Packers646
New member
does everyone wake up while on the vent? or do some already have it out when they wake up?
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What hurts the most ??
- Thread starter Packers646
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Packers646
New member
does everyone wake up while on the vent? or do some already have it out when they wake up?
Packers646
New member
does everyone wake up while on the vent? or do some already have it out when they wake up?
Packers646
New member
does everyone wake up while on the vent? or do some already have it out when they wake up?
Packers646
New member
does everyone wake up while on the vent? or do some already have it out when they wake up?
I woke up with it in....but I was so high on life (translation: on a lot of drugs), it didn't bother me in the least. And I was terrified pre TX about the vent. Oh well..... This is why I say don't stress about stuff like this until you're in the moment. I wasted a lot of energy on this sort of stuff.
I woke up with it in....but I was so high on life (translation: on a lot of drugs), it didn't bother me in the least. And I was terrified pre TX about the vent. Oh well..... This is why I say don't stress about stuff like this until you're in the moment. I wasted a lot of energy on this sort of stuff.
I woke up with it in....but I was so high on life (translation: on a lot of drugs), it didn't bother me in the least. And I was terrified pre TX about the vent. Oh well..... This is why I say don't stress about stuff like this until you're in the moment. I wasted a lot of energy on this sort of stuff.
I woke up with it in....but I was so high on life (translation: on a lot of drugs), it didn't bother me in the least. And I was terrified pre TX about the vent. Oh well..... This is why I say don't stress about stuff like this until you're in the moment. I wasted a lot of energy on this sort of stuff.
I woke up with it in....but I was so high on life (translation: on a lot of drugs), it didn't bother me in the least. And I was terrified pre TX about the vent. Oh well..... This is why I say don't stress about stuff like this until you're in the moment. I wasted a lot of energy on this sort of stuff.
Trizzanne74
New member
I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more comfortable.
I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
Trizzanne74
New member
I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more comfortable.
I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
Trizzanne74
New member
I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more comfortable.
I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
Trizzanne74
New member
I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more comfortable.
I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
Trizzanne74
New member
I felt pretty heroic after having my 6-7 chest tubes pulled, it was not so much painful as just weird feeling. Kind of like getting a really big splinter in your hand, ok, not really. But having them removed was such a happy experience for me since I was more mobile and sleeping was so much more comfortable.
<br />
<br />I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
<br />
<br />Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
<br />
<br />I remember my back was really sore and since I had so many chest tubes, sleeping was very uncomfortable. I asked for lots of back rubs and had some lidocane patches I wore daily.
<br />
<br />Walking was the hardest for me... mainly because I wasn't walking much at all pre-transplant since I was on a vent for 3 months. My legs were atrophied, so walking and breathing with my new set of lungs was my most uncomfortable task, after 2-3 weeks I felt like a new person. But for most post trasplanters, I am guessing walking isn't so difficult.
coltsfan715
New member
I just wanted to say to you Anna I also had that horrendous put me out of my misery pain when they adjusted my meds. The problem for me was they put me on something that just didn't work for me when they moved me from ICU. It hurt to the point that I was screaming and scaring the other patients because I couldn't get some of my family to understand that I wasn't just exaggerating at first - as well as the nurses. I was complaining and they just said oh its normal. Then they tried to get me to move and I said no because it hurt and one of the RTs forced me to move and they ended up having to restrain me cause I started swinging lol. It was definitely a day or night rather that I wish I didn't have to remember.
As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
Lindsey
As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
Lindsey
coltsfan715
New member
I just wanted to say to you Anna I also had that horrendous put me out of my misery pain when they adjusted my meds. The problem for me was they put me on something that just didn't work for me when they moved me from ICU. It hurt to the point that I was screaming and scaring the other patients because I couldn't get some of my family to understand that I wasn't just exaggerating at first - as well as the nurses. I was complaining and they just said oh its normal. Then they tried to get me to move and I said no because it hurt and one of the RTs forced me to move and they ended up having to restrain me cause I started swinging lol. It was definitely a day or night rather that I wish I didn't have to remember.
As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
Lindsey
As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
Lindsey
coltsfan715
New member
I just wanted to say to you Anna I also had that horrendous put me out of my misery pain when they adjusted my meds. The problem for me was they put me on something that just didn't work for me when they moved me from ICU. It hurt to the point that I was screaming and scaring the other patients because I couldn't get some of my family to understand that I wasn't just exaggerating at first - as well as the nurses. I was complaining and they just said oh its normal. Then they tried to get me to move and I said no because it hurt and one of the RTs forced me to move and they ended up having to restrain me cause I started swinging lol. It was definitely a day or night rather that I wish I didn't have to remember.
As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
Lindsey
As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
Lindsey
coltsfan715
New member
I just wanted to say to you Anna I also had that horrendous put me out of my misery pain when they adjusted my meds. The problem for me was they put me on something that just didn't work for me when they moved me from ICU. It hurt to the point that I was screaming and scaring the other patients because I couldn't get some of my family to understand that I wasn't just exaggerating at first - as well as the nurses. I was complaining and they just said oh its normal. Then they tried to get me to move and I said no because it hurt and one of the RTs forced me to move and they ended up having to restrain me cause I started swinging lol. It was definitely a day or night rather that I wish I didn't have to remember.
As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
Lindsey
As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
Lindsey
coltsfan715
New member
I just wanted to say to you Anna I also had that horrendous put me out of my misery pain when they adjusted my meds. The problem for me was they put me on something that just didn't work for me when they moved me from ICU. It hurt to the point that I was screaming and scaring the other patients because I couldn't get some of my family to understand that I wasn't just exaggerating at first - as well as the nurses. I was complaining and they just said oh its normal. Then they tried to get me to move and I said no because it hurt and one of the RTs forced me to move and they ended up having to restrain me cause I started swinging lol. It was definitely a day or night rather that I wish I didn't have to remember.
<br />
<br />As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
<br />
<br />With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
<br />
<br />You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
<br />
<br />Lindsey
<br />
<br />As for the vent I do believe that everyone is awake for at least a period of time on the vent. The reason being is they need to make sure that you are capable of controlling your breathing and such. I was awake and off the vent within a few hours of my transplant. I remember the doc making me squeeze his fingers and move my feet up and down and side to side. I had to lift my hands and arms as much as I could - because I was restrained. Then the doc explained to me what he was going to do and that he would need me to hold my breathe when he said too and all. I remember the vent tube coming out and will say it was weird but not painful. This coming from the person who was most terrified of the vent and then second the epi.
<br />
<br />With our lungs post transplant they are not fully open and inflated right away so it is important that you're diaphragm and such are going good for you to breathe before they remove the vent. I saw that your diaphragm is working properly because it is possible for your phrenic nerve to be cut or nicked during the surgery and that can cause problems breathing.
<br />
<br />You can ask your center but I am 99% sure that everyone has to be awake at least for a short while to make sure they are responsive and all.
<br />
<br />Lindsey