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  1. K

    CF Granddaughter: basic question

    If anyone is still reading this thread, please note: The Ambry test to order if you only wanted to screen for carrier status of the DF508 mutation would actually be "508 <i><b>Only</b></i>" because with their "508 First" test, if a carrier is negative for DF508, Ambry would automatically...
  2. K

    CF Granddaughter: basic question

    If anyone is still reading this thread, please note: <br /> <br />The Ambry test to order if you only wanted to screen for carrier status of the DF508 mutation would actually be "508 <i><b>Only</b></i>" because with their "508 First" test, if a carrier is negative for DF508, Ambry would...
  3. K

    CF Granddaughter: basic question

    Colleen - regarding testing yourselves - first, I think it is awesome that you would even think to do that. It can be a sensitive subject as extended family might be in denial and/or blissful ignorance. In our case it is easy for carrier testing because our DD has two copies of DF508 (the most...
  4. K

    CF Granddaughter: basic question

    Colleen - regarding testing yourselves - first, I think it is awesome that you would even think to do that. It can be a sensitive subject as extended family might be in denial and/or blissful ignorance. In our case it is easy for carrier testing because our DD has two copies of DF508 (the most...
  5. K

    CF Granddaughter: basic question

    Colleen - regarding testing yourselves - first, I think it is awesome that you would even think to do that. It can be a sensitive subject as extended family might be in denial and/or blissful ignorance. <br /> <br />In our case it is easy for carrier testing because our DD has two copies of...
  6. K

    CF Granddaughter: basic question

    Hello and welcome to the site. I would imagine that you and your family are overwhelmed. There is a lot of good information here and at CFF.org. Please be careful of other things you might read on the web as some of the information can be out of date. The term carrier means that a person has...
  7. K

    CF Granddaughter: basic question

    Hello and welcome to the site. I would imagine that you and your family are overwhelmed. There is a lot of good information here and at CFF.org. Please be careful of other things you might read on the web as some of the information can be out of date. The term carrier means that a person has...
  8. K

    CF Granddaughter: basic question

    Hello and welcome to the site. I would imagine that you and your family are overwhelmed. There is a lot of good information here and at CFF.org. Please be careful of other things you might read on the web as some of the information can be out of date. <br /> <br />The term carrier means that...
  9. K

    First Culture of Pseudomonas?

    I know, it should be okay to trust our docs! <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is good to be as informed as possible, but that can lead to frustration for you and also for your doc if you question them. I admire you for seeking additional information. Maybe...
  10. K

    First Culture of Pseudomonas?

    I know, it should be okay to trust our docs! <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is good to be as informed as possible, but that can lead to frustration for you and also for your doc if you question them. I admire you for seeking additional information. Maybe...
  11. K

    First Culture of Pseudomonas?

    I know, it should be okay to trust our docs! <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />It is good to be as informed as possible, but that can lead to frustration for you and also for your doc if you question them. I admire you for seeking additional...
  12. K

    First Culture of Pseudomonas?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SadiesMom</b></i> The doctor said that they've been finding that 2 months in a row of Tobi works just as effectively as a year.</end quote></div> I have not heard of this, and I wish I knew if this was an example of different...
  13. K

    First Culture of Pseudomonas?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SadiesMom</b></i> The doctor said that they've been finding that 2 months in a row of Tobi works just as effectively as a year.</end quote> I have not heard of this, and I wish I knew if this was an example of different centers with...
  14. K

    First Culture of Pseudomonas?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SadiesMom</b></i> <br /> <br />The doctor said that they've been finding that 2 months in a row of Tobi works just as effectively as a year.</end quote> <br /> <br />I have not heard of this, and I wish I knew if this was an example...
  15. K

    Need some symptom advice-what is this??

    I don't have CF, but what you are describing is exactly how I felt when I figured out I had hypothyroidism. You might have your TSH checked. I hope you figure it out!
  16. K

    Need some symptom advice-what is this??

    I don't have CF, but what you are describing is exactly how I felt when I figured out I had hypothyroidism. You might have your TSH checked. I hope you figure it out!
  17. K

    Need some symptom advice-what is this??

    I don't have CF, but what you are describing is exactly how I felt when I figured out I had hypothyroidism. You might have your TSH checked. <br /> <br />I hope you figure it out!
  18. K

    First Culture of Pseudomonas?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SadiesMom</b></i> Thank you both for your responses. You have helped to calm some of my fears. This is her first CF related bug, so it's really hitting home for us. Plus everything I read on the internet makes it really...
  19. K

    First Culture of Pseudomonas?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SadiesMom</b></i> Thank you both for your responses. You have helped to calm some of my fears. This is her first CF related bug, so it's really hitting home for us. Plus everything I read on the internet makes it really...
  20. K

    First Culture of Pseudomonas?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SadiesMom</b></i> <br /> <br />Thank you both for your responses. You have helped to calm some of my fears. This is her first CF related bug, so it's really hitting home for us. Plus everything I read on the internet makes it...
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