yay CF?! :/

bananagirl · Oct 16, 2008

I agree cf sucks so bad. part of me just feels like giving up cuz like all these meds and hospital stays and stuff are what really make it suck and its like what is even the point i'm gonna die early anyway way not just enjoy my time and not have to deal with any of this stuff. It would be so nice to just live a day as a normal healthy person. sometimes i wonder what it would be like to be healthy. I bet if we went from how we are right now to being healthy we would be like cross country starts cuz we are so used to getting barely any air in each breath and can kinda function and then to go to healthy we would get so much air from each breath! The one happy thin for me i have relized is that when i do die i wont have cf anymore cuz i believe in God and that when i will die i will go to heaven and there is no way that people have cf in heaven and if there is no God then i wont know anything once i'm dead so i still wont have cf and if after life is like in the movies that seems fine too cuz i've never seen a ghost that is sick and it seems kinda fun to scare people hehe! To the eating disorder thing i get that too and if people don't say it i know they think it. Sometimes i wish i just had a sign that said no i don't have an eating disorder though they always teach in class that that is the kinda thing a person with an eating disorder would do. One thing i think is kinda stupid is that the people that are treating u for cf have no idea what its like to have cf.

bananagirl · Oct 16, 2008

I agree cf sucks so bad. part of me just feels like giving up cuz like all these meds and hospital stays and stuff are what really make it suck and its like what is even the point i'm gonna die early anyway way not just enjoy my time and not have to deal with any of this stuff. It would be so nice to just live a day as a normal healthy person. sometimes i wonder what it would be like to be healthy. I bet if we went from how we are right now to being healthy we would be like cross country starts cuz we are so used to getting barely any air in each breath and can kinda function and then to go to healthy we would get so much air from each breath! The one happy thin for me i have relized is that when i do die i wont have cf anymore cuz i believe in God and that when i will die i will go to heaven and there is no way that people have cf in heaven and if there is no God then i wont know anything once i'm dead so i still wont have cf and if after life is like in the movies that seems fine too cuz i've never seen a ghost that is sick and it seems kinda fun to scare people hehe! To the eating disorder thing i get that too and if people don't say it i know they think it. Sometimes i wish i just had a sign that said no i don't have an eating disorder though they always teach in class that that is the kinda thing a person with an eating disorder would do. One thing i think is kinda stupid is that the people that are treating u for cf have no idea what its like to have cf.

bananagirl · Oct 16, 2008

I agree cf sucks so bad. part of me just feels like giving up cuz like all these meds and hospital stays and stuff are what really make it suck and its like what is even the point i'm gonna die early anyway way not just enjoy my time and not have to deal with any of this stuff. It would be so nice to just live a day as a normal healthy person. sometimes i wonder what it would be like to be healthy. I bet if we went from how we are right now to being healthy we would be like cross country starts cuz we are so used to getting barely any air in each breath and can kinda function and then to go to healthy we would get so much air from each breath! The one happy thin for me i have relized is that when i do die i wont have cf anymore cuz i believe in God and that when i will die i will go to heaven and there is no way that people have cf in heaven and if there is no God then i wont know anything once i'm dead so i still wont have cf and if after life is like in the movies that seems fine too cuz i've never seen a ghost that is sick and it seems kinda fun to scare people hehe! To the eating disorder thing i get that too and if people don't say it i know they think it. Sometimes i wish i just had a sign that said no i don't have an eating disorder though they always teach in class that that is the kinda thing a person with an eating disorder would do. One thing i think is kinda stupid is that the people that are treating u for cf have no idea what its like to have cf.

bananagirl · Oct 16, 2008

I agree cf sucks so bad. part of me just feels like giving up cuz like all these meds and hospital stays and stuff are what really make it suck and its like what is even the point i'm gonna die early anyway way not just enjoy my time and not have to deal with any of this stuff. It would be so nice to just live a day as a normal healthy person. sometimes i wonder what it would be like to be healthy. I bet if we went from how we are right now to being healthy we would be like cross country starts cuz we are so used to getting barely any air in each breath and can kinda function and then to go to healthy we would get so much air from each breath! The one happy thin for me i have relized is that when i do die i wont have cf anymore cuz i believe in God and that when i will die i will go to heaven and there is no way that people have cf in heaven and if there is no God then i wont know anything once i'm dead so i still wont have cf and if after life is like in the movies that seems fine too cuz i've never seen a ghost that is sick and it seems kinda fun to scare people hehe! To the eating disorder thing i get that too and if people don't say it i know they think it. Sometimes i wish i just had a sign that said no i don't have an eating disorder though they always teach in class that that is the kinda thing a person with an eating disorder would do. One thing i think is kinda stupid is that the people that are treating u for cf have no idea what its like to have cf.

bananagirl · Oct 16, 2008

I agree cf sucks so bad. part of me just feels like giving up cuz like all these meds and hospital stays and stuff are what really make it suck and its like what is even the point i'm gonna die early anyway way not just enjoy my time and not have to deal with any of this stuff. It would be so nice to just live a day as a normal healthy person. sometimes i wonder what it would be like to be healthy. I bet if we went from how we are right now to being healthy we would be like cross country starts cuz we are so used to getting barely any air in each breath and can kinda function and then to go to healthy we would get so much air from each breath! The one happy thin for me i have relized is that when i do die i wont have cf anymore cuz i believe in God and that when i will die i will go to heaven and there is no way that people have cf in heaven and if there is no God then i wont know anything once i'm dead so i still wont have cf and if after life is like in the movies that seems fine too cuz i've never seen a ghost that is sick and it seems kinda fun to scare people hehe! To the eating disorder thing i get that too and if people don't say it i know they think it. Sometimes i wish i just had a sign that said no i don't have an eating disorder though they always teach in class that that is the kinda thing a person with an eating disorder would do. One thing i think is kinda stupid is that the people that are treating u for cf have no idea what its like to have cf.

laulau555 · Oct 19, 2008

I am a very positive person as well but CF does get stressful at times. people who don't have it CANNOT fully understand, even if they love you. they can support you and comfort you but they can't understand. Only a CFer can understand what its like, but thats not to say the people who love you and try to understand are bad people.

laulau555 · Oct 19, 2008

I am a very positive person as well but CF does get stressful at times. people who don't have it CANNOT fully understand, even if they love you. they can support you and comfort you but they can't understand. Only a CFer can understand what its like, but thats not to say the people who love you and try to understand are bad people.

laulau555 · Oct 19, 2008

I am a very positive person as well but CF does get stressful at times. people who don't have it CANNOT fully understand, even if they love you. they can support you and comfort you but they can't understand. Only a CFer can understand what its like, but thats not to say the people who love you and try to understand are bad people.

laulau555 · Oct 19, 2008

I am a very positive person as well but CF does get stressful at times. people who don't have it CANNOT fully understand, even if they love you. they can support you and comfort you but they can't understand. Only a CFer can understand what its like, but thats not to say the people who love you and try to understand are bad people.

laulau555 · Oct 19, 2008

I am a very positive person as well but CF does get stressful at times. people who don't have it CANNOT fully understand, even if they love you. they can support you and comfort you but they can't understand. Only a CFer can understand what its like, but thats not to say the people who love you and try to understand are bad people.

Raynie · Oct 23, 2008

Alyssa, I JUST got through battling the exact same battle with CF. My new phrase recently was "I just need a break from CF." I just want a month or so without it. But I've calmed down and I'm back to my old self. But what you said sounds almost exactly like my situation. I'm (7 days!) almost 18 and I've fought this my entire life too. (diagnosed a few days after birth) And you're completely right: only other people with CF understand. And dear, I UNDERSTAND. 100% completely. The most important thing is to keep a perspective on this whole thing: you are who you are because of CF. My favourite quote is from my grandmother but I'll apply it to you: "Alyssa has CF but CF does not have Alyssa." Stay strong, smile at each pill before you take it because it is keeping you well. God gave you an extra hour in the morning. Either sleep while you do treatment (I do!) or read a book or study for a test. Fighting with people just wastes energy, and it sounds like you are already tired. Just take a deep breath, relax, and start over. You've done this for 18 years. You can keep going. We all can.

Let me know if you need anything. I'm always around.

-Annie

Raynie · Oct 23, 2008

Alyssa, I JUST got through battling the exact same battle with CF. My new phrase recently was "I just need a break from CF." I just want a month or so without it. But I've calmed down and I'm back to my old self. But what you said sounds almost exactly like my situation. I'm (7 days!) almost 18 and I've fought this my entire life too. (diagnosed a few days after birth) And you're completely right: only other people with CF understand. And dear, I UNDERSTAND. 100% completely. The most important thing is to keep a perspective on this whole thing: you are who you are because of CF. My favourite quote is from my grandmother but I'll apply it to you: "Alyssa has CF but CF does not have Alyssa." Stay strong, smile at each pill before you take it because it is keeping you well. God gave you an extra hour in the morning. Either sleep while you do treatment (I do!) or read a book or study for a test. Fighting with people just wastes energy, and it sounds like you are already tired. Just take a deep breath, relax, and start over. You've done this for 18 years. You can keep going. We all can.

Let me know if you need anything. I'm always around.

-Annie

Raynie · Oct 23, 2008

Alyssa, I JUST got through battling the exact same battle with CF. My new phrase recently was "I just need a break from CF." I just want a month or so without it. But I've calmed down and I'm back to my old self. But what you said sounds almost exactly like my situation. I'm (7 days!) almost 18 and I've fought this my entire life too. (diagnosed a few days after birth) And you're completely right: only other people with CF understand. And dear, I UNDERSTAND. 100% completely. The most important thing is to keep a perspective on this whole thing: you are who you are because of CF. My favourite quote is from my grandmother but I'll apply it to you: "Alyssa has CF but CF does not have Alyssa." Stay strong, smile at each pill before you take it because it is keeping you well. God gave you an extra hour in the morning. Either sleep while you do treatment (I do!) or read a book or study for a test. Fighting with people just wastes energy, and it sounds like you are already tired. Just take a deep breath, relax, and start over. You've done this for 18 years. You can keep going. We all can.

Let me know if you need anything. I'm always around.

-Annie

Raynie · Oct 23, 2008

Alyssa, I JUST got through battling the exact same battle with CF. My new phrase recently was "I just need a break from CF." I just want a month or so without it. But I've calmed down and I'm back to my old self. But what you said sounds almost exactly like my situation. I'm (7 days!) almost 18 and I've fought this my entire life too. (diagnosed a few days after birth) And you're completely right: only other people with CF understand. And dear, I UNDERSTAND. 100% completely. The most important thing is to keep a perspective on this whole thing: you are who you are because of CF. My favourite quote is from my grandmother but I'll apply it to you: "Alyssa has CF but CF does not have Alyssa." Stay strong, smile at each pill before you take it because it is keeping you well. God gave you an extra hour in the morning. Either sleep while you do treatment (I do!) or read a book or study for a test. Fighting with people just wastes energy, and it sounds like you are already tired. Just take a deep breath, relax, and start over. You've done this for 18 years. You can keep going. We all can.

Let me know if you need anything. I'm always around.

-Annie

Raynie · Oct 23, 2008

Alyssa, I JUST got through battling the exact same battle with CF. My new phrase recently was "I just need a break from CF." I just want a month or so without it. But I've calmed down and I'm back to my old self. But what you said sounds almost exactly like my situation. I'm (7 days!) almost 18 and I've fought this my entire life too. (diagnosed a few days after birth) And you're completely right: only other people with CF understand. And dear, I UNDERSTAND. 100% completely. The most important thing is to keep a perspective on this whole thing: you are who you are because of CF. My favourite quote is from my grandmother but I'll apply it to you: "Alyssa has CF but CF does not have Alyssa." Stay strong, smile at each pill before you take it because it is keeping you well. God gave you an extra hour in the morning. Either sleep while you do treatment (I do!) or read a book or study for a test. Fighting with people just wastes energy, and it sounds like you are already tired. Just take a deep breath, relax, and start over. You've done this for 18 years. You can keep going. We all can.
<br />
<br />Let me know if you need anything. I'm always around.
<br />
<br />-Annie

Alyssaaaaxo · Oct 23, 2008

you are all incredible people. thank you all so much. you guys are really inspiring to me <img src="i/expressions/face-icon-small-smile.gif" border="0"> im just happy to have this place where we can all talk and people actually understand where im coming from. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Alyssaaaaxo · Oct 23, 2008

you are all incredible people. thank you all so much. you guys are really inspiring to me <img src="i/expressions/face-icon-small-smile.gif" border="0"> im just happy to have this place where we can all talk and people actually understand where im coming from. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Alyssaaaaxo · Oct 23, 2008

you are all incredible people. thank you all so much. you guys are really inspiring to me <img src="i/expressions/face-icon-small-smile.gif" border="0"> im just happy to have this place where we can all talk and people actually understand where im coming from. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Alyssaaaaxo · Oct 23, 2008

you are all incredible people. thank you all so much. you guys are really inspiring to me <img src="i/expressions/face-icon-small-smile.gif" border="0"> im just happy to have this place where we can all talk and people actually understand where im coming from. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Alyssaaaaxo · Oct 23, 2008

you are all incredible people. thank you all so much. you guys are really inspiring to me <img src="i/expressions/face-icon-small-smile.gif" border="0"> im just happy to have this place where we can all talk and people actually understand where im coming from. <img src="i/expressions/face-icon-small-smile.gif" border="0">

yay CF?! :/

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