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I have been in the hospital for the past 12 days and on O2 for the second time (outside if surgery) and the longest time ever. I am down to 1.0 liter (from 4.0) and my sats are 96-97 on 1 liter. The problem is that I have been seeing little white "stars" since then and nobody says they have...

I have twice suffered unexpected side effects due to use of a particular medication. The first time, I didn't know that it could have contributed to the health issue; the second time, my doctors were pretty confident that the medication was to blame. Does anyone have any experience with this...

Since my last hospitalization and IV course (3 meds, 12 hours of infusion plus 6 sessions of RT per day), I've become really careful about catching infections from people. As a result, I have decided not to shake hands anymore, and not to hug anyone who I know is sick or might be sick. I don't...

I am 40 yr old female with CF, have had CFRD for 12+ years, Double Delta 508 mutations. I chronically culture strains of PA and MRSA. I have a lot of GI problems - GERD, IBS, DIOS, and Pancreatitis. I've been suffereing for five years with chronic pancreatitis pain and nausea. When the symptoms...

I have been taking 10,000 Units of Vitamin D daily since my last hospitalization (almost 2 months) because my levels very very, very low. For the past 3-4 weeks, I have been having severe IBS (irritable bowel) type symptoms - gas, stomach bloating, cramping pain and painful BM. I've had IBS in...

I just recently started using The Vest (about a month now) and I have correlated an increase in my pacnreatitis pain on days when I spend more time on the Vest. I was wondering if anyone else out there finds that the Vest aggravates their Pancreatitis. Physiologically, it makes sense bc the...

Anyone have experience with allergies kicking infections into high gear? I take Flonase and Zyrtec for my allergies (I've also tried all the other chronic allergy meds - Claritin, Allegra, etc. - but Zyrtec works best), and use saline rinses. I just restarted taking them within the past two...

There is a cute site where you can make videos with animated characters. I am not advertising the site, but wanted to share the video I made. <a...

Does anyone else here have more than a passing through about death? Like dreams, obsessive thoughts (yes, I've been in therapy) and a general fear that your current infection can go rogue?<br><br>I have a few CF friends who were moderately okay, had IVs once or twice a year, no huge progression...

Whenever I am actively sick, having a flareup of my PA, MRSA or Staph, my blood pressure drops. My normal BP is around 120/72, but when I'm sick, it drops (and stays low for periods of time). The lowest was 80/42.<br><br>During these times, I have felt l pretty weak and tired, but it's hard to...

My state has a form that can be filled out for people who have medical needs that might need to be known should a 911 call be called from the home number. Although it lists blindness, deafness or other specific "medical condition or disabilities," my state's form doesn't have an option to write...

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A different thread made me think of this question. What do you wear in the hospital? Obviously if there is surgery of some sort I would wear a johnny, but what about the other times? I have major sweating issues, so I try to dress as comfortably as possible. I keep the thermostat down low, and...

So I have CFRD. My recent HgA1c was near perfect. My doctors are very happy. I have improved my numbers My insurance requires me to purchase my maintenance medications by mail order pharmacy. Said pharmacy emailed me stating that I haven't reordered testing supplies since X date. I emailed...

Edited for privacy reasons. Lance, thanks for the suggestions. I have tried, but any attempt to talk about feelings gets me tagged as attention-seeking. It's just not worth it anymore to wonder why people are the way they are, even family.

I'm not sure if I posted this here before, but I know that a lot of us wake up with "morning yuckiness". Mine is a combination of a layer of mucous in the chest that has to be coughed up, my sinuses which need to be rinsed, pancreatitis pain that needs medication and a heating pad, achy joints...

Three weeks, productive cough and increased sputum, mild chest pain, four different antibiotics with no change, chest CT scan showing diffuse inflammation, PFTs (FVC and FEV1) down 15%. Waiting to hear from doc what he wants to do. Last two PICCs gave me blood clots. Problem is, I am not SUPER...

Do any women here have cycles of edema where, over the course of they day, gain more than the "average" amount of water weight over the course of a day or days, only to eventually lose it again in a short period of time (day, days)? I have been dealing with a condition called Idiopathic Cyclic...

My doc is thinking IVs, after 4 different antibiotics and prednisone over the past 3 weeks. New CT scans show pockets of inflammation "all over" (not localized). Nothing new growing on cultures, but due to inflammation, doc says that I might not be getting stuff out of those pockets to try to...

Over the past few years, I have developed additional complications from my CF, in addition to the usual stuff. I am very symptomatic from various conditions. I have several things going on that every day now, I am feeling cruddy. I try so hard to be positive and keep my mind strong, but I am...