What is your FEV1 Score?

C

cf4life

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tarheel</b></i>

Right now 40% which is the highest it's been in a few years. <div>
</div><div>If you don't mind I'm going to tack another question on to this- Do you use O2 at all? If so, when?</div><div>
</div><div>I'm not on oxygen at all atm- though most of the time when they check my stats in the hospital they're around 94. </div>

</end quote></div>



I had my o2 checked this past Friday at my doctor's appt. and it was 93.</end quote></div><br><br>Just curious if you test your 02 during exercise and even an overnight.   If you are 93 at rest, you could be dipping below 90 during exercise or while sleeping.  Just something to think about.<br>
 
C

cf4life

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tarheel</b></i>

Right now 40% which is the highest it's been in a few years.
If you don't mind I'm going to tack another question on to this- Do you use O2 at all? If so, when?
I'm not on oxygen at all atm- though most of the time when they check my stats in the hospital they're around 94.

</end quote>



I had my o2 checked this past Friday at my doctor's appt. and it was 93.</end quote><br><br>Just curious if you test your 02 during exercise and even an overnight. If you are 93 at rest, you could be dipping below 90 during exercise or while sleeping. Just something to think about.<br>
 
C

cf4life

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tarheel</b></i>

Right now 40% which is the highest it's been in a few years.
If you don't mind I'm going to tack another question on to this- Do you use O2 at all? If so, when?
I'm not on oxygen at all atm- though most of the time when they check my stats in the hospital they're around 94.

</end quote>

<p>

I had my o2 checked this past Friday at my doctor's appt. and it was 93.<p></end quote><br><br>Just curious if you test your 02 during exercise and even an overnight. If you are 93 at rest, you could be dipping below 90 during exercise or while sleeping. Just something to think about.<br>
 
I

InhalingHope

New member
I am 27 with FEV1s in the mid 50s and a FVC in the 90s. I don't know why I have such a huge discrepancy. My lowest FEV1 was in the 30s which occurred when I was using TOBI TIP. My lungs sure didn't like it. Not sure if I had the placebo or the real deal, but either way it scared me too much to ever touch the stuff again. I have never been on oxygen, but my O2 sats are usually between 97 and 99.

Emma
<A HREF="http://hopefulwithcf.blogspot.com/">http://hopefulwithcf.blogspot.com/</A>
 
I

InhalingHope

New member
I am 27 with FEV1s in the mid 50s and a FVC in the 90s. I don't know why I have such a huge discrepancy. My lowest FEV1 was in the 30s which occurred when I was using TOBI TIP. My lungs sure didn't like it. Not sure if I had the placebo or the real deal, but either way it scared me too much to ever touch the stuff again. I have never been on oxygen, but my O2 sats are usually between 97 and 99.

Emma
<A HREF="http://hopefulwithcf.blogspot.com/">http://hopefulwithcf.blogspot.com/</A>
 
I

InhalingHope

New member
I am 27 with FEV1s in the mid 50s and a FVC in the 90s. I don't know why I have such a huge discrepancy. My lowest FEV1 was in the 30s which occurred when I was using TOBI TIP. My lungs sure didn't like it. Not sure if I had the placebo or the real deal, but either way it scared me too much to ever touch the stuff again. I have never been on oxygen, but my O2 sats are usually between 97 and 99.
<br />
<br />Emma
<br /><A HREF="http://hopefulwithcf.blogspot.com/">http://hopefulwithcf.blogspot.com/</A>
<br />
 
T

tarheel

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MMBinNC</b></i>

FEV1: 43-50%

Bacteria: Achromobacter</end quote></div>

<div><br></div><div><br></div><div>First off, I extremely dislike your signature. EXTREMELY. </div><div><br></div><div><br></div><div>Secondly- is that just a class of bacteria or a specific strain? Just out of curiosity. And how do you treat it? Has it seemed to really make you "tank" your fev1 like some others do?</div><div><br></div><div>Sorry for all the questions. Especially after I assaulted your signature. But.... *pokes username*</div>
 
T

tarheel

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MMBinNC</b></i>

FEV1: 43-50%

Bacteria: Achromobacter</end quote>

<br><br>First off, I extremely dislike your signature. EXTREMELY.<br><br>Secondly- is that just a class of bacteria or a specific strain? Just out of curiosity. And how do you treat it? Has it seemed to really make you "tank" your fev1 like some others do?<br>Sorry for all the questions. Especially after I assaulted your signature. But.... *pokes username*
 
T

tarheel

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MMBinNC</b></i>

FEV1: 43-50%

Bacteria: Achromobacter</end quote>

<br><br>First off, I extremely dislike your signature. EXTREMELY.<br><br>Secondly- is that just a class of bacteria or a specific strain? Just out of curiosity. And how do you treat it? Has it seemed to really make you "tank" your fev1 like some others do?<br>Sorry for all the questions. Especially after I assaulted your signature. But.... *pokes username*
 
M

MMBinNC

New member
haha don't be a hater. But Achromobacter is like a genus (?, not a bio major) and there are different species like xylosoxidans...not idea the specific one I have. But there aren't a lot of treatments for it. For awhile I used oral Augmentin, as I got resistant to that IV Timentin, resistant to that Imipenem, now Merrem. Until last summer I had a great lung function, but no one knows what happened and ater a month in the hospital my "good" FEV1 had dropped permanently from 75% to 49%. Really it's not horrible, but my only issue wth it and CF in general is the fatigue. w/e It seems like I go on IVs like 5 times a year. The exacerbations aren't usually terrible its just like, Oh we're at 43%...time for IVs....since there are no oral ABs that treat it.
 
M

MMBinNC

New member
haha don't be a hater. But Achromobacter is like a genus (?, not a bio major) and there are different species like xylosoxidans...not idea the specific one I have. But there aren't a lot of treatments for it. For awhile I used oral Augmentin, as I got resistant to that IV Timentin, resistant to that Imipenem, now Merrem. Until last summer I had a great lung function, but no one knows what happened and ater a month in the hospital my "good" FEV1 had dropped permanently from 75% to 49%. Really it's not horrible, but my only issue wth it and CF in general is the fatigue. w/e It seems like I go on IVs like 5 times a year. The exacerbations aren't usually terrible its just like, Oh we're at 43%...time for IVs....since there are no oral ABs that treat it.
 
M

MMBinNC

New member
haha don't be a hater. But Achromobacter is like a genus (?, not a bio major) and there are different species like xylosoxidans...not idea the specific one I have. But there aren't a lot of treatments for it. For awhile I used oral Augmentin, as I got resistant to that IV Timentin, resistant to that Imipenem, now Merrem. Until last summer I had a great lung function, but no one knows what happened and ater a month in the hospital my "good" FEV1 had dropped permanently from 75% to 49%. Really it's not horrible, but my only issue wth it and CF in general is the fatigue. w/e It seems like I go on IVs like 5 times a year. The exacerbations aren't usually terrible its just like, Oh we're at 43%...time for IVs....since there are no oral ABs that treat it.
 
M

MissAshlee

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lecheval</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MissAshlee</b></i> Lecheval, If you don't mind my asking, what did you do to bring them up so much? Or were you just sick earlier this year? I've been working to improve mine and I'm trying to find the best ways to do it.</end quote></div>
<DIV></DIV>
<DIV>Combination of being sick and having uncontrolled asthma issues. I am still having issues with desatting fairly often and completely randomly, so I'm on/off o2 depending on my sats, but mostly off and feeling good!</DIV>
<P></end quote></div> </P>
<P> </P>
<P>Gotcha.  Good to hear you are mostly off and feeling well!  <img src="i/expressions/face-icon-small-smile.gif" border="0">  I have some asthma issues too but luckily I haven't been put on oxygen at home yet.  I would LOVE to see my FEV1 get back into the mid 60's. :::sigh:::  Just gonna keep working at it! </P>
 
M

MissAshlee

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lecheval</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MissAshlee</b></i> Lecheval, If you don't mind my asking, what did you do to bring them up so much? Or were you just sick earlier this year? I've been working to improve mine and I'm trying to find the best ways to do it.</end quote>
<DIV></DIV>
<DIV>Combination of being sick and having uncontrolled asthma issues. I am still having issues with desatting fairly often and completely randomly, so I'm on/off o2 depending on my sats, but mostly off and feeling good!</DIV>
<P></end quote> </P>
<P></P>
<P>Gotcha. Good to hear you are mostly off and feeling well! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have some asthma issues too but luckily I haven't been put on oxygen at home yet. I would LOVE to see my FEV1 get back into the mid 60's. :::sigh:::Just gonna keep working at it!</P>
 
M

MissAshlee

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lecheval</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MissAshlee</b></i> Lecheval, If you don't mind my asking, what did you do to bring them up so much? Or were you just sick earlier this year? I've been working to improve mine and I'm trying to find the best ways to do it.</end quote>
<DIV></DIV>
<DIV>Combination of being sick and having uncontrolled asthma issues. I am still having issues with desatting fairly often and completely randomly, so I'm on/off o2 depending on my sats, but mostly off and feeling good!</DIV>
<P></end quote> </P>
<P></P>
<P>Gotcha. Good to hear you are mostly off and feeling well! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have some asthma issues too but luckily I haven't been put on oxygen at home yet. I would LOVE to see my FEV1 get back into the mid 60's. :::sigh:::Just gonna keep working at it!</P>
 
L

lecheval

New member
April (tarheel) - Have to say that I TOTALLY agree on your sentiments about that horribly offensive signature you pointed out. Oh, the shame...
 
L

lecheval

New member
April (tarheel) - Have to say that I TOTALLY agree on your sentiments about that horribly offensive signature you pointed out. Oh, the shame...
 
L

lecheval

New member
April (tarheel) - Have to say that I TOTALLY agree on your sentiments about that horribly offensive signature you pointed out. Oh, the shame...
 
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