What's it like?

V

victoriathewriter

Guest
Hi guys,
A lady named Jenn told me to post this elsewhere, and a mother named Angela suggested to post it here for your knowledgeable minds!
I'm a writer, and a former family member of mine had CF. I am writing a book involving a CF patient, and unfortunately family information alone on treatment hasn't been enough to suffice for proper research. I was wondering, if anyone was interested, if you could give me a "low-down" on extensive hospital/hospice life for a CF patient? A timeline of sorts would be great.
Although I do not suffer from CF myself, I'm keeping all of you in my prayers. <3 Stay strong.
-Victoria
 
V

victoriathewriter

Guest
Hi guys,
A lady named Jenn told me to post this elsewhere, and a mother named Angela suggested to post it here for your knowledgeable minds!
I'm a writer, and a former family member of mine had CF. I am writing a book involving a CF patient, and unfortunately family information alone on treatment hasn't been enough to suffice for proper research. I was wondering, if anyone was interested, if you could give me a "low-down" on extensive hospital/hospice life for a CF patient? A timeline of sorts would be great.
Although I do not suffer from CF myself, I'm keeping all of you in my prayers. <3 Stay strong.
-Victoria
 
V

victoriathewriter

Guest
Hi guys,
<br />A lady named Jenn told me to post this elsewhere, and a mother named Angela suggested to post it here for your knowledgeable minds!
<br />I'm a writer, and a former family member of mine had CF. I am writing a book involving a CF patient, and unfortunately family information alone on treatment hasn't been enough to suffice for proper research. I was wondering, if anyone was interested, if you could give me a "low-down" on extensive hospital/hospice life for a CF patient? A timeline of sorts would be great.
<br />Although I do not suffer from CF myself, I'm keeping all of you in my prayers. <3 Stay strong.
<br />-Victoria
 
S

SeeEff

Guest
Hey, Victoria <img src="i/expressions/face-icon-small-smile.gif" border="0">
I am a writer myself (and have CF). I appreciate the fact that you would like to be knowledgeable for your book - that's great.
Perhaps if you can be more specific on what info you need, people can respond more easily.
The "low-down" on extensive hospital stays and life for a CF patient is a very broad subject.
Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

SeeEff

Guest
Hey, Victoria <img src="i/expressions/face-icon-small-smile.gif" border="0">
I am a writer myself (and have CF). I appreciate the fact that you would like to be knowledgeable for your book - that's great.
Perhaps if you can be more specific on what info you need, people can respond more easily.
The "low-down" on extensive hospital stays and life for a CF patient is a very broad subject.
Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

SeeEff

Guest
Hey, Victoria <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />I am a writer myself (and have CF). I appreciate the fact that you would like to be knowledgeable for your book - that's great.
<br />Perhaps if you can be more specific on what info you need, people can respond more easily.
<br />The "low-down" on extensive hospital stays and life for a CF patient is a very broad subject.
<br />Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
C

chrissyd

New member
If you'd like to email me with questions (chrissydunbar@yahoo.com) or go ahead and post some here and I'll try to answer them. CF is a progressive disease that progresses differently for all of us who have it. Some of us are doing well, while others are younger and need frequent hosptial stays.

For example I am 33 with CF; although I was a sick child--I was diagnosed with chronic bronchitis and asthma. At 21 they figured it out and I have only had one "tune up" (at the age of 30).

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
If you'd like to email me with questions (chrissydunbar@yahoo.com) or go ahead and post some here and I'll try to answer them. CF is a progressive disease that progresses differently for all of us who have it. Some of us are doing well, while others are younger and need frequent hosptial stays.

For example I am 33 with CF; although I was a sick child--I was diagnosed with chronic bronchitis and asthma. At 21 they figured it out and I have only had one "tune up" (at the age of 30).

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
If you'd like to email me with questions (chrissydunbar@yahoo.com) or go ahead and post some here and I'll try to answer them. CF is a progressive disease that progresses differently for all of us who have it. Some of us are doing well, while others are younger and need frequent hosptial stays.
<br />
<br />For example I am 33 with CF; although I was a sick child--I was diagnosed with chronic bronchitis and asthma. At 21 they figured it out and I have only had one "tune up" (at the age of 30).
<br />
<br /><img src="i/expressions/rose.gif" border="0">
 
C

Chrissyb

New member
my name is christna im 34 i have only been in the hosptal once for a tuneup i feel really healthy i work out 3 times aweek and eat right im gald you are doing great too
 
C

Chrissyb

New member
my name is christna im 34 i have only been in the hosptal once for a tuneup i feel really healthy i work out 3 times aweek and eat right im gald you are doing great too
 
C

Chrissyb

New member
my name is christna im 34 i have only been in the hosptal once for a tuneup i feel really healthy i work out 3 times aweek and eat right im gald you are doing great too
 
You must log in or register to reply here.
Top