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  1. J

    Any advice!?

    So iv had a headcold the past week and it got quite chesty the last 3 days or so. So yesterday I went in to get checked out and everything seemed ok oxygen etc and the doctor said my chest was clear and have me an antibiotic to use if I thought I was getting worse. I don't feel any worse but...
  2. J

    For you unsporty people

    Thanks everyone for all the feedback! Bought a set of hand weights today and ill try walking to start and build up to running....hopefully if I do it long enough ill grow to enjoy it! :)
  3. J

    Question about Tobi Pod Haler

    Hope it works out for you. Other than the hoarness and tightness which I also got from it! I think the podhaler is the best think ever because its so quick :) best thing to do is gargle salt water after each dose to stop residue building up in your throat :)
  4. J

    Question about Tobi Pod Haler

    I had the exact same problem and I do alot of singing so was a huge problem for me! Unfortunately I went back to nebulised tobi which still makes me hoarse but not as much as podhaler. I do month on tobi month on cayston and for me I found the hoarseness kicked in about the second week being on...
  5. J

    For you unsporty people

    Hey, So basically im wondering what you unsporty people do to keep fit? Iv decided that i need to get a grip and get my lung function up because i really am so unfit but I know I'm capable of being better :) I have a treadmill which use on and off but I need to train myself to be consistent with...
  6. J

    Tickly cough!

    Thanks Stephen! Ill definitely get some 2moro, still lying here coughing!
  7. J

    Tickly cough!

    Really!? Ill look into that thanks so much!
  8. J

    Tickly cough!

    Any of you ever experience really bad random tickly coughs that last for days? I get them ever so often where ill be up all night coughing my brains out and it's more annoying than anything else...I usually wait a day or two to see if it goes itself but end up giving in and going to get checked...
  9. J

    Tobi Pod-haler! How to use Tobi pod-haler and personal experience

    Loved Tobi podhaler but unfortunately it made me very tight towards the end of the month so iv switched back to nebulised Tobi! :(
  10. J

    Weight

    Hi, Im Aileen and I'm 17 years old and was just curious as to how you guys deal with gaining weight etc I'm finding it so hard at the moment to keep it up and doctors have mentioned peg feeding to me in the past but at the time I didn't like the idea of it. Now I'm beginning to think that it...
  11. J

    Help! Blue fingers

    Hi guys, Thanks so much for all your help :) basically I went back into the hospital and they checked my oxygen, lung function etc and everything was fine. The doctor said that blue fingers would be the last place to change colour if I had low oxygen and I didn't have blue lips or anything. The...
  12. J

    Facebook

    Thank you! Oh really :( ya hopefully there will soon be away around the problem so I can get fixed! and thank you so much ill be sending CDs out to people who want them so feel free to contact me on you tube (Aileen Henderson) if interested! How are you keeping hope your doing well :)
  13. J

    Help! Blue fingers

    Thanks I just made an appointment for the morning....figured its probably best not to ignore!
  14. J

    Help! Blue fingers

    Right now I'm quite worried. Iv had a bit of a cold the last few days and have been coughing during the night and now on just one hand the palm side of just my fingers look like there stained blue....looks like iv been holding something blue. I'm scared it could be something serious but find it...
  15. J

    Facebook

    Hi Pat! I'm doing well thankfully, iv only had IV antibiotics once so I'm not usually an inpatient although my lung function has always been around the high 50s. I was diagnosed at 3 years old and also when I was 10 I was diagnosed with scoliosis which is a curvature of the spine and that's...
  16. J

    Facebook

    Hi guys, Thought it would be cool to finally chat with other people with cf and help out etc :) I'm 17 years old with ddf508 and would be happy to talk to anyone, u can add me on Facebook my names Aileen Henderson :)
  17. J

    Hi I'm Casey

    Hi guys, I'd love to talk to other people around my age also :) You can add me on Facebook if you want to chat :) my name is Aileen Henderson and I'm 17 years old, hope your doing well :)
  18. J

    Bloating

    Ahhhhh I'm like this too, I hate it so much I look like I'm expecting triplets :p The whole top half of me looks weird because of big rib cage and then a huge tummy and a lot of the time it makes me so sad :( glad to see its not just me though! :)
  19. J

    Yup--laxatives/softeners etc reviews

    Hey Good idea! Not many people talk about this. I started having problems this year, although I would be using the toilet normally alot of times when I would eat I would feel full and that has sometimes left me gagging and feeling really really nauseous! Anyways I started taking senokot which...
  20. J

    Tummy problems!

    Thanks so much for your message! I suppose women can carry so much in such a small space and can have several babies inside them all at once! Hopefully it shouldn't be a problem :)
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