What is your FEV1 Score?

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MichaelL

New member
My FEV1 has been bouncing between 45% and 50% for the last few months. I'm 44, don't use oxygen, but try to do cardio almost daily along with hypertonic saline and flutter.
 
M

MichaelL

New member
My FEV1 has been bouncing between 45% and 50% for the last few months. I'm 44, don't use oxygen, but try to do cardio almost daily along with hypertonic saline and flutter.
 
K

katethekid

Guest
My most recent PFT was last year, my FEV1 was 79%. I don't use oxygen, my O2 is usually 96-100.
 
K

katethekid

Guest
My most recent PFT was last year, my FEV1 was 79%. I don't use oxygen, my O2 is usually 96-100.
 
S

scarecrow

New member
23% right now but I am determined to get it up one way or another. My O2 is about 95 when I'm resting. I don't use any O2 but Dr. has tried to get me to.
 
S

scarecrow

New member
23% right now but I am determined to get it up one way or another. My O2 is about 95 when I'm resting. I don't use any O2 but Dr. has tried to get me to.
 
K

kayers3

New member
Last visit I was about 36% following xopenex. Before xopenex I'm at about 32%. My previous baseline was lower 40s, but I crashed pretty hard last summer, so I'm still working on getting it back up. I'm on 2L of O2 full time. Resting that puts me at 97% and during exercise around 94% if I'm good about controlling my breathing. I've been currently testing my resting sats and I can maintain about 95% w/out O2 for a limited amount of time if I focus on breathing. Walking around w/out O2 I start dropping immediately into the 80s. Before I was on O2 full time, I was coughing a LOT more. Once my sats were up the coughing decreased dramatically. I still have my fits, but I no longer feel like I am coughing non-stop. Stinks having to carry it around w/ me everywhere though, but at least now when I have a fit in public people don't give me dirty looks like I'm spreading the black lung to everyone.
 
K

kayers3

New member
Last visit I was about 36% following xopenex. Before xopenex I'm at about 32%. My previous baseline was lower 40s, but I crashed pretty hard last summer, so I'm still working on getting it back up. I'm on 2L of O2 full time. Resting that puts me at 97% and during exercise around 94% if I'm good about controlling my breathing. I've been currently testing my resting sats and I can maintain about 95% w/out O2 for a limited amount of time if I focus on breathing. Walking around w/out O2 I start dropping immediately into the 80s. Before I was on O2 full time, I was coughing a LOT more. Once my sats were up the coughing decreased dramatically. I still have my fits, but I no longer feel like I am coughing non-stop. Stinks having to carry it around w/ me everywhere though, but at least now when I have a fit in public people don't give me dirty looks like I'm spreading the black lung to everyone.
 
M

msosnow

New member
My daughter who is 11yr. old just got out of hospital from 2 week tune up hers is back to 101% admission it was at 88%
 
M

msosnow

New member
My daughter who is 11yr. old just got out of hospital from 2 week tune up hers is back to 101% admission it was at 88%
 
A

athletixbc

New member
Currently 34%, highest it's been in almost 3 years and up from 25% at the start of my last admission in February 2012. I've been worked up for transplant but still too healthy to go on the wait list. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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athletixbc

New member
Currently 34%, highest it's been in almost 3 years and up from 25% at the start of my last admission in February 2012. I've been worked up for transplant but still too healthy to go on the wait list. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
C

CrisDopher

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>athletixbc</b></i> Currently 34%, highest it's been in almost 3 years and up from 25% at the start of my last admission in February 2012. I've been worked up for transplant but still too healthy to go on the wait list. <img src=""></end quote>

I'm exactly where you are; it's like I could've written your post myself. I have been feeling sick and coughing a lot more so I saw my doc yesterday and blew my best FEV1 is a couple of years (34%). This belies every other sign. So we'll stick to orals right now and if I'm not feeling better by Friday, we'll do IVs.
My biggest problem is that despite breathing OK (especially with albuterol fresh in my lungs), I am still huffing and puffing on tasks that shouldn't be strenuous. I should probably start monitoring my oxygenation levels.
I was evaluated more than a year ago, but don't yet need tx. And, truthfully, looking around at the other patients when at the meetings - it's very clear I won't need one in a while, though one hard exacerbation could tip the scales.
 
C

CrisDopher

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>athletixbc</b></i> Currently 34%, highest it's been in almost 3 years and up from 25% at the start of my last admission in February 2012. I've been worked up for transplant but still too healthy to go on the wait list. <img src=""></end quote>

I'm exactly where you are; it's like I could've written your post myself. I have been feeling sick and coughing a lot more so I saw my doc yesterday and blew my best FEV1 is a couple of years (34%). This belies every other sign. So we'll stick to orals right now and if I'm not feeling better by Friday, we'll do IVs.
My biggest problem is that despite breathing OK (especially with albuterol fresh in my lungs), I am still huffing and puffing on tasks that shouldn't be strenuous. I should probably start monitoring my oxygenation levels.
I was evaluated more than a year ago, but don't yet need tx. And, truthfully, looking around at the other patients when at the meetings - it's very clear I won't need one in a while, though one hard exacerbation could tip the scales.
 
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