Recent content by concernedmom

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    what to do when i get frustrated/sad/discouraged

    Just speaking as a mother (not a cfer), given the choice between helping my child financially in order to allow her to be healthier and happier, or spending the money on myself, I would choose spending the money on my child. Every time. If your parents can, and are willing to/want to, then let...
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    stockpiling for civil unrest?

    Kind of, sort of? Not so much for civil unrest as for the possibility that there could/will be (1) civil unrest, (2) financial collapse, (3) natural disaster, (4) loss of job/income, (5) flu or other public health epidemic, (6) (insert other possible scenario.) What we are doing: stocking...
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    Someone turned my child into a flippin' germaphobe

    I second having him evaluated! I'm far from an expert on the subject; however, OCD and anxiety disorders run in my family (along with ADHD, bipolar, and schizophrenia.) While the MIL's comments certainly could have helped kick it up in high gear, if he's truly OCD, it was going to happen...
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    Need Help With My Husband

    He definitely should be evaluated considering his family history! I'd just stress that you and the children need him to be as healthy as he possibly can be and that means finding out whether he has cf or not (so that he can be treated if he does.) In my experience, many men take their role as...
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    Neuropsychiatric events with Singulair

    All of my children and DH have been on singulair at various times ranging from a few months to several years each. We didn't notice any neuropsychiatric events at the time. One DS is ADHD with mild adjustment disorder and the other DS has generalized anxiety disorder (GAD), ADHD, and...
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    Daughter without CF

    Can you ask the doctor to file an appeal (don't know anything really about Canada's system but I would assume there's an appeals process.) Appeal on the grounds that continuously repeating sweat tests will/is probably already more expensive than just running the genetics test for the two...
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    Nurse Case Manager through the ins.company

    In the early 2000s, our Anthem policy had a voluntary case management program for various chronic illnesses. If you participated, you received up to $300/yr in gift cards for various places such as pharmacies, athletic wear stores, etc. We participated solely to get the rewards. In our case...
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    What allergy medicenes do you take that helps?

    I wouldn't rule out claritin as a culprit (though I agree that it sounds like you have other issues that could be causing the rapid heart rate.) My sister (no cf) had several weeks of tachycardia last summer seemingly out of the blue. It went on for close to two months. She was skipping beats...
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    Worrisome topic - Large Corporations are self insuring

    I'm the plan administrator for our group plan (~20 employees.) We've never gone the fully self-funded route but have partially self-funded (ie self fund up to a set amount/employee/participant with a major medical policy that kicks in when the employee hits that set amount.) In that case, most...
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    Worrisome topic - Large Corporations are self insuring

    I'm the plan administrator for our group plan (~20 employees.) We've never gone the fully self-funded route but have partially self-funded (ie self fund up to a set amount/employee/participant with a major medical policy that kicks in when the employee hits that set amount.) In that case, most...
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    Has your Cf child had whooping cough?

    I would imagine it would be pretty rough on a non-immunized cfer. Our non-cfer had whooping cough 20 yrs ago, just after his first b-day. Since he was partially immunized and there wasn't an epidemic in our area, it took two ER visits and several doctor visits before he was finally tested and...
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    Has your Cf child had whooping cough?

    I would imagine it would be pretty rough on a non-immunized cfer. Our non-cfer had whooping cough 20 yrs ago, just after his first b-day. Since he was partially immunized and there wasn't an epidemic in our area, it took two ER visits and several doctor visits before he was finally tested and...
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    ER Waiting Rooms

    Thankfully, we've only had to use the ER a handful of times. All but one of those times the child was in distress (either respiratory distress or anaphylactic shock) and taken back immediately. The only time we stayed in the waiting room was when they suspected meningitis. DS did not have it...
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    ER Waiting Rooms

    Thankfully, we've only had to use the ER a handful of times. All but one of those times the child was in distress (either respiratory distress or anaphylactic shock) and taken back immediately. The only time we stayed in the waiting room was when they suspected meningitis. DS did not have it...
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    ER Waiting Rooms

    Thankfully, we've only had to use the ER a handful of times. All but one of those times the child was in distress (either respiratory distress or anaphylactic shock) and taken back immediately. The only time we stayed in the waiting room was when they suspected meningitis. DS did not have it...
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