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  1. K

    Not CF Related -- Chocolate Salt

    "salt cookies"! I will have to try that for my pretzel-stick-licking daughter. You know, the Chocolate Salt sounds pretty good. I will look forward to your results and a recipe <img src="i/expressions/face-icon-small-happy.gif" border="0">
  2. K

    Not CF Related -- Chocolate Salt

    "salt cookies"! I will have to try that for my pretzel-stick-licking daughter. You know, the Chocolate Salt sounds pretty good. I will look forward to your results and a recipe <img src="i/expressions/face-icon-small-happy.gif" border="0">
  3. K

    Not CF Related -- Chocolate Salt

    "salt cookies"! I will have to try that for my pretzel-stick-licking daughter. <br /> <br />You know, the Chocolate Salt sounds pretty good. I will look forward to your results and a recipe <img src="i/expressions/face-icon-small-happy.gif" border="0">
  4. K

    Question

    I used to hope that we could get off TOBI but even though she's had clear cultures for over three years we are still on it and I've forgotten to question it anymore, if that makes sense. I've moved on to other things to obsess over, LOL! So where is TIP (tobramycin inhalation powder) and why...
  5. K

    Question

    I used to hope that we could get off TOBI but even though she's had clear cultures for over three years we are still on it and I've forgotten to question it anymore, if that makes sense. I've moved on to other things to obsess over, LOL! So where is TIP (tobramycin inhalation powder) and why...
  6. K

    Question

    I used to hope that we could get off TOBI but even though she's had clear cultures for over three years we are still on it and I've forgotten to question it anymore, if that makes sense. I've moved on to other things to obsess over, LOL! <br /> <br />So where is TIP (tobramycin inhalation...
  7. K

    First Culture of Pseudomonas?

    Our daughter cultured psuedo on diagnosis at age 3. She was put on Cipro (I think for 6 weeks?) and also two back-to-back 28 day courses of Tobi. She has been on Tobi 28 on 28 off ever since and she is now 7. All of her cultures have been clear since. So yes, this sounds normal and yes, you...
  8. K

    First Culture of Pseudomonas?

    Our daughter cultured psuedo on diagnosis at age 3. She was put on Cipro (I think for 6 weeks?) and also two back-to-back 28 day courses of Tobi. She has been on Tobi 28 on 28 off ever since and she is now 7. All of her cultures have been clear since. So yes, this sounds normal and yes, you...
  9. K

    First Culture of Pseudomonas?

    Our daughter cultured psuedo on diagnosis at age 3. She was put on Cipro (I think for 6 weeks?) and also two back-to-back 28 day courses of Tobi. She has been on Tobi 28 on 28 off ever since and she is now 7. All of her cultures have been clear since. So yes, this sounds normal and yes, you...
  10. K

    Daughter in hospital

    We don't have experience yet with being in for a tune-up. However we have had other medical concerns/emergencies with DD and yes, tensions can run high. You are both trying to cope, and are too strained to have the emotional energy to prop each other up. I can just picture it - you have...
  11. K

    Daughter in hospital

    We don't have experience yet with being in for a tune-up. However we have had other medical concerns/emergencies with DD and yes, tensions can run high. You are both trying to cope, and are too strained to have the emotional energy to prop each other up. I can just picture it - you have...
  12. K

    Daughter in hospital

    We don't have experience yet with being in for a tune-up. However we have had other medical concerns/emergencies with DD and yes, tensions can run high. You are both trying to cope, and are too strained to have the emotional energy to prop each other up. <br /> <br />I can just picture it -...
  13. K

    Miralax Question

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> My daughter has an order for miralax prn (when needed). We only use it when she is having issues, and haven't used it in over a year. So no I don't think you "have" to. If she's stooling normally and not having...
  14. K

    Miralax Question

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> My daughter has an order for miralax prn (when needed). We only use it when she is having issues, and haven't used it in over a year. So no I don't think you "have" to. If she's stooling normally and not having...
  15. K

    Miralax Question

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> <br /> <br />My daughter has an order for miralax prn (when needed). We only use it when she is having issues, and haven't used it in over a year. So no I don't think you "have" to. If she's stooling normally...
  16. K

    A final thank you!!!...

    Thank you for your kind words and for posting your results. Best wishes and good health to you and your daughter.
  17. K

    A final thank you!!!...

    Thank you for your kind words and for posting your results. Best wishes and good health to you and your daughter.
  18. K

    A final thank you!!!...

    Thank you for your kind words and for posting your results. Best wishes and good health to you and your daughter.
  19. K

    Study - PTSD in parents of CF'ers

    As always, it is so gratifying to read your responses and a huge relief to know I'm not alone. I can relate to every single thing that has been said. The fact that one of the study's authors has a daughter with CF - perhaps he himself suffers or has observed other parents suffering? It has...
  20. K

    Study - PTSD in parents of CF'ers

    As always, it is so gratifying to read your responses and a huge relief to know I'm not alone. I can relate to every single thing that has been said. The fact that one of the study's authors has a daughter with CF - perhaps he himself suffers or has observed other parents suffering? It has...
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