What's the weirdest thing...

C

chrissyd

New member
Okie dokie...I have been diagnosed with a couple things that I had never heard of before being told I had it!

Mitochondrial Mutations~I actually have 2 both rare. One rare but my mom has it as do others but they other NIH is studying me for. They've never seen it until me...<img src="i/expressions/face-icon-small-confused.gif" border="0">

Things I didn't know much about until diagnosed (other than CF)
I would have to say Legionellosis (Legionaires disease). I'm actually on short term disability at work right now b/c of it, well and I have mono...<img src="i/expressions/face-icon-small-wink.gif" border="0"> They say that is what caused my recent pneumonia...

Facter V Lieden's mutation (blood clotting problem but only when coupled with other blood clotting problems like my...)
Anti-Lupus Coagligent (sp) ...Same as above

The possibility that I have NASH AKA Nonalcoholic steatohepatitis (Test are positive that there's an issue...but b/c of the mono, legionellosis and pneumonia the want to wait to give me any more tests to figure it out for sure)

LOL...I think I'll start a poll as to what they'll tell me next!

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/cf

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.interscience.wiley.com/cgi-bin/abstract/97519285/ABSTRACT?CRETRY=1&SRETRY=0">Article about my unique mutations</a>
 
C

chrissyd

New member
Okie dokie...I have been diagnosed with a couple things that I had never heard of before being told I had it!

Mitochondrial Mutations~I actually have 2 both rare. One rare but my mom has it as do others but they other NIH is studying me for. They've never seen it until me...<img src="i/expressions/face-icon-small-confused.gif" border="0">

Things I didn't know much about until diagnosed (other than CF)
I would have to say Legionellosis (Legionaires disease). I'm actually on short term disability at work right now b/c of it, well and I have mono...<img src="i/expressions/face-icon-small-wink.gif" border="0"> They say that is what caused my recent pneumonia...

Facter V Lieden's mutation (blood clotting problem but only when coupled with other blood clotting problems like my...)
Anti-Lupus Coagligent (sp) ...Same as above

The possibility that I have NASH AKA Nonalcoholic steatohepatitis (Test are positive that there's an issue...but b/c of the mono, legionellosis and pneumonia the want to wait to give me any more tests to figure it out for sure)

LOL...I think I'll start a poll as to what they'll tell me next!

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/cf

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.interscience.wiley.com/cgi-bin/abstract/97519285/ABSTRACT?CRETRY=1&SRETRY=0">Article about my unique mutations</a>
 
C

chrissyd

New member
Okie dokie...I have been diagnosed with a couple things that I had never heard of before being told I had it!

Mitochondrial Mutations~I actually have 2 both rare. One rare but my mom has it as do others but they other NIH is studying me for. They've never seen it until me...<img src="i/expressions/face-icon-small-confused.gif" border="0">

Things I didn't know much about until diagnosed (other than CF)
I would have to say Legionellosis (Legionaires disease). I'm actually on short term disability at work right now b/c of it, well and I have mono...<img src="i/expressions/face-icon-small-wink.gif" border="0"> They say that is what caused my recent pneumonia...

Facter V Lieden's mutation (blood clotting problem but only when coupled with other blood clotting problems like my...)
Anti-Lupus Coagligent (sp) ...Same as above

The possibility that I have NASH AKA Nonalcoholic steatohepatitis (Test are positive that there's an issue...but b/c of the mono, legionellosis and pneumonia the want to wait to give me any more tests to figure it out for sure)

LOL...I think I'll start a poll as to what they'll tell me next!

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/cf

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.interscience.wiley.com/cgi-bin/abstract/97519285/ABSTRACT?CRETRY=1&SRETRY=0">Article about my unique mutations</a>
 
C

chrissyd

New member
Okie dokie...I have been diagnosed with a couple things that I had never heard of before being told I had it!

Mitochondrial Mutations~I actually have 2 both rare. One rare but my mom has it as do others but they other NIH is studying me for. They've never seen it until me...<img src="i/expressions/face-icon-small-confused.gif" border="0">

Things I didn't know much about until diagnosed (other than CF)
I would have to say Legionellosis (Legionaires disease). I'm actually on short term disability at work right now b/c of it, well and I have mono...<img src="i/expressions/face-icon-small-wink.gif" border="0"> They say that is what caused my recent pneumonia...

Facter V Lieden's mutation (blood clotting problem but only when coupled with other blood clotting problems like my...)
Anti-Lupus Coagligent (sp) ...Same as above

The possibility that I have NASH AKA Nonalcoholic steatohepatitis (Test are positive that there's an issue...but b/c of the mono, legionellosis and pneumonia the want to wait to give me any more tests to figure it out for sure)

LOL...I think I'll start a poll as to what they'll tell me next!

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/cf

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.interscience.wiley.com/cgi-bin/abstract/97519285/ABSTRACT?CRETRY=1&SRETRY=0">Article about my unique mutations</a>
 
C

chrissyd

New member
Okie dokie...I have been diagnosed with a couple things that I had never heard of before being told I had it!

Mitochondrial Mutations~I actually have 2 both rare. One rare but my mom has it as do others but they other NIH is studying me for. They've never seen it until me...<img src="i/expressions/face-icon-small-confused.gif" border="0">

Things I didn't know much about until diagnosed (other than CF)
I would have to say Legionellosis (Legionaires disease). I'm actually on short term disability at work right now b/c of it, well and I have mono...<img src="i/expressions/face-icon-small-wink.gif" border="0"> They say that is what caused my recent pneumonia...

Facter V Lieden's mutation (blood clotting problem but only when coupled with other blood clotting problems like my...)
Anti-Lupus Coagligent (sp) ...Same as above

The possibility that I have NASH AKA Nonalcoholic steatohepatitis (Test are positive that there's an issue...but b/c of the mono, legionellosis and pneumonia the want to wait to give me any more tests to figure it out for sure)

LOL...I think I'll start a poll as to what they'll tell me next!

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/cf

<a target=_blank class=ftalternatingbarlinklarge href="http://www3.interscience.wiley.com/cgi-bin/abstract/97519285/ABSTRACT?CRETRY=1&SRETRY=0">Article about my unique mutations</a>
 
M

Momtana

New member
paradoxic vocal fold motion
the thing that happens when I choke, gasp, cough, can't breathe ......
I went to speech therapy but have trouble "relaxing" to do the exercises when it happens
 
M

Momtana

New member
paradoxic vocal fold motion
the thing that happens when I choke, gasp, cough, can't breathe ......
I went to speech therapy but have trouble "relaxing" to do the exercises when it happens
 
M

Momtana

New member
paradoxic vocal fold motion
the thing that happens when I choke, gasp, cough, can't breathe ......
I went to speech therapy but have trouble "relaxing" to do the exercises when it happens
 
M

Momtana

New member
paradoxic vocal fold motion
the thing that happens when I choke, gasp, cough, can't breathe ......
I went to speech therapy but have trouble "relaxing" to do the exercises when it happens
 
M

Momtana

New member
paradoxic vocal fold motion
the thing that happens when I choke, gasp, cough, can't breathe ......
I went to speech therapy but have trouble "relaxing" to do the exercises when it happens
 
C

CFHockeyMom

New member
Not sure if this is a CFer only topic but I thought I'd throw in my 2 cents anyway...

Firstly, my mom had the <b>ganglion</b> deal on/near her ankle so I'd heard of it.

When I was about 9ish I was diagnosed with <b>Solar Urtica</b>. By the next year it had seemed to go as soon as it came.

My brother on the other hand was diagnosed with <b>Cold Urtica </b>(an allergy to the cold).

Now here's my favorite... I'm <b>allergic to chicken</b>. Hives (mostly internal) and asphyxia are my symptoms. Makes it very difficult to eat out.

My least favorite diagnosis is the most recent and that is <b>Vestibular Neuronitis</b>. Basically the room has been spinning since last Sunday and making me vomit. Until today I couldn't walk and asking me to pass a sobriety test was laughable (according to my husband).
 
C

CFHockeyMom

New member
Not sure if this is a CFer only topic but I thought I'd throw in my 2 cents anyway...

Firstly, my mom had the <b>ganglion</b> deal on/near her ankle so I'd heard of it.

When I was about 9ish I was diagnosed with <b>Solar Urtica</b>. By the next year it had seemed to go as soon as it came.

My brother on the other hand was diagnosed with <b>Cold Urtica </b>(an allergy to the cold).

Now here's my favorite... I'm <b>allergic to chicken</b>. Hives (mostly internal) and asphyxia are my symptoms. Makes it very difficult to eat out.

My least favorite diagnosis is the most recent and that is <b>Vestibular Neuronitis</b>. Basically the room has been spinning since last Sunday and making me vomit. Until today I couldn't walk and asking me to pass a sobriety test was laughable (according to my husband).
 
C

CFHockeyMom

New member
Not sure if this is a CFer only topic but I thought I'd throw in my 2 cents anyway...

Firstly, my mom had the <b>ganglion</b> deal on/near her ankle so I'd heard of it.

When I was about 9ish I was diagnosed with <b>Solar Urtica</b>. By the next year it had seemed to go as soon as it came.

My brother on the other hand was diagnosed with <b>Cold Urtica </b>(an allergy to the cold).

Now here's my favorite... I'm <b>allergic to chicken</b>. Hives (mostly internal) and asphyxia are my symptoms. Makes it very difficult to eat out.

My least favorite diagnosis is the most recent and that is <b>Vestibular Neuronitis</b>. Basically the room has been spinning since last Sunday and making me vomit. Until today I couldn't walk and asking me to pass a sobriety test was laughable (according to my husband).
 
C

CFHockeyMom

New member
Not sure if this is a CFer only topic but I thought I'd throw in my 2 cents anyway...

Firstly, my mom had the <b>ganglion</b> deal on/near her ankle so I'd heard of it.

When I was about 9ish I was diagnosed with <b>Solar Urtica</b>. By the next year it had seemed to go as soon as it came.

My brother on the other hand was diagnosed with <b>Cold Urtica </b>(an allergy to the cold).

Now here's my favorite... I'm <b>allergic to chicken</b>. Hives (mostly internal) and asphyxia are my symptoms. Makes it very difficult to eat out.

My least favorite diagnosis is the most recent and that is <b>Vestibular Neuronitis</b>. Basically the room has been spinning since last Sunday and making me vomit. Until today I couldn't walk and asking me to pass a sobriety test was laughable (according to my husband).
 
C

CFHockeyMom

New member
Not sure if this is a CFer only topic but I thought I'd throw in my 2 cents anyway...

Firstly, my mom had the <b>ganglion</b> deal on/near her ankle so I'd heard of it.

When I was about 9ish I was diagnosed with <b>Solar Urtica</b>. By the next year it had seemed to go as soon as it came.

My brother on the other hand was diagnosed with <b>Cold Urtica </b>(an allergy to the cold).

Now here's my favorite... I'm <b>allergic to chicken</b>. Hives (mostly internal) and asphyxia are my symptoms. Makes it very difficult to eat out.

My least favorite diagnosis is the most recent and that is <b>Vestibular Neuronitis</b>. Basically the room has been spinning since last Sunday and making me vomit. Until today I couldn't walk and asking me to pass a sobriety test was laughable (according to my husband).
 
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