The super duper supplement thread!

anonymous

New member
My supplements;

2 ADEK's

3 curcumin pills (500 mg each)

1 garlic pill (triple strength)

1 brewer's yeast pill

2 omega-3 pills (1500 mg each - 1 from flax source and 1 from fish source)

1 calcium + vitamin D pill (650 mg calcium, 200 IU vitamin D)

1 selenium pill (100 ug)

4 - 7 drops of oregano oil under tongue (Joy of the Mountains brand, extra stength kind, 75% caracrol)

4 puffs salbutamol inhaler (or ventolin as I've always called it)

1 tbsp extra virgin coconut oil (maybe I'm weird, but I think this stuff tastes great! I just eat it by the spoonful!)
 

anonymous

New member
My supplements;

2 ADEK's

3 curcumin pills (500 mg each)

1 garlic pill (triple strength)

1 brewer's yeast pill

2 omega-3 pills (1500 mg each - 1 from flax source and 1 from fish source)

1 calcium + vitamin D pill (650 mg calcium, 200 IU vitamin D)

1 selenium pill (100 ug)

4 - 7 drops of oregano oil under tongue (Joy of the Mountains brand, extra stength kind, 75% caracrol)

4 puffs salbutamol inhaler (or ventolin as I've always called it)

1 tbsp extra virgin coconut oil (maybe I'm weird, but I think this stuff tastes great! I just eat it by the spoonful!)
 

anonymous

New member
For inhaling GSH, you need buffered GSH Plus from theranaturals - 100 capsules is $35.

Oral GSH can be theranaturals GSH caps or liposomal GSH from www.gshnow.com

The current recommended dosage is 30mg/kg/day or 66mg/lb/day - some use more some less. Most people use a combinations or inhaled and oral to achieve the recommended dosage amount. The total daily dosage should be split into doses every 3 - 4 hours.

To prepare inhaled GSH - boil distilled water for at least 5 minutes or use sterile water vials. Mix one capsule with 3 - 5 ml of water.

From everything I have researched, nowhere did I find that GSH is toxic. In fact large doses are given to people who overdose on acetominophen and other drugs since GSH is used in detoxifiying the body. It is manufatured in the liver for this purpose.

On the other hand, NAC can be toxic to the liver if given in high doses.

Please refer to this website for alot of information about GSH and cystic fibrosis.

<a target=new class=ftalternatingbarlinklarge href="http://members.tripod.com/uvicf/research.htm
">http://members.tripod.com/uvicf/research.htm
</a>
Sean,

The NAC that you are currently taking is increasing your GSH levels in your liver, lymphocytes, and red blood cells. However, none of the GSH is reaching your lung lining fluid because it cannot be transported out of the cells due to the non-functioning CFTR. Inhaled GSH directly affects the lungs by reducing inflammation, attenuating neutrophils, and acting as a mucolytic.

Sorry to sound like a GSH salesperson. I just know that it has been a great help to my son.

One thing else, it is recommended that GSH is inhaled using a mask since it can also benefit the sinuses by reducing sinus infections and preventing polyps.

Tom
 

anonymous

New member
For inhaling GSH, you need buffered GSH Plus from theranaturals - 100 capsules is $35.

Oral GSH can be theranaturals GSH caps or liposomal GSH from www.gshnow.com

The current recommended dosage is 30mg/kg/day or 66mg/lb/day - some use more some less. Most people use a combinations or inhaled and oral to achieve the recommended dosage amount. The total daily dosage should be split into doses every 3 - 4 hours.

To prepare inhaled GSH - boil distilled water for at least 5 minutes or use sterile water vials. Mix one capsule with 3 - 5 ml of water.

From everything I have researched, nowhere did I find that GSH is toxic. In fact large doses are given to people who overdose on acetominophen and other drugs since GSH is used in detoxifiying the body. It is manufatured in the liver for this purpose.

On the other hand, NAC can be toxic to the liver if given in high doses.

Please refer to this website for alot of information about GSH and cystic fibrosis.

<a target=new class=ftalternatingbarlinklarge href="http://members.tripod.com/uvicf/research.htm
">http://members.tripod.com/uvicf/research.htm
</a>
Sean,

The NAC that you are currently taking is increasing your GSH levels in your liver, lymphocytes, and red blood cells. However, none of the GSH is reaching your lung lining fluid because it cannot be transported out of the cells due to the non-functioning CFTR. Inhaled GSH directly affects the lungs by reducing inflammation, attenuating neutrophils, and acting as a mucolytic.

Sorry to sound like a GSH salesperson. I just know that it has been a great help to my son.

One thing else, it is recommended that GSH is inhaled using a mask since it can also benefit the sinuses by reducing sinus infections and preventing polyps.

Tom
 

anonymous

New member
You can call me another Glut salesperson, too. It's really helped me.

My daily:

Vit A in the form of Cod liver oil (easily digestible)
Vit D
Vit E

(I just got my ADEK in the mail-I'm starting it tommorrow.)

Glutathione capsule

NAC capsule

Lysine

Zinc

Vit C

Mucinex

Albuterol, Tobi, Pulmozyme, Hypertonic Saline, Pulmocort

Protonix, Zithromax, Cipro...................Whew!!!

Christian
 

anonymous

New member
You can call me another Glut salesperson, too. It's really helped me.

My daily:

Vit A in the form of Cod liver oil (easily digestible)
Vit D
Vit E

(I just got my ADEK in the mail-I'm starting it tommorrow.)

Glutathione capsule

NAC capsule

Lysine

Zinc

Vit C

Mucinex

Albuterol, Tobi, Pulmozyme, Hypertonic Saline, Pulmocort

Protonix, Zithromax, Cipro...................Whew!!!

Christian
 

anonymous

New member
One thing I forgot to put is my last post about GSH:

The doctor who did the inhaled GSH study in the US can be contacted at gshtreatment@ihc.com

His name is Clark Bishop and he was a great help to us in the beginning. He will answer your questions and address your concerns.

Tom
 

anonymous

New member
One thing I forgot to put is my last post about GSH:

The doctor who did the inhaled GSH study in the US can be contacted at gshtreatment@ihc.com

His name is Clark Bishop and he was a great help to us in the beginning. He will answer your questions and address your concerns.

Tom
 

kybert

New member
vitabdeck
another multi vitamin which has more vitamins and mineral than vitabdeck and more of the b vitamins and iron than most other multivitamins
selenium
fish oil
magnesium
protein supplement
probiotics

i agree with risa about the gsh. people are overdosing on the stuff. please follow the instrustions on the bottle folks. anymore than that and you are overdosing and not to mention wasting your money.
 

kybert

New member
vitabdeck
another multi vitamin which has more vitamins and mineral than vitabdeck and more of the b vitamins and iron than most other multivitamins
selenium
fish oil
magnesium
protein supplement
probiotics

i agree with risa about the gsh. people are overdosing on the stuff. please follow the instrustions on the bottle folks. anymore than that and you are overdosing and not to mention wasting your money.
 

anonymous

New member
too much of anything is not good. Now too much money?? I have to think about that because if I had lots and lots I would set up funds for folks for folks with cf so all could benefit.<img src="i/expressions/face-icon-small-happy.gif" border="0"> and enjoy life to the full.
~Risa
 

anonymous

New member
too much of anything is not good. Now too much money?? I have to think about that because if I had lots and lots I would set up funds for folks for folks with cf so all could benefit.<img src="i/expressions/face-icon-small-happy.gif" border="0"> and enjoy life to the full.
~Risa
 

Faust

New member
Thanks a ton Tom. I'll get off my lazy rump tomorrow and get the ball rolling on the GSH. Adding another neb to my ritual will be a pain, but if the benefits are great, who cares. Question: Has anyone tried using the GSH in any of their other solutions? I'd like to add the GSH mixture to say my albuterol and oregano oil neb just to save time if that was possible. If GSH stable that way? Would it be harmed by any oils like OO or albuterol if I added them together? Think the GSH might mess with the oils properties?


And no, no sigh here, everyone discuss whatever they please supplement wise in this thread. Knowlege is power.
 

Faust

New member
Thanks a ton Tom. I'll get off my lazy rump tomorrow and get the ball rolling on the GSH. Adding another neb to my ritual will be a pain, but if the benefits are great, who cares. Question: Has anyone tried using the GSH in any of their other solutions? I'd like to add the GSH mixture to say my albuterol and oregano oil neb just to save time if that was possible. If GSH stable that way? Would it be harmed by any oils like OO or albuterol if I added them together? Think the GSH might mess with the oils properties?


And no, no sigh here, everyone discuss whatever they please supplement wise in this thread. Knowlege is power.
 

CowTown

New member
I just learned a ton on GSH tonight. It's incredible how our doctors (well mine anyways) have never talked about this before. The lack of GSH in our bodies is directly related to our defective CF gene, and we need to get GSH back into our bodies for our immune system's sake. I found some stuff from one of the links that Tom provided above. Thanks. Anyways, I wanted to share a couple of other links.

Several GSH Research Studies and Papers Related to CF:
http://members.tripod.com/uvicf/research/glutathione.htm

A very easy to understand paper called "A Layman's Explanation of GSH Augmentation Therapy for Cystic Fibrosis Patients":
http://members.tripod.com/uvicf/gsh/layman_gsh.htm

Therapeutic Approach:
"If you can't get GSH out of the cells because of the genetic defect, why not just take more into your body, whether by inhalation, oral supplementation, or even IV? In other diseases, this has worked effectively to restore normal levels of GSH. Restoring that GSH will prevent the oxidant damage, prevent the elastase damage and restore the killing capacity of the neutrophils -- which will in turn cause the body to produce less (that is, more normal levels of) neutrophils. The inflammation switch is turned to "off." Killer cells get the signal to "kill." Your mucus is thinner, as it should be. Lung protective coating is restored. Your body stops the bacteria and your body stops killing itself and starts effectively protecting itself." - Valerie M. Hudson, Ph.D. July 2000
 

CowTown

New member
I just learned a ton on GSH tonight. It's incredible how our doctors (well mine anyways) have never talked about this before. The lack of GSH in our bodies is directly related to our defective CF gene, and we need to get GSH back into our bodies for our immune system's sake. I found some stuff from one of the links that Tom provided above. Thanks. Anyways, I wanted to share a couple of other links.

Several GSH Research Studies and Papers Related to CF:
http://members.tripod.com/uvicf/research/glutathione.htm

A very easy to understand paper called "A Layman's Explanation of GSH Augmentation Therapy for Cystic Fibrosis Patients":
http://members.tripod.com/uvicf/gsh/layman_gsh.htm

Therapeutic Approach:
"If you can't get GSH out of the cells because of the genetic defect, why not just take more into your body, whether by inhalation, oral supplementation, or even IV? In other diseases, this has worked effectively to restore normal levels of GSH. Restoring that GSH will prevent the oxidant damage, prevent the elastase damage and restore the killing capacity of the neutrophils -- which will in turn cause the body to produce less (that is, more normal levels of) neutrophils. The inflammation switch is turned to "off." Killer cells get the signal to "kill." Your mucus is thinner, as it should be. Lung protective coating is restored. Your body stops the bacteria and your body stops killing itself and starts effectively protecting itself." - Valerie M. Hudson, Ph.D. July 2000
 

Faust

New member
@Mynewfy: You would be amazed at how much doctors either don't know about, or just won't tell us about when it comes to the benefits of things we can use supplement wise to help our condition. The premise behind western medicine is a total reactive approach, instead of a proactive approach. Thankfully we have the cystic fibrosis foundation around to try and get patient trials going regarding some substances that are considered "orphan drugs", and as such not many if any pharm companies are willing to invest real money into a potential product to help us.


There are doctors out there who do have an open mind, but not too many. Then you have the "I'm god, do as I say" ego types out there that further make problems for the patients. If CF patients were started off on (and had insurance pay for) supplements to help them deal with their malabsorption issues in the first place, you would see MANY more CF's now thriving than there are currently. Thank god that Hudson chick had some kids with CF and she took it as a personal agenda to look into every possible way to help our symptoms, or we might not have GSH being looked into now.


As it is, the potential to increase longevity and quality of life is pretty great now, considering everything. If you started to follow (and stuck to) a proper diet, chest clearance, exercise, strength resistance, proper supplement useage, and your standard medicine at a young age before your lungs were hamburger meat, you could more than likely drastically increase quality of life and possibly lifespan as well.


I know antibiotics have their place, but i'm personally sick of how they are used in this society, and especially with chronic illness like CF. Instead of SERIOUSLY putting effort into research to try and find substances that aren't toxic, and have basis in the natural world (from what I saw, GSH are just Amino Acids), they just give us some vitamins and either keep us on preventative antibiotics, or give us more antibiotics when we do get sick, then we get sick again and the cycle continues.

Something that treats the root of our symptoms is what's needed, like very strong antioxidants and natural strong antiinflamatories that both stop the cycle and save our lungs before they are too far gone. The principle behind GSH is awesome, and I hope it turns out to be exactly what they think it will be. I mean look at me, i'm a perfect example of this premise i'm talking about. I've been on conventional CF meds (including all the antibiotics) my entire life, and while I have good lungs for a 35 year old CF patient, if I would have had a medical professional show me the wonderful world of some of these supplements a long time ago, I would probably have much less lung damage than I do today. Look what just Oregano Oil has done for me. CF related arthritis, and my horrible gout 100% gone, where two of the most popular conventional medications couldn't help me. Look at my lungs now, as opposed to before with just the antibiotic approach. I'm like a completely different person now, and thats with not even trying GSH yet. In my opinion, our approach is totally flawed. Regardless if you believe in god or nature or whatever, everything we could ever need was put here for us to use (regardless by what), and all we need to do is look around and do research to find what works on what. Manage our symptoms with substances that don't totally disrupt our entire bodies ecosystem, and save the real antibiotics for when we are really in trouble.

Antibiotics are like using a daisy cutter bomb on a wonderful underwater reef, just to kill one fish. But the rest of all that wonderful marine life that is almost always killed off with that bomb, many are helpful to our health. Sadly, western medicine sees nothing wrong with killing the entire reef to kill off one fish. Not to mention down the road that fishes offspring will be back and have armor to thwart your bomb <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

Faust

New member
@Mynewfy: You would be amazed at how much doctors either don't know about, or just won't tell us about when it comes to the benefits of things we can use supplement wise to help our condition. The premise behind western medicine is a total reactive approach, instead of a proactive approach. Thankfully we have the cystic fibrosis foundation around to try and get patient trials going regarding some substances that are considered "orphan drugs", and as such not many if any pharm companies are willing to invest real money into a potential product to help us.


There are doctors out there who do have an open mind, but not too many. Then you have the "I'm god, do as I say" ego types out there that further make problems for the patients. If CF patients were started off on (and had insurance pay for) supplements to help them deal with their malabsorption issues in the first place, you would see MANY more CF's now thriving than there are currently. Thank god that Hudson chick had some kids with CF and she took it as a personal agenda to look into every possible way to help our symptoms, or we might not have GSH being looked into now.


As it is, the potential to increase longevity and quality of life is pretty great now, considering everything. If you started to follow (and stuck to) a proper diet, chest clearance, exercise, strength resistance, proper supplement useage, and your standard medicine at a young age before your lungs were hamburger meat, you could more than likely drastically increase quality of life and possibly lifespan as well.


I know antibiotics have their place, but i'm personally sick of how they are used in this society, and especially with chronic illness like CF. Instead of SERIOUSLY putting effort into research to try and find substances that aren't toxic, and have basis in the natural world (from what I saw, GSH are just Amino Acids), they just give us some vitamins and either keep us on preventative antibiotics, or give us more antibiotics when we do get sick, then we get sick again and the cycle continues.

Something that treats the root of our symptoms is what's needed, like very strong antioxidants and natural strong antiinflamatories that both stop the cycle and save our lungs before they are too far gone. The principle behind GSH is awesome, and I hope it turns out to be exactly what they think it will be. I mean look at me, i'm a perfect example of this premise i'm talking about. I've been on conventional CF meds (including all the antibiotics) my entire life, and while I have good lungs for a 35 year old CF patient, if I would have had a medical professional show me the wonderful world of some of these supplements a long time ago, I would probably have much less lung damage than I do today. Look what just Oregano Oil has done for me. CF related arthritis, and my horrible gout 100% gone, where two of the most popular conventional medications couldn't help me. Look at my lungs now, as opposed to before with just the antibiotic approach. I'm like a completely different person now, and thats with not even trying GSH yet. In my opinion, our approach is totally flawed. Regardless if you believe in god or nature or whatever, everything we could ever need was put here for us to use (regardless by what), and all we need to do is look around and do research to find what works on what. Manage our symptoms with substances that don't totally disrupt our entire bodies ecosystem, and save the real antibiotics for when we are really in trouble.

Antibiotics are like using a daisy cutter bomb on a wonderful underwater reef, just to kill one fish. But the rest of all that wonderful marine life that is almost always killed off with that bomb, many are helpful to our health. Sadly, western medicine sees nothing wrong with killing the entire reef to kill off one fish. Not to mention down the road that fishes offspring will be back and have armor to thwart your bomb <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

Faust

New member
Case in point, read this (i've posted this before, but some might have missed it):




"For every cell in your body, you support 10 bacterial cells that make vitamins, trigger hormones, and may even influence how fat you are. Guess what happens to them when you pop penicillin?."



<a target=new class=ftalternatingbarlinklarge href="http://www.discover.com/issues/nov-05/features/are-antibiotics-killing/">Good Read</a>
 

Faust

New member
Case in point, read this (i've posted this before, but some might have missed it):




"For every cell in your body, you support 10 bacterial cells that make vitamins, trigger hormones, and may even influence how fat you are. Guess what happens to them when you pop penicillin?."



<a target=new class=ftalternatingbarlinklarge href="http://www.discover.com/issues/nov-05/features/are-antibiotics-killing/">Good Read</a>
 
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