Who are you in a nut shell

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donny71

Guest
who are you in a nut shell

Hey I dunno if I did this already but if I did it was a long time ago so here is an update.

My Name is Donovan
I'm a guy
I'm 20 yrs old
I live in Saskatchewan
I was DX at 2 months old
I'm 5'9 3/4 and 135lbs
I had a double lung transplant this Sept
My pfts are the highest they have been since gr 6
I love photography and I've been told I'm good at it.
I love guitar
I love my dog scout!
I'm single
 
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marmarmar

New member
who are you in a nut shell

Hello!
My name is lizmar tissot. i am 21 and w/o CF. i am super tall (about 5'10) and pretty bony.
i am in love with a beautiful irishman named matt who is 23 and w/CF.
I am a pre-med switched social sciences major, who wants to move to bambara and study the epidemiology of HIV/AIDS.
i live in san francisco and am so in love with my boyfriend that i am overcome by some sort of madness.
my boyfriend and i want to star in a travel channel show about music in different cultures around the world - no ethnocentrism allowed!
i sing the blues and paint creepy things.
i think about sad ***** constantly because i have so much to lose.
i used to model in actual magazines like shape and vogue, but quit because, as i defiantly told me mother, "i choose food!".
i am terrified of death and loss and my various therapists haven't helped much.
i won't sleep a full night until we cure CF. next, we cure AIDS.
i have two dogs and a cat from various pounds and i am very against breed specific legislation.
i think everyone deserves the right to be happy and marry whoever they want - homosexuals, bisexuals, transsexuals and everything and anything in between.
i am so in love that i cannot do much nowadays except for be happy.
we need to cure CF now.
 
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joenida

New member
who are you in a nut shell

my name is joe
i'm a 21 yr old male
i live in west by god virginia
i was dx at 14 (lucky me)
i was adopted and the initial shock of being dxd caused me to push myself in wrestling
i'm a coach
i work at a hotel in charleston
 
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lilywing

New member
who are you in a nut shell

hi hi
i am a girl, 30 years old
I was diagnosed at 2 1/2 because my mom persisted
i live in calgary, Canada (and yes, i'm freezing!)
i'm 5'3", 115 pounds
i broke my right arm when I was 5, and I had my spleen removed at 22
i love sushi, seinfeld, crossword puzzles, vodka paralyzers, and hoodies
i hate peas, science fiction, winter time, and socks
i love dogs, especially my fur-baby, Howie
i can't stand touching flour (ya know, for baking stuff), and I'm scared of monkeys

If I could, I would:
1) have straight hair
2) get rid of all the "initial" business: CF, ITP, ABPA
3) host a (late) morning show with my dog
4) open a no-kill dog shelter
5) look good in a wrap dress

i just got a chest port, and i don't think it's very cute
i am depressed, and my doctors call me "a very complicated case"
right now, I am trying to perfect a New Zealand accent...it's a challenge
 
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Tesla

Guest
who are you in a nut shell

Hi, I'm Teresa, 42 with CF and live in Brighton in the UK. I was diagnosed at birth thanks to an older sister with CF (now deceased). Despite having 2 copies of deltaF508 I'm very healthy and prior to a recent bout of TB had a lung function of over 100% even though I've had PA for 16 years. I'm in a relationship, a science geek, and a dirty dancer. Thanks to a partial thyroidectomy I am also way 14st, which may well be contributing to my robust health. I'm 5'6". The only downside is I have arthritis as a side effect. Which limits me far more than my lungs. I don't work, but do voluntary work. I'm a major fan of swimming and tai chi.
 
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agoetz65

New member
who are you in a nut shell

My name is Ashley
I am a girl
I am 19yrs old.
My brother is 18 and also has Cf
I have four brothers
I am a sophomore in college...not sure what I would like to do
I have a thing for reading
I love sushi
I am single and ready to mingle
I'm loving that I found this website
I trained in muay thai last summer
I try to work out everyday
5'5 130lbs
My family is obsessed w/ the Anaheim Ducks
My fingers are sore from knitting beanies/scarves all weekend making gift for xmas.
I cant really think on the spot for these things...ask me and i'll answer!
 
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marla

New member
who are you in a nut shell

My name is Lisa.
My son, Brad, has cystic fibrosis.
He was diagnosed at five months.
He is 15.
He's on IV for m. abscessus for 12-18 months.
This is his first time having major problems, before this he did IVs about once a year.
We live in Hawaii.
My husband is a soldier, currently serving in Iraq.
I am a fifth/sixth grade teacher.
 
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jill

New member
who are you in a nut shell

I am Jillian, 32 years old, I'm Irish.
I was diagnosed at birth because my parents had already lost a son to cf.
I have double Delta F508 but I am quite healthy!!!
I have lost 2 brothers, 1 with cf, 1 who was mentally handicapped.
I have a port, which I have just over ayear now!!

So hey everyone!!!
 
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mlshllmn

New member
who are you in a nut shell

Hi I'm Melisa and live in NC
I am 27 years old with CF, Genotype F508/2789 + 5GA
Diagnosed at age 12 because of reoccurring Hemoptysis
I am legally blind (genetic disorder called Stargardt's Disease) also diagnosed at age 12
I have 1 brother 24 no CF but he has Stargardt's Disease
FEV1 is 78. Have had 1 sinus surgery
5ft 7 in. 124 lbs
I love animals and have 1 dog and 2 overweight cats
I love potatoes my favorite thing to eat
I love to be outdoors and gardening
I like sewing and quilting (even though I have poor vision)
I have a Bachelor's degree in Recreational therapy but I do not work
very excited to find this website since I have never met anyone with CF
My New Year's resolution is to start exercising woohoo!!!
Anything else you want to know just ask
 
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rnjessica

New member
who are you

My name is Jessica, you can call me Jess
I'm a girl
I'm 28
I live in MD
I was dx @ 5 months
My weight is stable @ 122 lbs.
My PFT's are in 60's and improving
I'm a Registered Nurse in ambulatory surgery
I LOVE to cook!
I have 2 awesome dogs
I'm married for almost 5 years now.
I love to laugh and do it all the time
I'm getting back on track with working out regularly, and it feels great.
I've got the best family and friends I could ask for
I'm a shop-a-holic
I enjoy being social
I believe in the power of positive thinking!

Nice to meet you all
 
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JulieMelissa

New member
who are you

hmmmm Let's see
Name: Julie
Age: 27 (be 28 in april)
From: Ontario, Canada
Dx: 8 weeks, for not gaining weight (failure to thrive always makes me feel like the runt of the litter so I don't say it LOL)
Dx CFRD: almost 4 years ago
Collapsed lung: 7 years ago
Began Culturing Psdeumonas: 9 years ago
Fev1: as of Jan6 43%
I just left my job last summer not used to not working yet
LOVE LOVE LOVE animals, have 2 dogs and 3 cats
Love LOVE LOVE my boyrfiend of 4 years
enjoy photography
favourite animal is a monkey
have very rediculous sense of humour and quirks but that's why my friends love me
also I'm very very social
was referred to by customers at work as smiley : )
Have one brother (no cf) one Nephew (no CF)
 
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Zara

New member
who are you in a nut shell

- Hi, my names Zara
- im 19 yeares old, from the U.K, London
- I was diagnosed at the age of 3 because i has constant chest infection and was under weight.
- Im getting tested for my CF mutations right now, but have been told they arent any of the normal ones (like DF508)
- I love...food!
- Disney channel (lol- even though im too old for it)
- And books (Harry potter to be precise- i can read them over and over again)
 
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wolfca

New member
who are you in a nut shell

Heya, my name is Taija
I'm 16 and don't have CF
I live in Tampere, Finland
I'm in love with Jesse, 17, who has CF
I listen to a lot of music and play guitar
I'm a huge fan of surreal films, like those by David Lynch and Charlie Kaufman
I'm a video game nerd
I love traveling

And that's about it. I joined the forums to learn more about CF, you can never know too much.
 
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mattemo

New member
who are you in a nut shell

-my name is matt.
-30, diagnosed sometime young? (can't remember)
-5'10", 130 lbs.
-Finishing grad. school in Lexington, KY.
-Have an awesome dog!
-I climb a lot, love sushi, live music, science fiction, sarcasm/cynicism, and riding my bike around town. Have traveled quite a bit too.
-I've pretty much ignored CF my entire life, and am now wondering if that was the best thing to do. I am not very informed about CF. I got real sick in 2000, and PFT's went from 90-100 down to 30-40, where they've been stable.
-I hate CF.
-I think i am probably depressed.
 
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Bethsmuse

New member
who are you in a nut shell

Hi
My name is Beth
I am 32 and live in Mesa, AZ
I have 3 sisters
I was diagnosed around 1 mos, my mom was an RN, knew something was wrong.
I'm 5'9 and weigh around 155lbs. I tend to joke I'm one of the few cystics who thinks she weighs too much
My oldest sister and her family recently moved to England, I've been lucky enough to visit them once.
I became an aunt the 2nd time around right before Christmas
I work full time as a social worker/case worker for the sick and eldery in the long term care program
My Fev1 is around mid 20's, FVC ranges from mid 40's to 50's.
I enjoy sewing, old movies, musical theatre
 
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lauren04rdh

New member
who are you in a nut shell

I'm Lauren, 26 years old.
Born & raised in Florida.
DX at 24 after 2nd sinus surgery and constant productive coughing.
My lung function is between 80-90%.
I'm 5'3, 125- but my weight always fluctuates.
I'm a beach bum, and travel to as many as I can.
I work as a Dental Hygienist.
I love to run (when I feel well enough).
Doing Bikram Yoga brought up my lung function.
I think growing up on the beach has helped my CF.
Chocolate is my fav addiction.
I've been with my boyfriend for the better of 10 yrs.
We have 2 Jack Russells, a cat, and a bunny.
I have 3 half-brothers with NO CF.
It's my dream to live the simple life on a tropical island, sunny and warm.

It is comforting to read all of your posts. I'm just now starting to embrace my illness and make positive changes.
 
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Dancinkitty

New member
who are you in a nut shell

My name is Heather
I'm a female
I'm 5' and 101 lbs
I am 27 yrs. old
Live in Norfolk, Virginia
I was diagnosed at 4 months old-failure to thrive
My FEV1's are 24-28%
Currently on Double lung transplant list
Had sinus surgeries, gallbladder removed, VATS on left and right lungs, Lobectomy on upper right wedge.
Married to my best friend and rock Jimmy for 5 yrs.
I love Gummi Bears
I love all animals and have a dog Rusty and cat Loki
I love to read, do puzzles, and can't help myself, I play World of Warcraft, lol

__________________________

Heather, 27 married female w/CF
The first step to feeling better is a smile
 
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dewgirl

New member
who are you in a nut shell

I've posted a couple times but not on this thread so here is my official intro...

My Name is Kari
I'm female
I'm 37
I was DX at birth
I have CFRD, on my 2nd port, had surgeries for blockage, sinuses, and removed gall bladder
I am 5'6 and about 120 lbs.
FEV1 is at best 35% but usually stays around 30%
I exercise at least four times a week and use oxygen at night
I am about to start transplant evaluation

I live in Georgia but moving to FL as soon as our house sells (god doesn't this housing market suck!)
Married to the best husband ever, just celebrated our 15th wedding anniversary in December
Our Rhodisian Ridgeback is our only child
I am a kept woman who eats bon bons all day while killing my brain cells watching daytime TV (I miss working!)
Can't cook though I'm half Italian..thought that was a genetic talent coded into Italians DNA?
No biological siblings tho have a sister who lives in Australia with her Aussie hubby (Fantastic place to visit!!)
I like animals better than I like people, love movies, am addicted to Project Runway and Top Chef

Nice to officially meet y'all!
 
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