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When and how do I tell her?
- Thread starter beaudz34
- Start date
lightNlife,
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
lightNlife,
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
lightNlife,
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
lightNlife,
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
lightNlife,
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
I am not sure why you are trying to twist my words around.
Of course FEV numbers matter! I was talking about the life expectancy numbers. I don't want Courtney sitting around all the time thinking "I might only live to be 36". What good would that do her?!?!?!
Courtney also knows how important taking her meds are (although she is a teen right now and rebelling against her meds at the moment) and not to smoke! As I stated she knows alot information on CF. We are new to CF lung issues, but we are doing research and finding out all we can.
I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!!
Seana
CFHockeyMom
New member
<div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!! </end quote></div>
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
CFHockeyMom
New member
<div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!! </end quote></div>
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
CFHockeyMom
New member
<div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!! </end quote></div>
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
CFHockeyMom
New member
<div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!! </end quote>
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
CFHockeyMom
New member
<div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE!! </end quote>
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
Well, I think you do have to be reasonable. I did tell Sean he couldn't be a firefighter or join the military. I certainly didn't tell him that to hurt him but that's part of the reality of CF. I don't think it's terrible it's just the way it is.
Emily65Roses
New member
Ry's parents did the same. They said he was going to school and they would pay for it, but that he had to be reasonable. He really enjoyed theater arts, but he minored in that because he knew he couldn't keep up with it forever and the money probably wouldn't be good enough. He ended up majoring in computers because it was something he could do, CF or not. He ended up working the last few months from home.
Emily65Roses
New member
Ry's parents did the same. They said he was going to school and they would pay for it, but that he had to be reasonable. He really enjoyed theater arts, but he minored in that because he knew he couldn't keep up with it forever and the money probably wouldn't be good enough. He ended up majoring in computers because it was something he could do, CF or not. He ended up working the last few months from home.
Emily65Roses
New member
Ry's parents did the same. They said he was going to school and they would pay for it, but that he had to be reasonable. He really enjoyed theater arts, but he minored in that because he knew he couldn't keep up with it forever and the money probably wouldn't be good enough. He ended up majoring in computers because it was something he could do, CF or not. He ended up working the last few months from home.
Emily65Roses
New member
Ry's parents did the same. They said he was going to school and they would pay for it, but that he had to be reasonable. He really enjoyed theater arts, but he minored in that because he knew he couldn't keep up with it forever and the money probably wouldn't be good enough. He ended up majoring in computers because it was something he could do, CF or not. He ended up working the last few months from home.
Emily65Roses
New member
Ry's parents did the same. They said he was going to school and they would pay for it, but that he had to be reasonable. He really enjoyed theater arts, but he minored in that because he knew he couldn't keep up with it forever and the money probably wouldn't be good enough. He ended up majoring in computers because it was something he could do, CF or not. He ended up working the last few months from home.