I was diagnosed as a baby and I do not remember ever NOT knowing that people with CF usually die really young. But I was never really sick and my parents kind-of swept it all under the rug. My mom took me to clinic every six months and I had to take my pills, but I never got any chest PT and we never talked about CF. My mom told me that, when they got the diagnosis, she said, "No, not MY baby." The mildness of my symptoms made the denial part really easy, and it put ME in denial - I used to say "Well, I'm not like the typical CFer." (And, honestly, I still sometimes say that). It didn't really hit me until I was in college and was looking up CF info for my roommate. I was like "holy cow, I might actually die from this thing." And it scared me. And then motivated me to take care of myself.
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when your child finds out the median age
- Thread starter JENNYC
- Start date
I was diagnosed as a baby and I do not remember ever NOT knowing that people with CF usually die really young. But I was never really sick and my parents kind-of swept it all under the rug. My mom took me to clinic every six months and I had to take my pills, but I never got any chest PT and we never talked about CF. My mom told me that, when they got the diagnosis, she said, "No, not MY baby." The mildness of my symptoms made the denial part really easy, and it put ME in denial - I used to say "Well, I'm not like the typical CFer." (And, honestly, I still sometimes say that). It didn't really hit me until I was in college and was looking up CF info for my roommate. I was like "holy cow, I might actually die from this thing." And it scared me. And then motivated me to take care of myself.
I was diagnosed as a baby and I do not remember ever NOT knowing that people with CF usually die really young. But I was never really sick and my parents kind-of swept it all under the rug. My mom took me to clinic every six months and I had to take my pills, but I never got any chest PT and we never talked about CF. My mom told me that, when they got the diagnosis, she said, "No, not MY baby." The mildness of my symptoms made the denial part really easy, and it put ME in denial - I used to say "Well, I'm not like the typical CFer." (And, honestly, I still sometimes say that). It didn't really hit me until I was in college and was looking up CF info for my roommate. I was like "holy cow, I might actually die from this thing." And it scared me. And then motivated me to take care of myself.