What Does Fighting CF Mean To You?

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welshwitch

Guest
For me, it's more about "embracing" CF. For a long time I was in denial that I even had this disease. It's also about looking at the "big picture" and instead of obsessing about the things I DON'T have (a body that is pancreatic sufficient, perfect breathing, and assurance that I will get to live long) I try to focus on what I DO have (a strong, healthy body, great family and friends, great job, great PFTs, etc.)

And then I focus on the positives and the maybes and the HOPES (that I will get to live long, that I will one day get to get married and have kids, own a house, etc.) I try to maintain that I will live a fairly normal life despite these slight inconveinences (pills, breathing treatments, etc.) that come with CF.

In "embracing" it really means "accepting" and plowing forward, knowing things aren't perfect but in life when are they? And always know that I am "earning" my health with all the effort that I go through to maintain it.

Also, it means not beating myself up for having a chronic illness, and instead, patting myself on the back for dealing with it in a proactive and realistic way.

--welshwitch, 27, f w/ cf
 
W

welshwitch

Guest
For me, it's more about "embracing" CF. For a long time I was in denial that I even had this disease. It's also about looking at the "big picture" and instead of obsessing about the things I DON'T have (a body that is pancreatic sufficient, perfect breathing, and assurance that I will get to live long) I try to focus on what I DO have (a strong, healthy body, great family and friends, great job, great PFTs, etc.)

And then I focus on the positives and the maybes and the HOPES (that I will get to live long, that I will one day get to get married and have kids, own a house, etc.) I try to maintain that I will live a fairly normal life despite these slight inconveinences (pills, breathing treatments, etc.) that come with CF.

In "embracing" it really means "accepting" and plowing forward, knowing things aren't perfect but in life when are they? And always know that I am "earning" my health with all the effort that I go through to maintain it.

Also, it means not beating myself up for having a chronic illness, and instead, patting myself on the back for dealing with it in a proactive and realistic way.

--welshwitch, 27, f w/ cf
 
W

welshwitch

Guest
For me, it's more about "embracing" CF. For a long time I was in denial that I even had this disease. It's also about looking at the "big picture" and instead of obsessing about the things I DON'T have (a body that is pancreatic sufficient, perfect breathing, and assurance that I will get to live long) I try to focus on what I DO have (a strong, healthy body, great family and friends, great job, great PFTs, etc.)

And then I focus on the positives and the maybes and the HOPES (that I will get to live long, that I will one day get to get married and have kids, own a house, etc.) I try to maintain that I will live a fairly normal life despite these slight inconveinences (pills, breathing treatments, etc.) that come with CF.

In "embracing" it really means "accepting" and plowing forward, knowing things aren't perfect but in life when are they? And always know that I am "earning" my health with all the effort that I go through to maintain it.

Also, it means not beating myself up for having a chronic illness, and instead, patting myself on the back for dealing with it in a proactive and realistic way.

--welshwitch, 27, f w/ cf
 
W

welshwitch

Guest
For me, it's more about "embracing" CF. For a long time I was in denial that I even had this disease. It's also about looking at the "big picture" and instead of obsessing about the things I DON'T have (a body that is pancreatic sufficient, perfect breathing, and assurance that I will get to live long) I try to focus on what I DO have (a strong, healthy body, great family and friends, great job, great PFTs, etc.)

And then I focus on the positives and the maybes and the HOPES (that I will get to live long, that I will one day get to get married and have kids, own a house, etc.) I try to maintain that I will live a fairly normal life despite these slight inconveinences (pills, breathing treatments, etc.) that come with CF.

In "embracing" it really means "accepting" and plowing forward, knowing things aren't perfect but in life when are they? And always know that I am "earning" my health with all the effort that I go through to maintain it.

Also, it means not beating myself up for having a chronic illness, and instead, patting myself on the back for dealing with it in a proactive and realistic way.

--welshwitch, 27, f w/ cf
 
W

welshwitch

Guest
For me, it's more about "embracing" CF. For a long time I was in denial that I even had this disease. It's also about looking at the "big picture" and instead of obsessing about the things I DON'T have (a body that is pancreatic sufficient, perfect breathing, and assurance that I will get to live long) I try to focus on what I DO have (a strong, healthy body, great family and friends, great job, great PFTs, etc.)

And then I focus on the positives and the maybes and the HOPES (that I will get to live long, that I will one day get to get married and have kids, own a house, etc.) I try to maintain that I will live a fairly normal life despite these slight inconveinences (pills, breathing treatments, etc.) that come with CF.

In "embracing" it really means "accepting" and plowing forward, knowing things aren't perfect but in life when are they? And always know that I am "earning" my health with all the effort that I go through to maintain it.

Also, it means not beating myself up for having a chronic illness, and instead, patting myself on the back for dealing with it in a proactive and realistic way.

--welshwitch, 27, f w/ cf
 

bittyhorse23

New member
Emily: haha yeah I HATE when people say that... "you're doing great keep on fighting"...whatever!!!!

hmmm "fighting" CF to me means not letting it win. I do what I have to do to live but most importantly I try to actually <b>LIVE</b>. I visit family and friends...I go out to bars (probably shouldn't)...I stay up late watching movies...I do the things I want to do and just add my treatments in. I don't consider it a fight, much like Emily and Melissa said I deal with it and live with it. We have no other choice except a slow death.
 

bittyhorse23

New member
Emily: haha yeah I HATE when people say that... "you're doing great keep on fighting"...whatever!!!!

hmmm "fighting" CF to me means not letting it win. I do what I have to do to live but most importantly I try to actually <b>LIVE</b>. I visit family and friends...I go out to bars (probably shouldn't)...I stay up late watching movies...I do the things I want to do and just add my treatments in. I don't consider it a fight, much like Emily and Melissa said I deal with it and live with it. We have no other choice except a slow death.
 

bittyhorse23

New member
Emily: haha yeah I HATE when people say that... "you're doing great keep on fighting"...whatever!!!!

hmmm "fighting" CF to me means not letting it win. I do what I have to do to live but most importantly I try to actually <b>LIVE</b>. I visit family and friends...I go out to bars (probably shouldn't)...I stay up late watching movies...I do the things I want to do and just add my treatments in. I don't consider it a fight, much like Emily and Melissa said I deal with it and live with it. We have no other choice except a slow death.
 

bittyhorse23

New member
Emily: haha yeah I HATE when people say that... "you're doing great keep on fighting"...whatever!!!!

hmmm "fighting" CF to me means not letting it win. I do what I have to do to live but most importantly I try to actually <b>LIVE</b>. I visit family and friends...I go out to bars (probably shouldn't)...I stay up late watching movies...I do the things I want to do and just add my treatments in. I don't consider it a fight, much like Emily and Melissa said I deal with it and live with it. We have no other choice except a slow death.
 

bittyhorse23

New member
Emily: haha yeah I HATE when people say that... "you're doing great keep on fighting"...whatever!!!!

hmmm "fighting" CF to me means not letting it win. I do what I have to do to live but most importantly I try to actually <b>LIVE</b>. I visit family and friends...I go out to bars (probably shouldn't)...I stay up late watching movies...I do the things I want to do and just add my treatments in. I don't consider it a fight, much like Emily and Melissa said I deal with it and live with it. We have no other choice except a slow death.
 

EnergyGal

New member
I think the word "Fight" is more of a cliche just like the word "Cure" is used for rasing money.

They are just action words or shall I say attention getters

The word Fight is a good cliche

"fight tooth and nail
fight to the bitter end
fight the battle all over again
fight for your life
fight to the bitter end "
 

EnergyGal

New member
I think the word "Fight" is more of a cliche just like the word "Cure" is used for rasing money.

They are just action words or shall I say attention getters

The word Fight is a good cliche

"fight tooth and nail
fight to the bitter end
fight the battle all over again
fight for your life
fight to the bitter end "
 

EnergyGal

New member
I think the word "Fight" is more of a cliche just like the word "Cure" is used for rasing money.

They are just action words or shall I say attention getters

The word Fight is a good cliche

"fight tooth and nail
fight to the bitter end
fight the battle all over again
fight for your life
fight to the bitter end "
 

EnergyGal

New member
I think the word "Fight" is more of a cliche just like the word "Cure" is used for rasing money.

They are just action words or shall I say attention getters

The word Fight is a good cliche

"fight tooth and nail
fight to the bitter end
fight the battle all over again
fight for your life
fight to the bitter end "
 

EnergyGal

New member
I think the word "Fight" is more of a cliche just like the word "Cure" is used for rasing money.

They are just action words or shall I say attention getters

The word Fight is a good cliche

"fight tooth and nail
fight to the bitter end
fight the battle all over again
fight for your life
fight to the bitter end "
 
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