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I'm so very sorry for your loss. I can not imagine what it feels like to lose a child. Many of us here on the forum that have cf know how tough the daily grind can be on us at times. But my heart goes out to you parents that have children that have cf. To watch ones child grow sicker, suffer...

Staph continuously gives me problems. I culture it every time I give a sample. I also culture MAC (being treated for it the last 9 months; have not cultured it since I started treatment) and HI. I frequently battle infections. Sputum green all the time. I take oral antibiotics (I've taken a...

MamaScarlett, congrats on your 2nd half marathon!! Way to go. I know you will do great! ;)

I think it is very important for you to see a CF clinic as you mentioned. If you have not been there yet, how have they diagnosed you? It is important for the CF clinic to do a sweat test on you and then do a test to determine which mutations you do have. The fact that you were diagnosed at 28...

Thanks for the suggestions and sharing your experience.

I was diagnosed last year with a lingula that was collapsing and that is plagued with bronchiectasis. When it flares up it causes a good deal of pain on my left side, right under my left chest. It can be quite annoying and sometimes can make it difficult to beathe. The pain had disappeared for a...

I'm so sorry that you have this anxiety about your liver as well. I currently am on a number of meds to treat MAC. At first my liver numbers were high. Then my doctor suggested milk thistle, a great liver detox. I take it every day along with dandelion root and it has gotten my liver numbers...

Stacey, I am currently being treated for MAC. My CF doctor along with the Infectious disease doctor weighed whether to treat it or not. They took a CT scan to see what effect the MAC was having. They saw some nodules, but nothing too significant. We waited a bit, but I was having recurring...

In early September I got the flu shot. This year's vaccine covered four different strains. I was doing ok, then this past weekend I came down with a very high fever, almost 105F, that came on quickly. In short, I was hospitalized for two days. In the hospital they told me that I had gotten the...

Kmhbeauty, I understand why you might start to feel broken. Cf in general can do that to us at times, especially those days where you just have no energy as you describe. There were weekends that I would just stay in bed too. MAC was doing a number on me. Since I'm on the treatment, I have more...

I am currently being treated for MAC with a triple antibiotic cocktail of rifampin, ethambutol and azithromycin. I started the treatment 5 months ago. I have not cultured MAC since I started being treated for it. MAC was making me miserable. It was sapping my energy, I had low grade fevers often...

male Age: 43 Weight: 180 Height: 6'1"

I am 43 diagnosed at 41. I probably should have been diagnosed in my late 20's. Doctors fumbled me all over the place. FEV right now is in the upper 80s. It was 74 when I was diagnosed and it was about at that same mark just before I began treatment for MAC which was making me miserable. Since I...

Jerry, I would loved to run, but I am training for my first half-marathon in October. One step at a time :) I did run the Boomer Run to Breathe 10k in Central Park last month. Maybe in the future.....

Curious to know how many of you are running in this on July 20th in Central Park. I'm in.

I was diagnosed at age 41. I was pretty healthy when I was younger. Maybe a croupy kind of cough that my mother always thought sounded funny, but we never gave it a thought. I was very active in sports and exercise back then and that is still the case today. For a good decade before I was...

Coughing definitely does not help when it comes to bulging discs, especially if you have a certain weakness there. I had bulging disc issues from 2005 to 2007. It was very painful. I would periodically get very bad back spasms that would be paralyzing. Could hardly get out of bed and stand up...

My staph is resistant to Zithromax. They are using it along with two other meds to treat MAC.

I will be starting my treatment for MAC in just a couple of days and I wanted to get your experiences on how your treatment has gone or is going. What meds were you prescribed? (I will be taking Zithromax 600 mg Mon, Wed, Fri; Rifampin 600 mg daily; Ethambutal 1200 mg daily.) how well have you...

SoyaSauce, as it turns out they are going to start treating me for MAC. They talked to the experts in Denver and it was felt that it was time to treat the MAC. Thanks everyone for your help.