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letsrockcfem
New member
not doing CPTs
Hmm I would definately say he needs to be doing the vest. It is precautionary. I do my vest twice a day for 25-30 minutes each. My PFT's have gone up from doing so AND from running and exercising. CF is something that you have to treat even if you don't really have the sympotms. By him doing the vest it may knock junk out of his lungs before they have time get in there and make it there home and grow an infection.
It is just like exercise...he is doing that to keep him healthy right? The vest will do the same. I guess I would approach the DR when your little guy isn't in the room and say "hey is very healthy and we didn't really think he needs the vest and when we come here we feel under pressure.." that is not a lie. Your dr wouldn't have ordered CPT and the vest if he didn't need it.
Here is a lame analogy I just though off..every time you go to the bathroom you wash your hands right...to keep the germs away and PREVENT catching something, especially during cold and flu season you tend to wash even more. Well with CF you need to do whatever you can to keep things from getting into the lungs..the vest does that.
He sounds really healthy. I was the same way (until I hit my teens) but my parents still did manaul CPT twice a day, it is just what we do to beat CF.
Rock CF,
em
Hmm I would definately say he needs to be doing the vest. It is precautionary. I do my vest twice a day for 25-30 minutes each. My PFT's have gone up from doing so AND from running and exercising. CF is something that you have to treat even if you don't really have the sympotms. By him doing the vest it may knock junk out of his lungs before they have time get in there and make it there home and grow an infection.
It is just like exercise...he is doing that to keep him healthy right? The vest will do the same. I guess I would approach the DR when your little guy isn't in the room and say "hey is very healthy and we didn't really think he needs the vest and when we come here we feel under pressure.." that is not a lie. Your dr wouldn't have ordered CPT and the vest if he didn't need it.
Here is a lame analogy I just though off..every time you go to the bathroom you wash your hands right...to keep the germs away and PREVENT catching something, especially during cold and flu season you tend to wash even more. Well with CF you need to do whatever you can to keep things from getting into the lungs..the vest does that.
He sounds really healthy. I was the same way (until I hit my teens) but my parents still did manaul CPT twice a day, it is just what we do to beat CF.
Rock CF,
em
letsrockcfem
New member
not doing CPTs
Hmm I would definately say he needs to be doing the vest. It is precautionary. I do my vest twice a day for 25-30 minutes each. My PFT's have gone up from doing so AND from running and exercising. CF is something that you have to treat even if you don't really have the sympotms. By him doing the vest it may knock junk out of his lungs before they have time get in there and make it there home and grow an infection.
It is just like exercise...he is doing that to keep him healthy right? The vest will do the same. I guess I would approach the DR when your little guy isn't in the room and say "hey is very healthy and we didn't really think he needs the vest and when we come here we feel under pressure.." that is not a lie. Your dr wouldn't have ordered CPT and the vest if he didn't need it.
Here is a lame analogy I just though off..every time you go to the bathroom you wash your hands right...to keep the germs away and PREVENT catching something, especially during cold and flu season you tend to wash even more. Well with CF you need to do whatever you can to keep things from getting into the lungs..the vest does that.
He sounds really healthy. I was the same way (until I hit my teens) but my parents still did manaul CPT twice a day, it is just what we do to beat CF.
Rock CF,
em
Hmm I would definately say he needs to be doing the vest. It is precautionary. I do my vest twice a day for 25-30 minutes each. My PFT's have gone up from doing so AND from running and exercising. CF is something that you have to treat even if you don't really have the sympotms. By him doing the vest it may knock junk out of his lungs before they have time get in there and make it there home and grow an infection.
It is just like exercise...he is doing that to keep him healthy right? The vest will do the same. I guess I would approach the DR when your little guy isn't in the room and say "hey is very healthy and we didn't really think he needs the vest and when we come here we feel under pressure.." that is not a lie. Your dr wouldn't have ordered CPT and the vest if he didn't need it.
Here is a lame analogy I just though off..every time you go to the bathroom you wash your hands right...to keep the germs away and PREVENT catching something, especially during cold and flu season you tend to wash even more. Well with CF you need to do whatever you can to keep things from getting into the lungs..the vest does that.
He sounds really healthy. I was the same way (until I hit my teens) but my parents still did manaul CPT twice a day, it is just what we do to beat CF.
Rock CF,
em
letsrockcfem
New member
not doing CPTs
Hmm I would definately say he needs to be doing the vest. It is precautionary. I do my vest twice a day for 25-30 minutes each. My PFT's have gone up from doing so AND from running and exercising. CF is something that you have to treat even if you don't really have the sympotms. By him doing the vest it may knock junk out of his lungs before they have time get in there and make it there home and grow an infection.
It is just like exercise...he is doing that to keep him healthy right? The vest will do the same. I guess I would approach the DR when your little guy isn't in the room and say "hey is very healthy and we didn't really think he needs the vest and when we come here we feel under pressure.." that is not a lie. Your dr wouldn't have ordered CPT and the vest if he didn't need it.
Here is a lame analogy I just though off..every time you go to the bathroom you wash your hands right...to keep the germs away and PREVENT catching something, especially during cold and flu season you tend to wash even more. Well with CF you need to do whatever you can to keep things from getting into the lungs..the vest does that.
He sounds really healthy. I was the same way (until I hit my teens) but my parents still did manaul CPT twice a day, it is just what we do to beat CF.
Rock CF,
em
Hmm I would definately say he needs to be doing the vest. It is precautionary. I do my vest twice a day for 25-30 minutes each. My PFT's have gone up from doing so AND from running and exercising. CF is something that you have to treat even if you don't really have the sympotms. By him doing the vest it may knock junk out of his lungs before they have time get in there and make it there home and grow an infection.
It is just like exercise...he is doing that to keep him healthy right? The vest will do the same. I guess I would approach the DR when your little guy isn't in the room and say "hey is very healthy and we didn't really think he needs the vest and when we come here we feel under pressure.." that is not a lie. Your dr wouldn't have ordered CPT and the vest if he didn't need it.
Here is a lame analogy I just though off..every time you go to the bathroom you wash your hands right...to keep the germs away and PREVENT catching something, especially during cold and flu season you tend to wash even more. Well with CF you need to do whatever you can to keep things from getting into the lungs..the vest does that.
He sounds really healthy. I was the same way (until I hit my teens) but my parents still did manaul CPT twice a day, it is just what we do to beat CF.
Rock CF,
em
not doing CPTs
Thanks Emily for the reply, that's just it, there are a lot of
people doing the vest and CPT and still getting sick and sicker,
there is also data out there in the Cochran Report that looks at
research that has been conducted that says the vest does not make a
difference in lung function...I don't know, if he had mucous, i
would not hesitate, but he had a bronch this summer and his lungs
looked great<br>
thanks again
Thanks Emily for the reply, that's just it, there are a lot of
people doing the vest and CPT and still getting sick and sicker,
there is also data out there in the Cochran Report that looks at
research that has been conducted that says the vest does not make a
difference in lung function...I don't know, if he had mucous, i
would not hesitate, but he had a bronch this summer and his lungs
looked great<br>
thanks again
not doing CPTs
Thanks Emily for the reply, that's just it, there are a lot of
people doing the vest and CPT and still getting sick and sicker,
there is also data out there in the Cochran Report that looks at
research that has been conducted that says the vest does not make a
difference in lung function...I don't know, if he had mucous, i
would not hesitate, but he had a bronch this summer and his lungs
looked great<br>
thanks again
Thanks Emily for the reply, that's just it, there are a lot of
people doing the vest and CPT and still getting sick and sicker,
there is also data out there in the Cochran Report that looks at
research that has been conducted that says the vest does not make a
difference in lung function...I don't know, if he had mucous, i
would not hesitate, but he had a bronch this summer and his lungs
looked great<br>
thanks again
not doing CPTs
Thanks Emily for the reply, that's just it, there are a lot of
people doing the vest and CPT and still getting sick and sicker,
there is also data out there in the Cochran Report that looks at
research that has been conducted that says the vest does not make a
difference in lung function...I don't know, if he had mucous, i
would not hesitate, but he had a bronch this summer and his lungs
looked great<br>
thanks again
Thanks Emily for the reply, that's just it, there are a lot of
people doing the vest and CPT and still getting sick and sicker,
there is also data out there in the Cochran Report that looks at
research that has been conducted that says the vest does not make a
difference in lung function...I don't know, if he had mucous, i
would not hesitate, but he had a bronch this summer and his lungs
looked great<br>
thanks again
not doing CPTs
I see from another post that your son has 'mild' cf, our son too, and we find it very difficult to do his cpt he is only 16 months and really struggles and screams. I have also questioned the need of doing the cpt on someone so young, without any symptoms, and we don't have the luxury of the vest in Scotland.
But.....we still do it. Dont get me wrong there are days when it only gets done once, somestimes we don't do it at all. but we were also told that certain forms of exercise can replace a session of cpt like football and trampoline. But I don't think exercise was to completely replace cpt.
If he says it is sore on his belly, then I would say that your physiotherapist needs to get involved again and to come out with a programme of manual cpt that is more comfortable to your son, and if that involves his other sports that he does, then so much the better a compromise needs to be reached. Good luck
I see from another post that your son has 'mild' cf, our son too, and we find it very difficult to do his cpt he is only 16 months and really struggles and screams. I have also questioned the need of doing the cpt on someone so young, without any symptoms, and we don't have the luxury of the vest in Scotland.
But.....we still do it. Dont get me wrong there are days when it only gets done once, somestimes we don't do it at all. but we were also told that certain forms of exercise can replace a session of cpt like football and trampoline. But I don't think exercise was to completely replace cpt.
If he says it is sore on his belly, then I would say that your physiotherapist needs to get involved again and to come out with a programme of manual cpt that is more comfortable to your son, and if that involves his other sports that he does, then so much the better a compromise needs to be reached. Good luck
not doing CPTs
I see from another post that your son has 'mild' cf, our son too, and we find it very difficult to do his cpt he is only 16 months and really struggles and screams. I have also questioned the need of doing the cpt on someone so young, without any symptoms, and we don't have the luxury of the vest in Scotland.
But.....we still do it. Dont get me wrong there are days when it only gets done once, somestimes we don't do it at all. but we were also told that certain forms of exercise can replace a session of cpt like football and trampoline. But I don't think exercise was to completely replace cpt.
If he says it is sore on his belly, then I would say that your physiotherapist needs to get involved again and to come out with a programme of manual cpt that is more comfortable to your son, and if that involves his other sports that he does, then so much the better a compromise needs to be reached. Good luck
I see from another post that your son has 'mild' cf, our son too, and we find it very difficult to do his cpt he is only 16 months and really struggles and screams. I have also questioned the need of doing the cpt on someone so young, without any symptoms, and we don't have the luxury of the vest in Scotland.
But.....we still do it. Dont get me wrong there are days when it only gets done once, somestimes we don't do it at all. but we were also told that certain forms of exercise can replace a session of cpt like football and trampoline. But I don't think exercise was to completely replace cpt.
If he says it is sore on his belly, then I would say that your physiotherapist needs to get involved again and to come out with a programme of manual cpt that is more comfortable to your son, and if that involves his other sports that he does, then so much the better a compromise needs to be reached. Good luck
not doing CPTs
I see from another post that your son has 'mild' cf, our son too, and we find it very difficult to do his cpt he is only 16 months and really struggles and screams. I have also questioned the need of doing the cpt on someone so young, without any symptoms, and we don't have the luxury of the vest in Scotland.
But.....we still do it. Dont get me wrong there are days when it only gets done once, somestimes we don't do it at all. but we were also told that certain forms of exercise can replace a session of cpt like football and trampoline. But I don't think exercise was to completely replace cpt.
If he says it is sore on his belly, then I would say that your physiotherapist needs to get involved again and to come out with a programme of manual cpt that is more comfortable to your son, and if that involves his other sports that he does, then so much the better a compromise needs to be reached. Good luck
I see from another post that your son has 'mild' cf, our son too, and we find it very difficult to do his cpt he is only 16 months and really struggles and screams. I have also questioned the need of doing the cpt on someone so young, without any symptoms, and we don't have the luxury of the vest in Scotland.
But.....we still do it. Dont get me wrong there are days when it only gets done once, somestimes we don't do it at all. but we were also told that certain forms of exercise can replace a session of cpt like football and trampoline. But I don't think exercise was to completely replace cpt.
If he says it is sore on his belly, then I would say that your physiotherapist needs to get involved again and to come out with a programme of manual cpt that is more comfortable to your son, and if that involves his other sports that he does, then so much the better a compromise needs to be reached. Good luck
not doing CPTs
This is right up my ally. Please dont take this as total ridicule, but totally from the aspect of BEEN THERE/DONE THAT. I was dx @ 7. We learned manual CPT & we sort of did it for a little while. It was difficult for my Mom since she has had arthritic hands for years. My Dad never got the hang of it & with the mindset that my Mom had she felt I wouldnt be living long enough to worry about it so I should just enjoy life. I had hospital admits & I took my enzymes etc, but unless I was in the hospital I didnt do nebs or CPT. Fast forward about 30 years to adulthood & motherhood. Now Here I am 25 years past what they expected me to live. I have a beautiful daughter, great husband & terrific job. I get sick. Terribly sick. IN the hospital for weeks, worried I would never come home to my baby, had to quit work sick. I all of sudden found myself in the TRUE CF world where it is important to try maintaining your health. Now as an adult & mom I am forced to try & get into a routine & comply with treatments that I was able to get away with & worst yet encouraged to do so for most of my life. It was really hard & still is. Not only did my health take a beating (the % of non compliance related I dont know), but my whole way of living was rearranged. I am sure most kids will give their parents a hard time. The last thing you want to do is a neb & CPT when there are video games or soccer to play. HOWEVER; if NOTHING else the discipline that is instilled is so important. Some people (as myself) get away with not doing treatments & dont feel/see the affects of the lack of care until the CF has progressed. By then its a bit late to rewind. Its one of those things as a parent that you must do. The earlier you start the better. I hope you understand the need. This saying has been thrown around the forum a bit & I think it truly applies to many of us: HAD I KNOWN I WOULD HAVE LIVED THIS LONG, I WOULD HAVE TAKEN BETTER CARE OF MYSELF. Thanks for listening & Good Luck!
This is right up my ally. Please dont take this as total ridicule, but totally from the aspect of BEEN THERE/DONE THAT. I was dx @ 7. We learned manual CPT & we sort of did it for a little while. It was difficult for my Mom since she has had arthritic hands for years. My Dad never got the hang of it & with the mindset that my Mom had she felt I wouldnt be living long enough to worry about it so I should just enjoy life. I had hospital admits & I took my enzymes etc, but unless I was in the hospital I didnt do nebs or CPT. Fast forward about 30 years to adulthood & motherhood. Now Here I am 25 years past what they expected me to live. I have a beautiful daughter, great husband & terrific job. I get sick. Terribly sick. IN the hospital for weeks, worried I would never come home to my baby, had to quit work sick. I all of sudden found myself in the TRUE CF world where it is important to try maintaining your health. Now as an adult & mom I am forced to try & get into a routine & comply with treatments that I was able to get away with & worst yet encouraged to do so for most of my life. It was really hard & still is. Not only did my health take a beating (the % of non compliance related I dont know), but my whole way of living was rearranged. I am sure most kids will give their parents a hard time. The last thing you want to do is a neb & CPT when there are video games or soccer to play. HOWEVER; if NOTHING else the discipline that is instilled is so important. Some people (as myself) get away with not doing treatments & dont feel/see the affects of the lack of care until the CF has progressed. By then its a bit late to rewind. Its one of those things as a parent that you must do. The earlier you start the better. I hope you understand the need. This saying has been thrown around the forum a bit & I think it truly applies to many of us: HAD I KNOWN I WOULD HAVE LIVED THIS LONG, I WOULD HAVE TAKEN BETTER CARE OF MYSELF. Thanks for listening & Good Luck!
not doing CPTs
This is right up my ally. Please dont take this as total ridicule, but totally from the aspect of BEEN THERE/DONE THAT. I was dx @ 7. We learned manual CPT & we sort of did it for a little while. It was difficult for my Mom since she has had arthritic hands for years. My Dad never got the hang of it & with the mindset that my Mom had she felt I wouldnt be living long enough to worry about it so I should just enjoy life. I had hospital admits & I took my enzymes etc, but unless I was in the hospital I didnt do nebs or CPT. Fast forward about 30 years to adulthood & motherhood. Now Here I am 25 years past what they expected me to live. I have a beautiful daughter, great husband & terrific job. I get sick. Terribly sick. IN the hospital for weeks, worried I would never come home to my baby, had to quit work sick. I all of sudden found myself in the TRUE CF world where it is important to try maintaining your health. Now as an adult & mom I am forced to try & get into a routine & comply with treatments that I was able to get away with & worst yet encouraged to do so for most of my life. It was really hard & still is. Not only did my health take a beating (the % of non compliance related I dont know), but my whole way of living was rearranged. I am sure most kids will give their parents a hard time. The last thing you want to do is a neb & CPT when there are video games or soccer to play. HOWEVER; if NOTHING else the discipline that is instilled is so important. Some people (as myself) get away with not doing treatments & dont feel/see the affects of the lack of care until the CF has progressed. By then its a bit late to rewind. Its one of those things as a parent that you must do. The earlier you start the better. I hope you understand the need. This saying has been thrown around the forum a bit & I think it truly applies to many of us: HAD I KNOWN I WOULD HAVE LIVED THIS LONG, I WOULD HAVE TAKEN BETTER CARE OF MYSELF. Thanks for listening & Good Luck!
This is right up my ally. Please dont take this as total ridicule, but totally from the aspect of BEEN THERE/DONE THAT. I was dx @ 7. We learned manual CPT & we sort of did it for a little while. It was difficult for my Mom since she has had arthritic hands for years. My Dad never got the hang of it & with the mindset that my Mom had she felt I wouldnt be living long enough to worry about it so I should just enjoy life. I had hospital admits & I took my enzymes etc, but unless I was in the hospital I didnt do nebs or CPT. Fast forward about 30 years to adulthood & motherhood. Now Here I am 25 years past what they expected me to live. I have a beautiful daughter, great husband & terrific job. I get sick. Terribly sick. IN the hospital for weeks, worried I would never come home to my baby, had to quit work sick. I all of sudden found myself in the TRUE CF world where it is important to try maintaining your health. Now as an adult & mom I am forced to try & get into a routine & comply with treatments that I was able to get away with & worst yet encouraged to do so for most of my life. It was really hard & still is. Not only did my health take a beating (the % of non compliance related I dont know), but my whole way of living was rearranged. I am sure most kids will give their parents a hard time. The last thing you want to do is a neb & CPT when there are video games or soccer to play. HOWEVER; if NOTHING else the discipline that is instilled is so important. Some people (as myself) get away with not doing treatments & dont feel/see the affects of the lack of care until the CF has progressed. By then its a bit late to rewind. Its one of those things as a parent that you must do. The earlier you start the better. I hope you understand the need. This saying has been thrown around the forum a bit & I think it truly applies to many of us: HAD I KNOWN I WOULD HAVE LIVED THIS LONG, I WOULD HAVE TAKEN BETTER CARE OF MYSELF. Thanks for listening & Good Luck!
not doing CPTs
This is right up my ally. Please dont take this as total ridicule, but totally from the aspect of BEEN THERE/DONE THAT. I was dx @ 7. We learned manual CPT & we sort of did it for a little while. It was difficult for my Mom since she has had arthritic hands for years. My Dad never got the hang of it & with the mindset that my Mom had she felt I wouldnt be living long enough to worry about it so I should just enjoy life. I had hospital admits & I took my enzymes etc, but unless I was in the hospital I didnt do nebs or CPT. Fast forward about 30 years to adulthood & motherhood. Now Here I am 25 years past what they expected me to live. I have a beautiful daughter, great husband & terrific job. I get sick. Terribly sick. IN the hospital for weeks, worried I would never come home to my baby, had to quit work sick. I all of sudden found myself in the TRUE CF world where it is important to try maintaining your health. Now as an adult & mom I am forced to try & get into a routine & comply with treatments that I was able to get away with & worst yet encouraged to do so for most of my life. It was really hard & still is. Not only did my health take a beating (the % of non compliance related I dont know), but my whole way of living was rearranged. I am sure most kids will give their parents a hard time. The last thing you want to do is a neb & CPT when there are video games or soccer to play. HOWEVER; if NOTHING else the discipline that is instilled is so important. Some people (as myself) get away with not doing treatments & dont feel/see the affects of the lack of care until the CF has progressed. By then its a bit late to rewind. Its one of those things as a parent that you must do. The earlier you start the better. I hope you understand the need. This saying has been thrown around the forum a bit & I think it truly applies to many of us: HAD I KNOWN I WOULD HAVE LIVED THIS LONG, I WOULD HAVE TAKEN BETTER CARE OF MYSELF. Thanks for listening & Good Luck!
This is right up my ally. Please dont take this as total ridicule, but totally from the aspect of BEEN THERE/DONE THAT. I was dx @ 7. We learned manual CPT & we sort of did it for a little while. It was difficult for my Mom since she has had arthritic hands for years. My Dad never got the hang of it & with the mindset that my Mom had she felt I wouldnt be living long enough to worry about it so I should just enjoy life. I had hospital admits & I took my enzymes etc, but unless I was in the hospital I didnt do nebs or CPT. Fast forward about 30 years to adulthood & motherhood. Now Here I am 25 years past what they expected me to live. I have a beautiful daughter, great husband & terrific job. I get sick. Terribly sick. IN the hospital for weeks, worried I would never come home to my baby, had to quit work sick. I all of sudden found myself in the TRUE CF world where it is important to try maintaining your health. Now as an adult & mom I am forced to try & get into a routine & comply with treatments that I was able to get away with & worst yet encouraged to do so for most of my life. It was really hard & still is. Not only did my health take a beating (the % of non compliance related I dont know), but my whole way of living was rearranged. I am sure most kids will give their parents a hard time. The last thing you want to do is a neb & CPT when there are video games or soccer to play. HOWEVER; if NOTHING else the discipline that is instilled is so important. Some people (as myself) get away with not doing treatments & dont feel/see the affects of the lack of care until the CF has progressed. By then its a bit late to rewind. Its one of those things as a parent that you must do. The earlier you start the better. I hope you understand the need. This saying has been thrown around the forum a bit & I think it truly applies to many of us: HAD I KNOWN I WOULD HAVE LIVED THIS LONG, I WOULD HAVE TAKEN BETTER CARE OF MYSELF. Thanks for listening & Good Luck!
not doing CPTs
Hiya<br>
If he doesn't like the vest there are other forms of physio such as
the acapella, flutter, PEP etc. Also the excercise he is
doing will be doing wonders for him in itself. I know a lot
of people who just do exericise (a lot!) and no physio.
As mentioned early a massive review of the vest has shown it
is no more effective than other types of physio overall.
Living in the UK hardly anyone has a vest and we're all doing
just fine
. You Americans are obsessed with it hehe <img src="i/expressions/face-icon-small-wink.gif" border="0"><br>
All that said my mum did manual percussion on me everyday twice a
day for the first 12 years of my life and the doctors at that time
attributed that to this physio. i first cultured PA and had first
IV's when 8-9 years old. Between the ages of 16-21 i
hardley did any physio (rebelling teenager and all
that) I'm now 23 and moving towards an FEV of 60%.
correlation? i imagine so. I now do my acapella and all my
nebs and definately feel a benefit.<br>
xxxxx
Hiya<br>
If he doesn't like the vest there are other forms of physio such as
the acapella, flutter, PEP etc. Also the excercise he is
doing will be doing wonders for him in itself. I know a lot
of people who just do exericise (a lot!) and no physio.
As mentioned early a massive review of the vest has shown it
is no more effective than other types of physio overall.
Living in the UK hardly anyone has a vest and we're all doing
just fine
. You Americans are obsessed with it hehe <img src="i/expressions/face-icon-small-wink.gif" border="0"><br>All that said my mum did manual percussion on me everyday twice a
day for the first 12 years of my life and the doctors at that time
attributed that to this physio. i first cultured PA and had first
IV's when 8-9 years old. Between the ages of 16-21 i
hardley did any physio (rebelling teenager and all
that) I'm now 23 and moving towards an FEV of 60%.
correlation? i imagine so. I now do my acapella and all my
nebs and definately feel a benefit.<br>
xxxxx
not doing CPTs
Hiya<br>
If he doesn't like the vest there are other forms of physio such as
the acapella, flutter, PEP etc. Also the excercise he is
doing will be doing wonders for him in itself. I know a lot
of people who just do exericise (a lot!) and no physio.
As mentioned early a massive review of the vest has shown it
is no more effective than other types of physio overall.
Living in the UK hardly anyone has a vest and we're all doing
just fine. You Americans are obsessed with it hehe <img src="i/expressions/face-icon-small-wink.gif" border="0"><br>
All that said my mum did manual percussion on me everyday twice a
day for the first 12 years of my life and the doctors at that time
attributed that to this physio. i first cultured PA and had first
IV's when 8-9 years old. Between the ages of 16-21 i
hardley did any physio (rebelling teenager and all
that) I'm now 23 and moving towards an FEV of 60%.
correlation? i imagine so. I now do my acapella and all my
nebs and definately feel a benefit.<br>
xxxxx
Hiya<br>
If he doesn't like the vest there are other forms of physio such as
the acapella, flutter, PEP etc. Also the excercise he is
doing will be doing wonders for him in itself. I know a lot
of people who just do exericise (a lot!) and no physio.
As mentioned early a massive review of the vest has shown it
is no more effective than other types of physio overall.
Living in the UK hardly anyone has a vest and we're all doing
just fine
. You Americans are obsessed with it hehe <img src="i/expressions/face-icon-small-wink.gif" border="0"><br>All that said my mum did manual percussion on me everyday twice a
day for the first 12 years of my life and the doctors at that time
attributed that to this physio. i first cultured PA and had first
IV's when 8-9 years old. Between the ages of 16-21 i
hardley did any physio (rebelling teenager and all
that) I'm now 23 and moving towards an FEV of 60%.
correlation? i imagine so. I now do my acapella and all my
nebs and definately feel a benefit.<br>
xxxxx
not doing CPTs
Hiya<br>
If he doesn't like the vest there are other forms of physio such as
the acapella, flutter, PEP etc. Also the excercise he is
doing will be doing wonders for him in itself. I know a lot
of people who just do exericise (a lot!) and no physio.
As mentioned early a massive review of the vest has shown it
is no more effective than other types of physio overall.
Living in the UK hardly anyone has a vest and we're all doing
just fine. You Americans are obsessed with it hehe <img src="i/expressions/face-icon-small-wink.gif" border="0"><br>
All that said my mum did manual percussion on me everyday twice a
day for the first 12 years of my life and the doctors at that time
attributed that to this physio. i first cultured PA and had first
IV's when 8-9 years old. Between the ages of 16-21 i
hardley did any physio (rebelling teenager and all
that) I'm now 23 and moving towards an FEV of 60%.
correlation? i imagine so. I now do my acapella and all my
nebs and definately feel a benefit.<br>
xxxxx
Hiya<br>
If he doesn't like the vest there are other forms of physio such as
the acapella, flutter, PEP etc. Also the excercise he is
doing will be doing wonders for him in itself. I know a lot
of people who just do exericise (a lot!) and no physio.
As mentioned early a massive review of the vest has shown it
is no more effective than other types of physio overall.
Living in the UK hardly anyone has a vest and we're all doing
just fine
. You Americans are obsessed with it hehe <img src="i/expressions/face-icon-small-wink.gif" border="0"><br>All that said my mum did manual percussion on me everyday twice a
day for the first 12 years of my life and the doctors at that time
attributed that to this physio. i first cultured PA and had first
IV's when 8-9 years old. Between the ages of 16-21 i
hardley did any physio (rebelling teenager and all
that) I'm now 23 and moving towards an FEV of 60%.
correlation? i imagine so. I now do my acapella and all my
nebs and definately feel a benefit.<br>
xxxxx
not doing CPTs
Hey you,
I don't really do any physio....and I am 23 years old. I always hated it. I started doing nebulizers about a year ago as well. Right now my pft's hover at 81%.
In my experience, excercise has always been more beneficial to me...and i think this should be stressed more then pft's sometimes. Albeit if someone is sick and can't excercise, sure do what needs to be done. However, you can't tell me that doing a vest or acapella for 20 mins a day is better then running for 20 minutes. I just don't see the comparison.
The only thing i would be concerned about is his routine. Since i didn't do much therapy or nebs when i was younger, i had a hard time gettng used to it. It might be difficult for him later on to get used to it if he has never had to do it before. It doesn't have to be much, but starting now with something small might make it easier later on...
Do you use a nebulizer? If so, there is the pari pep that you fit on top...and basically he can do something like pulmozyme or HS and get the benefits of some sort of drainage...without a big vest or a different device. Good luck..
Kiel
Hey you,
I don't really do any physio....and I am 23 years old. I always hated it. I started doing nebulizers about a year ago as well. Right now my pft's hover at 81%.
In my experience, excercise has always been more beneficial to me...and i think this should be stressed more then pft's sometimes. Albeit if someone is sick and can't excercise, sure do what needs to be done. However, you can't tell me that doing a vest or acapella for 20 mins a day is better then running for 20 minutes. I just don't see the comparison.
The only thing i would be concerned about is his routine. Since i didn't do much therapy or nebs when i was younger, i had a hard time gettng used to it. It might be difficult for him later on to get used to it if he has never had to do it before. It doesn't have to be much, but starting now with something small might make it easier later on...
Do you use a nebulizer? If so, there is the pari pep that you fit on top...and basically he can do something like pulmozyme or HS and get the benefits of some sort of drainage...without a big vest or a different device. Good luck..
Kiel
not doing CPTs
Hey you,
I don't really do any physio....and I am 23 years old. I always hated it. I started doing nebulizers about a year ago as well. Right now my pft's hover at 81%.
In my experience, excercise has always been more beneficial to me...and i think this should be stressed more then pft's sometimes. Albeit if someone is sick and can't excercise, sure do what needs to be done. However, you can't tell me that doing a vest or acapella for 20 mins a day is better then running for 20 minutes. I just don't see the comparison.
The only thing i would be concerned about is his routine. Since i didn't do much therapy or nebs when i was younger, i had a hard time gettng used to it. It might be difficult for him later on to get used to it if he has never had to do it before. It doesn't have to be much, but starting now with something small might make it easier later on...
Do you use a nebulizer? If so, there is the pari pep that you fit on top...and basically he can do something like pulmozyme or HS and get the benefits of some sort of drainage...without a big vest or a different device. Good luck..
Kiel
Hey you,
I don't really do any physio....and I am 23 years old. I always hated it. I started doing nebulizers about a year ago as well. Right now my pft's hover at 81%.
In my experience, excercise has always been more beneficial to me...and i think this should be stressed more then pft's sometimes. Albeit if someone is sick and can't excercise, sure do what needs to be done. However, you can't tell me that doing a vest or acapella for 20 mins a day is better then running for 20 minutes. I just don't see the comparison.
The only thing i would be concerned about is his routine. Since i didn't do much therapy or nebs when i was younger, i had a hard time gettng used to it. It might be difficult for him later on to get used to it if he has never had to do it before. It doesn't have to be much, but starting now with something small might make it easier later on...
Do you use a nebulizer? If so, there is the pari pep that you fit on top...and basically he can do something like pulmozyme or HS and get the benefits of some sort of drainage...without a big vest or a different device. Good luck..
Kiel