The super duper supplement thread!

bgchastain

New member
Here are my supplements
Multivitamin
Vit E
Omega-3 (fish oil)
L-Glutamine
Jarrow Acidolphis probiotic
Oreganol P-73 reg. strength pills

waiting for the water soluable oregano oil to neb.
 

bgchastain

New member
Here are my supplements
Multivitamin
Vit E
Omega-3 (fish oil)
L-Glutamine
Jarrow Acidolphis probiotic
Oreganol P-73 reg. strength pills

waiting for the water soluable oregano oil to neb.
 

CowTown

New member
Bonnie, how much omega-3 and Glutamine do you take?
Also, what does your doctor say about you taking those two, and the OO?
I'm going to talk to my doctor next month about all these things, it'll be interesting to see what he thinks.
 

CowTown

New member
Bonnie, how much omega-3 and Glutamine do you take?
Also, what does your doctor say about you taking those two, and the OO?
I'm going to talk to my doctor next month about all these things, it'll be interesting to see what he thinks.
 

catboogie

New member
here are my suppliments as i remember:

(daily)
Calcium
Omego-3 fish oils
ADEK
p 73 oregano oil (inhaled only, currently)

(often but not daily)
echinacea
Vitamin C
l-glutamine (powder)

(only when i'm sick or getting sick)
lots and lots more Vitamin C
echinacea
astragalus
garlic
zinc lozenges

(in the summer)
salt pills
 

catboogie

New member
here are my suppliments as i remember:

(daily)
Calcium
Omego-3 fish oils
ADEK
p 73 oregano oil (inhaled only, currently)

(often but not daily)
echinacea
Vitamin C
l-glutamine (powder)

(only when i'm sick or getting sick)
lots and lots more Vitamin C
echinacea
astragalus
garlic
zinc lozenges

(in the summer)
salt pills
 

bgchastain

New member
I take 1000 MG of the L-Glutamine and 1200 MG of Omega 3. My dr's where happy that I was trying new things on my own. I've never had a problem taking all of them together. I've been doing all of this for about 6 months now. I feel great and my drs didn't have a problem with it at all. Their exact words were "your the only one who can get you through this disease" and that's sooo true. Hope that helps.
 

bgchastain

New member
I take 1000 MG of the L-Glutamine and 1200 MG of Omega 3. My dr's where happy that I was trying new things on my own. I've never had a problem taking all of them together. I've been doing all of this for about 6 months now. I feel great and my drs didn't have a problem with it at all. Their exact words were "your the only one who can get you through this disease" and that's sooo true. Hope that helps.
 

CowTown

New member
I have a couple of questions about the oil of oregano. I was reading last night about it (finally) and some places stated that it is not good for long term use, there can be liver damage associated with this oil after a prolonged time. Other places said that it is fine to use with chronic illnesses as long it's not over use and given more than the recommended dosage.

Sean, what is your take on OO for long term use? I know you're doing it but any thoughts about what they say? It scares me a little (for myself), long term that is. I wonder if you use it for short term when you really need it. I also wonder if just oil dops under the tongue would be more of a long term use routine, since it's not so direct to the lungs. Also, I know your PFTs dropped to around 47% and then you took OO and they're up to like 90% now. What was your base line before they dropped to 47%? What did you drop from, 90%? Or have you surpassed even what you expected, PFT wise?

Any thoughts on this?
 

CowTown

New member
I have a couple of questions about the oil of oregano. I was reading last night about it (finally) and some places stated that it is not good for long term use, there can be liver damage associated with this oil after a prolonged time. Other places said that it is fine to use with chronic illnesses as long it's not over use and given more than the recommended dosage.

Sean, what is your take on OO for long term use? I know you're doing it but any thoughts about what they say? It scares me a little (for myself), long term that is. I wonder if you use it for short term when you really need it. I also wonder if just oil dops under the tongue would be more of a long term use routine, since it's not so direct to the lungs. Also, I know your PFTs dropped to around 47% and then you took OO and they're up to like 90% now. What was your base line before they dropped to 47%? What did you drop from, 90%? Or have you surpassed even what you expected, PFT wise?

Any thoughts on this?
 

Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>MyNewfy</b></i><br>I have a couple of questions about the oil of oregano. I was reading last night about it (finally) and some places stated that it is not good for long term use, there can be liver damage associated with this oil after a prolonged time. Other places said that it is fine to use with chronic illnesses as long it's not over use and given more than the recommended dosage.



Sean, what is your take on OO for long term use? I know you're doing it but any thoughts about what they say? It scares me a little (for myself), long term that is. I wonder if you use it for short term when you really need it. I also wonder if just oil dops under the tongue would be more of a long term use routine, since it's not so direct to the lungs. Also, I know your PFTs dropped to around 47% and then you took OO and they're up to like 90% now. What was your base line before they dropped to 47%? What did you drop from, 90%? Or have you surpassed even what you expected, PFT wise?



Any thoughts on this?<hr></blockquote>


In my 20's, unless I was sick, i was almost always around 100%, but I was still always very chunky. Before I got sick and dropped down to 47% I was (If I remember correctly) about 87% when not sick. After one of my PFT's I noticed my smalls had gone down quite a ways, and my overall % was down a good deal as well. I wasn't "bouncing back" baseline wise, like I used to in my 20's. After I did the OO, when I was down to 47% (to me that is a HUGE drop), I went up to 99%, which was the area I was used to being in, when not sick, in my 20's. The only thing I did different was the oregano oil. They pumped me full with antibiotics for 24 days, and I developed an "unknown organism" in my lungs afterwards. The best they could get me to was like 83%, and I STILL had that real nasty crap in my chest. And thats when I started taking the OO.

As far as long term use, I have read the same things. I've been doing the OO straight, in several forms at the same time, for 6 months now (coming up on 7 months). I have had complete blood work done twice and a full exam twice, and both times all my readings were fine. I think the recommendations about not doing them long term were made for normal people, and not someone battling multi nasty bacteria infestations in their body. I also drink occasionally, so i'm sure if it was having any effect on my liver, I would surely know about it. To me, any potential risk (VERY potential in this case) are far outweighed by the benefits i'm receiving. If I would have never started the OO, who knows where I would be now, because the docs and medicine couldn't help me anymore and I wasn't flourishing anymore.


For anyone with concerns like this, I recommend they try the oil for a month, if no negative side effects present themselves and the patient feels much better, continue the treatment for say 3 months, and then go to one of your doctors and get a full blood work done, and look to see what a before and after reading of your liver function is.
 

Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>MyNewfy</b></i><br>I have a couple of questions about the oil of oregano. I was reading last night about it (finally) and some places stated that it is not good for long term use, there can be liver damage associated with this oil after a prolonged time. Other places said that it is fine to use with chronic illnesses as long it's not over use and given more than the recommended dosage.



Sean, what is your take on OO for long term use? I know you're doing it but any thoughts about what they say? It scares me a little (for myself), long term that is. I wonder if you use it for short term when you really need it. I also wonder if just oil dops under the tongue would be more of a long term use routine, since it's not so direct to the lungs. Also, I know your PFTs dropped to around 47% and then you took OO and they're up to like 90% now. What was your base line before they dropped to 47%? What did you drop from, 90%? Or have you surpassed even what you expected, PFT wise?



Any thoughts on this?<hr></blockquote>


In my 20's, unless I was sick, i was almost always around 100%, but I was still always very chunky. Before I got sick and dropped down to 47% I was (If I remember correctly) about 87% when not sick. After one of my PFT's I noticed my smalls had gone down quite a ways, and my overall % was down a good deal as well. I wasn't "bouncing back" baseline wise, like I used to in my 20's. After I did the OO, when I was down to 47% (to me that is a HUGE drop), I went up to 99%, which was the area I was used to being in, when not sick, in my 20's. The only thing I did different was the oregano oil. They pumped me full with antibiotics for 24 days, and I developed an "unknown organism" in my lungs afterwards. The best they could get me to was like 83%, and I STILL had that real nasty crap in my chest. And thats when I started taking the OO.

As far as long term use, I have read the same things. I've been doing the OO straight, in several forms at the same time, for 6 months now (coming up on 7 months). I have had complete blood work done twice and a full exam twice, and both times all my readings were fine. I think the recommendations about not doing them long term were made for normal people, and not someone battling multi nasty bacteria infestations in their body. I also drink occasionally, so i'm sure if it was having any effect on my liver, I would surely know about it. To me, any potential risk (VERY potential in this case) are far outweighed by the benefits i'm receiving. If I would have never started the OO, who knows where I would be now, because the docs and medicine couldn't help me anymore and I wasn't flourishing anymore.


For anyone with concerns like this, I recommend they try the oil for a month, if no negative side effects present themselves and the patient feels much better, continue the treatment for say 3 months, and then go to one of your doctors and get a full blood work done, and look to see what a before and after reading of your liver function is.
 

anonymous

New member
how do you get the o oil for nebulizer how often do you use it and what kind . im 25 and doing pretty good went for a hospital stay at 19 for first time now its once a year for 2 weeks. i excersice regularly and try to stay in shape i just recently started taking oil of oreg. pills just prior to my last visit in feb. of 06 but didnt get to take them long enough to notice anything.i also take acidopholys and calcium pills and a vitamin. can you put me into the direction on stuff i neet to be taking i do feel that this helps better than antibiotics but doctors cant tell you that or they will get into trouble thanks a lot man . kevin
 

anonymous

New member
read some of your smashing info on site , bit scared as parent of cf baby. can you advise on supplements as dieticians dont seem to be very helpful so far.Mariella is 13 months had bowel blockage at birth and is currenttly well. {unlike nutty mother} with thanks sula
 

john81john

New member
Hi,

really great idea Sean, thanks.

So here are my meds. and supplements:
MEDICAMENTS:
<b>Pulmozyme</b> 1x 2.5 ml nebulised with european PARI eFlow Rapid
<b>Hypertonic saline</b> 2x10ml nebulised with european PARI eFlow Rapid
<b>Saline solution</b> 2x15 ml nebulised with european PARI eFlow Rapid
<b>Symbicort Turbohaler</b> 2x1 (bronchodilator) budesonidum 200 microgramm, formoteroli fumaras dihydricus 6 microgramm
<b>Creon 25000</b> 30-35 caps. daily
<b>Wobenzyme</b> 10-15 caps. daily

SUPPLEMENTS:
<b>Vit. E</b> caps. 2-3 x 200mg daily
<b>Vit. C</b>
<b>Na-Mg-Zn complex</b>
Na 333mg
Mg 133 mg
Zn 8.3 mg

<b>Ale yeasts (saccharomyces cerevisiae)</b> 3x4 tablets (0,45 g each) B1,B2,B6,B12 etc.
<b>BioMare imuno (oil from sharks liver) </b>2x3 caps. (300mg) (From Finland)

I have taken, and I want to start take it again:
<b>Omega 3 </b> 2-3 caps.
<b>Essential oregano oil 30% with 70% olive oil</b> 2x2 drops into water and eat it(from finland)
Acidophillus</b>
I want to start take :
<b>GSH</b>, I will study if oral caps. or ihnaled doses, it will depends on european market availability too...
<b>Oregano P73</b> caps. or inhaled doses,it will depends on european market availability too...

I am 25, FEV1 90% 75Kg, after inhalation I feel fine and I can play tennis or do mountain biking, but before...Good luck to all !
 

anonymous

New member
I'm 17 with CF, and have never heard of adding anything to a nebulizer aside from my prescribed meds! I've always wanted to add root beer to a ned and let it mist with me holding it away, just out of curiosity, but my mom was quite adamant about how that would "wreck the machine" lol, so I never tried it.

I'm quite intrigued by the oregano oil and GSH inhaled though. I'm in Alberta, Canada and my doctors have never even hinted about anything like that. Where could I buy some and what doses should I get, I'd like to get started asap <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

anonymous

New member
Sean,
Do you find the Oreganol works for you? Do you notice any effect on congestion.
Here's a few more that I take
Co Q 10
Protein pills
colustrum
Mega doses of Acidophilous ( Bio K Brand is great)
theres more I'll have to go look.
 

anonymous

New member
Its different. The Stuff in Nutrasweet is bad. Aminos are ok unless you have this disease called PKU where you can not assimilate the phenaline.
When I eat nutrsweet i get brain numbing headaches and blurry vision real bad. I do have PKU, I do take lots of aminos.
 

anonymous

New member
I also neb Colloidal silver, wait before people gasp I use a brand called ASAP Solutions at 22 ppm. Does it work It is hard to tell. I end up taking so many things it is hard to keep track.
I also have been doing IV hydrogen peroxide. It kills stuff but not like I was hoping. I take it 2 times per week at a health clinic and and MD administers it.
I was taking a single dose for about 4 times and had some but not great results, I just started taking a double dose and it kicks it up a notch. I'll keep you posted. If any one has any questions feel free to email me rmotion @ yahoo
Obviously dont take h202 the kind in the drug strore I go to a doctor and get it in IV form. Ingesting or inhaling h202 is very dangerous. Google hydrogen peroxide therapy for research called " Hydrogen Peroxide Medical Miracle" by William Cambell Dougalas MD
 
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