Who are you in a nut shell

[Tammy15]

who are you

Claire, I am Tammy a mom to a 27 yr old CF and a 23 yr old CF . My 25 yrd old CF free. The fact that you have a pug caught my interest. I have a 4 yr old black pug nd my daughter with CF and her 3 yr old live with me. My pug has decided that we are her people she is far fom a dog and has her own recliner. She gets in as much trouble as my grandchild. While she does not shed a lot it has been a lot more this year which I think has been causing some problems for my daughter. I have heard rumor of putting a little bit of olive oil into dog's food which helps with coat and shedding. Have you ever done or heard of? Does having the dog aggravate your condition at all and if so have you found any thing that provides relief.

 

[MikeG83]

who are you in a nut shell

My name is Mike
I'm a Man
I'm 25
I live in Ma.
Just married Vanessa on March 21 2009
I love baseball
I'm an aspiring writer and poet
I like watching movies atleast one a day
I have a odd collection of rubber ducks since I was younger
Mind over matter is real
I used to smoke ciggerettes dumbest choice of my life
I dont wish to change anything about myself ever
I have a very large ego but its a good ego
I was dx (diagnosed) at 7months nearly died, so I'm told.
I weigh about 125 and I'm 5'5"
My PFTS are in the 50s
I have severe complication with not going to the bathroom
I have DIOS
I had collapsed lung 2x had bowel resession once an obstution a year ago that nearly killed me, weighed 95 lbs my pfts dropped daily down to 30% when I saw that I said f it and I made my self work hard to get back to where Iam in the 50s but I luckilly only have minor scarring in one spot and i plan on getting back into baseball, so we will see what happens. Thats me in a coconut shell. MikeG

 

[danbray]

who are you in a nut shell

my name is danny
i have cf an 29 years old
i live in alabama
i am on the transplant list for lungs
i am married 2 years now
i have a 4 year old step son that i love to death
i go to the cf clinic at uab
i love the outdoors
i love mud riddin
i love 4 wheeler riddin
i was dx with cf at age 2
i love old cars
i love hunting

 

[petitesouris]

who are you in a nut shell

My name is Valerie.
I'm 28 yo/110 lbs/5'5"
I have CF, CFRD, liver cirrhosis.
I was dx at 1 yo w/ pneumonia and failure to thrive.
I live in San Diego.
I've been married for a year and a half.
My FEV1 was 30% for a while, but shot back up to my baseline of 60% after IVs.
I'm a writer.
I'm going to SDSU in the fall for my second Master's degree, this one in Women's Studies.
My goal is to become a documentary filmmaker.
I like tattoos, live music, and I used to love drinking margaritas before I developed liver problems.
I believe health care is a human right.
I love books and used bookstores.
I would love to collect rare books/first editions.
I want to have kids someday, but worry I'm getting too old.
This is not an exhaustive list.

 

[JORDYSMOM]

who are you in a nut shell

I can't believe all of the new people! Welcome to the site. It's exciting to add all of your experiences to the mix here. I look forward to hearing more about each of you.

Stacey

 

[kayleesgrandma]

who are you in a nut shell

You're right Stacey, we DO have a lot of new ones! Welcome everyone.<img src="i/expressions/heart.gif" border="0">

 

[katie88]

who are you in a nut shell

Hey Guys, I think this thread is a fantastic idea! Here goes...
My name is Kate
I'm 20 years old
I live in Sydney
I'm in 3rd year of health science at uni
I have 5 older sisters and 1 brother, all of whom are cf free
I have 4 nieces and 2 nephews
I love singing, dancing and composing music on piano
I am a keen netballer
I live in a share house with 3 other students
I love watching All Saints
My favourite food is steak
I am admitted to hospital at least every 6 weeks
My favourite bed is room 4 bed 2
I want to travel to Ireland, France, Italy, India, Thailand, Switzerland and Iceland.

Ok I think that's the basic gist of Kate. xx

 

[JazzysMom]

who are you in a nut shell

Welcome to ALL our new members! If you have time & the schedule coordinates.....there are nightly chats at 8PM Eastern time!

Would love to see you there!!!

 

[Jana]

who are you in a nut shell

I'm Jana

36 year old single female

Live in Northern VA

First diagnosed (in a rather unofficial way) in Indonesia at 7 months after pneumonia from which I couldn't seem to recover; diagnosed again at 5 in the US

Teacher in a Christian school, teaching 7th grade English and math as well as elementary music

Also a piano teacher, pianist for my church, and play the flute (on better days)

Had a very healthy childhood, taking quite a lot of oral antibiotic but never IV's until the last 4 years or so

In spite of a constant fight against PA and MRSA, and IV meds for the PA usually at least every few months, I've had no serious lung complications, and my PFTs remain good

Had trouble getting PICCs, but was able to keep most of them for quite a while once they were in

Got a port last year, and like it much better!

Will not share my weight, but happy to read about other CF folks who struggle to get rid of extra weight! I thought I was the only one in the world!

Love teaching and being involved in the lives of my students.

Thanks to everyone on here for being so friendly and such a help to my questions. I'm so glad I found this site!

 

[dramaqueen28]

who are you

I am a female.
I have CF and was diagnosed at a year.
My PFTs are in the 60s.
I am a double Delta F508.
I live in Alabama and am married.
I write poetry (which I would love to publish, but don't know how).
I love reading, listening to music, writing, cleaning, excerising, spending time with my husband, watching TV and movies, celebrity gossip.
I hate hospitals and tune ups.
I am not employed.
Looking for friends with CF for support because only some with CF can understand the inconvience of CF.

 

[RitaSonnenberg]

who are you

My name is Rita, I am a female.
DUH!! Age 45, Diagnosed at birth with Micomeum Illeus
I am double Delta f508
I live in Bluffton, Indiana with my husband
We have 3 indoor cats and a gazillion outdoor cats
I love reading, listening to music and watching TV, riding ATVs. I use to snowmobile in the Upper Penninsula
I don't have the energy to exercise even tho my doctor tells me i need to do it...
My PFTs suck, most of the time in the 50s-60s.
I weigh 135, am 5'6" ; have been steadily losing weight over the past 4 months and coughing a lot more.<img src="i/expressions/coughing.gif" border="0">
I am on my second port-a-cath.
Have had numerous sinus surgeries.
Am on IVs every 5 months or so, either doing them all at home and only every once in a while being in the hospital
Graduated from International Business College, Fort Wayne
Have worked for the same employer for the past 26 years.
Use to be a rebellious teen. Am trying to be more compliant now that I (hope) have gotten wiser.
That's about it.... Rita

 

[RebekahsMom]

who are you

Hi, I'm a 44 y.o. mother of Rebekah, 5, w/cf. She was dx at 21 1/2 months old after 11 months of constant coughing, throwing up, and runny nose. Her sweat test results were 94 on both arms for the 1st test. Second test was 94 and 92. I had heard of CF, but had no ides what it was. It was a whirl wind learning experience for the next 2 months. I also dropped from 108 lbs to 98 lbs during that time.

I also have 2 sons, 24 & 16 w/o cf. I've been married to my husband, Leo for almost 3 years and he is great with my kids. He has 2 little kids that come over every other weekend, a son, 6, and a daughter, 5. It's like having triplets when they're all here!

We live in Missouri and are hating this muggy weather right now! It really isn't affecting Bek right now, and hopefully it won't.

 

[nessaanne]

who are you

My name is Nessa
I am a female
I am 25
I live in Chicago
I have been married to Matt for two years
I am a high school English teacher
I was diagnosed with CF at 18 months old
My brother Kyle (24-years-old) also has CF
I have wonderful parents
I had my gallbladder removed five years ago
I am pretty healthy

My CF has never made me feel different until recently
My husband and I want to start a family
We are scared (hence me joining this forum)
I hope to find comfort here
Everyone sounds wonderful!

 

[gunelle]

I'm Gunhild Ellefsen.
I'm a woman.
I am 32 years old.
I live in Madrid, but come from a country called The Faroe Islands.
I was diagnosed with mild case of CF, at 32 here in Madrid. Before that I had been sick of pnemonia and hospitalized also.
My mutations are F508del/R117C.
I have problems with my lungs and sinuses but my stomach/pancris is fine, so far...
I have been sick all my life, with colds, flu, pnemonia as an infant, have had sinus infection that needed operation, have had flems all my lie, but still only diagnosed resently.
I am 1 meter 69 (sorry don't know in feet) and my weight is normal, I was overweight before.
I have a degree in Intenational Business Language, English and Communication, from Copenhagen's Business School.
I love to read (books and magazines) and to write.
I love languages, I speak Faroese, Danish, English, bit of Swedish and Norweigan, used to speak German and finally Spanish.
I love my boyfriend Luis who is a great support and help to me with my illness. He prepares me my medicines, and reminds me to do my physio. I don't think I could do this without him.
I love animals, dogs and Pandas. We have a Golden Retriver Boss, who is the best.
I love shopping, sometimes think I'm a shopaholic. Love to buy handbags.
I love chocolate, eventhough I can't eat much of it, because I gain weight easily.
I am happy to have a diagnois at last eventhough it is taking time to get used to, specially it's hard not to be able to do things that I used to do.
But I am trying to get around to the fact that this is my life now, and adjust to it.
I am a fun loving person, but have my moody sides.
That's it I guess...

 

[filmgirl]

I'm Christine
I'm a gurl
I'm 20 and from Canada.
I was diagnosed late (12) and have been pancreas sufficient up until the last 2 years when I've been going in and out.
I love movies and am in university studying film theories. I hope to be a screenwriter and director and overall fabulous person
Therefore, I love film and television so so much. It really helps when I'm doing meds, too. I think that's where I got my passion for the silver screen.
I love talking to other cfers since we all have such varied experiences. The more I learn about CF, the bigger mystery it seems to me.

 

[jad30]

-I'm Jacque (pronounced "Jackie")
-I live in Texas
-I'm 4'11 and weigh about 96lbs
-I'm a 29 year old woman and going to be 30 in 2 weeks (ahhhh!)
-I was diagnosed with CF at 18 months after reoccurring bouts with pneumonia
-I've been hospitalized for CF complications about 5x in my life
-My PFTs are in the 90's as of last month
-I am a pediatric occupational therapist
-I've been married for 2 years to Steve, the love of my life
-I love to bake desserts and cook Italian food
-I'm a wannabe wine connoisseur
-I like to knit
-I love to read books, especially trashy fictional novels
-I love acting in plays at my local community theater; even got my husband into acting!
-I enjoy hanging out with friends and family
-I belong to a spoiled cat named Meatball
-I love to travel and learn about different cultures

Until recently, CF has not been a big influence in my life. But now that I'm getting older I'm starting to think more about my financial future, work status, and family life and how CF may affect that. I thought that maybe I could get some of those questions answered here. Ya'll seem like a good group and I'm looking forward to getting to know you!

 

[jrotier]

Hey everyone!

I've been reading posts for a bit now and respond every once in a while, mostly privatly, just though I'd formally introduce myself...

-I'm Jackie, 27 yrs old
-I live in CA now, but was in northern VA for 1 year and grew up in Michigan.
-I was diagnosed with CF at 6 mos.
-My brother also has CF
-I am married to my wonderful husband Scott, a little over 2 years
-Mutations are DDf508
-I recenlty got involved with clinical trials and love it!
-I love shopping, my guilty pleasure
-I love traveling (though it is a pain with all the "stuff" to bring...
-I'm on IV's about once a year and FEV ~90%
-I work full time.
-Boo PICC's...Yay for my new port...been good so far
-and my current goal is to find some type of exercise I actually enjoy...

That's about all I can think of off the top of my head, good start I think!

 

[john73]

Hi Little debbie
My name is john
I am a male
I am to old to say but 55
I live in Mason Michigan
I am a Security Officer at Sparrow Hospital in Lansing MI.
I have 2 long year left before I retire ( I hop I can make it)
I love all sports, I work out with weights and run.
I love food, the best is Pizza and Steaks
Favorite restaurant, Olive Garden and Outback steak house also Deluca's restaurant in lansing where Pizza is king.
I was diagnosed with C/F when I gradualated from high school. (I like to think C/F has not stopped me but it is slowing me down,
I am married for 28 years to a wonderfull & beautiful woman
Good luck to you and lets hope for a cure or better treatments for us.
jpizzo73

 

[cfsue]

My name is Sue
I'm a girl
I'm 29
was dx at birth
i also have bi polar
i'm married
i have a daughter
i love smartfood popcorn
i have 5 step children also

that's about it for me

 

[cfsue]

My name is Sue
I'm a girl
I'm 29
was dx at birth
i also have bi polar
i'm married
i have a daughter
i love smartfood popcorn
i have 5 step children also
i'm 5ft 90lbs
my fev1 level is 22%

that's it for me