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Hello everyone! I just wondering how long time should i wait to i contact my cf / transpl doc? For the last few days i have had problems with my stomache to keep the food i eat. But no idea if it is due because of creon enzyms or because tx doc change my antirejection meds and my stomache...

Hello only wonder if someone got pregnent after you had your lungtransplant ? How Did it go ?? I am thinking of My future and if its possible To have children after you have had a lungtransplant ? Hugs /Marie

Hello i have a question for My friend in spain who got a new bacteria called Enterobacter gergoviae , and doc have no idea who To treat it atm, have anyone Else this bacteria?? What meds do u have To treat it? Can it be treated ? Thank you hug /Marie

Hello everyone As a few of you know i got a fungus infektion after my tx and it has been stable for a long time but start to get worse with my eye again. And docs said its nothing to do other than remove the eye :( and its nothing i want. So i searching help in another country. So wonder if...

i can not belive 6 yrs has passed since i received My lungtransplant. I am happy only to be here 6 years later. to know My life could have ended only 6 months post transplant Due to the bad fungusinfection. But My life is good now and iam closer than ever to compete one of My goals in life. 5...

<span class="hps">Hi, <span class="hps">I<span>'ve been thinking about writeing <span class="hps">my <span class="hps">final exam (<span class="hps">university) <span class="hps">in another countryU<span class="hps">sa, Canada. <span class="hps">any <span class="hps">suggestions for <span...

Hey i was searching on my ipod for new apps ( AppStore) and fund a few apps about cf. Spcially one called cysticfibrosis conect. It is free to download but i wonder f some of you know if its free to use? Seems like its a forum where you can chat ask questions etc. Thank u for any answer <img...

Hey i wonder if earinfections are common when you have cf. I used to have à lot of earinfections as a child. But today i had it again earinfection and my eardrum brust so on antibiotics now. Marie

Hello everyone! Most of you know about my fungusinfection and that the fungus destroyed my eyes badly. I went to my tx center 2days ago and everything went fine. But i am sure you all know or have had the feeling sometimes, when u feel it going to be good etc. I had the feeling my eyes got...

Hey the 2th of feb. Going to be a day i will light acandle for My donor and his/ her family. It going to be 5 yrs anniversary. Hugs

Hello everyone!I wonder something. I met a girl (cfer) at the childrens hospital many years ago and we became friends. later she got b cepacia. And i was not allowed to visit her anymore. But we have keep in contact over the years by phone and sms. But it has now been 1-2 yrs since i heard from...

I want to wish everyone merry christmas and a happy new year <img src="i/expressions/face-icon-small-smile.gif" border="0">

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<br><span class="hps">I wonder how common <span class="hps">is it to get <span class="hps">kidney stones <span class="hps">when you have <span class="hps">CF<span>.<span>? hug

I wonder how common is it to get kidney stones when you have CF? hug

<br>Hello everyone. I have a question.. wonder if any of you have problems with leg muscles. when it comes to cycling on an exercise bike. I take a course at college. where we will ride the exercise bike, and where we work in pairs. one takes the pulse every minute and write down the results...

Today the 1st of February around this time 12.00-13. 00 (Swedish time around lunch time) I received my call for new lungs 4 years ago. My transplant anniversary day is 2 February when the surgery was finished. But today I going to light a candle and think of the day 4 years ago and ofcourse of...

Sweden will host 2011 World Transplant Games. I am not sure if i going but hopefully. i wonder if someone else are going to the games ? HUGS/Marie

Hey everyone! One year ago I started to have problems with kidney stones and this year (2010) have I had 2 kidney stone surgeries. Now I am on inquiry to see if the doc can find out the reason why I get kidney stones. I have an idea it maybe could be the fungus med I am on called NOXAFIL...

Hey everyone! I know Pancrease is out of the system anyway i wondering what are the difference between Creon 10000 and pancrease? I know Creon is stronger but is it something else? I try accustom by taking Creon , so far my stomach not like it(i have try alot of times before too) but only to...