Who are you in a nut shell

[caseybradford]

I'm Casey
32 yrs old
diagnosed @ age 17.
My sister 27 and Brother 20 also have CF
I have a milder case than most CF patients
I take floridil or pulmacourt for lungs
Ultrase MT-20 for digestive enzymes
Over the past 2 years I've had frequent bouts of pancreatitis.

 

[ALecointre]

who are you in a nut shell

My name is Aimee.
I am a female.
I am 26 years of age.
I live in Southern CA and I LOVE LOVE LOVE it.
I was dx at three weeks due to failure to thrive.
I weigh around 110 lbs, and I'm 5'3"
My FEV1 hovers right around 58% or so.
My goal is to at least get it back to 70%
I have had two surgeries for scoliosis and now have metal rods in my back.
I just started college this past fall semester and love it.
I love cooking and reading.
I am happily married to a Marine that everyone calls Larry.
We have one cat named Jade, and are looking to adopt a black female pug puppy here soon.
I love love life and am so thankful for everyday!

 

[trentparrishracing43]

Hi my name is Trent. I'm a guy. I'm 20. I live in Alabama. I was dx (diagnosed) when i was 4 cause they thought i had double pneumonia but found out it was cf instead. My PFTs are around 58%. I have psudomonis. I weigh around 170 i'm 5'7. I work for my dad sometimes at a recked car buesness. I race open wheel modifieds asphault round track . I'm engaged to my best friend. Well thats pretty much me =P.

 

[JORDYSMOM]

Welcome to all of you new people. So glad to have you, and look forward to hearing more about each of you.

Stacey

 

[Lungslikeamule]

Hello, My name is Andy. I will be 26 in April. I was diagnosed at 9 months. I have refrained from joining any CF forums all my life but now I feel the need to talk to others with CF for the first time. So, please bare with me I am new at this.

I am 6ft / 160
From TN but I have lived in St. Pete now for 6 years
I like to bike
Love to play tennis (Not very good)
I am an avid golfer (played one year in college)
I am a poker pro by trade (it has paid the bills for 3 years now)
I love to party with my friends
A beach bum during the summer
Looking forward to buying a boat for this summer!
In a two year relationship with my girlfriend
Hospitalized twice in the past 6 years (Just got out)
I am very diligent about my treatments (Was not until about age 20)
All in all I feel pretty good despite my neglect at times.

Feel free to shoot me message. I would love to hear from whoever wants to talk.

 

[BaylorCrew07]

Hello! I've posted here for a while, but don't think I've ever had a formal intro, and I'm really bored at work right now, so here we go

My name is Debra
I'm 25 years old.
I live in Houston TX...very hot/humid.
I was failure to thrive at birth; sweat tests inconclusive (no genetic tests yet) and was not dxed until my sophomore year of college.
I weigh around 135 lbs, and I'm 5'6"...no pancreatic involvement
My FEV1 is around around 112% or so.
I love running, swimming, working out, etc. and am currently training for my first triathlon.
I have an amazingly supportive boyfriend (Jordan)... and love my life

 

[kayleesgrandma]

Welcome to all of you new members--and Debra--I have always loved that picture of you!

 

[Codysrt4]

My name is Cody
I'm a boy
I'm 23
I live in Oklahoma
I was diagnosed at 2 years of age
I weigh 115 and I'm 5'9
I had to stop working in April of 09
My FEV1 is 17%
I got listed for Tx 2 weeks ago
I'm in a car club called Twisted Illusions
My car is my passion and hobby
I like to play video games on my PS3
I love to text on my Blackberry
My Mom is my hero and number one source of strength
I cant wait to get my Tx
I'm ready for a new life

 

[sally]

im sally...not sure if this is meant to be an american only site but i find it intersting, you always get the medical stuff before we do..anyway...
...im 19
...was diagnosed at 11 months
...just got accepted for a double lung transplant
...im 4ft11
...and i love my mini cooper

 

[Momma3]

My name is Sarah
I am a Mom to 3
I live in Ohio
My daughter is undergoing testing for GI problems, the road is getting long and tiresome.
I still have my doubts about her sweat test being neg.
I will speak in person to her GI doc about it in March when we go back up.

 

[ernie9]

Hi all,

My name is Kyle
Im 23
I live in Adelaide, South Australia
I weight about 62kg (at the moment)
I am 166 cm tall
I am Engaged and have been for 4 years but we are getting married in march 2011
I love music, this is what helps me get through the tough times
I love to dance
I have 2 Brother, one who also has CF
I love my cats

Eh if you wanna know more just ask
Hopefully get to know a few of you soon

 

[normap]

Hi,
I just joined this group.
My name is Norma.
I am 48, and I have CF.
I live in Baker Lake, New Brunswick, Canada.
I get seen in CF Clinic in Quebec City, a 3 hour drive from my home.
I was diagnosed at age 5, mostly due to poor weight gain and steatorrhea.
I worked for 9 years as a Registered Nurse in a Hospital setting.
My job now is to take care of my self.
I have been married for 28 years.
I have a 26 year old daughter.
I am presently looking into getting evaluated for a lung transplant.
I also have a CF web site:
<a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/CF.htm
">http://www3.nbnet.nb.ca/normap/CF.htm
</a>I hope I can share with the people here...

 

[bethylove]

Hello,
I've been around for about a year or so, but I figured it's never too late to introduce myself. I spent so long reading this thread it was actually a little ridiculous! haha

My name is Elizabeth, or Beth -- but not Liz.
I am *almost* 21 (2 weeks)
I have an older sister with CF (she's on here somewhere)
I was diagnosed at age 4 due to my sister being diagnosed.
My FEV1 is about 65%
I am 5'4" and weigh about 110 lbs
I grew up in Rhode Island
I live in Williamsburg, Virginia
I LOVE the VCU medical team in VA (sorry RI it puts you to shame)
I have a boyfriend named Kyle and we'll probably get married
I hate school, but go to school online to keep health insurance
I also hate SSI because its a pain in the you-know-what
I like odd forms of exercise (such as pole fitness, wii fit, and power dancing)
I love when things are clean, but I hate cleaning. (go figure)
I have a ferret named Goose, and he's adorable.
I can't wait to someday have a house of my own and a family of my own too.

 

[Orangebear]

My name is Michelle
I'm 19
I live in New York City
I was diagnosed at 6 months
I weigh 100. I'm 5'3
dude, my PFT's suck too.
I'm in college
I have a "thing" for chicken
I'm single
I want to stay single
I like hot coco with whipped cream
I am an introvert
I go to NYU

 

[cll424]

Hi, I'm Chloe
I'm 20 years old, and I live in Canada
I was diagnosed when I was 6 months old.

Right now, I'm a university student in communications, and I plan on becoming a counselor or social worker.

I am a huge movie/tv show buff. I play violin, and like doing puzzles in my free time.
Otherwise, I love my family and friends, and I love them all so much.
I'm single, always have been.

And I don't know anyone else with CF, which is why I just joined: because I want to get to know more fellow CFers.

 

[chrissyd]

Welcome!

 

[tacos99]

Hi. My name is Teresa
We live in Birmingham, AL
I am a mom of 5 (Todd, Andrew, Christopher, Olivia, Shelby)
and I have been married for 23 years.
Shelby, 10, was diagnosed at 9 years old so we're still very new and wanting to learn as much as possible.
Her mutations are df508 and 2184insA
She is funny, smart, and a huge Hannah Montana fan.
She is PS so no enzymes.
She is wanting CF friends so She will probably post on the teen site.

 

[LezlyH]

My name is Lezly
I'm a girl
I'm 19
I was diagnosed at 5 months
I live in small town Oklahoma
My brother also had CF, and was 24 yrs old when he passed away
My sister is a carrier, but has two beautiful babies that do not have CF.
My nephew and niece are my life!
I have a huge soft spot for any kind of animals, and wanted to be a vet.
I have a short haired Chihuahua named Pransi, and a Long haired Chihuahua named Penni.
I am currently in college studying Nutrition. (Maybe that will help me gain weight!)
I am a very skinny mini. (Barely 80 lbs, and 5'0 tall)
I love reading Dean Koontz books when I am not spoiling the kids or doing homework.
I still live with my mom and dad (yeah I know, I just lost my cool badge. LOL)
I am single, mostly because the boys around where I live are really stupid.
I am super sarcastic. All my conversations are about 95% sarcastic.
I love reading things about other CFers because it makes me feel not so alone.
I don't have any actual friends because they don't believe me when I say I don't feel good.
I only have friends online because I know they won't hurt me.
I enjoy having new friends, so if anyone has a Facebook, please feel free to add me! My email is lezly913@yahoo.com
And this concludes the Lezly in a nutshell episode! ((Hugs to all)) =)

 

[Ricky123]

Iam a male 30 years of age.Living in London England ,my fev 1 was 77 in February.I love dogs,and my favorite breed are boxers.I also love sport and my favorites are football and boxing

 

[Deb]

Hi, I'm Debbie. New here.
I will be 50 in May.
Diagnosed at 24 after years of misdiagnosis.
DF508 and R117H.
No digestive problems so I won't share my weight.
College graduate, married almost 27 years, 2 healthy children (22 and 19)
Currently working full time and trying to juggle it all.
Relatively healthy until the last 4 months but hoping to be on the upswing soon.
Love animals, reading, cooking and gardening.
"Life isn't about waiting for the storm to pass; it's about learning to dance in the rain"