yay CF?! :/

J

JenDiS

New member
amazinGracie do not apologize for writing your output on this message. NO ONE KNOWS EXCEPT CFERS. Sorry to family or loveds ones and friends but no one will know unless you have the mutated gene in your body as well and you dont. IVE Got a fiance, he will never know what its like. All he can do is sit back and try and help me out like you are doing. Maybe you morty220 are just lashing out because somewhere inside of you you are having some serious emotions about CF all together and I do not think is the place to come and let them loose. It was her personal opinion and that pissed me off so just back off.

Alyssaaaaxo of course I know what its like, I too have a positive outlook on it but it def. does get tough. "Live each day to the fullest" but it takes me half the day to even be ready to LIVE the day haha. Its crazyness, but I def. feel ya on it hun!!
 
J

JenDiS

New member
amazinGracie do not apologize for writing your output on this message. NO ONE KNOWS EXCEPT CFERS. Sorry to family or loveds ones and friends but no one will know unless you have the mutated gene in your body as well and you dont. IVE Got a fiance, he will never know what its like. All he can do is sit back and try and help me out like you are doing. Maybe you morty220 are just lashing out because somewhere inside of you you are having some serious emotions about CF all together and I do not think is the place to come and let them loose. It was her personal opinion and that pissed me off so just back off.

Alyssaaaaxo of course I know what its like, I too have a positive outlook on it but it def. does get tough. "Live each day to the fullest" but it takes me half the day to even be ready to LIVE the day haha. Its crazyness, but I def. feel ya on it hun!!
 
J

JenDiS

New member
amazinGracie do not apologize for writing your output on this message. NO ONE KNOWS EXCEPT CFERS. Sorry to family or loveds ones and friends but no one will know unless you have the mutated gene in your body as well and you dont. IVE Got a fiance, he will never know what its like. All he can do is sit back and try and help me out like you are doing. Maybe you morty220 are just lashing out because somewhere inside of you you are having some serious emotions about CF all together and I do not think is the place to come and let them loose. It was her personal opinion and that pissed me off so just back off.

Alyssaaaaxo of course I know what its like, I too have a positive outlook on it but it def. does get tough. "Live each day to the fullest" but it takes me half the day to even be ready to LIVE the day haha. Its crazyness, but I def. feel ya on it hun!!
 
J

JenDiS

New member
amazinGracie do not apologize for writing your output on this message. NO ONE KNOWS EXCEPT CFERS. Sorry to family or loveds ones and friends but no one will know unless you have the mutated gene in your body as well and you dont. IVE Got a fiance, he will never know what its like. All he can do is sit back and try and help me out like you are doing. Maybe you morty220 are just lashing out because somewhere inside of you you are having some serious emotions about CF all together and I do not think is the place to come and let them loose. It was her personal opinion and that pissed me off so just back off.

Alyssaaaaxo of course I know what its like, I too have a positive outlook on it but it def. does get tough. "Live each day to the fullest" but it takes me half the day to even be ready to LIVE the day haha. Its crazyness, but I def. feel ya on it hun!!
 
J

JenDiS

New member
amazinGracie do not apologize for writing your output on this message. NO ONE KNOWS EXCEPT CFERS. Sorry to family or loveds ones and friends but no one will know unless you have the mutated gene in your body as well and you dont. IVE Got a fiance, he will never know what its like. All he can do is sit back and try and help me out like you are doing. Maybe you morty220 are just lashing out because somewhere inside of you you are having some serious emotions about CF all together and I do not think is the place to come and let them loose. It was her personal opinion and that pissed me off so just back off.
<br />
<br />Alyssaaaaxo of course I know what its like, I too have a positive outlook on it but it def. does get tough. "Live each day to the fullest" but it takes me half the day to even be ready to LIVE the day haha. Its crazyness, but I def. feel ya on it hun!!
 
A

Alyssaaaaxo

Guest
its so comforting to know im not the only one! and amazinGracie you are so right that you just get this connection with ther Cfrs cause they understand what you go through. and JenDiS! you are so right, it sucks to have to live this crazyness :/ i hate it.

and as for morty220. no your wrong. you dont know what its like to have cf and know what we have to go through everday. do you have to wake up wondering how many years your going to live? if your ever going to get to have kids? do you ever have to wonder how many steps your going to take until you look winded. how many hours you can work until you get too tired? how many days your going to miss of school cause of the hospital? no unless you have CF. and MY BOYFRIEND (cause believe it or not i have one) does understand and loves me for who i am and accepts my diease but he does not know what its like to be me and he never will. and ten to one if you ask your gf if she feels the same way we all do she'll agree with us. cause reality check? most of ous with CF think alike <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
A

Alyssaaaaxo

Guest
its so comforting to know im not the only one! and amazinGracie you are so right that you just get this connection with ther Cfrs cause they understand what you go through. and JenDiS! you are so right, it sucks to have to live this crazyness :/ i hate it.

and as for morty220. no your wrong. you dont know what its like to have cf and know what we have to go through everday. do you have to wake up wondering how many years your going to live? if your ever going to get to have kids? do you ever have to wonder how many steps your going to take until you look winded. how many hours you can work until you get too tired? how many days your going to miss of school cause of the hospital? no unless you have CF. and MY BOYFRIEND (cause believe it or not i have one) does understand and loves me for who i am and accepts my diease but he does not know what its like to be me and he never will. and ten to one if you ask your gf if she feels the same way we all do she'll agree with us. cause reality check? most of ous with CF think alike <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
A

Alyssaaaaxo

Guest
its so comforting to know im not the only one! and amazinGracie you are so right that you just get this connection with ther Cfrs cause they understand what you go through. and JenDiS! you are so right, it sucks to have to live this crazyness :/ i hate it.

and as for morty220. no your wrong. you dont know what its like to have cf and know what we have to go through everday. do you have to wake up wondering how many years your going to live? if your ever going to get to have kids? do you ever have to wonder how many steps your going to take until you look winded. how many hours you can work until you get too tired? how many days your going to miss of school cause of the hospital? no unless you have CF. and MY BOYFRIEND (cause believe it or not i have one) does understand and loves me for who i am and accepts my diease but he does not know what its like to be me and he never will. and ten to one if you ask your gf if she feels the same way we all do she'll agree with us. cause reality check? most of ous with CF think alike <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
A

Alyssaaaaxo

Guest
its so comforting to know im not the only one! and amazinGracie you are so right that you just get this connection with ther Cfrs cause they understand what you go through. and JenDiS! you are so right, it sucks to have to live this crazyness :/ i hate it.

and as for morty220. no your wrong. you dont know what its like to have cf and know what we have to go through everday. do you have to wake up wondering how many years your going to live? if your ever going to get to have kids? do you ever have to wonder how many steps your going to take until you look winded. how many hours you can work until you get too tired? how many days your going to miss of school cause of the hospital? no unless you have CF. and MY BOYFRIEND (cause believe it or not i have one) does understand and loves me for who i am and accepts my diease but he does not know what its like to be me and he never will. and ten to one if you ask your gf if she feels the same way we all do she'll agree with us. cause reality check? most of ous with CF think alike <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
A

Alyssaaaaxo

Guest
its so comforting to know im not the only one! and amazinGracie you are so right that you just get this connection with ther Cfrs cause they understand what you go through. and JenDiS! you are so right, it sucks to have to live this crazyness :/ i hate it.
<br />
<br />and as for morty220. no your wrong. you dont know what its like to have cf and know what we have to go through everday. do you have to wake up wondering how many years your going to live? if your ever going to get to have kids? do you ever have to wonder how many steps your going to take until you look winded. how many hours you can work until you get too tired? how many days your going to miss of school cause of the hospital? no unless you have CF. and MY BOYFRIEND (cause believe it or not i have one) does understand and loves me for who i am and accepts my diease but he does not know what its like to be me and he never will. and ten to one if you ask your gf if she feels the same way we all do she'll agree with us. cause reality check? most of ous with CF think alike <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

Terry

Guest
Alyssa,

You are a beautiful girl. I won't try to make you feel better about your treatments, or say that I can feel your pain. I do not have CF, so you are right, I can't "truly" know what it is like to be you.

What I would like to say is that although your Mom is giving you a rough time about doing your meds, as a stepmother of a little girl with CF, I think I can feel some of your mother's pain. Maybe she would disagree because I am just a "step-mom," but Marissa lives with me. I am the mother figure in her life. I am her medicine nazi.

Just to let you know, although we are relentless in our mission to make sure every pill is "popped," every treatment is given, enough food is eaten, we also (behind your backs) cry about the time it takes to get it all done. We think about maybe, forgetting about CF for one day and letting you slack and be "normal." But then reality hits us in the face, and we realize that is the same as not feeding a noncf child. It instinctual for us to ALWAYS, whether we want to or not, do whatever it takes to keep our children healthy and safe.

CF is the intruder in the house that we fight, but can not see. We would give our lives in place of yours if we could, in the same way that we would take a bullet for you.

Just to let you know, we hate CF, too!

I hope I have not offended anyone, it was not my aim to do so. (I'm even ignoring the little person who thinks having a boyfriend can take away the pain and anguish of having CF).

I usually don't reply on the teen boards, I only read to get an idea of what my stepdaughter might be feeling, but not saying. You touched me, because I can see her feeling this way about me. I am the one who makes sure everything is done.

I wish you peace, and rant as you need. It is good to let it all out.
 
T

Terry

Guest
Alyssa,

You are a beautiful girl. I won't try to make you feel better about your treatments, or say that I can feel your pain. I do not have CF, so you are right, I can't "truly" know what it is like to be you.

What I would like to say is that although your Mom is giving you a rough time about doing your meds, as a stepmother of a little girl with CF, I think I can feel some of your mother's pain. Maybe she would disagree because I am just a "step-mom," but Marissa lives with me. I am the mother figure in her life. I am her medicine nazi.

Just to let you know, although we are relentless in our mission to make sure every pill is "popped," every treatment is given, enough food is eaten, we also (behind your backs) cry about the time it takes to get it all done. We think about maybe, forgetting about CF for one day and letting you slack and be "normal." But then reality hits us in the face, and we realize that is the same as not feeding a noncf child. It instinctual for us to ALWAYS, whether we want to or not, do whatever it takes to keep our children healthy and safe.

CF is the intruder in the house that we fight, but can not see. We would give our lives in place of yours if we could, in the same way that we would take a bullet for you.

Just to let you know, we hate CF, too!

I hope I have not offended anyone, it was not my aim to do so. (I'm even ignoring the little person who thinks having a boyfriend can take away the pain and anguish of having CF).

I usually don't reply on the teen boards, I only read to get an idea of what my stepdaughter might be feeling, but not saying. You touched me, because I can see her feeling this way about me. I am the one who makes sure everything is done.

I wish you peace, and rant as you need. It is good to let it all out.
 
T

Terry

Guest
Alyssa,

You are a beautiful girl. I won't try to make you feel better about your treatments, or say that I can feel your pain. I do not have CF, so you are right, I can't "truly" know what it is like to be you.

What I would like to say is that although your Mom is giving you a rough time about doing your meds, as a stepmother of a little girl with CF, I think I can feel some of your mother's pain. Maybe she would disagree because I am just a "step-mom," but Marissa lives with me. I am the mother figure in her life. I am her medicine nazi.

Just to let you know, although we are relentless in our mission to make sure every pill is "popped," every treatment is given, enough food is eaten, we also (behind your backs) cry about the time it takes to get it all done. We think about maybe, forgetting about CF for one day and letting you slack and be "normal." But then reality hits us in the face, and we realize that is the same as not feeding a noncf child. It instinctual for us to ALWAYS, whether we want to or not, do whatever it takes to keep our children healthy and safe.

CF is the intruder in the house that we fight, but can not see. We would give our lives in place of yours if we could, in the same way that we would take a bullet for you.

Just to let you know, we hate CF, too!

I hope I have not offended anyone, it was not my aim to do so. (I'm even ignoring the little person who thinks having a boyfriend can take away the pain and anguish of having CF).

I usually don't reply on the teen boards, I only read to get an idea of what my stepdaughter might be feeling, but not saying. You touched me, because I can see her feeling this way about me. I am the one who makes sure everything is done.

I wish you peace, and rant as you need. It is good to let it all out.
 
T

Terry

Guest
Alyssa,

You are a beautiful girl. I won't try to make you feel better about your treatments, or say that I can feel your pain. I do not have CF, so you are right, I can't "truly" know what it is like to be you.

What I would like to say is that although your Mom is giving you a rough time about doing your meds, as a stepmother of a little girl with CF, I think I can feel some of your mother's pain. Maybe she would disagree because I am just a "step-mom," but Marissa lives with me. I am the mother figure in her life. I am her medicine nazi.

Just to let you know, although we are relentless in our mission to make sure every pill is "popped," every treatment is given, enough food is eaten, we also (behind your backs) cry about the time it takes to get it all done. We think about maybe, forgetting about CF for one day and letting you slack and be "normal." But then reality hits us in the face, and we realize that is the same as not feeding a noncf child. It instinctual for us to ALWAYS, whether we want to or not, do whatever it takes to keep our children healthy and safe.

CF is the intruder in the house that we fight, but can not see. We would give our lives in place of yours if we could, in the same way that we would take a bullet for you.

Just to let you know, we hate CF, too!

I hope I have not offended anyone, it was not my aim to do so. (I'm even ignoring the little person who thinks having a boyfriend can take away the pain and anguish of having CF).

I usually don't reply on the teen boards, I only read to get an idea of what my stepdaughter might be feeling, but not saying. You touched me, because I can see her feeling this way about me. I am the one who makes sure everything is done.

I wish you peace, and rant as you need. It is good to let it all out.
 
T

Terry

Guest
Alyssa,
<br />
<br />You are a beautiful girl. I won't try to make you feel better about your treatments, or say that I can feel your pain. I do not have CF, so you are right, I can't "truly" know what it is like to be you.
<br />
<br />What I would like to say is that although your Mom is giving you a rough time about doing your meds, as a stepmother of a little girl with CF, I think I can feel some of your mother's pain. Maybe she would disagree because I am just a "step-mom," but Marissa lives with me. I am the mother figure in her life. I am her medicine nazi.
<br />
<br />Just to let you know, although we are relentless in our mission to make sure every pill is "popped," every treatment is given, enough food is eaten, we also (behind your backs) cry about the time it takes to get it all done. We think about maybe, forgetting about CF for one day and letting you slack and be "normal." But then reality hits us in the face, and we realize that is the same as not feeding a noncf child. It instinctual for us to ALWAYS, whether we want to or not, do whatever it takes to keep our children healthy and safe.
<br />
<br />CF is the intruder in the house that we fight, but can not see. We would give our lives in place of yours if we could, in the same way that we would take a bullet for you.
<br />
<br />Just to let you know, we hate CF, too!
<br />
<br />I hope I have not offended anyone, it was not my aim to do so. (I'm even ignoring the little person who thinks having a boyfriend can take away the pain and anguish of having CF).
<br />
<br />I usually don't reply on the teen boards, I only read to get an idea of what my stepdaughter might be feeling, but not saying. You touched me, because I can see her feeling this way about me. I am the one who makes sure everything is done.
<br />
<br />I wish you peace, and rant as you need. It is good to let it all out.
<br />
<br />
 
A

alluneedislove

Guest
Alyssa

It does suck to have Cf. Don't follow my example.....but when i was your age i didn't do any of those stupid med's or my vest and now at 24 i am working my butt of to stay healthy. Everyday i look back on those years when i didn't take care of myself and thought that parties and friends were more important. And now wish that i would have done all my med's.....Your a very lucky girl to have a mom that cares so much about you!! Even thou she has no idea how we as cf'ers feel about all the crap we have to deal with at least she is there for you! My mom wasn't in that time of my life and i wish she would have been.

I know exactly how u feel when you say that people think you have an eating disorder! Rude @** people! I was so skinny in high school but then when i wouldn't take my enzyme pills people in lunch would come up to me and ask if i was pregnant??? I wanted to kill them. I would go home and ball my head off wondering why i was blessed with this stupid disease.

Keep your head up! God has a great plan for u in life and you need to be around for it!!!
 
A

alluneedislove

Guest
Alyssa

It does suck to have Cf. Don't follow my example.....but when i was your age i didn't do any of those stupid med's or my vest and now at 24 i am working my butt of to stay healthy. Everyday i look back on those years when i didn't take care of myself and thought that parties and friends were more important. And now wish that i would have done all my med's.....Your a very lucky girl to have a mom that cares so much about you!! Even thou she has no idea how we as cf'ers feel about all the crap we have to deal with at least she is there for you! My mom wasn't in that time of my life and i wish she would have been.

I know exactly how u feel when you say that people think you have an eating disorder! Rude @** people! I was so skinny in high school but then when i wouldn't take my enzyme pills people in lunch would come up to me and ask if i was pregnant??? I wanted to kill them. I would go home and ball my head off wondering why i was blessed with this stupid disease.

Keep your head up! God has a great plan for u in life and you need to be around for it!!!
 
A

alluneedislove

Guest
Alyssa

It does suck to have Cf. Don't follow my example.....but when i was your age i didn't do any of those stupid med's or my vest and now at 24 i am working my butt of to stay healthy. Everyday i look back on those years when i didn't take care of myself and thought that parties and friends were more important. And now wish that i would have done all my med's.....Your a very lucky girl to have a mom that cares so much about you!! Even thou she has no idea how we as cf'ers feel about all the crap we have to deal with at least she is there for you! My mom wasn't in that time of my life and i wish she would have been.

I know exactly how u feel when you say that people think you have an eating disorder! Rude @** people! I was so skinny in high school but then when i wouldn't take my enzyme pills people in lunch would come up to me and ask if i was pregnant??? I wanted to kill them. I would go home and ball my head off wondering why i was blessed with this stupid disease.

Keep your head up! God has a great plan for u in life and you need to be around for it!!!
 
A

alluneedislove

Guest
Alyssa

It does suck to have Cf. Don't follow my example.....but when i was your age i didn't do any of those stupid med's or my vest and now at 24 i am working my butt of to stay healthy. Everyday i look back on those years when i didn't take care of myself and thought that parties and friends were more important. And now wish that i would have done all my med's.....Your a very lucky girl to have a mom that cares so much about you!! Even thou she has no idea how we as cf'ers feel about all the crap we have to deal with at least she is there for you! My mom wasn't in that time of my life and i wish she would have been.

I know exactly how u feel when you say that people think you have an eating disorder! Rude @** people! I was so skinny in high school but then when i wouldn't take my enzyme pills people in lunch would come up to me and ask if i was pregnant??? I wanted to kill them. I would go home and ball my head off wondering why i was blessed with this stupid disease.

Keep your head up! God has a great plan for u in life and you need to be around for it!!!
 
A

alluneedislove

Guest
Alyssa
<br />
<br />It does suck to have Cf. Don't follow my example.....but when i was your age i didn't do any of those stupid med's or my vest and now at 24 i am working my butt of to stay healthy. Everyday i look back on those years when i didn't take care of myself and thought that parties and friends were more important. And now wish that i would have done all my med's.....Your a very lucky girl to have a mom that cares so much about you!! Even thou she has no idea how we as cf'ers feel about all the crap we have to deal with at least she is there for you! My mom wasn't in that time of my life and i wish she would have been.
<br />
<br />I know exactly how u feel when you say that people think you have an eating disorder! Rude @** people! I was so skinny in high school but then when i wouldn't take my enzyme pills people in lunch would come up to me and ask if i was pregnant??? I wanted to kill them. I would go home and ball my head off wondering why i was blessed with this stupid disease.
<br />
<br />Keep your head up! God has a great plan for u in life and you need to be around for it!!!
 
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