what is the median age WITHOUT transplant

anonymous

New member
The 36.8 age. That includes both folks who have had transplant and those who have not, right?
Does anyone know the age just for those who have <i>not</i> had transplant?
thanks
 

anonymous

New member
The 36.8 age. That includes both folks who have had transplant and those who have not, right?
Does anyone know the age just for those who have <i>not</i> had transplant?
thanks
 

anonymous

New member
The 36.8 age. That includes both folks who have had transplant and those who have not, right?
Does anyone know the age just for those who have <i>not</i> had transplant?
thanks
 

Allie

New member
Good question! There's plenty of people that don't want a transplant...now I'm really curious as to the answer.
 

Allie

New member
Good question! There's plenty of people that don't want a transplant...now I'm really curious as to the answer.
 

Allie

New member
Good question! There's plenty of people that don't want a transplant...now I'm really curious as to the answer.
 

Diane

New member
I always assumed the median age WAS for those without a transplant. Having a transplant has it's own survival rates , so i dont think they intended for the median age for cf to include those who have been transplanted. Not realy sure , but that would be my best guess.
 

Diane

New member
I always assumed the median age WAS for those without a transplant. Having a transplant has it's own survival rates , so i dont think they intended for the median age for cf to include those who have been transplanted. Not realy sure , but that would be my best guess.
 

Diane

New member
I always assumed the median age WAS for those without a transplant. Having a transplant has it's own survival rates , so i dont think they intended for the median age for cf to include those who have been transplanted. Not realy sure , but that would be my best guess.
 

anonymous

New member
I'm not so sure, Diane. What do they do with the folks who do have transplant. Keep them out of the statistics entirely? Count them as dying on the date of transplant?

The dx of CF doesn't go away with the transplant. I'd guess that everyone with CF is counted

They can still get the transplant data separately. That's gathered by the transplant centers.
 

anonymous

New member
I'm not so sure, Diane. What do they do with the folks who do have transplant. Keep them out of the statistics entirely? Count them as dying on the date of transplant?

The dx of CF doesn't go away with the transplant. I'd guess that everyone with CF is counted

They can still get the transplant data separately. That's gathered by the transplant centers.
 

anonymous

New member
I'm not so sure, Diane. What do they do with the folks who do have transplant. Keep them out of the statistics entirely? Count them as dying on the date of transplant?

The dx of CF doesn't go away with the transplant. I'd guess that everyone with CF is counted

They can still get the transplant data separately. That's gathered by the transplant centers.
 

Diane

New member
Its hard to say, but in general, the reason for most cf deaths is due to the lungs, so with new lungs it would be a different ball game wouldnt it ? As for counting a person post transplant as dieing on the date of transplant ....Ummmm no i would think they'd be counted as living a new life free from cf lungs. A whooooooole different story.
 

Diane

New member
Its hard to say, but in general, the reason for most cf deaths is due to the lungs, so with new lungs it would be a different ball game wouldnt it ? As for counting a person post transplant as dieing on the date of transplant ....Ummmm no i would think they'd be counted as living a new life free from cf lungs. A whooooooole different story.
 

Diane

New member
Its hard to say, but in general, the reason for most cf deaths is due to the lungs, so with new lungs it would be a different ball game wouldnt it ? As for counting a person post transplant as dieing on the date of transplant ....Ummmm no i would think they'd be counted as living a new life free from cf lungs. A whooooooole different story.
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i>

so with new lungs it would be a different ball game wouldnt it ? </end quote></div>
right that's why I want to know if they are counted in the 36.8 median age. A median age that includes folks with transplants would hardly be helpful info for people who don't see transplant in their future

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i>

As for counting a person post transplant as dieing on the date of transplant ....Ummmm no i would think they'd be counted as living a new life free from cf lungs. A whooooooole different story.</end quote></div>

right. So if both folks with and without translplant are counted in the 36.8 age, how do they dount the transplant people? Do they <i>not</i> include them when they are figuring the statistics at all? That would give us lousy data too.
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i>

so with new lungs it would be a different ball game wouldnt it ? </end quote></div>
right that's why I want to know if they are counted in the 36.8 median age. A median age that includes folks with transplants would hardly be helpful info for people who don't see transplant in their future

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i>

As for counting a person post transplant as dieing on the date of transplant ....Ummmm no i would think they'd be counted as living a new life free from cf lungs. A whooooooole different story.</end quote></div>

right. So if both folks with and without translplant are counted in the 36.8 age, how do they dount the transplant people? Do they <i>not</i> include them when they are figuring the statistics at all? That would give us lousy data too.
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i>

so with new lungs it would be a different ball game wouldnt it ? </end quote></div>
right that's why I want to know if they are counted in the 36.8 median age. A median age that includes folks with transplants would hardly be helpful info for people who don't see transplant in their future

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Diane</b></i>

As for counting a person post transplant as dieing on the date of transplant ....Ummmm no i would think they'd be counted as living a new life free from cf lungs. A whooooooole different story.</end quote></div>

right. So if both folks with and without translplant are counted in the 36.8 age, how do they dount the transplant people? Do they <i>not</i> include them when they are figuring the statistics at all? That would give us lousy data too.
 
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