly could have. If its not found in time, I will have trained my mind and body to give myself the best chances at withstanding the transplant ordeal. If I die before finding a donor, I will have lived the fullest life I could have possibly lived, and I will have CF to thank for it.

Chris

27 m w/CF

 

[cdale613]

Fighting CF means maximizing my potential in all areas of my life, inspite of/ despite having CF.

It means ignoring and redefining the preconceived notions other people might have about what a person with CF is supposed to be able to accomplish physically, academically, professionally, and personally.

It means begruding ever percentage point of lung function, and working HARD to minimize loss, and if at all possible, regain ground.

I fight CF. Everyday. Its not an acceptance of, or a living with. Its a battle. CF wants to take everything I love and hold dear from me. Its personal. Every round of hypertonic saline, TOBI and pulmozyme, every position of chest pt, every course of IVs. That's the way I want it. Every bike ride I take, every workout, every race I finish are little victories in that fight, and motivate me to hit CF again when I get home. Watching my lung function improve or stay high are big victories, but are often spaced out too far apart to keep me going day to day... the exercise keeps me more focused.

I have no illusions about staving CF off forever, but I do have some degree of hope in the research progress being made. When that answer to cf is found, I plan on being left standing with as much lung function as I possibly could have. If its not found in time, I will have trained my mind and body to give myself the best chances at withstanding the transplant ordeal. If I die before finding a donor, I will have lived the fullest life I could have possibly lived, and I will have CF to thank for it.

Chris

27 m w/CF

 

[cdale613]

Fighting CF means maximizing my potential in all areas of my life, inspite of/ despite having CF.

It means ignoring and redefining the preconceived notions other people might have about what a person with CF is supposed to be able to accomplish physically, academically, professionally, and personally.

It means begruding ever percentage point of lung function, and working HARD to minimize loss, and if at all possible, regain ground.

I fight CF. Everyday. Its not an acceptance of, or a living with. Its a battle. CF wants to take everything I love and hold dear from me. Its personal. Every round of hypertonic saline, TOBI and pulmozyme, every position of chest pt, every course of IVs. That's the way I want it. Every bike ride I take, every workout, every race I finish are little victories in that fight, and motivate me to hit CF again when I get home. Watching my lung function improve or stay high are big victories, but are often spaced out too far apart to keep me going day to day... the exercise keeps me more focused.

I have no illusions about staving CF off forever, but I do have some degree of hope in the research progress being made. When that answer to cf is found, I plan on being left standing with as much lung function as I possibly could have. If its not found in time, I will have trained my mind and body to give myself the best chances at withstanding the transplant ordeal. If I die before finding a donor, I will have lived the fullest life I could have possibly lived, and I will have CF to thank for it.

Chris

27 m w/CF

 

[cdale613]

Fighting CF means maximizing my potential in all areas of my life, inspite of/ despite having CF.

It means ignoring and redefining the preconceived notions other people might have about what a person with CF is supposed to be able to accomplish physically, academically, professionally, and personally.

It means begruding ever percentage point of lung function, and working HARD to minimize loss, and if at all possible, regain ground.

I fight CF. Everyday. Its not an acceptance of, or a living with. Its a battle. CF wants to take everything I love and hold dear from me. Its personal. Every round of hypertonic saline, TOBI and pulmozyme, every position of chest pt, every course of IVs. That's the way I want it. Every bike ride I take, every workout, every race I finish are little victories in that fight, and motivate me to hit CF again when I get home. Watching my lung function improve or stay high are big victories, but are often spaced out too far apart to keep me going day to day... the exercise keeps me more focused.

I have no illusions about staving CF off forever, but I do have some degree of hope in the research progress being made. When that answer to cf is found, I plan on being left standing with as much lung function as I possibly could have. If its not found in time, I will have trained my mind and body to give myself the best chances at withstanding the transplant ordeal. If I die before finding a donor, I will have lived the fullest life I could have possibly lived, and I will have CF to thank for it.

Chris

27 m w/CF

 

[cdale613]

Fighting CF means maximizing my potential in all areas of my life, inspite of/ despite having CF.

It means ignoring and redefining the preconceived notions other people might have about what a person with CF is supposed to be able to accomplish physically, academically, professionally, and personally.

It means begruding ever percentage point of lung function, and working HARD to minimize loss, and if at all possible, regain ground.

I fight CF. Everyday. Its not an acceptance of, or a living with. Its a battle. CF wants to take everything I love and hold dear from me. Its personal. Every round of hypertonic saline, TOBI and pulmozyme, every position of chest pt, every course of IVs. That's the way I want it. Every bike ride I take, every workout, every race I finish are little victories in that fight, and motivate me to hit CF again when I get home. Watching my lung function improve or stay high are big victories, but are often spaced out too far apart to keep me going day to day... the exercise keeps me more focused.

I have no illusions about staving CF off forever, but I do have some degree of hope in the research progress being made. When that answer to cf is found, I plan on being left standing with as much lung function as I possibly could have. If its not found in time, I will have trained my mind and body to give myself the best chances at withstanding the transplant ordeal. If I die before finding a donor, I will have lived the fullest life I could have possibly lived, and I will have CF to thank for it.

Chris

27 m w/CF

 

[mamerth]

To be "fighting CF" means to life a productive life despite having this disease. I think I have finally begun to "fight" this disease now that I am not hiding it from others... I am doing my treatments...eating healthfully... and educating others about this illness. Sunday I was fighting... as we educated our friends about the illness and raised money. I felt strength and determination (not necessary from within but from those around me)-- to me that also is "fighting". Does that make sense??

 

[mamerth]

To be "fighting CF" means to life a productive life despite having this disease. I think I have finally begun to "fight" this disease now that I am not hiding it from others... I am doing my treatments...eating healthfully... and educating others about this illness. Sunday I was fighting... as we educated our friends about the illness and raised money. I felt strength and determination (not necessary from within but from those around me)-- to me that also is "fighting". Does that make sense??

 

[mamerth]

To be "fighting CF" means to life a productive life despite having this disease. I think I have finally begun to "fight" this disease now that I am not hiding it from others... I am doing my treatments...eating healthfully... and educating others about this illness. Sunday I was fighting... as we educated our friends about the illness and raised money. I felt strength and determination (not necessary from within but from those around me)-- to me that also is "fighting". Does that make sense??

 

[mamerth]

To be "fighting CF" means to life a productive life despite having this disease. I think I have finally begun to "fight" this disease now that I am not hiding it from others... I am doing my treatments...eating healthfully... and educating others about this illness. Sunday I was fighting... as we educated our friends about the illness and raised money. I felt strength and determination (not necessary from within but from those around me)-- to me that also is "fighting". Does that make sense??

 

[mamerth]

To be "fighting CF" means to life a productive life despite having this disease. I think I have finally begun to "fight" this disease now that I am not hiding it from others... I am doing my treatments...eating healthfully... and educating others about this illness. Sunday I was fighting... as we educated our friends about the illness and raised money. I felt strength and determination (not necessary from within but from those around me)-- to me that also is "fighting". Does that make sense??