"you look in good shape"

A

ariesapie

New member
"you look in good shape

That is very very aggrivating and frustrating. Personally its the fact that I have to admit to myself that I cant do certain things. I work with alot of women my age and younger and they all have active social lives and constantly ask me to come out with them and go to this party and that party. I hate saying NO because I want to have fun and enjoy things like that too, but by the time I am through for the day I still have alot to do at home. Even though all my chores, and nebs are done by 7 pm I dont have the extra energy to do those extra things. Most of the time I feel like the people around me think I am lazy, or a party pooper. I know its a little selfish but I wish just for 1 day they could experience what its like to live in a body that looks normal, but doesnt behave like a normal body should. OOh ya know what else I hate... I hate it when I start to cough uncontrollably and some smartass says,"hey way to go, smoke another one!"
 
A

ariesapie

New member
"you look in good shape

That is very very aggrivating and frustrating. Personally its the fact that I have to admit to myself that I cant do certain things. I work with alot of women my age and younger and they all have active social lives and constantly ask me to come out with them and go to this party and that party. I hate saying NO because I want to have fun and enjoy things like that too, but by the time I am through for the day I still have alot to do at home. Even though all my chores, and nebs are done by 7 pm I dont have the extra energy to do those extra things. Most of the time I feel like the people around me think I am lazy, or a party pooper. I know its a little selfish but I wish just for 1 day they could experience what its like to live in a body that looks normal, but doesnt behave like a normal body should. OOh ya know what else I hate... I hate it when I start to cough uncontrollably and some smartass says,"hey way to go, smoke another one!"
 
A

ariesapie

New member
"you look in good shape

That is very very aggrivating and frustrating. Personally its the fact that I have to admit to myself that I cant do certain things. I work with alot of women my age and younger and they all have active social lives and constantly ask me to come out with them and go to this party and that party. I hate saying NO because I want to have fun and enjoy things like that too, but by the time I am through for the day I still have alot to do at home. Even though all my chores, and nebs are done by 7 pm I dont have the extra energy to do those extra things. Most of the time I feel like the people around me think I am lazy, or a party pooper. I know its a little selfish but I wish just for 1 day they could experience what its like to live in a body that looks normal, but doesnt behave like a normal body should. OOh ya know what else I hate... I hate it when I start to cough uncontrollably and some smartass says,"hey way to go, smoke another one!"
 
A

ariesapie

New member
"you look in good shape

That is very very aggrivating and frustrating. Personally its the fact that I have to admit to myself that I cant do certain things. I work with alot of women my age and younger and they all have active social lives and constantly ask me to come out with them and go to this party and that party. I hate saying NO because I want to have fun and enjoy things like that too, but by the time I am through for the day I still have alot to do at home. Even though all my chores, and nebs are done by 7 pm I dont have the extra energy to do those extra things. Most of the time I feel like the people around me think I am lazy, or a party pooper. I know its a little selfish but I wish just for 1 day they could experience what its like to live in a body that looks normal, but doesnt behave like a normal body should. OOh ya know what else I hate... I hate it when I start to cough uncontrollably and some smartass says,"hey way to go, smoke another one!"
 
A

ariesapie

New member
"you look in good shape

That is very very aggrivating and frustrating. Personally its the fact that I have to admit to myself that I cant do certain things. I work with alot of women my age and younger and they all have active social lives and constantly ask me to come out with them and go to this party and that party. I hate saying NO because I want to have fun and enjoy things like that too, but by the time I am through for the day I still have alot to do at home. Even though all my chores, and nebs are done by 7 pm I dont have the extra energy to do those extra things. Most of the time I feel like the people around me think I am lazy, or a party pooper. I know its a little selfish but I wish just for 1 day they could experience what its like to live in a body that looks normal, but doesnt behave like a normal body should. OOh ya know what else I hate... I hate it when I start to cough uncontrollably and some smartass says,"hey way to go, smoke another one!"
 
N

NYCLawGirl

New member
"you look in good shape

The thing is that no one ever knows the limitations of anyone else except that individual. I actually find myself doing similar things with my "healthy" friends - making assumptions that they are lazy when they opt not to do something, probably largely because I'm jealous since I often have difficulty.

I work in a law firm, so I have to be super careful not to exhaust myself everyday. If someone suggests I do something that I'm physically unable to do, I have to dig in and say no regardless of how "good I look." Normally this comes in the form of my friends suggesting we just walk up three flights of stairs instead of waiting for the elevator. My stock response is just to smile and say brightly "I don't do stairs, but you should feel free. I'll meet you at the top." Most people understand, and if they think I'm lazy then that's really their problem and not mine. If it's your direct supervisor asking you to do something I would adopt a more formal approach. Maybe say "thanks for the compliment, but unfortunately CF sometimes effects me in ways that aren't visible and I really don't feel up to that task right now. Is there something I can do that involves less physical exertion?" If it really bothers you maybe even ask for a formal "sit down" chat and explain that CF, like many diseases, is extremely unpredictable, so you would appreciate it if in the future your administrator didn't make comments about how you "look" or seem, even if they're well-intentioned.

I have also had several conversations with friends, family, coworkers, etc explaining that sometimes, even when I look and feel pretty good, I have to take things easy to avoid GETTING sick. But I try to walk a fine line there - sometimes i catch myself not wanting to do something more out of fear or a distrust of my body's ability, when in actuality it's perfectly fine for me to do.

Bottom line: know your limits and be honest with others. Non-CFers are generally well meaning when they encourage their friends or co-workers to do something that's hard, so they won't judge you when you come clean and admit it's too much for you.
 
N

NYCLawGirl

New member
"you look in good shape

The thing is that no one ever knows the limitations of anyone else except that individual. I actually find myself doing similar things with my "healthy" friends - making assumptions that they are lazy when they opt not to do something, probably largely because I'm jealous since I often have difficulty.

I work in a law firm, so I have to be super careful not to exhaust myself everyday. If someone suggests I do something that I'm physically unable to do, I have to dig in and say no regardless of how "good I look." Normally this comes in the form of my friends suggesting we just walk up three flights of stairs instead of waiting for the elevator. My stock response is just to smile and say brightly "I don't do stairs, but you should feel free. I'll meet you at the top." Most people understand, and if they think I'm lazy then that's really their problem and not mine. If it's your direct supervisor asking you to do something I would adopt a more formal approach. Maybe say "thanks for the compliment, but unfortunately CF sometimes effects me in ways that aren't visible and I really don't feel up to that task right now. Is there something I can do that involves less physical exertion?" If it really bothers you maybe even ask for a formal "sit down" chat and explain that CF, like many diseases, is extremely unpredictable, so you would appreciate it if in the future your administrator didn't make comments about how you "look" or seem, even if they're well-intentioned.

I have also had several conversations with friends, family, coworkers, etc explaining that sometimes, even when I look and feel pretty good, I have to take things easy to avoid GETTING sick. But I try to walk a fine line there - sometimes i catch myself not wanting to do something more out of fear or a distrust of my body's ability, when in actuality it's perfectly fine for me to do.

Bottom line: know your limits and be honest with others. Non-CFers are generally well meaning when they encourage their friends or co-workers to do something that's hard, so they won't judge you when you come clean and admit it's too much for you.
 
N

NYCLawGirl

New member
"you look in good shape

The thing is that no one ever knows the limitations of anyone else except that individual. I actually find myself doing similar things with my "healthy" friends - making assumptions that they are lazy when they opt not to do something, probably largely because I'm jealous since I often have difficulty.

I work in a law firm, so I have to be super careful not to exhaust myself everyday. If someone suggests I do something that I'm physically unable to do, I have to dig in and say no regardless of how "good I look." Normally this comes in the form of my friends suggesting we just walk up three flights of stairs instead of waiting for the elevator. My stock response is just to smile and say brightly "I don't do stairs, but you should feel free. I'll meet you at the top." Most people understand, and if they think I'm lazy then that's really their problem and not mine. If it's your direct supervisor asking you to do something I would adopt a more formal approach. Maybe say "thanks for the compliment, but unfortunately CF sometimes effects me in ways that aren't visible and I really don't feel up to that task right now. Is there something I can do that involves less physical exertion?" If it really bothers you maybe even ask for a formal "sit down" chat and explain that CF, like many diseases, is extremely unpredictable, so you would appreciate it if in the future your administrator didn't make comments about how you "look" or seem, even if they're well-intentioned.

I have also had several conversations with friends, family, coworkers, etc explaining that sometimes, even when I look and feel pretty good, I have to take things easy to avoid GETTING sick. But I try to walk a fine line there - sometimes i catch myself not wanting to do something more out of fear or a distrust of my body's ability, when in actuality it's perfectly fine for me to do.

Bottom line: know your limits and be honest with others. Non-CFers are generally well meaning when they encourage their friends or co-workers to do something that's hard, so they won't judge you when you come clean and admit it's too much for you.
 
N

NYCLawGirl

New member
"you look in good shape

The thing is that no one ever knows the limitations of anyone else except that individual. I actually find myself doing similar things with my "healthy" friends - making assumptions that they are lazy when they opt not to do something, probably largely because I'm jealous since I often have difficulty.

I work in a law firm, so I have to be super careful not to exhaust myself everyday. If someone suggests I do something that I'm physically unable to do, I have to dig in and say no regardless of how "good I look." Normally this comes in the form of my friends suggesting we just walk up three flights of stairs instead of waiting for the elevator. My stock response is just to smile and say brightly "I don't do stairs, but you should feel free. I'll meet you at the top." Most people understand, and if they think I'm lazy then that's really their problem and not mine. If it's your direct supervisor asking you to do something I would adopt a more formal approach. Maybe say "thanks for the compliment, but unfortunately CF sometimes effects me in ways that aren't visible and I really don't feel up to that task right now. Is there something I can do that involves less physical exertion?" If it really bothers you maybe even ask for a formal "sit down" chat and explain that CF, like many diseases, is extremely unpredictable, so you would appreciate it if in the future your administrator didn't make comments about how you "look" or seem, even if they're well-intentioned.

I have also had several conversations with friends, family, coworkers, etc explaining that sometimes, even when I look and feel pretty good, I have to take things easy to avoid GETTING sick. But I try to walk a fine line there - sometimes i catch myself not wanting to do something more out of fear or a distrust of my body's ability, when in actuality it's perfectly fine for me to do.

Bottom line: know your limits and be honest with others. Non-CFers are generally well meaning when they encourage their friends or co-workers to do something that's hard, so they won't judge you when you come clean and admit it's too much for you.
 
N

NYCLawGirl

New member
"you look in good shape

The thing is that no one ever knows the limitations of anyone else except that individual. I actually find myself doing similar things with my "healthy" friends - making assumptions that they are lazy when they opt not to do something, probably largely because I'm jealous since I often have difficulty.

I work in a law firm, so I have to be super careful not to exhaust myself everyday. If someone suggests I do something that I'm physically unable to do, I have to dig in and say no regardless of how "good I look." Normally this comes in the form of my friends suggesting we just walk up three flights of stairs instead of waiting for the elevator. My stock response is just to smile and say brightly "I don't do stairs, but you should feel free. I'll meet you at the top." Most people understand, and if they think I'm lazy then that's really their problem and not mine. If it's your direct supervisor asking you to do something I would adopt a more formal approach. Maybe say "thanks for the compliment, but unfortunately CF sometimes effects me in ways that aren't visible and I really don't feel up to that task right now. Is there something I can do that involves less physical exertion?" If it really bothers you maybe even ask for a formal "sit down" chat and explain that CF, like many diseases, is extremely unpredictable, so you would appreciate it if in the future your administrator didn't make comments about how you "look" or seem, even if they're well-intentioned.

I have also had several conversations with friends, family, coworkers, etc explaining that sometimes, even when I look and feel pretty good, I have to take things easy to avoid GETTING sick. But I try to walk a fine line there - sometimes i catch myself not wanting to do something more out of fear or a distrust of my body's ability, when in actuality it's perfectly fine for me to do.

Bottom line: know your limits and be honest with others. Non-CFers are generally well meaning when they encourage their friends or co-workers to do something that's hard, so they won't judge you when you come clean and admit it's too much for you.
 
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