Search results

  1. K

    Study - PTSD in parents of CF'ers

    As always, it is so gratifying to read your responses and a huge relief to know I'm not alone. I can relate to every single thing that has been said. <br /> <br />The fact that one of the study's authors has a daughter with CF - perhaps he himself suffers or has observed other parents...
  2. K

    Study - PTSD in parents of CF'ers

    I found this fascinating. If you've ever had one of those days when you can't shake the blues about CF, this study may shed some light on why. I'm not an expert on reading and analyzing these but it seemed pretty thorough. One of the study's authors has a child with CF. It was done on...
  3. K

    Study - PTSD in parents of CF'ers

    I found this fascinating. If you've ever had one of those days when you can't shake the blues about CF, this study may shed some light on why. I'm not an expert on reading and analyzing these but it seemed pretty thorough. One of the study's authors has a child with CF. It was done on...
  4. K

    Study - PTSD in parents of CF'ers

    I found this fascinating. If you've ever had one of those days when you can't shake the blues about CF, this study may shed some light on why. <br /> <br />I'm not an expert on reading and analyzing these but it seemed pretty thorough. One of the study's authors has a child with CF. It was...
  5. K

    2010 NYC Marathon...less than a year post TX

    Congratulations, thank you for raising awareness, have fun, and <b>Good Luck!</b> <img src="i/expressions/sun.gif" border="0">
  6. K

    2010 NYC Marathon...less than a year post TX

    Congratulations, thank you for raising awareness, have fun, and <b>Good Luck!</b> <img src="i/expressions/sun.gif" border="0">
  7. K

    2010 NYC Marathon...less than a year post TX

    Congratulations, thank you for raising awareness, have fun, and <b>Good Luck!</b> <img src="i/expressions/sun.gif" border="0">
  8. K

    Genetic Test Result Questions

    Hello - I am glad you found the mutations but I'm sorry it is a positive diagnosis. Regarding the C.3140-26A>G, it has a legacy name of 3272-26A>G. You might try googling the legacy name. For example, I found this article indicating that is possibly a "mild" disease-causing mutation: <a...
  9. K

    Genetic Test Result Questions

    Hello - I am glad you found the mutations but I'm sorry it is a positive diagnosis. Regarding the C.3140-26A>G, it has a legacy name of 3272-26A>G. You might try googling the legacy name. For example, I found this article indicating that is possibly a "mild" disease-causing mutation: <a...
  10. K

    Genetic Test Result Questions

    Hello - I am glad you found the mutations but I'm sorry it is a positive diagnosis. <br /> <br />Regarding the C.3140-26A>G, it has a legacy name of 3272-26A>G. You might try googling the legacy name. For example, I found this article indicating that is possibly a "mild" disease-causing...
  11. K

    Am I a fool?

    I'll chime in that I completely understand and share your concerns over PPI's. Our DD is on Prevacid. I know from trial and error that it made a huge difference several years ago. I have become complacent since then so I am glad for your post and everyone's responses. We are in the middle...
  12. K

    Am I a fool?

    I'll chime in that I completely understand and share your concerns over PPI's. Our DD is on Prevacid. I know from trial and error that it made a huge difference several years ago. I have become complacent since then so I am glad for your post and everyone's responses. We are in the middle...
  13. K

    Am I a fool?

    I'll chime in that I completely understand and share your concerns over PPI's. Our DD is on Prevacid. I know from trial and error that it made a huge difference several years ago. I have become complacent since then so I am glad for your post and everyone's responses. <br /> <br />We are in...
  14. K

    Pulmozyme or Hypertonic Saline

    I have never heard of the "different kind of mucus" idea. The two meds work differently to thin mucus. To me, mucus is mucus so I don't know about having to choose one over the other unless one is too irritating. HTS, from cysticfibrosis.org.au: When Hypertonic Saline is inhaled into the...
  15. K

    Pulmozyme or Hypertonic Saline

    I have never heard of the "different kind of mucus" idea. The two meds work differently to thin mucus. To me, mucus is mucus so I don't know about having to choose one over the other unless one is too irritating. HTS, from cysticfibrosis.org.au: When Hypertonic Saline is inhaled into the...
  16. K

    Pulmozyme or Hypertonic Saline

    I have never heard of the "different kind of mucus" idea. The two meds work differently to thin mucus. To me, mucus is mucus so I don't know about having to choose one over the other unless one is too irritating. <br /> <br />HTS, from cysticfibrosis.org.au: <br />When Hypertonic Saline is...
  17. K

    Stomache ache

    The school also called me today that DD had a tummy ache, a low-grade fever, and that a stomach bug was going around. So here we sit at home. She is fine. I think their thermometer is broken! But since they had also called me yesterday (she stuck that one out), I decided to go ahead and get...
  18. K

    Stomache ache

    The school also called me today that DD had a tummy ache, a low-grade fever, and that a stomach bug was going around. So here we sit at home. She is fine. I think their thermometer is broken! But since they had also called me yesterday (she stuck that one out), I decided to go ahead and get...
  19. K

    Stomache ache

    The school also called me today that DD had a tummy ache, a low-grade fever, and that a stomach bug was going around. So here we sit at home. She is fine. I think their thermometer is broken! <br /> <br />But since they had also called me yesterday (she stuck that one out), I decided to go...
  20. K

    Is this normal at a yearly checkup?

    Our DD had a rectal prolapse before dx at age 3. The only time a rectal exam has been done was right after the prolapse, at the pediatrician's. This was still before the CF dx. There has never been a rectal exam done at any of the CF visits. When we took her to a pediatric GI for stomach...
Top