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  1. J

    How much do you weigh, how tall are you, and how old are you?

    Female Age: 17 Weight: 136lbs Height: 5ft 8
  2. J

    Visitation

    Why are they not aloud together? I know someone with two sons that have cf also and they all live together. Sure they have picked up each other bugs but they now live with the same bugs and are well managed living together :)
  3. J

    Enlarged spleen

    Hey guys, So have been having a lot of appointments back and forth with doctors at the moment and it's such a long story but basically I have cf and also scoliosis which is a curve in the spine...my back has gotten worse and really I should have had surgery on it by now but because I have an...
  4. J

    Porcelain veneers

    @jennywotherspoon no problem best of luck! :D
  5. J

    Porcelain veneers

    @jennywortherspoon Hey! Just wanted to let you know....I got it wrong my mum just told me haha! Sorry what I got done is called 'composite veneers' I think these would suit your daughter better because I didn't have to get my teeth filed down at all. The dentist basically paints on white veneers...
  6. J

    Hyperthyroidism

    Iv been having problems with overheating recently and it's a big change for me because normally I'm freezing all the time but now I get really hot when others are complaining of the cold! Doctor said if it persists it might be worth getting my thyroid checked so I think I might get this done...
  7. J

    Porcelain veneers

    Iv had them done! I'm 17 years old and from a young age I developed what's called 'pitted enamel' meaning that my teeth were very badly stained due to malnourishment. When I was 13 I got them done and it has been the best decision ever. My dentist that did them was brilliant :) before I was so...
  8. J

    Mutations

    Just been thinking about this....how are cf mutations ranked in severity does anyone know? Just curious as to which is the worst and the best :)
  9. J

    lung function has dropped seriously

    Sorry to hear he's not doing well :( If I were u if just go straight in and do the Iv antibiotics now instead of waiting around on orals to work.... I had a bad patch a few months ago and couldn't get myself better with orals so I was admitted for ivs and it got rid of everything...my cough...
  10. J

    OT piercing ears

    I really don't think it's possible for her to get sick from it....as long as she keeps them clean with salt water it should be good :) I'm 17 with ddf508 , I would be a real germ phobic and I have 7 piercings all together haha! Never had any problems. I think it would be nice to let her get them...
  11. J

    Help!

    Thanks everyone....not too sure if this is the best plan but phoned doctor this morning and she said that because my sputum has always been a little streaky and that that's my baseline it's no big deal so to continue with all treatments, even though I'm getting sputum that is all blood at the...
  12. J

    Help!

    @Gorf thanks for advice. Yes my blood would be streaky quite often anyways but now it's just all fresh blood, I would say about maybe a teaspoon at the most. I have pseudomonas also even though that hasn't being showing up the last few months chances are it's still there! @marisalynn thanks so...
  13. J

    Help!

    Hi! So to put a long story short I have only had iv antibiotics once and 3 weeks ago I was admitted for my second time because I was coughing up bloody sputum. Anyways everything is going well I feel great my lung function has gone from 54% to 61% but today my sputum is all blood again! This...
  14. J

    Barrel chest

    Thanks guys for the feedback....at least I'm not alone! :) it is really hard to find clothes and everything in trousers I'm size 8 normally and a lot of the time for tshirts etc I end up having to buy a size 14 or 16 sometimes 18 it's crazy!! Ino if I didn't have such a barrel chest I would look...
  15. J

    New, Like to talk to people

    Sure no problem :) if you want you can add me on Facebook too my names Aileen Henderson :)
  16. J

    New, Like to talk to people

    Maybe this would work because I take my creon differently and have no problems....I take them Depending on how many grams of fat are in the food. I take one creon for every 3 grams of fat (sounds complicated but it's not really :p) so for example if I had a chocolate bar that had 9grams of fat I...
  17. J

    New, Like to talk to people

    Heya I take albuterol...and sometime if I take to much it makes my heart beat faster and makes me shake...this normally means your taking to much so if you can cope with taking a smaller dose it may help :) Do you take any high calories milkshakes or anything? I take one called calshake and it's...
  18. J

    New, Like to talk to people

    Hey Natasha! I'm Aileen and I'm 17 also happy to help and talk to you :) Congratations on your engagement!!
  19. J

    Barrel chest

    May sound weird but I hear it's common in cf....Does anybody have a really big ribcage? I can't imagine it being as big a problem for guys but for girls it's awful! it really bothers me I'm 17 and it's impossible to find nice clothes/dresses etc and because I'm so skinny everywhere else my body...
  20. J

    Sputum colour

    So I'm having a hard time trying to get a good colour sputum at the moment as u can probably tell from all my comments on posts etc...I think it's good that people can talk to other people with cf on this because after all u don't really understand unless your dealing with it yourself right! :p...
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