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  1. M

    Considering a second child...What did you do?

    My husband and I had no idea we were carriers and were shocked when our son, our only child was diagnosed with CF at three weeks of age. He will be turning two in a few days and is in really good health now. We decided soon after his birth that we would not plan on having any more children. If I...
  2. M

    Considering a second child...What did you do?

    <p>My husband and I had no idea we were carriers and were shocked when our son, our only child was diagnosed with CF at three weeks of age. He will be turning two in a few days and is in really good health now. We decided soon after his birth that we would not plan on having any more children...
  3. M

    Feeding tubes

    Hello, I am sorry you are facing this situation.  We went through a similar time with our son, Aidan, now 23 months.  I would encourage you to get at least two opinions (from accredited CF centers) before making a decision.  From about the time Aidan was 6 months old to around 14 months old, we...
  4. M

    Feeding tubes

    Hello, I am sorry you are facing this situation. We went through a similar time with our son, Aidan, now 23 months. I would encourage you to get at least two opinions (from accredited CF centers) before making a decision. From about the time Aidan was 6 months old to around 14 months old, we...
  5. M

    Feeding tubes

    <p>Hello, <p>I am sorry you are facing this situation. We went through a similar time with our son, Aidan, now 23 months. I would encourage you to get at least two opinions (from accredited CF centers) before making a decision. From about the time Aidan was 6 months old to around 14 months old...
  6. M

    What age did your child begin the vest?

    Hello all, We are having a really difficult time doing cpt with Aidan, our active 21-month-old. We've tried getting him to watch DVDs he enjoys during treatments, singing, numerous things. It's a huge battle and wrestling match 3 times a day. When I asked about getting the vest at our last...
  7. M

    What age did your child begin the vest?

    Hello all, We are having a really difficult time doing cpt with Aidan, our active 21-month-old. We've tried getting him to watch DVDs he enjoys during treatments, singing, numerous things. It's a huge battle and wrestling match 3 times a day. When I asked about getting the vest at our last...
  8. M

    What age did your child begin the vest?

    Hello all, <br /> <br />We are having a really difficult time doing cpt with Aidan, our active 21-month-old. We've tried getting him to watch DVDs he enjoys during treatments, singing, numerous things. It's a huge battle and wrestling match 3 times a day. When I asked about getting the vest...
  9. M

    Looking for questions to ask and for friends

    Congratulations on your new baby. I am sorry to hear about his diagnosis. It is overwhelming at first but will get easier with time, I promise. I agree with others that the primary focus in the beginning is likely to be nutrition. I would encourage you to dialogue openly with the...
  10. M

    Looking for questions to ask and for friends

    Congratulations on your new baby. I am sorry to hear about his diagnosis. It is overwhelming at first but will get easier with time, I promise. I agree with others that the primary focus in the beginning is likely to be nutrition. I would encourage you to dialogue openly with the...
  11. M

    Looking for questions to ask and for friends

    Congratulations on your new baby. I am sorry to hear about his diagnosis. It is overwhelming at first but will get easier with time, I promise. <br /> <br />I agree with others that the primary focus in the beginning is likely to be nutrition. I would encourage you to dialogue openly with...
  12. M

    sedation for a PICC line

    I am so sorry that your daughter (and you) had to endure that! It is unacceptable, period. There is no logical reason why she should not have been sedated. You know what works/what doesn't for your child and they did not listen to you. I echo what others have said; write a letter. It makes...
  13. M

    sedation for a PICC line

    I am so sorry that your daughter (and you) had to endure that! It is unacceptable, period. There is no logical reason why she should not have been sedated. You know what works/what doesn't for your child and they did not listen to you. I echo what others have said; write a letter. It makes...
  14. M

    sedation for a PICC line

    I am so sorry that your daughter (and you) had to endure that! It is unacceptable, period. There is no logical reason why she should not have been sedated. You know what works/what doesn't for your child and they did not listen to you. I echo what others have said; write a letter. It makes...
  15. M

    How to handle it

    "Grandma" comes over every Sunday afternoon for a weekly visit and stays at our home all afternoon--which is great. The problem is, now that cold and flu season is here, she has arrived ready to visit even when she is sick (states that she has been sick for several days and coughs throughout...
  16. M

    How to handle it

    "Grandma" comes over every Sunday afternoon for a weekly visit and stays at our home all afternoon--which is great. The problem is, now that cold and flu season is here, she has arrived ready to visit even when she is sick (states that she has been sick for several days and coughs throughout...
  17. M

    How to handle it

    "Grandma" comes over every Sunday afternoon for a weekly visit and stays at our home all afternoon--which is great. The problem is, now that cold and flu season is here, she has arrived ready to visit even when she is sick (states that she has been sick for several days and coughs throughout...
  18. M

    Thanksgiving Blues

    You are absolutely doing the right thing. I know it's frustrating and difficult! Good luck and whatever happens, I hope you have a good Thanksgiving holiday.....
  19. M

    Thanksgiving Blues

    You are absolutely doing the right thing. I know it's frustrating and difficult! Good luck and whatever happens, I hope you have a good Thanksgiving holiday.....
  20. M

    Thanksgiving Blues

    You are absolutely doing the right thing. I know it's frustrating and difficult! Good luck and whatever happens, I hope you have a good Thanksgiving holiday.....
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