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I'm a little surprised that this story needed to be told. Today I turned 65 but it was just yesterday I was fifteen. I can put on my age 15 mind and do a pretty good job of relating to the fifteen year old of today. I'm lucky enough to have lived through fifteen and then live long enough to...

Mike Brown, I read over your post again because I knew something sounded familiar concerning your list of symptoms, that I meant to address. I would add the tight chest and constantly feeling full or what could be gastritis as well as strong indicators of a gallbladder attack. Along with CF...

Usually the state of the patient's health issues like failure to thrive, thick mucus with constant lung and ENT (Ear, Nose and Throat) infections AND a positive sweat test are adequate for a CF diagnosis. A positive sweat test and the results of genetic testing aren't sufficient on their own...

That pain in your upper right abdominal quadrant is typical of pancreatitis and/or a gallbladder attack. There's nothing inherently wrong with Zenpep or Creon and Pertze for that matter. They shouldn't even be affecting you for at least an hour or so after taking them because they normally...

Gastritis and GERD (GastroEsophageal Reflux Disease) were my early CF symptoms as it was with my CF father. If mom has CF, that alone is justifiable reason to have a sweat test. CF is a disease divided at the diaphragm. CF can be active in any wet organs, especially those with a "stem of grapes"...

Wow! One should expect the dentist to at least double check her/his PDR before administering anesthesia for someone with a serious respiratory disease. Thanks for the warning, I was wondering what the interaction might be when I saw the post topic. I half expected it would act like nitrous...

Great News! I seem to recall a topic post on P.a. where biofilms were discussed. With mucoid and non mucoid forms of P.a. grown in algenic acid or Agar agar plates and tubes. Algenic acid is the biofilm made when P.a. turns mucoid. This is wonderful. With Kalydeco and many other genetic...

Purursha, I am a sucker for most new ideas. So much so that I maintain a laboratory for testing the sorts of things like colloidal silver and Petro-Carbo salve. I've added MMS to my list. I was one of those who went along with my friends taking Timothy Leary's advice to " tune in, turn on and...

Born in 1950, I turned 18 in 1968 so my father and grandfather's participated in the two world wars accordingly. My brother is five years older and joined the Army after completing his second year of University in 1966. He had been in the ROTC (Reserve Officer's Training Corp) program and after...

Ooh! I just looked up MMS as in Magic Mineral Solution? I hope I'm on the correct one. Having read the entire thread, trust me, you struck a nerve. Bad medicine is a hot topic and MMS is bad medicine. We can almost sense your rebellion against conventional medicine. It's not uncommon at a...

Enzo, you’re not alone in struggling to get enzymes and food just right, or even close in some cases. Being bloated, having unpleasant bowel movements, pain and nausea are the price of a CF gut. My experience with GI doctors and enzyme adjustment has been less than stellar. It's been my nature...

Sorry, it appears no CFers live in "Looziana". I don't do Facebook but it might be the direction to expand your search. Cystic Fibrosis. Com has a lot of action on Facebook and more young adults I would assume. LL

When I looked at the pictures of the Vibralung, I was somewhat surprised that the acoustic driver, the speakers if you will, are integrated into the mouthpiece. The concept of using sound inside the airways and lung is fantastic, and it sounds like it has been tried when the technology wasn't as...

I need to hurry up. Last year two products I was developing suddenly hit the market which meant I was at least a year behind. Vibralung or something acoustic to replace the pelting of a vest has been something I hit on about six months ago. In a former life I was doing digital signal...

To be clear, pancreatic insufficiency usually is exocrine insufficiency or EPI as doctors use the term when they wish to be clear whether they are referring to digestive enzyme production or insulin production, IPI, since endocrine pancreatic insufficiency would likely be the same acronym. Total...

Earlier in this discussion I mentioned that several of my specialists have recently retired including my GI doctor. My new doctors were doing their own evaluations, which was fine with me. The changes have yielded some positive results regarding that 11/10 stomach pain. In short, I have had a...

I was intrigued to learn that breast augmentation can help resolve the accentuated problem of being a woman, with a barrel chest. For what it's worth, I support the decision, it is corrective surgery. You shouldn't have any difficulty with any prerequisites for the procedure. Although it is day...

Sometimes we just need to yield to Mother Nature. Sometimes we all need some time to unplug which is what I did. Neighbors were celebrating their mother's 49th birthday built a gigantic snow slide by filling in a snow drift almost to the roof line on their house and building a bank in the street...

When I was in school in the fifties and sixties the schools didn't involve themselves with any medicines except at a parent's request. I didn't have any children but was involved in the lives of my sister's children, sometimes they lived with us, involved. My eldest niece was in school beginning...

Thank you for sharing your homage to your son. A handsome young man with a vibrant and obvious expression of a thirst for experience and joy for life shines throughout your homage. It is a tribute to the family that fostered a loving, complete and cohesive environment to thrive within. If you...