Who are you in a nut shell

[Sunshine21]

My name is Brittany.
I am a girl.
I just turned 21 in March.
I'm 5'5 and pancreatic sufficient, so I feel no need to share my weight.
Pancreatitis has become a problem for me these past two years.
I live in a podunk town in Southeast Washington.
I was diagnosed at age 14.
My PFT's are great but I somehow manage to get hospitalized about twice a year.
I have had 3 sinus surgeries and my gal bladder removed.
I just transferred from the Children's Hospital in Seattle to the UW Medical Center.
I'm single because males around here are severely lacking in the maturity department.
I love Chinese food.
I have a 'thing' for classic Chevy's.
I'm going to try college again this fall.
I love reading, especially Sci-fi and Fantasy.
My friends are eclectic and think outside the box, which is probably the reason I am able to keep them.

 

[Breathe4Brit]

who are you

by the way, just wanted to mention, your never " just a mom", your so much more and your kids do appreciate every thing you do. we just don't say thank you or i love you as often as kids should thats our mistake.... remember that.

 

[cysticgal]

Hey, I'm noticing a lot of my bloggies are on here too-

Okay, I'm new to CysticFibrosis.Com and joined to promote my blog <a target=_blank class=ftalternatingbarlinklarge href="http://cysticgal.blogspot.com,">http://cysticgal.blogspot.com,</a> and because I'm listed for double lung transplant at two centers and have a lot of sitting down time on my hands - SO- here's me, in a nut shell:

My name is Beth
I'm a gal
I'm 29
I live in New England
I was dx (diagnosed) at 6 mos., presumptive sweat test because my older sister has CF
I weigh around 108 and I'm 5'1"
My PFT's are about FEV1 = 17%
I recently stopped working
I have a thing for cats
I have a thing for poetry
I'm single
I want to get a dog after tx.
I like corn dogs.
I'm super sarcastic, too

If you wanna know more, check out my blog at <a target=_blank class=ftalternatingbarlinklarge href="http://cysticgal.blogspot.com,">http://cysticgal.blogspot.com,</a> and you can order cool t-shirts that say are pink or gray and say, "I'm a Cystic Gal!" on the front, and "Support Cystic Fibrosis Research and Donate Life" on the back. There are also ones that say, "I'm a Cystic Guy" on the front, and ones with no writing onthe front, but just my cool DNA lookin' blog symbol!

I hope you check it out.

 

[EmergencyIan]

Hello all.

My name is Ian.
I'm 36.
I live in NYC but am originally from Indiana.
I had a bilateral lung transplant in 1993 at the age of 19.
I'm a former paramedic.
I work for the city of New York in one of it's medical divisions.
I stay in shape by walking a lot and lifting weights.

It's nice to be here.

- Ian

 

[DjFunkyFife]

Hi Everyone. I joined a few years ago, but kind of, wasnt here...haha

My name is Jared...

I'm 28/m (well, i'll be 28 tomorrow, June 10th)

I live in Southern California

Diagnosed at 18 years old

People are jealous that i can eat anything i want anytime i want!! (about the only good thing about this disease)

I work at a paint/body shop

LOVE to fly, love baseball, (Go Braves!)

LOVE "The Big Bang Theory" that is the FUNNIEST show on TV!!!!!
"Leonard: For God's sake, Sheldon, do I have to hold up a sarcasm sign every time I open my mouth?
Sheldon (intrigued): You have a sarcasm sign?"

 

[uoyyeh]

I'm 25
Male
I'm a whopping 157 pounds.
Was diagnosed at age 6 ( i like the "dx" thing you guys do.)
Born and DXed in Colombia, South America
Moved here at age 7 for the treatments.

In a nut shell I would have to be much smaller depending on the type of nut. I would hope it's some kind of giant over grown house size nut with air holes. Then I would just be the 5'9 that I am now.

 

[curb24]

My name if Joanie.
I'm 18, and a girl.
I was dx at 3, only because my brother was born- he also has CF (now 16).
I live in GA.
My brother, and I both have DeltaF508.
I have good PFT's.
I start college in the Fall, and would love advice on how other CFer's have managed it.

 

[Ashk]

Hey Guys,
I just joined this forum tonight as I have been looking at getting out of my own CF shell and talking to other CFers So here it is,
My name is Ash
I am a 29yo male,
I live in Brisbane, Australia
I am about 6' and weigh 80kgs (sorry guys I don't know what that is in pounds) My weight is mostly muscle due to a very strict gym routine and alot of protein shakes with eggs.
I was diagnosed at 18 months after doctors where I was born kept telling my mum there was nothing wrong with me.
I also have Cystic related diabetes.
I have had more sinus operations then I can remember,
I have had a peg when I was a teenager (that was awkward)
I am currently studying a diploma of ministry.
I think that about sums it up,
I look forward to talking to you all.

 

[rb1973]

Hello All,
I'm Ron,
I'm a 37yo male,
I was born in GA, put up for adoption, and have lived in NJ for most of my life,
I'm 6"2, 175 lbs,
I was diagnosed w/CF at birth; CFRD at 33,
I have a Graduate degree,
I work full time,
PFTs have been stable for most of my life,
I lift weights and jog to stay in shape,
I have a dog,
I love riding my motorcycle and swimming,
Want to know anything else? Feel free to ask!

 

[crazycurly92]

Hi all!!

My name is Ashley.
I am 18 years old. ( can i post on the adult forum yet?? Hope so!)
I was diagnosed at age two.
My lung functions are in the 60s.
I have the double delta F508 genes.
I have a brother that isn't even a carrier of CF. (lucky duck)
I have chronic sinusitis, ridiculous acid reflux disease, and many other issues haha <img src="i/expressions/face-icon-small-tongue.gif" border="0">
I am going to college in the fall!!! Wooo!!!
I believe I am about to be a proud owner of a port!
I love salty foods or just plain salt.
I have sweaty hands and feet.
My family is amazing and I love my poodle; Bo.
Almost forgot- I am 5'2'' and I weigh 100 lbs.

Have a great day!

 

[mag6125]

I'm Shelly
It's my birthday, I turned 22
Diagnosed at 3 months, no one in my family has CF
I live in Ohio
Going to school for Exercise Science
Have two amazing nephews whom I love
The most amazing friends (they're throwing me a bday party in the hospital!)
FEV1 28%, getting ready to start the transplant eval
Chicken is my favorite food
I hate ice cream but love chocolate shakes
I love 4 wheeling and playing hockey


Just enjoying life and planning on many many more birthdays!

 

[Printer]

I'm Bill
Im male 70 years of age
Diagnosed at age 47.
47 years of uninformed but well-meaning Doctors.
Reasonable PFT'S but more digestive problems (10 Creon 24 with each meal or snack)
Vest and nebulise (together) with saline (7%)twice a day.

 

[juliaguti]

who are you in a nut shell

I am Julia
I am 20
I have double cf delta f508
i live in california
i need support from people around my age
I love to rave
if you want to talk please contact me

 

[GrantsWife]

Hi I am Alisha.
I do not have CF but my husband Grant does.
He is 20 and turning 21 on October 7.
I believe he was dx at 6 weeks.
He hasn't done his PFT's yet but they are around 75%
He does not know his gene mutation.
He currently weighs 133 lbs.
He has only been hospitalized once related to CF problems. Hope it stays that way.
He has no other organ problems except for mucus buildup in lungs.
He loves chinese food, playing video games, and animals.

 

[kmiller]

Hi, I'm Kari
I'm a 25 female
I married Chris (27) 1 year ago
Chris has CF (I dont know the mutation)and CFRD
I'm a full time nurse
Live in Kentucky
We have 3 cats and a dog
We want to start a family
LOVE the beach!~

 

[Jet]

I'm Jay and new to the site.
I'm soon to be 48.
I was diagnosed at age 2 at the University of Iowa
I have CFRD as well but always have very good PFTs.
When I was in second grade my older brother passed away at age 13. I have 4 sister w/o CF.
I've spent my adult life trying to honor his memory. Every milestone that passes, and I have been lucky to have many, I always think of him first.
I've been married for more than 20 years and now live in Ohio.
I'm lucky enough to be able to work full time. My wife is a stay at home mom.
We have 2 beautiful daughters ages 13 and 10.
The 3 of them keep me on the right track.
At the same time my ability to provide for them financial long term worries me as I age.

 

[mrwood]

I'm Matt
I'm 21, turning 22 in December
I'm from Australia
I was diagnosed at 3 months I think
I have a twin brother with CF as well
I was pretty sick through my childhood but I have gotten much much better now since being an adult.
I have a Diploma in Illustration
I do free lance web and graphic design
The last time I had to go into hospital was 5 years ago, and that was just to get on top of my health for my final year of highschool just so I didn't get sick during that year
I love playing the piano, and good films and food
I love cats, I own the best affectionate cat in the world who likes to look after me when I'm sick - or if he wants something <img src="i/expressions/face-icon-small-tongue.gif" border="0">
I love the country side and I love to laugh
I'm about 5ft 5-6ish and weigh 60kgs
I want to volunteer around the world, starting with teaching english, music and art in Romania

 

[dledwith]

learn about me on my video blog!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/dannyledwith21">http://www.youtube.com/dannyledwith21</a>

 

[JennyP]

My name is Jennifer
I'm a gal (42)
I live in Virginia, about 60 miles west of DC
My husband was diagnosed at 11 yrs old at UVA
His name is Joey
He is 46 years old, weighs 185
He lost his sister to CF, she was only 23
He is no longer working
He loves to fish and hunt
He hates going to the doctor (imagine that)
His diabetes is pretty bad
Vest/TOBI/Pancreatic def/all the usual

I think I'm the luckiest person in the world to be touched by someone who lives life to its fullest every day!

 

[Proxy]

My name is Melissa
Im a girl age 22
I live in Ontario Canada and I love it
I was dx at 2yo after the docs realised I didnt have a milk allergy
I have 3 dogs who keep me going everyday
I have 2 close friends who love and support me
Im a chicken when it comes to needles,been avoiding my OGTT test for over 2 years
I love music and reading,and a little shopping when I can, I also play online games regularily but im trying to cut back
My numbers are in the 40s atm but trying to stay positive.
Im shy at first but look forward to meeting you all